The 20 Best Clouston Syndrome Doctors Near Me in California, US

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 127 doctor with experience in Clouston Syndrome near California, US. Of these, 107 are Experienced, 14 are Advanced, 5 are Distinguished and 1 are Elite.

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127 providers found
    Elite in Clouston Syndrome
    Elite in Clouston Syndrome
    Referral may be required

    Office

    1701 Divisadero St # 340, 
    San Francisco, CA 
    Languages Spoken:
    English

    Ilona Frieden is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology
    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology
    Referral may be required

    Precision Spine And Peripheral Nerve Center

    185 Berry St., Lobby 6, 
    San Francisco, CA 
    Languages Spoken:
    English, Portuguese
    Accepting New Patients

    Dr. Christopher Hess is a neuroradiologist, a specialist in diagnosing nervous system disorders with advanced imaging technologies. He uses MRI to diagnose and monitor neurodegenerative disorders such as dementia, and movement disorders such as Parkinson's disease and epilepsy. He also has expertise in diagnosing vascular anomalies (abnormalities involving blood vessels) and in CT-guided spinal procedures. He serves as chair of the UCSF Department of Radiology and Biomedical Imaging. Hess earned his medical degree at the University of Illinois College of Medicine. He earned a master of science degree and doctorate in electrical engineering at the University of Illinois at Urbana-Champaign. He completed a residency in radiology and a fellowship in neuroradiology at UCSF. Dr. Hess is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, Deep Brain Stimulation, and Vertebroplasty. Dr. Hess is board certified in American Board Of Radiology, Neuroradiology and American Board Of Radiology, Diagnostic Radiology. Dr. Hess is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Pediatrics
    Distinguished in Clouston Syndrome
    Pediatrics
    Referral may be required

    Child And Adolescent Mental Health-Stanford Children's Health Specialty Services-Sunnyvale

    1195 W Fremont Ave, 
    Sunnyvale, CA 
    Languages Spoken:
    English

    Dawn Siegel is a Pediatrics provider practicing medicine in Sunnyvale, California. Dr. Siegel is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 43 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Learn about our expert tiers
    Distinguished in Clouston Syndrome
    Neuroradiology
    Distinguished in Clouston Syndrome
    Neuroradiology
    Referral may be required

    Kaiser Permanente Santa Clara Medical Center

    700 Lawrence Expy, 
    Santa Clara, CA 
    Experience:
    18+ years
    Languages Spoken:
    English

    Mark Mamlouk is a Neuroradiologist practicing medicine in Santa Clara, California. He has been practicing medicine for over 18 years. Dr. Mamlouk is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Cerebrospinal Fluid Leak, Clouston Syndrome, Ectodermal Dysplasias, and Tissue Biopsy.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    2825 50th St Rm 2284, Uc Davis Mind Institute, 
    Sacramento, CA 
    Languages Spoken:
    English

    Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Sacramento, California. Dr. Rauen is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses RASopathies, Costello Syndrome, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    513 Parnassus Ave, Room S747, Box 0442, 
    San Francisco, CA 
    Languages Spoken:
    English

    Ophir Klein is a Medical Genetics specialist and a Pediatrics provider practicing medicine in San Francisco, California. Dr. Klein is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Costello Syndrome, RASopathies, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics
    Referral may be required

    Birthmarks & Vascular Anomalies Center

    1825 4th St, 
    San Francisco, CA 
    Languages Spoken:
    English

    Erin Mathes is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Mathes is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Lamellar Ichthyosis, and Aplasia Cutis Congenita.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics
    Referral may be required

    Lucille Packard Children's Hospital 030962

    770 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Joyce Teng is a Pediatrics provider practicing medicine in Palo Alto, California. Dr. Teng is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 136 other conditions, according to our data. Her clinical expertise encompasses Dowling-Meara Epidermolysis Bullosa Simplex, Dominant Dystrophic Epidermolysis Bullosa, Nevoid Basal Cell Carcinoma Syndrome, Fetal Retinoid Syndrome, and Liver Embolization.

