The 20 Best Clouston Syndrome Doctors Near Me in San Jose, CA

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 124 doctor with experience in Clouston Syndrome near San Jose, CA. Of these, 101 are Experienced, 18 are Advanced, 4 are Distinguished and 1 are Elite.

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124 providers found
    Elite in Clouston Syndrome
    Elite in Clouston Syndrome
    Referral may be required

    Office

    1701 Divisadero St # 340, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Ilona Frieden is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Vascular Birthmark. Dr. Frieden is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    Referral may be required

    Kevin W. Broder M. D. Incorporated

    8899 University Center Ln Ste 350, 
    San Diego, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Arisa Ortiz is a Dermatologist practicing medicine in San Diego, California. Dr. Ortiz is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, Acne, and Familial Multiple Nevi Flammei. Dr. Ortiz is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Distinguished in Clouston Syndrome
    Referral may be required

    Stanford Medicine Children's Health Specialty Services-Walnut Creek-Pediatric Neurolog

    106 La Casa Via, 
    Walnut Creek, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Dawn Siegel is a Pediatrics provider practicing medicine in Walnut Creek, California. Dr. Siegel is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Vascular Birthmark. Dr. Siegel is currently accepting new patients.

    Learn about our expert tiers
    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology
    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology
    Referral may be required

    Radiology At China Basin

    185 Berry St., Lobby 6, Suite 180 And 190, 
    San Francisco, CA 
    Languages Spoken:
    English, Portuguese
    Accepting New Patients

    Christopher Hess is a Neuroradiologist and a Radiologist practicing medicine in San Francisco, California. Dr. Hess is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Clouston Syndrome, Aplasia Cutis Congenita, Deep Brain Stimulation, and Thrombectomy. Dr. Hess is board certified in American Board Of Radiology, Diagnostic Radiology and American Board Of Radiology, Neuroradiology. Dr. Hess is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    2825 50th St Rm 2284, Uc Davis Mind Institute, 
    Sacramento, CA 
    Languages Spoken:
    English

    Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Sacramento, California. Dr. Rauen is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses RASopathies, Costello Syndrome, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    513 Parnassus Ave, Room S747, Box 0442, 
    San Francisco, CA 
    Languages Spoken:
    English

    Ophir Klein is a Medical Genetics specialist and a Pediatrics provider practicing medicine in San Francisco, California. Dr. Klein is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Costello Syndrome, RASopathies, Clouston Syndrome, and Ectodermal Dysplasias.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Birthmarks & Vascular Anomalies Center

    1825 4th St, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Erin Mathes is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Mathes is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Vascular Birthmark. Dr. Mathes is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Lucile Packard Children's Hospital Stanford

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joyce Teng is a Pediatrics provider practicing medicine in Palo Alto, California. Dr. Teng is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Aplasia Cutis Congenita, Vascular Birthmark, Arteriovenous Malformation, Congenital Athymia, and Liver Embolization. Dr. Teng is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Kevin W. Broder M. D. Incorporated

    8899 University Center Ln Ste 350, 
    San Diego, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Zachary Jaeger is a Dermatologist practicing medicine in San Diego, California. Dr. Jaeger is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurocutaneous Melanosis, Epidermal Nevus, Legius Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Jaeger is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    CSSD II A Medical Group Inc

    3860 Calle Fortunada Ste 210, 
    San Diego, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Lam is a Pediatrics provider practicing medicine in San Diego, California. Dr. Lam is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, Roseola, and Tissue Biopsy. Dr. Lam is currently accepting new patients.

