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    Last Updated: 10/30/2025

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    MediFind found 51 doctor with experience in RASopathies near Portland, OR. Of these, 48 are Experienced and 3 are Advanced.

    Location
    LocationClose
    51 providers found
      Experienced in RASopathies
      Cardiology | Pediatrics
      Experienced in RASopathies
      Cardiology | Pediatrics
      9427 Southwest Barnes Road, Suite 598, 
      Portland, OR 
       (4.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Marc Legras is a Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

      Experienced in RASopathies
      General Surgery
      Experienced in RASopathies
      General Surgery

      University Professional Services

      15700 Sw Greystone Ct, 
      Beaverton, OR 
       (7.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Brett Sheppard is a General Surgeon in Beaverton, Oregon. Dr. Sheppard is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pancreatic Cancer, Familial Pancreatic Cancer, Ampullary Cancer, Pancreatectomy, and Splenectomy. Dr. Sheppard is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in RASopathies
      Neurosurgery
      Advanced in RASopathies
      Neurosurgery

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Kim Burchiel is a Neurosurgery provider in Portland, Oregon. Dr. Burchiel is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Trigeminal Neuralgia, Essential Tremor, Parkinson's Disease, Deep Brain Stimulation, and Microvascular Decompression.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Advanced in RASopathies
      Medical Genetics | Pediatrics
      Advanced in RASopathies
      Medical Genetics | Pediatrics
      2801 N Gantenbein Ave Ste 2225, 
      Portland, OR 
       (2.0 miles away)
      Languages Spoken:
      English

      Andrea Petersen is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Petersen is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 2, Cardiomyopathy Hypogonadism Metabolic Anomalies, Nijmegen Breakage Syndrome, and Bosma Arhinia Microphthalmia Syndrome.

      Advanced in RASopathies
      Advanced in RASopathies
      9135 Southwest Barnes Road, Suite 461, 
      Portland, OR 
       (4.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Prakash Ambady is a Neurologist in Portland, Oregon. Dr. Ambady is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor. Dr. Ambady is currently accepting new patients.

      Experienced in RASopathies
      Experienced in RASopathies
      3101 Sw Sam Jackson Park Road, 
      Portland, OR 
       (1.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Michelle Welborn is an Orthopedics provider in Portland, Oregon. Dr. Welborn is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Scoliosis, Kyphosis, Collins Pope Syndrome, Osteotomy, and Spinal Fusion. Dr. Welborn is currently accepting new patients.

      Experienced in RASopathies
      Pediatric Orthopedics | Orthopedics
      Experienced in RASopathies
      Pediatric Orthopedics | Orthopedics
      3101 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Bouton is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Bouton is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Scoliosis, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Kyphosis, and Spinal Fusion. Dr. Bouton is currently accepting new patients.

      Experienced in RASopathies
      Pediatric Orthopedics | Orthopedics
      Experienced in RASopathies
      Pediatric Orthopedics | Orthopedics
      3101 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Ellen Raney is a Pediatric Orthopedics specialist and an Orthopedics provider in Portland, Oregon. Dr. Raney is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Arthrogryposis Multiplex Congenita, Congenital Contractures, Clubfoot, Osteogenesis Imperfecta, and Osteotomy. Dr. Raney is currently accepting new patients.

      Experienced in RASopathies
      Experienced in RASopathies

      University Professional Services

      3303 S Bond Ave, 
      Portland, OR 
       (1.2 miles away)
      Languages Spoken:
      English

      Alice Fung is a Radiologist in Portland, Oregon. Dr. Fung is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Undifferentiated Pleomorphic Sarcoma, Visceromegaly, Neuroendocrine Tumor, and Rhabdomyosarcoma Embryonal.

      Experienced in RASopathies
      Hematology Oncology | Hematology | Oncology
      Experienced in RASopathies
      Hematology Oncology | Hematology | Oncology

      University Professional Services

      3303 S Bond Ave, 
      Portland, OR 
       (1.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Heinrich is a Hematologist Oncology specialist and a Hematologist in Portland, Oregon. Dr. Heinrich is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Gastrointestinal Stromal Tumor, Chronic Myelogenous Leukemia (CML), Undifferentiated Pleomorphic Sarcoma, and Mesenchymoma. Dr. Heinrich is currently accepting new patients.

