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    Last Updated: 10/30/2025

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    MediFind found 61 doctor with experience in RASopathies near Oregon, US. Of these, 58 are Experienced and 3 are Advanced.

    Location
    LocationClose
    61 providers found
      Experienced in RASopathies
      General Surgery
      Experienced in RASopathies
      General Surgery

      University Professional Services

      15700 Sw Greystone Ct, 
      Beaverton, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Brett Sheppard is a General Surgeon in Beaverton, Oregon. Dr. Sheppard is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pancreatic Cancer, Familial Pancreatic Cancer, Ampullary Cancer, Pancreatectomy, and Splenectomy. Dr. Sheppard is currently accepting new patients.

      Experienced in RASopathies
      Cardiology | Pediatrics
      Experienced in RASopathies
      Cardiology | Pediatrics
      9427 Southwest Barnes Road, Suite 598, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Marc Legras is a Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in RASopathies
      Medical Genetics | Pediatrics
      Advanced in RASopathies
      Medical Genetics | Pediatrics
      2801 N Gantenbein Ave Ste 2225, 
      Portland, OR 
      Languages Spoken:
      English

      Andrea Petersen is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Petersen is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 2, Cardiomyopathy Hypogonadism Metabolic Anomalies, Nijmegen Breakage Syndrome, and Bosma Arhinia Microphthalmia Syndrome.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Advanced in RASopathies
      Advanced in RASopathies
      9135 Southwest Barnes Road, Suite 461, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Prakash Ambady is a Neurologist in Portland, Oregon. Dr. Ambady is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor. Dr. Ambady is currently accepting new patients.

      Advanced in RASopathies
      Neurosurgery
      Advanced in RASopathies
      Neurosurgery

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English
      Offers Telehealth

      Kim Burchiel is a Neurosurgery provider in Portland, Oregon. Dr. Burchiel is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Trigeminal Neuralgia, Essential Tremor, Parkinson's Disease, Deep Brain Stimulation, and Microvascular Decompression.

      Experienced in RASopathies
      Radiology | Neuroradiology
      Experienced in RASopathies
      Radiology | Neuroradiology

      University Professional Services

      15700 Sw Greystone Ct, 
      Beaverton, OR 
      Languages Spoken:
      English

      Jeffrey Pollock is a Radiologist and a Neuroradiologist in Beaverton, Oregon. Dr. Pollock is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Brain Aneurysm, Cerebral Arteriovenous Malformation, and Stroke.

      Experienced in RASopathies
      Neurosurgery
      Experienced in RASopathies
      Neurosurgery

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English, Turkish
      Accepting New Patients
      Offers Telehealth

      Aclan Dogan is a Neurosurgery provider in Portland, Oregon. Dr. Dogan is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Meningioma, Awake Craniotomy, and Thrombectomy. Dr. Dogan is currently accepting new patients.

      Experienced in RASopathies
      Radiology | Pediatric Radiology
      Experienced in RASopathies
      Radiology | Pediatric Radiology

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English

      Andrew Phelps is a Radiologist and a Pediatric Radiologist in Portland, Oregon. Dr. Phelps is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Scoliosis, Osteopoikilosis, Kyphomelic Dysplasia, and Cartilage-Hair Hypoplasia.

      Experienced in RASopathies
      Experienced in RASopathies

      Grande Ronde Hospital Inc

      900 Sunset Dr, 
      La Grande, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Rodrigo Lim is a Neurologist in La Grande, Oregon. Dr. Lim is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Autosomal Dominant Partial Epilepsy with Auditory Features, Hereditary Sensory and Autonomic Neuropathy Type 2, Infantile Axonal Neuropathy, and Congenital Insensitivity to Pain with Anhidrosis. Dr. Lim is currently accepting new patients.

      Experienced in RASopathies
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in RASopathies
      Pediatric Cardiology | Pediatrics | Cardiology

      Pediatric Cardiology Center Of Oregon PC

      300 N Graham St, Suite 250, 
      Portland, OR 
      Languages Spoken:
      English, Hindi, Tamil, Urdu
      Accepting New Patients
      Offers Telehealth

      Margie Tucker is a Pediatric Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Tucker is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Patent Foramen Ovale Repair. Dr. Tucker is currently accepting new patients.

