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    Last Updated: 01/09/2026

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    MediFind found 48 doctor with experience in Clouston Syndrome near New York, NY. Of these, 34 are Experienced, 12 are Advanced and 2 are Distinguished.

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    LocationClose
    48 providers found
      Judith Bluvstein
      Experienced in Clouston Syndrome
      Pediatric Neurology
      Experienced in Clouston Syndrome
      Pediatric Neurology

      Northwell Health Physician Partners Neurology At Third Avenue

      1317 3rd Avenue, 8th Floor, 
      New York, NY 
       (4.8 miles away)
      Languages Spoken:
      English, Spanish

      Judith Bluvstein is a Pediatric Neurologist in New York, New York. Dr. Bluvstein is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Seizures, Myoclonic Epilepsy, West Syndrome, and Epilepsy.

      Jean-laurent L. Casanova
      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      1230 York Ave, Box 163, 
      New York, NY 
       (4.3 miles away)
      Languages Spoken:
      English

      Jean-laurent Casanova is a Pediatrics provider in New York, New York. Dr. Casanova is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Pyle Disease, Osteomyelitis in Children, Pediatric Myocarditis, and Lymphadenectomy.

      Bruce Gelb
      Advanced in Clouston Syndrome
      Pediatric Cardiology
      Advanced in Clouston Syndrome
      Pediatric Cardiology

      Mount Sinai

      1 Gustave L Levy Pl, 
      New York, NY 
       (6.1 miles away)
      Languages Spoken:
      English

      Bruce Gelb is a Pediatric Cardiologist in New York, New York. Dr. Gelb is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.

      Learn about our expert tiers
      John W. Frew
      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology
      1230 York Ave, 
      New York, NY 
       (4.3 miles away)
      Languages Spoken:
      English

      John Frew is a Dermatologist in New York, New York. Dr. Frew is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hidradenitis Suppurativa, Pyoderma Gangrenosum, Acne, Epidermolysis Bullosa, and Tissue Biopsy.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      1275 York Ave, 
      New York, NY 
       (4.4 miles away)
      Languages Spoken:
      English

      Yasmin Khakoo is a Pediatrics provider in New York, New York. Dr. Khakoo is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Embryonal Tumor with Multilayered Rosettes.

      Kaiane Habeshian
      Experienced in Clouston Syndrome
      Dermatology | Pediatrics
      Experienced in Clouston Syndrome
      Dermatology | Pediatrics

      Northwell Health Physician Partners Dermatology At East 82nd Street

      331 East 82nd Street, 
      New York, NY 
       (5.2 miles away)
      Languages Spoken:
      English

      Kaiane Habeshian is a Dermatologist and a Pediatrics provider in New York, New York. Dr. Habeshian is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Lichen Sclerosus, Familial Multiple Nevi Flammei, Linear Hamartoma Syndrome, and Vascular Birthmark.

      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome
      161 Fort Washington Ave, 12th Floor, 
      New York, NY 
       (9.4 miles away)
      Languages Spoken:
      English

      Maria Garzon is a Dermatologist in New York, New York. Dr. Garzon is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hemangioma, PHACE Syndrome, Ectodermal Dysplasias, and Clouston Syndrome.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Weill Medical College Of Cornell

      156 William St, 
      New York, NY 
       (0.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Arathi Nandyala is a Neurologist in New York, New York. Dr. Nandyala is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Headache, Progressive Hemifacial Atrophy, Migraine, and Sporadic Hemiplegic Migraine.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      New York University

      111 Broadway, 
      New York, NY 
       (0.4 miles away)
      Languages Spoken:
      English

      Adam Rubin is a Dermatologist in New York, New York. Dr. Rubin is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Bowen's Disease, Lichen Planus, Stiff Skin Syndrome, Pigmented Purpuric Dermatosis, and Thymectomy.

