The 20 Best Clouston Syndrome Doctors Near Me in San Francisco, CA

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 29 doctor with experience in Clouston Syndrome near San Francisco, CA. Of these, 20 are Experienced, 6 are Advanced, 2 are Distinguished and 1 are Elite.

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29 providers found
    Elite in Clouston Syndrome
    Elite in Clouston Syndrome
    Referral may be required

    Office

    1701 Divisadero St # 340, 
    San Francisco, CA 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Ilona Frieden is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Vascular Birthmark. Dr. Frieden is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology
    Distinguished in Clouston Syndrome
    Neuroradiology | Radiology
    Referral may be required

    Radiology At China Basin

    185 Berry St., Lobby 6, Suite 180 And 190, 
    San Francisco, CA 
     (1.5 miles away)
    Languages Spoken:
    English, Portuguese
    Accepting New Patients

    Christopher Hess is a Neuroradiologist and a Radiologist practicing medicine in San Francisco, California. Dr. Hess is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, Deep Brain Stimulation, and Thrombectomy. Dr. Hess is board certified in American Board Of Radiology, Diagnostic Radiology and American Board Of Radiology, Neuroradiology. Dr. Hess is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    513 Parnassus Ave, Room S747, Box 0442, 
    San Francisco, CA 
     (2.3 miles away)
    Languages Spoken:
    English

    Ophir Klein is a Medical Genetics specialist and a Pediatrics provider practicing medicine in San Francisco, California. Dr. Klein is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Costello Syndrome, RASopathies, Clouston Syndrome, and Ectodermal Dysplasias.

    Learn about our expert tiers
    Advanced in Clouston Syndrome
    Medical Genetics
    Advanced in Clouston Syndrome
    Medical Genetics
    Referral may be required

    Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
     (2.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Shieh is a Medical Genetics provider practicing medicine in San Francisco, California. Dr. Shieh is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Myhre Syndrome, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Shieh is board certified in American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics. Dr. Shieh is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Pediatric Headache Program

    1825 4th St Fl 5A, 
    San Francisco, CA 
     (0.1 miles away)
    Languages Spoken:
    English

    Christine Fox is a Neurologist practicing medicine in San Francisco, California. Dr. Fox is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Stroke, Arteriovenous Malformation, PHACE Syndrome, Thrombectomy, and Extracranial-Intracranial Bypass Surgery.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Office

    1635 Divisadero St Ste 625, 
    San Francisco, CA 
     (1.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Matthias Schmuth is a Dermatologist practicing medicine in San Francisco, California. Dr. Schmuth is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Ichthyosis Vulgaris, Nonbullous Congenital Ichthyosiform Erythroderma, Darier Disease, and Netherton Syndrome. Dr. Schmuth is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Referral may be required

    Dermatology Clinic At Mount Zion

    1701 Divisadero St., Third And Fourth Floors, 
    San Francisco, CA 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kelly Cordoro is a Dermatologist and a Pediatrics provider practicing medicine in San Francisco, California. Dr. Cordoro is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Psoriasis, Localized Scleroderma, Guttate Psoriasis, and Familial Multiple Nevi Flammei. Dr. Cordoro is board certified in American Board Of Dermatology, Pediatric Dermatology and American Board Of Dermatology, Dermatology. Dr. Cordoro is currently accepting new patients.

    Experienced in Clouston Syndrome
    Neuroradiology | Radiology
    Experienced in Clouston Syndrome
    Neuroradiology | Radiology
    Referral may be required

    Birthmarks & Vascular Anomalies Center

    1825 Fourth St., Fourth Floor, 4B, 
    San Francisco, CA 
     (1.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Dowd is a Neuroradiologist and a Radiologist practicing medicine in San Francisco, California. Dr. Dowd is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Arteriovenous Malformation, Subarachnoid Hemorrhage, Vein of Galen Aneurysm, Thrombectomy, and Stent Placement. Dr. Dowd is board certified in American Board Of Radiology, Diagnostic Radiology and American Board Of Radiology, Neuroradiology. Dr. Dowd is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Center For Complex Obstetric Medicine

    1825 Fourth St., Third Floor, 
    San Francisco, CA 
     (1.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Teresa Sparks is a Neonatologist practicing medicine in San Francisco, California. Dr. Sparks is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Fetal Edema, Hydrops Fetalis, Hemolytic Disease of the Newborn, and Alpha Thalassemia. Dr. Sparks is board certified in American Board Of Obstetrics And Gynecology, Obstetrics & Gynecology, American Board Of OB/Gyn/Maternal & Fetal Medicine, Maternal-Fetal Medicine, and American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics. Dr. Sparks is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Birthmarks & Vascular Anomalies Center