      Experienced in RASopathies
      Neurosurgery
      Experienced in RASopathies
      Neurosurgery

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English, Turkish
      Accepting New Patients
      Offers Telehealth

      Aclan Dogan is a Neurosurgery provider in Portland, Oregon. Dr. Dogan is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Meningioma, Awake Craniotomy, and Thrombectomy. Dr. Dogan is currently accepting new patients.

      Experienced in RASopathies
      Radiology | Pediatric Radiology
      Experienced in RASopathies
      Radiology | Pediatric Radiology

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English

      Andrew Phelps is a Radiologist and a Pediatric Radiologist in Portland, Oregon. Dr. Phelps is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Scoliosis, Osteopoikilosis, Kyphomelic Dysplasia, and Cartilage-Hair Hypoplasia.

      Experienced in RASopathies
      Dermatology
      Experienced in RASopathies
      Dermatology
      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English

      Alfons Krol is a Dermatologist in Portland, Oregon. Dr. Krol is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Nijmegen Breakage Syndrome, and Clouston Syndrome.

      Experienced in RASopathies
      Intensive Care Medicine | Pediatrics
      Experienced in RASopathies
      Intensive Care Medicine | Pediatrics

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English

      Nadine Straka is an Intensive Care Medicine specialist and a Pediatrics provider in Portland, Oregon. Dr. Straka is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Tracheal Agenesis, RASopathies, Multiple Epiphyseal Dysplasia, and Arteriovenous Malformation.

      Experienced in RASopathies
      Pediatric Neurology | Pediatrics
      Experienced in RASopathies
      Pediatric Neurology | Pediatrics

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Jenny Wilson is a Pediatric Neurologist and a Pediatrics provider in Portland, Oregon. Dr. Wilson has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Hereditary Spastic Paraparesis, Spastic Paraplegia Type 7, Aphantasia, and Wolf-Hirschhorn Syndrome.

      Experienced in RASopathies
      Family Medicine
      Experienced in RASopathies
      Family Medicine

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Emily Myers is a primary care provider, practicing in Family Medicine in Portland, Oregon. Dr. Myers is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Familial Colorectal Cancer, Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Gastrostomy, and Nephrectomy. Dr. Myers is currently accepting new patients.

      Experienced in RASopathies
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      Experienced in RASopathies
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English

      Brooke Su-Velez is a Pediatric Otolaryngologist and a Pediatrics provider in Portland, Oregon. Dr. Su-Velez is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Pierre Robin Sequence, Deafness Craniofacial Syndrome, Multiple Epiphyseal Dysplasia, Thyroidectomy, and Parathyroidectomy.

      Experienced in RASopathies
      Ophthalmology
      Experienced in RASopathies
      Ophthalmology

      Eye Health Northwest PC

      1955 Nw Northrup St, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jocelyn Lam is an Ophthalmologist in Portland, Oregon. Dr. Lam is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Strabismus, Amblyopia, Cataract, and Presbyopia. Dr. Lam is currently accepting new patients.

      Experienced in RASopathies
      Ophthalmology
      Experienced in RASopathies
      Ophthalmology

      Eye Health Northwest PC

      1955 Nw Northrup St, 
      Portland, OR 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Glass is an Ophthalmologist in Portland, Oregon. Dr. Glass is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Cataract, Presbyopia, Choroid Plexus Carcinoma, and Glaucoma. Dr. Glass is currently accepting new patients.

      Experienced in RASopathies
      Medical Genetics
      Experienced in RASopathies
      Medical Genetics

      Legacy Good Samaritan Hospital And Medical Center

      1040 Nw 22nd Ave, Suite 30, 
      Portland, OR 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dana Simpson is a Medical Genetics provider in Portland, Oregon. Dr. Simpson is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Incontinentia Pigmenti, Increased Head Circumference, Miller-Dieker Syndrome, and Smith-Magenis Syndrome. Dr. Simpson is currently accepting new patients.

      Showing 1-20 of 51

      Last Updated: 10/30/2025

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor near Portland, OR?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor near Portland, OR?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors near Portland, OR?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors near Portland, OR?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor near Portland, OR?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor near Portland, OR?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors near Portland, OR?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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