The 20 Best Clouston Syndrome Doctors Near Me in California, US

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors in California, US

Last Updated: 02/22/2026

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MediFind found 129 doctor with experience in Clouston Syndrome near California, US. Of these, 108 are Experienced, 15 are Advanced, 5 are Distinguished and 1 are Elite.

Location
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129 providers found
    Elite in Clouston Syndrome
    Elite in Clouston Syndrome

    Office

    1701 Divisadero St # 340, 
    San Francisco, CA 
    Languages Spoken:
    English

    Ilona Frieden is a Pediatrics provider in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

    Christopher Hess
    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology
    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology

    Precision Spine And Peripheral Nerve Center

    185 Berry St., Lobby 6, 
    San Francisco, CA 
    Languages Spoken:
    English, Portuguese
    Accepting New Patients

    Dr. Christopher Hess is a neuroradiologist, a specialist in diagnosing nervous system disorders with advanced imaging technologies. He uses MRI to diagnose and monitor neurodegenerative disorders such as dementia, and movement disorders such as Parkinson's disease and epilepsy. He also has expertise in diagnosing vascular anomalies (abnormalities involving blood vessels) and in CT-guided spinal procedures. He serves as chair of the UCSF Department of Radiology and Biomedical Imaging. Hess earned his medical degree at the University of Illinois College of Medicine. He earned a master of science degree and doctorate in electrical engineering at the University of Illinois at Urbana-Champaign. He completed a residency in radiology and a fellowship in neuroradiology at UCSF. Dr. Hess is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, Deep Brain Stimulation, and Vertebroplasty.

    Distinguished in Clouston Syndrome
    Pediatrics
    Distinguished in Clouston Syndrome
    Pediatrics

    Child And Adolescent Mental Health-Stanford Children's Health Specialty Services-Sunnyvale

    1195 W Fremont Ave, 
    Sunnyvale, CA 
    Languages Spoken:
    English

    Dawn Siegel is a Pediatrics provider in Sunnyvale, California. Dr. Siegel is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Vascular Birthmark.

    Learn about our expert tiers
    Distinguished in Clouston Syndrome
    Neuroradiology
    Distinguished in Clouston Syndrome
    Neuroradiology

    Kaiser Permanente Santa Clara Medical Center

    700 Lawrence Expy, 
    Santa Clara, CA 
    Experience:
    18+ years
    Languages Spoken:
    English

    Mark Mamlouk is a Neuroradiologist in Santa Clara, California. Dr. Mamlouk has been practicing medicine for over 18 years and is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are PHACE Syndrome, Cerebrospinal Fluid Leak, Aplasia Cutis Congenita, Clouston Syndrome, and Tissue Biopsy.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    2825 50th St Rm 2284, Uc Davis Mind Institute, 
    Sacramento, CA 
    Languages Spoken:
    English

    Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider in Sacramento, California. Dr. Rauen is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are RASopathies, Costello Syndrome, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    513 Parnassus Ave, Room S747, Box 0442, 
    San Francisco, CA 
    Languages Spoken:
    English

    Ophir Klein is a Medical Genetics specialist and a Pediatrics provider in San Francisco, California. Dr. Klein is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Costello Syndrome, RASopathies, Aplasia Cutis Congenita, and Clouston Syndrome.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics

    Lucille Packard Children's Hospital 030962

    770 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Joyce Teng is a Pediatrics provider in Palo Alto, California. Dr. Teng is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Dowling-Meara Epidermolysis Bullosa Simplex, Dominant Dystrophic Epidermolysis Bullosa, Fetal Retinoid Syndrome, and Liver Embolization.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    Office

    1635 Divisadero St Ste 625, 
    San Francisco, CA 
    Languages Spoken:
    English

    Matthias Schmuth is a Dermatologist in San Francisco, California. Dr. Schmuth is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Netherton Syndrome, Ichthyosis Vulgaris, Nonbullous Congenital Ichthyosiform Erythroderma, and X-Linked Ichthyosis.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics

    Birthmarks & Vascular Anomalies Center

    1825 4th St, 
    San Francisco, CA 
    Languages Spoken:
    English

    Erin Mathes is a Pediatrics provider in San Francisco, California. Dr. Mathes is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Lamellar Ichthyosis, Hemangioma, and Aplasia Cutis Congenita.

    Advanced in Clouston Syndrome
    Dermatology
    Advanced in Clouston Syndrome
    Dermatology

    Kevin W. Broder M. D. Incorporated

    8899 University Center Ln Ste 350, 
    San Diego, CA 
    Languages Spoken:
    English

    Zachary Jaeger is a Dermatologist in San Diego, California. Dr. Jaeger is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Epidermal Nevus, Familial Multiple Lipomatosis, Neurocutaneous Melanosis, and Aplasia Cutis Congenita.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics

    CSSD II A Medical Group Inc

    3860 Calle Fortunada Ste 210, 
    San Diego, CA 
    Languages Spoken:
    English

    Joseph Lam is a Pediatrics provider in San Diego, California. Dr. Lam is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cutis Marmorata Telangiectatica Congenita, Gianotti-Crosti Syndrome, Erythema Nodosum, Ringworm, and Tissue Biopsy.