    Advanced in Clouston Syndrome
    Dermatology
    Advanced in Clouston Syndrome
    Dermatology
    Referral may be required

    UC Davis Dermatology Clinic

    3301 C St Ste 1300, 
    Sacramento, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Maija Kiuru is a Dermatologist practicing medicine in Sacramento, California. Dr. Kiuru is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 53 other conditions, according to our data. Her clinical expertise encompasses Melanoma, Basal Cell Skin Cancer, Giant Congenital Nevus, and Costello Syndrome. Dr. Kiuru is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Office

    1635 Divisadero St Ste 625, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Matthias Schmuth is a Dermatologist practicing medicine in San Francisco, California. Dr. Schmuth is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Ichthyosis Vulgaris, Nonbullous Congenital Ichthyosiform Erythroderma, Darier Disease, and Netherton Syndrome. Dr. Schmuth is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required
    1310 W Stewart Dr, Suite 507, 
    Orange, CA 
    Languages Spoken:
    English

    Heidi Goodarzi is a Dermatologist practicing medicine in Orange, California. Dr. Goodarzi is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Dyschromatosis Universalis Hereditaria, Griscelli Syndrome, Dyschromatosis Symmetrica Hereditaria, and Hypomelanotic Disorder.

    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Referral may be required

    Dermatology Clinic At Mount Zion

    1701 Divisadero St., Third And Fourth Floors, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Kelly Cordoro is a Dermatologist and a Pediatrics provider practicing medicine in San Francisco, California. Dr. Cordoro is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Psoriasis, Localized Scleroderma, Guttate Psoriasis, and Linear Hamartoma Syndrome. Dr. Cordoro is board certified in American Board Of Dermatology, Pediatric Dermatology and American Board Of Dermatology, Dermatology. Dr. Cordoro is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    UCI Health Dermatology Center

    850 Health Sciences Road, Floor 2, 
    Irvine, CA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Melissa Shive is a Dermatologist practicing medicine in Irvine, California. Dr. Shive is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Vitiligo, Actinic Keratosis, Tieche-Jadassohn Nevus, and Tinea Versicolor. Dr. Shive is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required
    1495 River Park Dr., Suite 200, 
    Sacramento, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jennifer Tavernetti is a Dermatologist practicing medicine in Sacramento, California. Dr. Tavernetti is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Melanoma, Comedones, Actinic Keratosis, and Cheilitis Glandularis. Dr. Tavernetti is board certified in Dermatology. Dr. Tavernetti is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral required

    UCI Health Beckman Laser Institute & Medical Clinic

    1002 Health Sciences Road, 
    Irvine, CA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Kristen Kelly is a Dermatologist practicing medicine in Irvine, California. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Actinic Keratosis, Warts, Rosacea, and Psoriasis. Dr. Kelly is board certified in American Board Of Dermatology - Dermatology. Dr. Kelly is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    Referral may be required

    West Douglas Care Center

    2261 Douglas Blvd., 
    Roseville, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Mary List is a Dermatologist practicing medicine in Roseville, California. Dr. List is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Melanoma, Liver Spots, Universal Acquired Melanosis, and Actinic Keratosis. Dr. List is board certified in Dermatology - Board Certified. Dr. List is currently accepting new patients.

    Advanced in Clouston Syndrome
    Medical Genetics
    Advanced in Clouston Syndrome
    Medical Genetics
    Referral may be required

    Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Shieh is a Medical Genetics provider practicing medicine in San Francisco, California. Dr. Shieh is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Myhre Syndrome, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Shieh is board certified in American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics. Dr. Shieh is currently accepting new patients.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics
    Referral may be required
    9727 Elk Grove Florin Rd., Suite 250, 
    Elk Grove, CA 
    Languages Spoken:
    English, Hindi, Spanish, Urdu
    Accepting New Patients

    Rahat Saied is a Pediatrics provider practicing medicine in Elk Grove, California. Dr. Saied is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Obesity in Children, Autism Spectrum Disorder, Viral Gastroenteritis, and Developmental Dysphasia Familial. Dr. Saied is board certified in Pediatrics. Dr. Saied is currently accepting new patients.

    Showing 1-20 of 124

    Last Updated: 09/19/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near San Jose, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near San Jose, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near San Jose, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near San Jose, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near San Jose, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near San Jose, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near San Jose, CA?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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