Holm Schneider practices in Erlangen, Germany. Schneider is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Hypohidrotic Ectodermal Dysplasia, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

Eli Sprecher is a Pediatrics provider in Boston, Massachusetts. Dr. Sprecher is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome. Dr. Sprecher is currently accepting new patients.

Kenneth Huttner is a Neonatologist in Waltham, Massachusetts. Dr. Huttner is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, and Aplasia Cutis Congenita.

Martin Zenker practices in Magdeburg, Germany. Mr. Zenker is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are RASopathies, Noonan Syndrome, Syndactyly, and Acromicric Dysplasia.

Celia Moss practices in Birmingham, United Kingdom. Ms. Moss is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, Epidermolysis Bullosa, and Gastrostomy.

Veronica Kinsler practices in London, United Kingdom. Ms. Kinsler is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Mosaicism, Phacomatosis Pigmentovascularis, and Aplasia Cutis Congenita.

Wim Wuyts practices in Leuven, Belgium. Wuyts is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Acute Interstitial Pneumonia, Interstitial Lung Disease, Pulmonary Fibrosis, Lung Transplant, and Endoscopy.

Laurence Faivre practices in Dijon, France. Mr. Faivre is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cohen Syndrome, Achalasia Microcephaly Syndrome, Microcephaly, Hypotonia, and Orchiectomy.

Michele Callea practices in Florence, Italy. Callea is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Hypohidrotic Ectodermal Dysplasia, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

Neil Rajan practices in Newcastle Upon Tyne, United Kingdom. Mr. Rajan is rated as an Elite expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Adenoid Cystic Carcinoma, Eccrine Porocarcinoma, Phacomatosis Pigmentokeratotica, and Clouston Syndrome.

Ilona Frieden is a Pediatrics specialist and a Dermatologist in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

Amy Paller is a Pediatrics provider in Chicago, Illinois. Dr. Paller has been practicing medicine for over 48 years and is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Plaque Psoriasis, Discoid Lupus Erythematosus (DLE), and Gastrostomy.

Karen Gripp is a Medical Genetics provider in Wilmington, Delaware. Dr. Gripp is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Costello Syndrome, RASopathies, Noonan Syndrome, and Cardiofaciocutaneous Syndrome.

Barrett Zlotoff is a Dermatologist in Charlottesville, Virginia. Dr. Zlotoff is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Seborrheic Keratosis, Atopic Dermatitis, Pityriasis Rubra Pilaris, and Familial Multiple Nevi Flammei. Dr. Zlotoff is currently accepting new patients.

Keith Choate is a Dermatologist in New Haven, Connecticut. Dr. Choate is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Nonbullous Congenital Ichthyosiform Erythroderma, Darier Disease, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, and Lamellar Ichthyosis.

Richard Trembath practices in London, United Kingdom. Mr. Trembath is rated as a Distinguished expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Split Hand Foot Malformation.

Sancy Leachman is a Dermatologist in Salt Lake City, Utah. Dr. Leachman is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Melanoma, Pachyonychia Congenita, Sunburn, Clouston Syndrome, and Tissue Biopsy. Dr. Leachman is currently accepting new patients.

Uwe Wollina practices in Dresden, Germany. Mr. Wollina is rated as a Distinguished expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Epidermoid Cyst, Erysipelas, Lipedema, Basal Cell Skin Cancer, and Abdominal Wall Surgery.

Jennifer Leiding, M.D., is associate director for clinical research in the Johns Hopkins All Children’s Institute for Clinical and Translational Research and assistant director of the Center for Cellular and Gene Therapy in the Johns Hopkins All Children’s Cancer & Blood Disorders Institute. She is also an associate professor of pediatrics (pending academic review) based on the St. Petersburg, Florida, campus in the Johns Hopkins University of School of Medicine. Dr. Leiding, whose clinical specialty is allergy and immunology, focuses on strategic growth of, and mentorship in, clinical research and early-phase trials campus-wide, as well as cellular and gene therapies for cancer and blood disorders. Her personal line of research and national leadership focuses on cooperative multicenter studies of primary immunodeficiency diseases, including chronic granulomatous disease (CGD) and other rare diseases in children. She returned to Johns Hopkins All Children’s in 2024 after previously serving on the faculty at the USF Morsani College of Medicine and the medical staff of All Children’s for nearly a decade. In between, she worked as a medical director at a gene therapy-focused biotech company. Dr. Leiding earned her medical degree from USF before training there as an intern and resident in pediatrics. She completed her clinical and research fellowship in both allergy and immunology at the National Institute of Allergy and Infectious Diseases. Dr. Leiding is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Chronic Granulomatous Disease, Primary Immunodeficiency (PID), Severe Combined Immunodeficiency (SCID), and Clouston Syndrome.

Bruce Gelb is a Pediatric Cardiologist in New York, New York. Dr. Gelb is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.