The 20 Best Clouston Syndrome Doctors Near Me in California, US

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 123 doctor with experience in Clouston Syndrome near California, US. Of these, 101 are Experienced, 14 are Advanced, 7 are Distinguished and 1 are Elite.

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123 providers found
    Elite in Clouston Syndrome
    Elite in Clouston Syndrome
    1701 Divisadero St Fl 3, 
    San Francisco, CA 
    Languages Spoken:
    English

    Ilona Frieden is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology
    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology

    Precision Spine And Peripheral Nerve Center

    185 Berry St., Lobby 6, 
    San Francisco, CA 
    Languages Spoken:
    English, Portuguese
    Accepting New Patients

    Dr. Christopher Hess is a neuroradiologist, a specialist in diagnosing nervous system disorders with advanced imaging technologies. He uses MRI to diagnose and monitor neurodegenerative disorders such as dementia, and movement disorders such as Parkinson's disease and epilepsy. He also has expertise in diagnosing vascular anomalies (abnormalities involving blood vessels) and in CT-guided spinal procedures. He serves as chair of the UCSF Department of Radiology and Biomedical Imaging. Hess earned his medical degree at the University of Illinois College of Medicine. He earned a master of science degree and doctorate in electrical engineering at the University of Illinois at Urbana-Champaign. He completed a residency in radiology and a fellowship in neuroradiology at UCSF. Dr. Hess is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Arteriovenous Malformation, Aplasia Cutis Congenita, Deep Brain Stimulation, and Vertebroplasty. Dr. Hess is board certified in American Board Of Radiology, Neuroradiology and American Board Of Radiology, Diagnostic Radiology. Dr. Hess is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Dermatology | Pediatrics
    Distinguished in Clouston Syndrome
    Dermatology | Pediatrics
    730 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Dawn Siegel is a Dermatologist and a Pediatrics provider practicing medicine in Palo Alto, California. Dr. Siegel is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 43 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Clouston Syndrome.

    Learn about our expert tiers
    Distinguished in Clouston Syndrome
    Dermatology | Pediatrics
    Distinguished in Clouston Syndrome
    Dermatology | Pediatrics
    730 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Joyce Teng is a Dermatologist and a Pediatrics provider practicing medicine in Palo Alto, California. Dr. Teng is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 138 other conditions, according to our data. Her clinical expertise encompasses Lamellar Ichthyosis, Nonbullous Congenital Ichthyosiform Erythroderma, Nevoid Basal Cell Carcinoma Syndrome, Dowling-Meara Epidermolysis Bullosa Simplex, and Liver Embolization.

    Distinguished in Clouston Syndrome
    Neuroradiology
    Distinguished in Clouston Syndrome
    Neuroradiology

    Kaiser Permanente Santa Clara Medical Center

    700 Lawrence Expy, 
    Santa Clara, CA 
    Experience:
    18+ years
    Languages Spoken:
    English

    Mark Mamlouk is a Neuroradiologist practicing medicine in Santa Clara, California. He has been practicing medicine for over 18 years. Dr. Mamlouk is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Cerebrospinal Fluid Leak, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Tissue Biopsy.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    2825 50th St Rm 2284, Uc Davis Mind Institute, 
    Sacramento, CA 
    Languages Spoken:
    English

    Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Sacramento, California. Dr. Rauen is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses RASopathies, Costello Syndrome, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    513 Parnassus Ave, Room S747, Box 0442, 
    San Francisco, CA 
    Languages Spoken:
    English

    Ophir Klein is a Medical Genetics specialist and a Pediatrics provider practicing medicine in San Francisco, California. Dr. Klein is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Costello Syndrome, RASopathies, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics

    Lpch Medical Group Div Of Lucile

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    David Stevenson is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Palo Alto, California. Dr. Stevenson is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 101 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, RASopathies, Costello Syndrome, and Deep Brain Stimulation.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics

    Birthmarks & Vascular Anomalies Center

    1825 4th St, 
    San Francisco, CA 
    Languages Spoken:
    English

    Erin Mathes is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Mathes is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Hemangioma, Lamellar Ichthyosis, and Aplasia Cutis Congenita.

    Advanced in Clouston Syndrome
    Dermatology
    Advanced in Clouston Syndrome
    Dermatology

    Kevin W. Broder M. D. Incorporated

    8899 University Center Ln Ste 350, 
    San Diego, CA 
    Languages Spoken:
    English

    Zachary Jaeger is a Dermatologist practicing medicine in San Diego, California. Dr. Jaeger is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurocutaneous Melanosis, Epidermal Nevus, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics

    CSSD II A Medical Group Inc

    3860 Calle Fortunada Ste 210, 
    San Diego, CA 
    Languages Spoken:
    English

    Joseph Lam is a Pediatrics provider practicing medicine in San Diego, California. Dr. Lam is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Cutis Marmorata Telangiectatica Congenita, Gianotti-Crosti Syndrome, Erythema Nodosum, Ringworm, and Tissue Biopsy.