    1825 4th St, 
    San Francisco, CA 
     (1.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Erin Mathes is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Mathes is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Vascular Birthmark. Dr. Mathes is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Ucsf Medical Group Business Services

    400 Parnassus Ave, 
    San Francisco, CA 
     (2.2 miles away)
    Languages Spoken:
    English

    Rachel Vassar is a Neurologist practicing medicine in San Francisco, California. Dr. Vassar is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Ectodermal Dysplasias, Clouston Syndrome, and Aplasia Cutis Congenita.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Craniofacial Center

    5 5th Ave # C, 
    San Francisco, CA 
     (2.4 miles away)
    Languages Spoken:
    English

    Glenn Rosenbluth is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Rosenbluth is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses AEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, EEC Syndrome, Ectodermal Dysplasias, and Osteotomy.

    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics
    Referral may be required

    Office

    1600 Divisadero St Ste R205, 
    San Francisco, CA 
     (0.1 miles away)
    Languages Spoken:
    English

    Walter Devine is a Medical Genetics provider practicing medicine in San Francisco, California. Dr. Devine is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Non-Muscle Invasive Bladder Cancer, Muscle Invasive Bladder Cancer, Pediatric Low-Grade Glioma (pLGG), and ALK-Positive Non-Small Cell Lung Cancer.

    Experienced in Clouston Syndrome
    Internal Medicine
    Experienced in Clouston Syndrome
    Internal Medicine

    California Pacific Medical Center-Van Ness Campus

    1101 Van Ness Ave, 
    San Francisco, CA 
     (0.8 miles away)
    Languages Spoken:
    English

    Kathryn Szymanski is a primary care provider, practicing in Internal Medicine in San Francisco, California. Dr. Szymanski is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Velopharyngeal Insufficiency, Ectodermal Dysplasias, Clouston Syndrome, and Aplasia Cutis Congenita.

    Experienced in Clouston Syndrome
    Internal Medicine
    Experienced in Clouston Syndrome
    Internal Medicine

    Office

    1701 Divisadero St Fl 4, 
    San Francisco, CA 
     (1.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lowell Nicholson is a primary care provider, practicing in Internal Medicine in San Francisco, California. Dr. Nicholson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Pachyonychia Congenita, Dyskeratosis Congenita, Acrokeratoelastoidosis of Costa, and Palmoplantar Keratoderma. Dr. Nicholson is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Dermatology

    1701 Divisadero St # 3, 
    San Francisco, CA 
     (1.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Anubhav Mathur is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Mathur is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Stork Bite, Vascular Birthmark, Ectodermal Dysplasias, and Clouston Syndrome. Dr. Mathur is currently accepting new patients.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    Referral may be required

    UCSF General Internal Medicine

    1545 Divisadero St Fl 2, 
    San Francisco, CA 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Pui Kwok is a Dermatologist practicing medicine in San Francisco, California. Dr. Kwok is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Wolf-Hirschhorn Syndrome, Plaque Psoriasis, and Hirsutism in Women. Dr. Kwok is currently accepting new patients.

    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics
    Referral may be required

    Ucsf

    1701 Divisadero St, 
    San Francisco, CA 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Joanna Tu is a Pediatrics provider practicing medicine in San Francisco, California. Dr. Tu is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Vascular Birthmark, Stork Bite, Naegeli-Franceschetti-Jadassohn Syndrome, and Ectodermal Dysplasias. Dr. Tu is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Ucsf

    1701 Divisadero St, 
    San Francisco, CA 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rachel Waldemer-Streyer is a Dermatologist practicing medicine in San Francisco, California. Dr. Waldemer-Streyer is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Steatocystoma Multiplex, Pachyonychia Congenita, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Waldemer-Streyer is currently accepting new patients.

    Experienced in Clouston Syndrome
    Neonatology | Pediatrics
    Experienced in Clouston Syndrome
    Neonatology | Pediatrics
    Referral may be required

    KFH San Francisco Laboratory

    2425 Geary Blvd, 
    San Francisco, CA 
     (1.4 miles away)
    Languages Spoken:
    English

    Carlos Botas is a Neonatologist and a Pediatrics provider practicing medicine in San Francisco, California. Dr. Botas is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses EEC Syndrome, Zlotogora-Ogur Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, Ectodermal Dysplasias, and Gastrostomy.

    Showing 1-20 of 29

    Last Updated: 11/08/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near San Francisco, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near San Francisco, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near San Francisco, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near San Francisco, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near San Francisco, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near San Francisco, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near San Francisco, CA?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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