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    Last Updated: 01/09/2026

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    MediFind found 124 doctor with experience in Clouston Syndrome near California, US. Of these, 104 are Experienced, 13 are Advanced, 6 are Distinguished and 1 are Elite.

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    LocationClose
    124 providers found
      Elite in Clouston Syndrome
      Pediatrics | Dermatology
      Elite in Clouston Syndrome
      Pediatrics | Dermatology
      1701 Divisadero St, 
      San Francisco, CA 
      Languages Spoken:
      English

      Ilona Frieden is a Pediatrics specialist and a Dermatologist in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Rahat Saied
      Advanced in Clouston Syndrome
      Pediatrics
      Advanced in Clouston Syndrome
      Pediatrics
      9727 Elk Grove Florin Rd., Suite 250, 
      Elk Grove, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Rahat Saied is a Pediatrics provider in Elk Grove, California. Dr. Saied is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Viral Gastroenteritis, and Developmental Dysphasia Familial. Dr. Saied is currently accepting new patients.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Regents Of The University Of California

      200 W Arbor Dr, 
      San Diego, CA 
      Languages Spoken:
      English

      Arisa Ortiz is a Dermatologist in San Diego, California. Dr. Ortiz is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, Ringworm, and Acne.

      Learn about our expert tiers
      Distinguished in Clouston Syndrome
      Dermatology
      Distinguished in Clouston Syndrome
      Dermatology
      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Dawn Siegel is a Dermatologist in Palo Alto, California. Dr. Siegel is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Vascular Birthmark.

      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics
      2825 50th St Rm 2284, Uc Davis Mind Institute, 
      Sacramento, CA 
      Languages Spoken:
      English

      Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider in Sacramento, California. Dr. Rauen is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are RASopathies, Costello Syndrome, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

      Distinguished in Clouston Syndrome
      Dermatology
      Distinguished in Clouston Syndrome
      Dermatology

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Joyce Teng is a Dermatologist in Palo Alto, California. Dr. Teng is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Lamellar Ichthyosis, Nonbullous Congenital Ichthyosiform Erythroderma, Nevoid Basal Cell Carcinoma Syndrome, Aplasia Cutis Congenita, and Liver Embolization.

      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics
      513 Parnassus Ave, Room S747, Box 0442, 
      San Francisco, CA 
      Languages Spoken:
      English

      Ophir Klein is a Medical Genetics specialist and a Pediatrics provider in San Francisco, California. Dr. Klein is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Costello Syndrome, RASopathies, Ectodermal Dysplasias, and Clouston Syndrome.

      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
      Experience:
      18+ years
      Languages Spoken:
      English

      Mark Mamlouk is a Radiologist in San Francisco, California. Dr. Mamlouk has been practicing medicine for over 18 years and is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are PHACE Syndrome, Cerebrospinal Fluid Leak, Ectodermal Dysplasias, Clouston Syndrome, and Tissue Biopsy.

      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome

      Ucsf Medical Group Business Services

      3100 San Pablo Ave, 
      Berkeley, CA 
      Languages Spoken:
      English

      Christopher Hess is a Radiologist in Berkeley, California. Dr. Hess is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, Deep Brain Stimulation, and Vertebroplasty.

      Jennifer R. Tavernetti
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      1495 River Park Dr., Suite 200, 
      Sacramento, CA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jennifer Tavernetti is a Dermatologist in Sacramento, California. Dr. Tavernetti is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Melanoma, Comedones, Actinic Keratosis, and Cheilitis Glandularis. Dr. Tavernetti is currently accepting new patients.

      Dorota Z. Korta
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      2720 Low Court, 
      Fairfield, CA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dorota Korta is a Dermatologist in Fairfield, California. Dr. Korta is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Alopecia Areata, Sunburn, Autosomal Recessive Hypotrichosis, and Steatocystoma Multiplex. Dr. Korta is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Office

      730 Welch Rd Ste 206, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Brenda Porter is a Neurologist in Palo Alto, California. Dr. Porter is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Seizures, Epilepsy, and Deep Brain Stimulation.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      1310 West Stewart Drive, Suite 506, 
      Orange, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Lourdes Brown is a Pediatrics provider in Orange, California. Dr. Brown is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Asthma in Children, Zlotogora-Ogur Syndrome, and AEC Syndrome. Dr. Brown is currently accepting new patients.

      Experienced in Clouston Syndrome
      Pediatric Neurology
      Experienced in Clouston Syndrome
      Pediatric Neurology
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Danielle Whalen is a Pediatric Neurologist in Orange, California. Dr. Whalen is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epilepsy, Seizures, Spasmus Nutans, and Autism Spectrum Disorder. Dr. Whalen is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      4650 West Sunset Boulevard, 
      Los Angeles, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Meagan Hughes is a Pediatrics provider in Los Angeles, California. Dr. Hughes is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Stork Bite, Vascular Birthmark, Congenital Athymia, and EEC Syndrome. Dr. Hughes is currently accepting new patients.

      Experienced in Clouston Syndrome
      Internal Medicine
      Experienced in Clouston Syndrome
      Internal Medicine
      18133 Ventura Boulevard, Suite 204, 
      Tarzana, CA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Lewis is a primary care provider, practicing in Internal Medicine in Tarzana, California. Dr. Lewis is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Schwannomatosis, Congenital Sucrase-Isomaltase Deficiency, Glucose Phosphate Isomerase Deficiency, Glucose-Galactose Malabsorption Deficiency, and Prostatectomy. Dr. Lewis is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neurology
      Experienced in Clouston Syndrome
      Neurology

      Limited To Official Government Duties On

      710 Westwood Plz, 
      Los Angeles, CA 
      Languages Spoken:
      English

      Aylin Reid is a Neurologist in Los Angeles, California. Dr. Reid is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Post-Traumatic Epilepsy, Neurofibromatosis Type 1 (NF1), Seizures, and Neurofibromatosis.

      Experienced in Clouston Syndrome
      Pediatric Cardiology
      Experienced in Clouston Syndrome
      Pediatric Cardiology

      Office

      200 Medical Plz Ste 330, 
      Los Angeles, CA 
      Languages Spoken:
      English

      Kevin Shannon is a Pediatric Cardiologist in Los Angeles, California. Dr. Shannon is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Cardiomyopathy, Cardiac Ablation, and Pacemaker Implantation.

      Experienced in Clouston Syndrome
      Pediatric Cardiology
      Experienced in Clouston Syndrome
      Pediatric Cardiology

      University Of California San Francisco Children's Hospital

      550 16th St, 
      San Francisco,, CA 
      Languages Spoken:
      English

      Aneela Reddy is a Pediatric Cardiologist in San Francisco,, California. Dr. Reddy is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Coarctation of the Aorta, Anomalous Left Coronary Artery from the Pulmonary Artery, Clouston Syndrome, and Ectodermal Dysplasias.

      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Community Health Partners

      45 E River Park Pl W, Suite 507, 
      Fresno, CA 
      Languages Spoken:
      English

      Cynthia Curry is a Medical Genetics specialist and a Pediatrics provider in Fresno, California. Dr. Curry is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are AEC Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Zlotogora-Ogur Syndrome.

      Showing 1-20 of 124

      Last Updated: 01/09/2026

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in California, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in California, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors in California, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in California, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in California, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in California, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in California, US?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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