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    Last Updated: 01/09/2026

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    MediFind found 43 doctor with experience in Clouston Syndrome near Lower Saxony, DE. Of these, 39 are Experienced and 4 are Advanced.

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    43 providers found
      Advanced in Clouston Syndrome

      Jorge C. Frank
      Advanced in Clouston Syndrome

      Jorge C. Frank
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Jorge Frank practices in Goettingen, Germany. Mr. Frank is rated as an Advanced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Variegate Porphyria, Porphyria, Bazex Syndrome, and Multiple Familial Trichoepithelioma.

      Advanced in Clouston Syndrome

      Bernd Wollnik
      Advanced in Clouston Syndrome

      Bernd Wollnik
      Robert Koch Str. 42a, 
      Goettingen, NI, DE 

      Bernd Wollnik practices in Goettingen, Germany. Mr. Wollnik is rated as an Advanced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Bosma Arhinia Microphthalmia Syndrome, and Choanal Atresia.

      Advanced in Clouston Syndrome

      Julia Schmidt
      Advanced in Clouston Syndrome

      Julia Schmidt
      Goettingen, NI, DE 

      Julia Schmidt practices in Goettingen, Germany. Ms. Schmidt is rated as an Advanced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Supernumerary Nipples, Hallermann-Streiff Syndrome, and Clouston Syndrome.

      Learn about our expert tiers
      Advanced in Clouston Syndrome

      Silke Kaulfuss
      Advanced in Clouston Syndrome

      Silke Kaulfuss
      Goettingen, NI, DE 

      Silke Kaulfuss practices in Goettingen, Germany. Ms. Kaulfuss is rated as an Advanced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Supernumerary Nipples, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

      Knut Brockmann
      Experienced in Clouston Syndrome

      Knut Brockmann
      Experienced in Clouston Syndrome

      Knut Brockmann
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Knut Brockmann practices in Goettingen, Germany. Mr. Brockmann is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Oculomotor Apraxia Cogan Type, Distal Arthrogryposis Type 6, Distal Arthrogryposis, and Charlie M Syndrome.

      Reinhold E. Schmidt
      Experienced in Clouston Syndrome

      Reinhold E. Schmidt
      Experienced in Clouston Syndrome

      Reinhold E. Schmidt
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Reinhold Schmidt practices in Hannover, Germany. Mr. Schmidt is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Dementia, Alzheimer's Disease, Stroke, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

      Claudia Schroder
      Experienced in Clouston Syndrome

      Claudia Schroder
      Experienced in Clouston Syndrome

      Claudia Schroder
      Hannover, NI, DE 

      Claudia Schroder practices in Hannover, Germany. Ms. Schroder is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Progressive Multifocal Leukoencephalopathy, Primary Immunodeficiency (PID), Ectodermal Dysplasias, and Clouston Syndrome.

      Ulrich H. Baumann
      Experienced in Clouston Syndrome

      Ulrich H. Baumann
      Experienced in Clouston Syndrome

      Ulrich H. Baumann
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Ulrich Baumann practices in Hannover, Germany. Mr. Baumann is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Progressive Familial Intrahepatic Cholestasis Type 1, Cholestasis, Biliary Atresia, Liver Transplant, and Bone Marrow Transplant.

      Dominik T. Schneider
      Experienced in Clouston Syndrome

      Dominik T. Schneider
      Experienced in Clouston Syndrome

      Dominik T. Schneider
      Berliner Str. 28, 
      Goettingen, NI, DE 

      Dominik Schneider practices in Goettingen, Germany. Mr. Schneider is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Sertoli-Leydig Cell Tumor, Leydig Cell Testicular Tumor, Pleuropulmonary Blastoma, Orchiectomy, and Pancreaticoduodenectomy.

      Experienced in Clouston Syndrome

      Gokhan Yigit
      Experienced in Clouston Syndrome

      Gokhan Yigit
      Goettingen, NI, DE 

      Gokhan Yigit practices in Goettingen, Germany. Yigit is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Oculomotor Apraxia Cogan Type, and Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2).

