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    Last Updated: 10/30/2025

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    MediFind found 57 doctor with experience in Clouston Syndrome near Boston, MA. Of these, 41 are Experienced, 12 are Advanced, 2 are Distinguished and 2 are Elite.

    Location
    LocationClose
    57 providers found
      Elite in Clouston Syndrome
      Pediatrics
      Elite in Clouston Syndrome
      Pediatrics
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Eli Sprecher is a Pediatrics provider in Boston, Massachusetts. Dr. Sprecher is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Naegeli-Franceschetti-Jadassohn Syndrome. Dr. Sprecher is currently accepting new patients.

      Elite in Clouston Syndrome
      Elite in Clouston Syndrome
      Interlenkin Genetrics, Inc., 135 Beaver Street, 
      Waltham, MA 
       (8.0 miles away)
      Languages Spoken:
      English

      Kenneth Huttner is a Neonatologist in Waltham, Massachusetts. Dr. Huttner is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Clouston Syndrome
      Pediatric Neurology | Neurology
      Distinguished in Clouston Syndrome
      Pediatric Neurology | Neurology
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Mustafa Sahin is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Sahin is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Spastic Paraplegia Type 7. Dr. Sahin is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Clouston Syndrome
      Pediatrics | Medical Genetics
      Distinguished in Clouston Syndrome
      Pediatrics | Medical Genetics
      300 Longwood Ave, Fegan 10, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Alkuraya is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Alexander Marneros is a Dermatologist in Boston, Massachusetts. Dr. Marneros is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Actinic Keratosis. Dr. Marneros is currently accepting new patients.

      Elena B. Hawryluk
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Elena Hawryluk is a Dermatologist in Boston, Massachusetts. Dr. Hawryluk has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Melanoma, Xeroderma Pigmentosum, and Nevoid Basal Cell Carcinoma Syndrome. Dr. Hawryluk is currently accepting new patients.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Mass General Brigham Cancer Institute: Neuro-Oncology

      55 Fruit Street, Yawkey Center For Outpatient Care, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English

      Gerilyn Olsen is a Dermatologist in Boston, Massachusetts. Dr. Olsen is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

      Advanced in Clouston Syndrome
      Neonatology | Obstetrics and Gynecology
      Advanced in Clouston Syndrome
      Neonatology | Obstetrics and Gynecology

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Millie Ferres is a Neonatologist and an Obstetrics and Gynecologist in Boston, Massachusetts. Dr. Ferres is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Cavernous Lymphangioma, Trisomy 13, Chromosome 13q Duplication, and Polyhydramnios. Dr. Ferres is currently accepting new patients.

      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      Advanced in Clouston Syndrome
      Dermatology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Marilyn Liang is a Dermatologist and a Pediatrics provider in Boston, Massachusetts. Dr. Liang is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hemangioma, Kaposiform Hemangioendothelioma, Hemangioendothelioma, and PHACE Syndrome. Dr. Liang is currently accepting new patients.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Atsuhiko Handa is a Radiologist in Boston, Massachusetts. Dr. Handa has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Spondyloepiphyseal Dysplasia Congenita, Chondrodystrophy, Schwartz-Jampel Syndrome, X-Linked Spondyloepiphyseal Dysplasia Tarda, and Bone Marrow Aspiration.

      Advanced in Clouston Syndrome
      Allergy and Immunology | Pediatrics
      Advanced in Clouston Syndrome
      Allergy and Immunology | Pediatrics
      300 Longwood Ave, Fegan 6, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Raif Geha is an Allergy and Immunologist and a Pediatrics provider in Boston, Massachusetts. Dr. Geha is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hyper IgE Syndrome, Autosomal Dominant Hyper IgE Syndrome, Wiskott-Aldrich Syndrome, and Severe Combined Immunodeficiency (SCID).

      Advanced in Clouston Syndrome
      Pediatrics | Pediatric Neurology | Neurology
      Advanced in Clouston Syndrome
      Pediatrics | Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Anna Pinto is a Pediatrics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Pinto is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Sturge-Weber Syndrome, Parkes Weber Syndrome, Seizures, and Epilepsy.

      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Tan is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Incontinentia Pigmenti, Congenital Athymia, EEC Syndrome, and AEC Syndrome. Dr. Tan is currently accepting new patients.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sherrie Divito is a Dermatologist in Boston, Massachusetts. Dr. Divito is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Focal Dermal Hypoplasia, Stevens-Johnson Syndrome, Erythema Multiforme, and Scalded Skin Syndrome. Dr. Divito is currently accepting new patients.

      Advanced in Clouston Syndrome
      Pediatric Neurology | Neurology
      Advanced in Clouston Syndrome
      Pediatric Neurology | Neurology

      Dana-Farber Cancer Institute, Inc.

      450 Brookline Ave, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English

      Nicole Ullrich is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ullrich is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Optic Glioma.

      Experienced in Clouston Syndrome
      Neonatology
      Experienced in Clouston Syndrome
      Neonatology
      800 Washington St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English

      Gozdem Kayki is a Neonatologist in Boston, Massachusetts. Dr. Kayki is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Infantile Apnea, Premature Infant, Cerebral Hypoxia, and Infant Respiratory Distress Syndrome.

      Experienced in Clouston Syndrome
      Internal Medicine
      Experienced in Clouston Syndrome
      Internal Medicine
      800 Washington St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English

      Rodolfo Valentini is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Valentini is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Massachusetts General Physicians Organization Inc

      50 Staniford St, 
      Boston, MA 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Evelyn Lilly is a Dermatologist in Boston, Massachusetts. Dr. Lilly is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Keratitis-Ichthyosis-Deafness Syndrome, Melanoma, Syringoma, and Actinic Keratosis. Dr. Lilly is currently accepting new patients.

      Showing 1-20 of 57

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near Boston, MA?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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