    Advanced in Clouston Syndrome
    Dermatology
    Advanced in Clouston Syndrome
    Dermatology
    Referral may be required

    Kevin W. Broder M. D. Incorporated

    8899 University Center Ln Ste 350, 
    San Diego, CA 
    Languages Spoken:
    English

    Zachary Jaeger is a Dermatologist practicing medicine in San Diego, California. Dr. Jaeger is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurocutaneous Melanosis, Epidermal Nevus, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics
    Referral may be required

    CSSD II A Medical Group Inc

    3860 Calle Fortunada Ste 210, 
    San Diego, CA 
    Languages Spoken:
    English

    Joseph Lam is a Pediatrics provider practicing medicine in San Diego, California. Dr. Lam is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Cutis Marmorata Telangiectatica Congenita, Gianotti-Crosti Syndrome, Erythema Nodosum, Ringworm, and Tissue Biopsy.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Office

    1635 Divisadero St Ste 625, 
    San Francisco, CA 
    Languages Spoken:
    English

    Matthias Schmuth is a Dermatologist practicing medicine in San Francisco, California. Dr. Schmuth is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Ichthyosis Vulgaris, Nonbullous Congenital Ichthyosiform Erythroderma, Netherton Syndrome, and Darier Disease.

    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Referral may be required

    Dermatology Clinic At Mount Zion

    1701 Divisadero St., Third And Fourth Floors, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Kelly M. Cordoro is a pediatric dermatologist who treats all types of skin conditions, with particular interest in psoriasis, autoimmune diseases and inflammatory diseases. She is also interested in laser surgery and other surgical procedures for dermatological disorders. Cordoro's research interests include pediatric psoriasis and systemic therapies for inflammatory disorders. Cordoro earned her medical degree at Penn State College of Medicine. She completed a residency in dermatology at the University of Virginia in 2005 and remained on the faculty until 2007, caring for patients in general dermatology and serving as assistant program director for resident medical education. She completed a fellowship in pediatric dermatology at UCSF in 2008. Cordoro is a member of numerous professional organizations, including the American Academy of Dermatology, Society for Pediatric Dermatology, Pediatric Dermatology Research Alliance, Dermatology Foundation, Association of Professors of Dermatology, National Psoriasis Foundation and Alpha Omega Alpha Honor Medical Society. Dr. Cordoro is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Psoriasis, Localized Scleroderma, Guttate Psoriasis, and Netherton Syndrome. Dr. Cordoro is board certified in American Board Of Dermatology, Pediatric Dermatology and American Board Of Dermatology, Dermatology. Dr. Cordoro is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required
    1495 River Park Dr., Suite 200, 
    Sacramento, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jennifer Tavernetti is a Dermatologist practicing medicine in Sacramento, California. Dr. Tavernetti is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Melanoma, Comedones, Actinic Keratosis, and Cheilitis Glandularis. Dr. Tavernetti is board certified in Dermatology. Dr. Tavernetti is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    UCI Health Dermatology Center

    850 Health Sciences Road, Floor 2, 
    Irvine, CA 
    Languages Spoken:
    English, Spanish

    Dr. Melissa Shive is a board-certified UCI Health dermatologist and dermatologic surgeon who is fellowship trained in Mohs micrographic surgery and reconstructive surgery.Her clinical interests include advanced surgical treatment of skin cancers, such as melanoma, squamous cell carcinoma and basal cell carcinoma, as well as more rare tumor types. She also is skilled in a wide variety of cosmetic and laser procedures.Shive earned her medical degree at UC San Francisco School of Medicine after obtaining a master’s in Public Health from Harvard University in Cambridge, Mass. She completed a dermatology residency at the David Geffen School of Medicine at UCLA in Los Angeles. She completed a fellowship at UCI School of Medicine that focused on Mohs micrographic surgery, reconstructive surgery, cosmetic dermatology and other dermatologic procedures.She is the author or co-author of dozens of research papers and book chapters in her field. She also has given presentations at numerous regional and national academic conferences. Dr. Shive is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Vitiligo, Actinic Keratosis, Tieche-Jadassohn Nevus, and Tinea Versicolor.

    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery
    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery
    Referral may be required

    Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Line Jacques is a General Surgeon and a Neurosurgery provider practicing medicine in San Francisco, California. Dr. Jacques is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Schwannoma, Thoracic Outlet Syndrome, Neurofibromatosis, Chiari Malformation Type 2, and Sacral Nerve Stimulation. Dr. Jacques is board certified in American Board Of Neurological Surgery, Neurological Surgery. Dr. Jacques is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required
    2720 Low Court, 
    Fairfield, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dorota Korta is a Dermatologist practicing medicine in Fairfield, California. Dr. Korta is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Alopecia Areata, Sunburn, Autosomal Recessive Hypotrichosis, and Steatocystoma Multiplex. Dr. Korta is board certified in Dermatology - Board Certified. Dr. Korta is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    UCI Health - Yorba Linda Multispecialty

