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    Last Updated: 10/30/2025

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    MediFind found 38 doctor with experience in Clouston Syndrome near Philadelphia, PA. Of these, 31 are Experienced, 6 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    38 providers found
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics

      Cooper Pediatric Specialists, PC

      3 Cooper Plz, Suite 200, 
      Camden, NJ 
       (2.8 miles away)
      Languages Spoken:
      English

      Rhonda Schnur is a Medical Genetics specialist and a Pediatrics provider in Camden, New Jersey. Dr. Schnur is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Increased Head Circumference.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Penn Dermatology Pennsylvania Hospital

      235 South 8th Street, 
      Philadelphia, PA 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Michelle Oboite is a Dermatologist in Philadelphia, Pennsylvania. Dr. Oboite is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ambras Syndrome, Hypertrichosis Lanuginosa Congenita, Alopecia Universalis, and Autosomal Recessive Hypotrichosis. Dr. Oboite is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Penn Dermatology Pennsylvania Hospital

      235 South 8th Street, 
      Philadelphia, PA 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Claire Hannah is a Dermatologist in Philadelphia, Pennsylvania. Dr. Hannah is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epidermal Nevus, Hidradenitis Suppurativa, Systemic Lupus Erythematosus (SLE), and Cutaneous Lupus Erythematosus (CLE). Dr. Hannah is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Penn Dermatology Perelman

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Junko Takeshita is a Dermatologist in Philadelphia, Pennsylvania. Dr. Takeshita is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Psoriasis, Plaque Psoriasis, Atopic Dermatitis, and Acne. Dr. Takeshita is currently accepting new patients.

      Advanced in Clouston Syndrome
      Pediatrics | Medical Genetics
      Advanced in Clouston Syndrome
      Pediatrics | Medical Genetics
      34th St. & Civic Center Blvd, The Children's Hospital Of Philadelphia, Room 9nw55, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Elizabeth Bhoj is a Pediatrics specialist and a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Bhoj is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hardikar Syndrome, Coffin-Siris Syndrome, Acheiropody, Hypotonia, and Myringotomy.

      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      3401 Civic Center Blvd, Division Of Genetics, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English

      Alanna Strong is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Strong is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hardikar Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      3550 Market St Fl 2, Children's Hospital Of Philadelphia - Dermatology Div, 
      Philadelphia, PA 
       (1.8 miles away)
      Languages Spoken:
      English

      Albert Yan is a Dermatologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Yan is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Comedones, Familial Multiple Nevi Flammei, Stork Bite, and Molluscum Contagiosum.

      Advanced in Clouston Syndrome
      Dermatology
      Advanced in Clouston Syndrome
      Dermatology
      3550 Market St Fl 2, Children's Hospital Of Philadelphia - Dermatology Div, 
      Philadelphia, PA 
       (1.8 miles away)
      Languages Spoken:
      English

      Melinda Jen is a Dermatologist in Philadelphia, Pennsylvania. Dr. Jen is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Aplasia Cutis Congenita, Ichthyosis Bullosa of Siemens, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, and Vascular Birthmark.

      Advanced in Clouston Syndrome
      Internal Medicine
      Advanced in Clouston Syndrome
      Internal Medicine
      3401 N Broad St, 
      Philadelphia, PA 
       (3.7 miles away)
      Languages Spoken:
      English

      Wei Zhao is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Zhao is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Microsporidiosis, Lung Cancer, Lung Adenocarcinoma, Endoscopy, and Coronary Artery Bypass Graft (CABG).

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology
      219 N Broad St, 4th Floor, 
      Philadelphia, PA 
       (0.3 miles away)
      Languages Spoken:
      English

      Amanda Moon is a Dermatologist in Philadelphia, Pennsylvania. Dr. Moon is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Vascular Birthmark, Epidermal Nevus, Stork Bite, and Linear Hamartoma Syndrome.

      Experienced in Clouston Syndrome
      Radiology | Pediatric Radiology
      Experienced in Clouston Syndrome
      Radiology | Pediatric Radiology
      111 S 11th St, 
      Philadelphia, PA 
       (0.4 miles away)
      Languages Spoken:
      English

      Dhrumil Patel is a Radiologist and a Pediatric Radiologist in Philadelphia, Pennsylvania. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Familial Multiple Lipomatosis, Pulmonary Valve Stenosis, Aplasia Cutis Congenita, Clouston Syndrome, and Gastrostomy.

      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Hospital Medicine | Pediatrics
      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Hospital Medicine | Pediatrics
      111 S 11th St, 
      Philadelphia, PA 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Melissa Bowman is a Pediatric Pulmonologist and a Hospital Medicine provider in Philadelphia, Pennsylvania. Dr. Bowman is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ellis-Van Creveld Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Bowman is currently accepting new patients.

      Experienced in Clouston Syndrome
      Dermatology | Pediatrics
      Experienced in Clouston Syndrome
      Dermatology | Pediatrics
      833 Chestnut St, Suite 740, 
      Philadelphia, PA 
       (0.6 miles away)
      Languages Spoken:
      English

      Patrice Hyde is a Dermatologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Hyde is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Familial Multiple Nevi Flammei, Linear Hamartoma Syndrome, Vascular Birthmark, and Stork Bite.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      University Of Penn-Medical Group

      3400 Spruce St, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      John Seykora is a Dermatologist in Philadelphia, Pennsylvania. Dr. Seykora is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Actinic Keratosis, Basal Cell Skin Cancer, Bowen's Disease, and Warts.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology
      3400 Spruce St, 1 Dulles Building, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Megan Noe is a Dermatologist in Philadelphia, Pennsylvania. Dr. Noe is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Psoriasis, Scalded Skin Syndrome, Stevens-Johnson Syndrome, and Erythema Multiforme. Dr. Noe is currently accepting new patients.

      Experienced in Clouston Syndrome
      Medical Genetics
      Experienced in Clouston Syndrome
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Staci Kallish is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Kallish is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, Fabry Disease, and Neurofibromatosis. Dr. Kallish is currently accepting new patients.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      James Treat is a Dermatologist in Philadelphia, Pennsylvania. Dr. Treat is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cutis Marmorata Telangiectatica Congenita, PHACE Syndrome, Pityriasis Lichenoides Et Varioliformis Acuta, and Livedo Reticularis.

      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Intensive Care Medicine
      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Intensive Care Medicine

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Oscar Mayer is a Pediatric Pulmonologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Mayer is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Duchenne Muscular Dystrophy, Spondylocostal Dysostosis, Spinal Muscular Atrophy Type 2, and Microcephaly Deafness Syndrome.

      Experienced in Clouston Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Clouston Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Matthew O'connor is a Pediatric Cardiologist and a Cardiologist in Philadelphia, Pennsylvania. Dr. O'connor is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pediatric Myocarditis, Cardiomyopathy, Congenital Heart Disease (CHD), Heart Failure, and Heart Transplant.

      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Elaine Zackai is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Zackai is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Micrognathia, DiGeorge Syndrome, Hardikar Syndrome, Myringotomy, and Gastrostomy.

      Showing 1-20 of 38

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near Philadelphia, PA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near Philadelphia, PA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near Philadelphia, PA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near Philadelphia, PA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near Philadelphia, PA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near Philadelphia, PA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near Philadelphia, PA?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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