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    Last Updated: 01/09/2026

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    MediFind found 24 doctor with experience in Clouston Syndrome near North Holland, NL. Of these, 24 are Experienced.

    Location
    LocationClose
    24 providers found
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      Rotterdam, ZH, NL 

      Brunilda Dhamo practices in Rotterdam, Netherlands. Ms. Dhamo is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Micrognathia, Cleidocranial Dysplasia, Ectodermal Dysplasias, and Clouston Syndrome.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      Leiden, ZH, NL 

      Sylke Steggerda practices in Leiden, Netherlands. Steggerda is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Newborn Polycythemia, Premature Infant, Twin-To-Twin Transfusion Syndrome, and Hemimegalencephaly.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      Leiden, ZH, NL 

      Erica Benard practices in Leiden, Netherlands. Ms. Benard is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Salmonella Enterocolitis.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      Rotterdam, ZH, NL 

      Danielle Van Der Kaay practices in Rotterdam, Netherlands. Van Der Kaay is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Pycnodysostosis, Macrodactyly of the Foot, Microcephaly Deafness Syndrome, and Small for Gestational Age.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      Leiden, ZH, NL 

      Ratna Tan practices in Leiden, Netherlands. Tan is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Twin-To-Twin Transfusion Syndrome, Fetal and Neonatal Alloimmune Thrombocytopenia, Premature Infant, and Anemia.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Jan Van Laar practices in Rotterdam, Netherlands. Van Laar is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Behcet Disease, Uveitis, IgG4-Related Disease, and Non-Langerhans-Cell Histiocytosis.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Irene Mathijssen practices in Rotterdam, Netherlands. Ms. Mathijssen is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Craniosynostosis, Metopic Ridge, Plagiocephaly, Osteotomy, and Adenoidectomy.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      Leiden, ZH, NL 

      Frank Baas practices in Leiden, Netherlands. Mr. Baas is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pontocerebellar Hypoplasia, Charcot-Marie-Tooth Disease, Pneumococcal Meningitis, and Spinal Muscular Atrophy with Arthrogryposis.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Lumc

      Leiden, ZH, NL 

      Robert Verdijk practices in Leiden, Netherlands. Verdijk is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Uveal Melanoma, Melanoma, Melanoma of the Eye, Vitrectomy, and Corneal Transplant.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Attie Go practices in Rotterdam, Netherlands. Ms. Go is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Mosaicism, Trisomy 13, Chromosome 13q Duplication, and Trisomy 18.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Lumc

      Leiden, ZH, NL 

      Frederik Hes practices in Leiden, Netherlands. Mr. Hes is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Familial Adenomatous Polyposis, Pheochromocytoma, Neuroendocrine Tumor, and Mosaicism.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Dion Paridaens practices in Rotterdam, Netherlands. Mr. Paridaens is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Uveal Melanoma, Melanoma of the Eye, Graves Disease, and Hyperthyroidism.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Mireille Bekker practices in Rotterdam, Netherlands. Ms. Bekker is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Trisomy 18, Trisomy 13, Chromosome 13q Duplication, and Pertussis.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Lumc

      Leiden, ZH, NL 

      Monique Haak practices in Leiden, Netherlands. Ms. Haak is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Twin-To-Twin Transfusion Syndrome, Newborn Polycythemia, Intrauterine Growth Restriction, Anemia, and Endoscopy.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Eppo Wolvius practices in Rotterdam, Netherlands. Wolvius is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Their top areas of expertise are Micrognathia, Muenke Syndrome, Crouzon Syndrome, Osteotomy, and Bone Graft.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Walter Taal practices in Rotterdam, Netherlands. Mr. Taal is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Glioma, Gliomatosis Cerebri, and Vertebroplasty.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Mihai Strachinaru practices in Rotterdam, Netherlands. Mr. Strachinaru is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Heart Tumor, and Heart Failure.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Tolga Bicer practices in Rotterdam, Netherlands. Mr. Bicer is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are X-Linked Retinal Dysplasia, Familial Mediterranean Fever, Diabetic Retinopathy, Diabetic Macular Edema (DME), and Vitrectomy.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Judith Verhagen practices in Rotterdam, Netherlands. Ms. Verhagen is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, L1 Syndrome, and Familial Dilated Cardiomyopathy.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Lumc

      Leiden, ZH, NL 

      Arjan Lankester practices in Leiden, Netherlands. Mr. Lankester is rated as an Experienced expert by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are ICF Syndrome, Severe Combined Immunodeficiency (SCID), Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Bone Graft.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 24

      Last Updated: 01/09/2026

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in North Holland, NL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in North Holland, NL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors in North Holland, NL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in North Holland, NL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in North Holland, NL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in North Holland, NL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in North Holland, NL?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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