      Experienced in Clouston Syndrome
      Neurosurgery | Pediatrics
      Experienced in Clouston Syndrome
      Neurosurgery | Pediatrics

      New York University

      111 Broadway, 
      New York, NY 
       (0.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Eveline Hidalgo is a Neurosurgery specialist and a Pediatrics provider in New York, New York. Dr. Hidalgo is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hydrocephalus, Schizencephaly, Brain Tumor, Awake Craniotomy, and Deep Brain Stimulation.

      Experienced in Clouston Syndrome
      Pediatric Neurology | Pediatrics
      Experienced in Clouston Syndrome
      Pediatric Neurology | Pediatrics

      New York University

      111 Broadway, 
      New York, NY 
       (0.4 miles away)
      Languages Spoken:
      English

      Kaleb Yohay is a Pediatric Neurologist and a Pediatrics provider in New York, New York. Dr. Yohay is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Batten Disease.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      New York University

      111 Broadway, 
      New York, NY 
       (0.4 miles away)
      Languages Spoken:
      English

      Daniel Miles is a Neurologist in New York, New York. Dr. Miles is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Memory Loss.

      Experienced in Clouston Syndrome
      Neurosurgery | Pediatrics
      Experienced in Clouston Syndrome
      Neurosurgery | Pediatrics

      New York University

      317 E 34th St, 
      New York, NY 
       (2.7 miles away)
      Languages Spoken:
      English

      Yosef Dastagirzada is a Neurosurgery specialist and a Pediatrics provider in New York, New York. Dr. Dastagirzada is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 2, Schizencephaly, Endoscopic Transnasal Transsphenoidal Surgery, and Spinal Fusion.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology
      161 Madison Ave, 
      New York, NY 
       (3.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      N Hennessey is a Dermatologist in New York, New York. Dr. Hennessey is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Dyschromatosis Symmetrica Hereditaria, Hypomelanotic Disorder, Dyschromatosis Universalis Hereditaria, and Griscelli Syndrome.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Upper West Side Dermatology PC

      277 W End Ave, Apt 1b, 
      New York, NY 
       (4.8 miles away)
      Languages Spoken:
      English

      Lisa Travis is a Dermatologist in New York, New York. Dr. Travis is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Keratitis-Ichthyosis-Deafness Syndrome, Giant Congenital Nevus, Familial Atypical Multiple Mole Melanoma Syndrome, and Giant Congenital Melanocytic Nevus.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Office

      2309 31st St Ste 5, 
      Astoria, NY 
       (6.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Demetrios Karides is a Neurologist in Astoria, New York. Dr. Karides is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Tension Headache, Alzheimer's Disease, Infant Epilepsy with Migrant Focal Crisis, and Epilepsy in Children.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Weill Medical College Of Cornell

      2315 Broadway, 
      New York, NY 
       (5.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Shari Lipner is a Dermatologist in New York, New York. Dr. Lipner is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ringworm, Autosomal Recessive Hypotrichosis, Anonychia Congenita, and Athlete's Foot.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Icahn School Of Medicine At Mount Sinai

      5 E 98th St, Fl 5, 
      New York, NY 
       (5.9 miles away)
      Languages Spoken:
      English

      Nanette Silverberg is a Dermatologist in New York, New York. Dr. Silverberg is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Vitiligo, Molluscum Contagiosum, Pityriasis Alba, and Hypomelanotic Disorder.

      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      1 Gustave L Levy Pl, Box 1498, 
      New York, NY 
       (6.1 miles away)
      Languages Spoken:
      English

      Robert Desnick is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Desnick is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hereditary Coproporphyria, Fabry Disease, Clouston Syndrome, and Ectodermal Dysplasias.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      8714 Jamaica Ave, 
      Woodhaven, NY 
       (7.9 miles away)
      Languages Spoken:
      English

      Maria Quezada is a Pediatrics provider in Woodhaven, New York. Dr. Quezada is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, AEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, and Ectodermal Dysplasias.

      Showing 1-20 of 48

      Last Updated: 01/09/2026

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near New York, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near New York, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near New York, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near New York, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near New York, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near New York, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near New York, NY?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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