      Experienced in Clouston Syndrome

      Sascha T. Meyer
      Experienced in Clouston Syndrome

      Sascha T. Meyer
      Rahel Straus Str. 10, 
      Oldenburg, NI, DE 

      Sascha Meyer practices in Oldenburg, Germany. Meyer is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Premature Infant, Cortical Dysplasia, and Thrombectomy.

      Experienced in Clouston Syndrome

      Marion Trautwein-Hewicker
      Experienced in Clouston Syndrome

      Marion Trautwein-Hewicker
      1Field Station For Epidemiology In Bakum, Foundation Buescheler Str. 9, 
      Bakum, NI, DE 

      Marion Trautwein-Hewicker practices in Bakum, Germany. Trautwein-Hewicker is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Hypohidrotic Ectodermal Dysplasia, Coffin-Lowry Syndrome, Cerebral Hypoxia, and Pleurisy.

      Experienced in Clouston Syndrome

      Ottmar Distl
      Experienced in Clouston Syndrome

      Ottmar Distl
      Hannover, NI, DE 

      Ottmar Distl practices in Hannover, Germany. Mr. Distl is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Achondrogenesis, Acromesomelic Dysplasia Maroteaux Type, Acromesomelic Dysplasia Hunter Thompson Type, and Acromesomelic Dysplasia Campailla Martinelli Type.

      Experienced in Clouston Syndrome

      Holger A. Haenssle
      Experienced in Clouston Syndrome

      Holger A. Haenssle
      Von Siebold Str. 3, 
      Goettingen, NI, DE 

      Holger Haenssle practices in Goettingen, Germany. Mr. Haenssle is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Melanoma, Grover's Disease, Lipoid Proteinosis, and Punctate Porokeratosis.

      Experienced in Clouston Syndrome

      Barbara Vona
      Experienced in Clouston Syndrome

      Barbara Vona
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Barbara Vona practices in Goettingen, Germany. Ms. Vona is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hearing Loss, Nonsyndromic Hearing Loss, Early Infantile Epileptic Encephalopathy, and Fountain Syndrome.

      Experienced in Clouston Syndrome

      Sina Reinartz
      Experienced in Clouston Syndrome

      Sina Reinartz
      Hannover, NI, DE 

      Sina Reinartz practices in Hannover, Germany. Reinartz is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Split Spinal Cord Malformation, Caudal Duplication, Achondrogenesis, and Acromesomelic Dysplasia Maroteaux Type.

      Experienced in Clouston Syndrome

      Leonard P. Heinz
      Experienced in Clouston Syndrome

      Leonard P. Heinz
      Goettingen, NI, DE 

      Leonard Heinz practices in Goettingen, Germany. Mr. Heinz is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Focal Dermal Hypoplasia, Ectodermal Dysplasias, Clouston Syndrome, and Aplasia Cutis Congenita.

      Experienced in Clouston Syndrome

      Georgios Sogkas
      Experienced in Clouston Syndrome

      Georgios Sogkas
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Georgios Sogkas practices in Hannover, Germany. Mr. Sogkas is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Primary Immunodeficiency (PID), Common Variable Immune Deficiency, Antigen-Peptide-Transporter 2 Deficiency, and Sjogren Syndrome.

      Experienced in Clouston Syndrome

      Christian P. Kratz
      Experienced in Clouston Syndrome

      Christian P. Kratz
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Christian Kratz practices in Hannover, Germany. Mr. Kratz is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Li-Fraumeni Syndrome, Macroglossia, Turcot Syndrome, Beckwith-Wiedemann Syndrome, and Bone Marrow Transplant.

      Experienced in Clouston Syndrome

      Steffi F. Kulaczewski-Dreha
      Experienced in Clouston Syndrome

      Steffi F. Kulaczewski-Dreha
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Steffi Kulaczewski-Dreha practices in Goettingen, Germany. Ms. Kulaczewski-Dreha is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Pelizaeus-Merzbacher Disease, Supernumerary Nipples, Alexander Disease, and Hydrocephalus.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 43

      Last Updated: 01/09/2026

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in Lower Saxony, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in Lower Saxony, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Clouston Syndrome doctor in Lower Saxony, DE?

      You can find a Clouston Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Clouston Syndrome doctors in Lower Saxony, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in Lower Saxony, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in Lower Saxony, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in Lower Saxony, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in Lower Saxony, DE?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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