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    Last Updated: 10/30/2025

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    MediFind found 6 doctor with experience in RASopathies near Kalamazoo, MI. Of these, 6 are Experienced.

    Location
    LocationClose
    6 providers found
      Joseph D. Fakhoury
      Experienced in RASopathies
      Experienced in RASopathies
      1000 Oakland Dr, 
      Kalamazoo, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Fakhoury is a Pediatrics provider in Kalamazoo, Michigan. Dr. Fakhoury is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top area of expertise is RASopathies. Dr. Fakhoury is currently accepting new patients.

      Experienced in RASopathies
      Neurosurgery | Pediatrics
      Experienced in RASopathies
      Neurosurgery | Pediatrics
      601 John St Ste M-124, 
      Kalamazoo, MI 
       (0.4 miles away)
      Languages Spoken:
      English

      Casey Madura is a Neurosurgery specialist and a Pediatrics provider in Kalamazoo, Michigan. Dr. Madura is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 2, Chiari Malformation Type 1, and Hydrocephalus.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in RASopathies
      Pediatric Gastroenterology | Pediatrics
      Experienced in RASopathies
      Pediatric Gastroenterology | Pediatrics
      601 John St, Suite M351, 
      Kalamazoo, MI 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Patrick Jones is a Pediatric Gastroenterologist and a Pediatrics provider in Kalamazoo, Michigan. Dr. Jones is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Biliary Dyskinesia, Cardiofaciocutaneous Syndrome, Malnutrition, and RASopathies. Dr. Jones is currently accepting new patients.

      Learn about our expert tiers
      Experienced in RASopathies
      Experienced in RASopathies
      601 John St Ste M-124, 
      Kalamazoo, MI 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Petronio is a Neurosurgery provider in Kalamazoo, Michigan. Dr. Petronio is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 1, Brain Herniation, and Hydrocephalus. Dr. Petronio is currently accepting new patients.

      Experienced in RASopathies
      Pediatric Neurology | Developmental and Behavioral Pediatrics | Neurology
      Experienced in RASopathies
      Pediatric Neurology | Developmental and Behavioral Pediatrics | Neurology
      601 John St Ste M-124, 
      Kalamazoo, MI 
       (0.4 miles away)
      Languages Spoken:
      English

      Robin Cook is a Pediatric Neurologist and a Developmental and Behavioral Pediatrics provider in Kalamazoo, Michigan. Dr. Cook is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Absence Seizure, Seizures, Partial Seizure, and Epilepsy Juvenile Absence.

      Experienced in RASopathies
      Ophthalmology
      Experienced in RASopathies
      Ophthalmology

      Kalamazoo Ophthalmology PC

      3412 W Centre Ave, 
      Portage, MI 
       (6.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Liesel Zima is an Ophthalmologist in Portage, Michigan. Dr. Zima is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Cataract, Optic Atrophy Type 1, Optic Nerve Atrophy, and Meibomianitis. Dr. Zima is currently accepting new patients.

      To see more doctors, please expand your search radius or view related conditions below.

      Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Showing 1-6 of 6

      Last Updated: 10/30/2025

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor near Kalamazoo, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor near Kalamazoo, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors near Kalamazoo, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors near Kalamazoo, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor near Kalamazoo, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor near Kalamazoo, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors near Kalamazoo, MI?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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