The 20 Best Clouston Syndrome Doctors Near Me in Delaware, US

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors in Delaware, US

Last Updated: 02/22/2026

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MediFind found 7 doctor with experience in Clouston Syndrome near Delaware, US. Of these, 5 are Experienced, 1 are Advanced and 1 are Distinguished.

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7 providers found
    Distinguished in Clouston Syndrome
    Medical Genetics
    Distinguished in Clouston Syndrome
    Medical Genetics

    Nemours DuPont Hospital For Children

    1600 Rockland Road, Department Of General Pediatrics, 
    Wilmington, DE 
    Languages Spoken:
    English

    Karen Gripp is a Medical Genetics provider in Wilmington, Delaware. Dr. Gripp is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Costello Syndrome, RASopathies, Noonan Syndrome, and Cardiofaciocutaneous Syndrome.

    Aaron S. Chidekel
    Advanced in Clouston Syndrome
    Pulmonary Medicine
    Advanced in Clouston Syndrome
    Pulmonary Medicine

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    1+ years
    Languages Spoken:
    English

    Dr. Aaron C. Chidekel is division chief of pulmonology, co-medical director of the sleep program and director of the hospital's cystic fibrosis program. He's an associate professor of pediatrics at the Sidney Kimmel Medical College at Thomas Jefferson University, author of medical journal articles and books, invited lecturer and active researcher. How can you not love kids and want to do all you can to help them? After all, they are our future. If you can positively impact the life of a child, you also impact a little bit of our future. I became a doctor because I wanted to help people. One of my mentors in medical school was an early pioneer in the treatment of cystic fibrosis (CF), and I picked up on his passion for helping those with the disease. Since his early work to today, kids with CF are living longer and better. That's very exciting and led to my wanting to help kids with CF, too — as well as those with asthma and other pulmonary conditions. I'm passionate about working with the whole family. It's the best way for each child to have the best possible outcome, and helps the whole family feel ownership of and contribution to the child's health. I like to help the kids and their families deal with the challenges they are facing. This can be challenging for me as well, but it's ultimately very rewarding when I can make a positive difference for a child and family.I'm also passionate about teaching kids and their families about asthma, CF and other conditions and how they can take care of themselves and live as healthy a life as possible.Learning is very important to my own practice as a doctor as well. I find it crucial to stay up to date on the very latest regarding conditions and treatments. I believe that caring and contributing my skills as a physician can help make a difference for a child and family. Also, a positive attitude can help people get through tough challenges and sometimes serious health concerns. I believe my patients pick up on this and gain confidence from it — although they're often incredibly positive already, no matter what life has thrown at them. Dr. Chidekel is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ellis-Van Creveld Syndrome, Cystic Fibrosis, Hypochondroplasia, and Subglottic Stenosis.

    Vinay V. Kandula
    Experienced in Clouston Syndrome
    Pediatric Radiology
    Experienced in Clouston Syndrome
    Pediatric Radiology

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    7+ years
    Languages Spoken:
    English, Filipino
    Offers Telehealth

    I grew up and attended medical school in India before moving to the U.S. My dad, an engineer, influenced my deep understanding that many people lack the advantages other people enjoy. It’s humbling to be able to positively impact the life of every child. Radiologists work with clinicians behind the scenes to help guide their decision-making and we don’t often meet patients personally. But we do get great personal satisfaction from our work. I once visited with an infant who had a rare condition I’d helped doctors diagnose. When the baby started crawling toward me, it was truly amazing and rewarding. It’s heartbreaking to see handicapped children who can’t get the medical care they need. I feel strongly about caring for people who don’t have the economic resources to take care of themselves. Dr. Kandula is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Aplasia Cutis Congenita, and Ectodermal Dysplasias.

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    Patrice M. Hyde
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Patrice Hyde is a Dermatologist in Wilmington, Delaware. Dr. Hyde is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Linear Hamartoma Syndrome, Vascular Birthmark, Familial Multiple Nevi Flammei, and Stork Bite.

    Lauren W. Averill
    Experienced in Clouston Syndrome
    Pediatric Radiology
    Experienced in Clouston Syndrome
    Pediatric Radiology

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English
    Offers Telehealth

    I’m a radiologist at the Nemours/Alfred I. duPont Hospital for Children, Wilmington, and I also interpret medical images for children who visit other Nemours facilities in Delaware Valley and Florida. I enjoy radiology because I can focus on the interesting puzzle of diagnosis and also work collaboratively with referring physicians. I’m married and have two young sons. Pediatric radiology allows me to interact and connect with my patients at a greater level than adult practice. And working with different specialists in a pediatric setting makes it a joy to provide the highest quality and most technologically advanced care. I’m passionate about helping kids get better with the least amount pain or life disruption. It’s personally fulfilling to make a diagnosis that saves a child from an unnecessary or painful procedure. My father, who was a physician, was a great role model. He was caring, smart, and made a difference by helping his patients live healthier and more productive lives. I’m privileged to also have this opportunity. Dr. Averill is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Osteoporosis-Pseudoglioma Syndrome, Brachydactyly Mononen Type, Pectus Carinatum, Gastrostomy, and Liver Embolization.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    Nemours Children's Hospital Delaware

    1600 Rockland Rd, 
    Wilmington, DE 
    Languages Spoken:
    English

    Stephen Falchek is a Pediatric Neurologist in Wilmington, Delaware. Dr. Falchek is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Absence Seizure, and Epilepsy in Children.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    Nemours Children's Hospital Delaware

    1600 Rockland Rd, 
    Wilmington, DE 
    Languages Spoken:
    English

    Omar Dabbagh is a Pediatric Neurologist in Wilmington, Delaware. Dr. Dabbagh is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hypotonia, Seizures, West Syndrome, and Spasmus Nutans.

    Showing 1-7 of 7

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in Delaware, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in Delaware, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in Delaware, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in Delaware, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in Delaware, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in Delaware, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in Delaware, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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