    18637 Yorba Linda Boulevard, 
    Linda, CA 
    Languages Spoken:
    English

    Dr. Katerina L. Yale is a board-certified UCI Health dermatologist.She earned her medical degree from the George Washington University School of Medicine in Washington, D.C. She completed a residency in dermatology, followed by a fellowship in Mohs micrographic surgery and dermatologic oncology, both at UCI Health — Orange. Dr. Yale is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Hypotrichosis, Alopecia Areata, Familial Atypical Multiple Mole Melanoma Syndrome, and Melasma.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Sutter Medical Plaza Jackson

    100 Mission Blvd., Suite 2600, 
    Jackson, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Jayasree Nair is a Pediatrics provider practicing medicine in Jackson, California. Dr. Nair is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome. Dr. Nair is board certified in Pediatrics. Dr. Nair is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    UCI Health Dermatology Center

    850 Health Sciences Road, Floor 2, 
    Irvine, CA 
    Languages Spoken:
    English

    Dr. Christopher B. Zachary is a UCI Health dermatologist who specializes in skin cancer and reconstruction, as well as cosmetic and laser surgery. His clinical interests include dermatologic laser surgery, skin cancer, mohs surgery, melanoma and aesthetic treatments, including skin rejuvenation, botulinum toxin and the full range of injectable fillers.He completed medical school at the Royal Free Hospital, University of London, in the United Kingdom, where he received training in internal medicine and dermatology. At the Institute of Dermatology, Guys and St. Thomas' Hospitals in London, he became interested in dermatological surgery. He subsequently completed training in dermatological surgical at the University of Michigan in Ann Arbor.Zachary returned to London to set up the first Mohs and laser skin surgery practice. In 1988, he became director of the University of Minnesota's Cutaneous Surgery and Laser Center. In 1997, he became a professor and co-director of the Dermatologic Surgery and Laser Center at the UC San Francisco Medical Center. In 2005, he accepted the position as professor at the UCI School of Medicine and went on to serve 15 years as chair of its Department of Dermatology.He is a frequent speaker at national and international symposia and is often contact by national media (e.g., the New York Times, CNN, the Today Show) for commentary about dermatologic issues and treatments. He is a past president of the Association of Academic Dermatologic Surgeons. An educational innovator, he has written and edited numerous papers and books. Dr. Zachary is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Vitiligo, Basal Cell Skin Cancer, Steatocystoma Multiplex, Actinic Keratosis, and Lymphadenectomy. Dr. Zachary is board certified in American Board Of Dermatology - Dermatology.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    UCI Health Dermatology Center

    850 Health Sciences Road, Floor 2, 
    Irvine, CA 
    Languages Spoken:
    English, Spanish

    Dr. Kristen Kelly is a board-certified UCI Health dermatologist with more than 25 years of experience using lasers to treat vascular birthmarks, scars and other dermatologic conditions. She specializes in cutaneous vascular lesions, skin cancer and other skin conditions, including acne and sun damage, and is a leader in the use of imaging technologies to accurately diagnose skin cancer.Kelly received her medical degree from UCLA, and completed an internship in internal medicine from St. Mary Medical Center in Long Beach. She completed a residency in dermatology at the UCI School of Medicine. She is now chair of the medical school's Department of Dermatology.Her research is focused on vascular birthmarks, photodynamic therapy and light-based imaging, and the development and implementation of the latest energy-based technologies, techniques and treatments in dermatology. She has contributed to the work of the world-renowned UCI Health Beckman Laser Institute & Medical Clinic for more than 20 years, and is past president and board member of the American Society for Laser Medicine and Surgery. Her recent projects include the study of Doppler optical coherence tomography and multiphoton microscopy for the noninvasive and early diagnosis of melanoma and other skin cancers.Kelly is the author or co-author of more than 100 research publications and numerous book chapters, and lectures widely at national and international conferences.She sees patients in Irvine at theUCI Health Dermatology Centerand theUCI Health Beckman Laser Institute & Medical Clinic. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Actinic Keratosis, Warts, Rosacea, and Psoriasis. Dr. Kelly is board certified in American Board Of Dermatology - Dermatology.

    Showing 1-20 of 127

    Last Updated: 06/30/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in California, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in California, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in California, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in California, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in California, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in California, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in California, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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