    Advanced in Clouston Syndrome
    Dermatology
    Advanced in Clouston Syndrome
    Dermatology

    UC Davis Dermatology Clinic

    3301 C St Ste 1300, 
    Sacramento, CA 
    Languages Spoken:
    English

    Maija Kiuru is a Dermatologist practicing medicine in Sacramento, California. Dr. Kiuru is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 54 other conditions, according to our data. Her clinical expertise encompasses Basal Cell Skin Cancer, Melanoma, Giant Congenital Nevus, and Costello Syndrome.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    Office

    1635 Divisadero St Ste 625, 
    San Francisco, CA 
    Languages Spoken:
    English

    Matthias Schmuth is a Dermatologist practicing medicine in San Francisco, California. Dr. Schmuth is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Ichthyosis Vulgaris, Nonbullous Congenital Ichthyosiform Erythroderma, Netherton Syndrome, and X-Linked Ichthyosis.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    1701 Divisadero St Fl 3, 
    San Francisco, CA 
    Languages Spoken:
    English

    Dr. Kelly M. Cordoro is a pediatric dermatologist who treats all types of skin conditions, with particular interest in psoriasis, autoimmune diseases and inflammatory diseases. She is also interested in laser surgery and other surgical procedures for dermatological disorders. Cordoro's research interests include pediatric psoriasis and systemic therapies for inflammatory disorders. Cordoro earned her medical degree at Penn State College of Medicine. She completed a residency in dermatology at the University of Virginia in 2005 and remained on the faculty until 2007, caring for patients in general dermatology and serving as assistant program director for resident medical education. She completed a fellowship in pediatric dermatology at UCSF in 2008. Cordoro is a member of numerous professional organizations, including the American Academy of Dermatology, Society for Pediatric Dermatology, Pediatric Dermatology Research Alliance, Dermatology Foundation, Association of Professors of Dermatology, National Psoriasis Foundation and Alpha Omega Alpha Honor Medical Society. Dr. Cordoro is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Psoriasis, Localized Scleroderma, Guttate Psoriasis, and Netherton Syndrome. Dr. Cordoro is board certified in American Board Of Dermatology, Pediatric Dermatology and American Board Of Dermatology, Dermatology.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    1495 River Park Dr # 200, 
    Sacramento, CA 
    Languages Spoken:
    English

    Jennifer Tavernetti is a Dermatologist practicing medicine in Sacramento, California. Dr. Tavernetti is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Melanoma, Comedones, Actinic Keratosis, and Cheilitis Glandularis. Dr. Tavernetti is board certified in Dermatology.

    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery
    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery

    Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Line Jacques is a General Surgeon and a Neurosurgery provider practicing medicine in San Francisco, California. Dr. Jacques is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Thoracic Outlet Syndrome, Schwannoma, Neurofibromatosis, Chiari Malformation Type 2, and Sacral Nerve Stimulation. Dr. Jacques is board certified in American Board Of Neurological Surgery, Neurological Surgery. Dr. Jacques is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Burlingame, CA 
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Frederick Bartholomew is a Dermatologist practicing medicine in Burlingame, California. He has been practicing medicine for over 10 years. Dr. Bartholomew is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Melanoma, Pachyonychia Congenita, Fetal Cystic Hygroma, and Kaposiform Hemangioendothelioma. Dr. Bartholomew is board certified in Dermatology.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Sutter Medical Plaza Jackson

    100 Mission Blvd., Suite 2600, 
    Jackson, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Jayasree Nair is a Pediatrics provider practicing medicine in Jackson, California. Dr. Nair is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome. Dr. Nair is board certified in Pediatrics. Dr. Nair is currently accepting new patients.

    Advanced in Clouston Syndrome
    Medical Genetics
    Advanced in Clouston Syndrome
    Medical Genetics

    Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Dr. Joseph Shieh specializes in evaluating complex medical problems of unknown cause as well as inherited disorders. He focuses on rare diseases and syndromes that have components of common disorders, including birth defects, heart disease and brain disorders. He is experienced in providing personalized care to children, adults and families. As a member of the UCSF Institute for Human Genetics, Shieh combines state-of-the-art technology with discovery-based research to decipher how genetics impacts health. His overarching goal is to bring patients the best possible outcomes by emphasizing diagnostic precision, preventive medicine and comprehensive care. Shieh completed his undergraduate studies at Stanford University. He earned his medical degree from the Perelman School of Medicine at the University of Pennsylvania, where he also received his doctoral degree. He completed his residency in pediatrics at Seattle Children's Hospital, an affiliate of the University of Washington. After completing a fellowship in medical genetics at Stanford University, he joined UCSF. Shieh is a member of the American Society of Human Genetics. His work has received support from the National Heart, Lung, and Blood Institute, which is part of the National Institutes of Health. Dr. Shieh is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Myhre Syndrome, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Clouston Syndrome. Dr. Shieh is board certified in American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics. Dr. Shieh is currently accepting new patients.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    Lucile Packard Children's Hospital Stanford

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    Bruno Soares is a Neuroradiologist practicing medicine in Palo Alto, California. Dr. Soares is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Pentalogy of Cantrell, Chiari Malformation, Pediatric Low-Grade Glioma (pLGG), and Stroke.

    Showing 1-20 of 123

    Last Updated: 04/28/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in California, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in California, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in California, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in California, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in California, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in California, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in California, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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