The 20 Best Clouston Syndrome Doctors Near Me in Saxony, DE

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 15 doctor with experience in Clouston Syndrome near Saxony, DE. Of these, 15 are Experienced.

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15 providers found
    Experienced in Clouston Syndrome

    Karl-heinz Grzeschik
    Experienced in Clouston Syndrome

    Karl-heinz Grzeschik
    Referral may be required
    Marburg An Der Lahn, HE, DE 

    Karl-heinz Grzeschik practices practicing medicine in Marburg An Der Lahn, Germany. Grzeschik is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Focal Dermal Hypoplasia, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Multiple Pterygium Syndrome, and Ectodermal Dysplasias.

    Experienced in Clouston Syndrome

    Christian Osterburg
    Experienced in Clouston Syndrome

    Christian Osterburg
    Referral may be required
    Frankfurt Am Main, HE, DE 

    Christian Osterburg practices practicing medicine in Frankfurt Am Main, Germany. Mr. Osterburg is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses AEC Syndrome, Split Hand Foot Malformation, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

    Experienced in Clouston Syndrome

    Rudolf Funke
    Experienced in Clouston Syndrome

    Rudolf Funke
    Referral may be required
    Kassel, HE, DE 

    Rudolf Funke practices practicing medicine in Kassel, Germany. Mr. Funke is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Trisomy 12 Mosaicism, Supernumerary Nipples, Rommen Mueller Sybert Syndrome, and Cutis Marmorata Telangiectatica Congenita.

    Learn about our expert tiers
    Experienced in Clouston Syndrome

    Volker Dotsch
    Experienced in Clouston Syndrome

    Volker Dotsch
    Referral may be required
    Max Von Laue Str. 7, 
    Frankfurt Am Main, HE, DE 

    Volker Dotsch practices practicing medicine in Frankfurt Am Main, Germany. Mr. Dotsch is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses AEC Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Clouston Syndrome.

    Experienced in Clouston Syndrome

    Anahita Momeni-Jablonski
    Experienced in Clouston Syndrome

    Anahita Momeni-Jablonski
    Referral may be required
    Georg Voigt Str. 3, 
    Marburg An Der Lahn, HE, DE 

    Anahita Momeni-Jablonski practices practicing medicine in Marburg An Der Lahn, Germany. Ms. Momeni-Jablonski is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Hypophosphatasia (HPP).

    Experienced in Clouston Syndrome

    Leonille Schweizer
    Experienced in Clouston Syndrome

    Leonille Schweizer
    Referral may be required
    Frankfurt Am Main, HE, DE 

    Leonille Schweizer practices practicing medicine in Frankfurt Am Main, Germany. Schweizer is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses Ependymoma, Gliomatosis Cerebri, Glioma, and Oligodendroglioma.

    Experienced in Clouston Syndrome

    Arend H. Koch
    Experienced in Clouston Syndrome

    Arend H. Koch
    Referral may be required
    Wilhelmshöher Allee 273, 
    Kassel, HE, DE 

    Arend Koch practices practicing medicine in Kassel, Germany. Mr. Koch is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Gliomatosis Cerebri, Brain Tumor, Glioma, Teratoma of the Mediastinum, and Osteotomy.

    Experienced in Clouston Syndrome

    Daniela Bertinetti
    Experienced in Clouston Syndrome

    Daniela Bertinetti
    Referral may be required
    Heinrich Plett Str. 40, 
    Kassel, HE, DE 

    Daniela Bertinetti practices practicing medicine in Kassel, Germany. Ms. Bertinetti is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Ellis-Van Creveld Syndrome, Polydactyly, Aplasia Cutis Congenita, and Clouston Syndrome.

    Experienced in Clouston Syndrome

    Tilman Borggrefe
    Experienced in Clouston Syndrome

    Tilman Borggrefe
    Referral may be required
    Giessen, HE, DE 

    Tilman Borggrefe practices practicing medicine in Giessen, Germany. Mr. Borggrefe is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Adams-Oliver Syndrome, Split Hand Foot Malformation, Leukemia, and Clouston Syndrome.

    Experienced in Clouston Syndrome

    Friedrich W. Herberg
    Experienced in Clouston Syndrome

    Friedrich W. Herberg
    Referral may be required
    Heinrich Plett Str. 40, 
    Kassel, HE, DE 

    Friedrich Herberg practices practicing medicine in Kassel, Germany. Mr. Herberg is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Acrodysostosis, Ellis-Van Creveld Syndrome, Brachydactyly, and Dysostosis Peripheral.

    Experienced in Clouston Syndrome

    Janine Sambale
    Experienced in Clouston Syndrome

    Janine Sambale
    Referral may be required
    Georg Voigt Str. 3, 
    Marburg An Der Lahn, HE, DE 

    Janine Sambale practices practicing medicine in Marburg An Der Lahn, Germany. Ms. Sambale is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Obstructive Sleep Apnea, Cerebral Hypoxia, Aplasia Cutis Congenita, and Clouston Syndrome.

    Experienced in Clouston Syndrome

    Heike M. Steiner-Korbmacher
    Experienced in Clouston Syndrome

    Heike M. Steiner-Korbmacher
    Referral may be required
    Georg Voigt Str. 3, 
    Marburg An Der Lahn, HE, DE 

    Heike Steiner-Korbmacher practices practicing medicine in Marburg An Der Lahn, Germany. Ms. Steiner-Korbmacher is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Obstructive Sleep Apnea, Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Osteotomy.

    Experienced in Clouston Syndrome

    Gudrun B. Schreiber
    Experienced in Clouston Syndrome

    Gudrun B. Schreiber
    Referral may be required
    Kassel, HE, DE 

    Gudrun Schreiber practices practicing medicine in Kassel, Germany. Ms. Schreiber is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, and Primary Lateral Sclerosis.

    Experienced in Clouston Syndrome

    Matthias H. Schmitt
    Experienced in Clouston Syndrome

    Matthias H. Schmitt
    Referral may be required
    Von Lade Str. 1, 
    Geisenheim, HE, DE 

    Matthias Schmitt practices practicing medicine in Geisenheim, Germany. Mr. Schmitt is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Dilated Cardiomyopathy (DCM), Cardiac Diverticulum, Fabry Disease, and Heart Transplant.

    Experienced in Clouston Syndrome

    Bernd Wilken
    Experienced in Clouston Syndrome

    Bernd Wilken
    Referral may be required
    Kassel, HE, DE 

    Bernd Wilken practices practicing medicine in Kassel, Germany. Mr. Wilken is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Supernumerary Nipples, Tuberous Sclerosis Complex, and Tuberous Sclerosis.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 06/30/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in Saxony, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in Saxony, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Clouston Syndrome doctor in Saxony, DE?

    You can find a Clouston Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Clouston Syndrome doctors in Saxony, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in Saxony, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in Saxony, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in Saxony, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in Saxony, DE?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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