    Kelly M. Cordoro
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics

    Dermatology Clinic At Mount Zion

    1701 Divisadero St., Third And Fourth Floors, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Kelly M. Cordoro is a pediatric dermatologist who treats all types of skin conditions, with particular interest in psoriasis, autoimmune diseases and inflammatory diseases. She is also interested in laser surgery and other surgical procedures for dermatological disorders. Cordoro's research interests include pediatric psoriasis and systemic therapies for inflammatory disorders. Cordoro earned her medical degree at Penn State College of Medicine. She completed a residency in dermatology at the University of Virginia in 2005 and remained on the faculty until 2007, caring for patients in general dermatology and serving as assistant program director for resident medical education. She completed a fellowship in pediatric dermatology at UCSF in 2008. Cordoro is a member of numerous professional organizations, including the American Academy of Dermatology, Society for Pediatric Dermatology, Pediatric Dermatology Research Alliance, Dermatology Foundation, Association of Professors of Dermatology, National Psoriasis Foundation and Alpha Omega Alpha Honor Medical Society. Dr. Cordoro is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Psoriasis, Localized Scleroderma, Guttate Psoriasis, and Netherton Syndrome.

    Jennifer R. Tavernetti
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    1495 River Park Dr., Suite 200, 
    Sacramento, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jennifer Tavernetti is a Dermatologist in Sacramento, California. Dr. Tavernetti is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Melanoma, Comedones, Actinic Keratosis, and Cheilitis Glandularis. Dr. Tavernetti is currently accepting new patients.

    Line Jacques
    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery
    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery

    Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Line Jacques is a General Surgeon and a Neurosurgery provider in San Francisco, California. Dr. Jacques is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Thoracic Outlet Syndrome, Schwannoma, Neurofibromatosis, Chiari Malformation Type 2, and Sacral Nerve Stimulation. Dr. Jacques is currently accepting new patients.

    Dorota Z. Korta
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    2720 Low Court, 
    Fairfield, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dorota Korta is a Dermatologist in Fairfield, California. Dr. Korta is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Alopecia Areata, Sunburn, Autosomal Recessive Hypotrichosis, and Steatocystoma Multiplex. Dr. Korta is currently accepting new patients.

    Jayasree V. Nair
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Sutter Medical Plaza Jackson

    100 Mission Blvd., Suite 2600, 
    Jackson, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Jayasree Nair is a Pediatrics provider in Jackson, California. Dr. Nair is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome. Dr. Nair is currently accepting new patients.

    Joseph Shieh
    Advanced in Clouston Syndrome
    Medical Genetics
    Advanced in Clouston Syndrome
    Medical Genetics

    Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Joseph Shieh specializes in evaluating complex medical problems of unknown cause as well as inherited disorders. He focuses on rare diseases and syndromes that have components of common disorders, including birth defects, heart disease and brain disorders. He is experienced in providing personalized care to children, adults and families. As a member of the UCSF Institute for Human Genetics, Shieh combines state-of-the-art technology with discovery-based research to decipher how genetics impacts health. His overarching goal is to bring patients the best possible outcomes by emphasizing diagnostic precision, preventive medicine and comprehensive care. Shieh completed his undergraduate studies at Stanford University. He earned his medical degree from the Perelman School of Medicine at the University of Pennsylvania, where he also received his doctoral degree. He completed his residency in pediatrics at Seattle Children's Hospital, an affiliate of the University of Washington. After completing a fellowship in medical genetics at Stanford University, he joined UCSF. Shieh is a member of the American Society of Human Genetics. His work has received support from the National Heart, Lung, and Blood Institute, which is part of the National Institutes of Health. Dr. Shieh is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Myhre Syndrome, Neurofibromatosis, and Ectodermal Dysplasias.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Danielle Whalen is a Pediatric Neurologist in Orange, California. Dr. Whalen is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epilepsy, Seizures, Spasmus Nutans, and Autism Spectrum Disorder. Dr. Whalen is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Descanso Dermatology Medical Group

    1346 Foothill Blvd Ste 203, 
    La Canada Flintridge, CA 
    Languages Spoken:
    English

    Linda Wong is a Dermatologist in La Canada Flintridge, California. Dr. Wong is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are EEC Syndrome, Zlotogora-Ogur Syndrome, Clouston Syndrome, and AEC Syndrome.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    4650 West Sunset Boulevard, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Meagan Hughes is a Pediatrics provider in Los Angeles, California. Dr. Hughes is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Acne, Atopic Dermatitis, Hidradenitis Suppurativa, and Stork Bite. Dr. Hughes is currently accepting new patients.

    Showing 1-20 of 129

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in California, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in California, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in California, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in California, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in California, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in California, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in California, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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