      Experienced in RASopathies
      Physician Assistant
      Experienced in RASopathies
      Physician Assistant

      University Professional Services

      15700 Sw Greystone Ct, 
      Beaverton, OR 
      Languages Spoken:
      English
      Offers Telehealth

      Antonia Gragg is a Physician Assistant in Beaverton, Oregon. Ms. Gragg is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Hereditary Ataxia, Neurofibromatosis, and Legius Syndrome.

      Experienced in RASopathies
      Ophthalmology
      Experienced in RASopathies
      Ophthalmology
      11086 Southeast Oak Street, 
      Milwaukie, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Charles Bock is an Ophthalmologist in Milwaukie, Oregon. Dr. Bock is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Strabismus, Cataract, Presbyopia, and Esotropia. Dr. Bock is currently accepting new patients.

      Experienced in RASopathies
      Oncology | Neurosurgery
      Experienced in RASopathies
      Oncology | Neurosurgery
      9155 Southwest Barnes Road, Suite 440, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Pankaj Gore is an Oncologist and a Neurosurgery provider in Portland, Oregon. Dr. Gore is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pituitary Tumor, Meningioma, Apoplexy, Balloon Sinuplasty, and Awake Craniotomy. Dr. Gore is currently accepting new patients.

      Experienced in RASopathies
      Experienced in RASopathies

      University Professional Services

      3303 S Bond Ave, 
      Portland, OR 
      Languages Spoken:
      English

      Alice Fung is a Radiologist in Portland, Oregon. Dr. Fung is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Undifferentiated Pleomorphic Sarcoma, Visceromegaly, Neuroendocrine Tumor, and Rhabdomyosarcoma Embryonal.

      Experienced in RASopathies
      Pediatric Cardiology | Pediatrics
      Experienced in RASopathies
      Pediatric Cardiology | Pediatrics
      300 N Graham St Ste 250, 
      Portland, OR 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Alisha Floyd is a Pediatric Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Floyd is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Bicuspid Aortic Valve, and Cor Triatriatum. Dr. Floyd is currently accepting new patients.

      Experienced in RASopathies
      Orthopedics | Pediatric Orthopedics
      Experienced in RASopathies
      Orthopedics | Pediatric Orthopedics
      9135 Southwest Barnes Road, Suite 763, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Heather Kong is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Kong is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Clubfoot, Beukes Familial Hip Dysplasia, Knock Knees, and Meningococcemia. Dr. Kong is currently accepting new patients.

      Experienced in RASopathies
      Dermatology
      Experienced in RASopathies
      Dermatology
      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English

      Alfons Krol is a Dermatologist in Portland, Oregon. Dr. Krol is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Nijmegen Breakage Syndrome, and Clouston Syndrome.

      Experienced in RASopathies
      Medical Genetics
      Experienced in RASopathies
      Medical Genetics

      Legacy Good Samaritan Hospital And Medical Center

      1040 Nw 22nd Ave, Suite 30, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dana Simpson is a Medical Genetics provider in Portland, Oregon. Dr. Simpson is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Incontinentia Pigmenti, Increased Head Circumference, Miller-Dieker Syndrome, and Smith-Magenis Syndrome. Dr. Simpson is currently accepting new patients.

      Experienced in RASopathies
      Family Medicine
      Experienced in RASopathies
      Family Medicine

      Wallowa County Health Care District

      601 Medical Pkwy, 
      Enterprise, OR 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Elizabeth Powers is a primary care provider, practicing in Family Medicine in Enterprise, Oregon. Dr. Powers is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Gonococcal Arthritis, Sciatica, Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), and Endoscopy. Dr. Powers is currently accepting new patients.

      Experienced in RASopathies
      Ophthalmology
      Experienced in RASopathies
      Ophthalmology

      Eye Health Northwest PC

      1955 Nw Northrup St, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Jocelyn Lam is an Ophthalmologist in Portland, Oregon. Dr. Lam is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Strabismus, Amblyopia, Cataract, and Presbyopia. Dr. Lam is currently accepting new patients.

      Showing 1-20 of 61

      Last Updated: 10/30/2025

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor in Oregon, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor in Oregon, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors in Oregon, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors in Oregon, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor in Oregon, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor in Oregon, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors in Oregon, US?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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