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    Last Updated: 01/09/2026

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    MediFind found 48 doctor with experience in Clouston Syndrome near Florida, US. Of these, 43 are Experienced and 5 are Advanced.

    Location
    LocationClose
    48 providers found
      Jennifer W. Leiding
      Advanced in Clouston Syndrome
      Allergy and Immunology
      Advanced in Clouston Syndrome
      Allergy and Immunology

      Johns Hopkins All Children's Outpatient Care, St. Petersburg

      601 5th Street South, Suite 320, Suite 320, 
      Saint Petersburg, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Jennifer Leiding, M.D., is associate director for clinical research in the Johns Hopkins All Children’s Institute for Clinical and Translational Research and assistant director of the Center for Cellular and Gene Therapy in the Johns Hopkins All Children’s Cancer & Blood Disorders Institute. She is also an associate professor of pediatrics (pending academic review) based on the St. Petersburg, Florida, campus in the Johns Hopkins University of School of Medicine. Dr. Leiding, whose clinical specialty is allergy and immunology, focuses on strategic growth of, and mentorship in, clinical research and early-phase trials campus-wide, as well as cellular and gene therapies for cancer and blood disorders. Her personal line of research and national leadership focuses on cooperative multicenter studies of primary immunodeficiency diseases, including chronic granulomatous disease (CGD) and other rare diseases in children. She returned to Johns Hopkins All Children’s in 2024 after previously serving on the faculty at the USF Morsani College of Medicine and the medical staff of All Children’s for nearly a decade. In between, she worked as a medical director at a gene therapy-focused biotech company. Dr. Leiding earned her medical degree from USF before training there as an intern and resident in pediatrics. She completed her clinical and research fellowship in both allergy and immunology at the National Institute of Allergy and Infectious Diseases. Dr. Leiding is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Chronic Granulomatous Disease, Primary Immunodeficiency (PID), Severe Combined Immunodeficiency (SCID), and Clouston Syndrome.

      Amre Nouh
      Experienced in Clouston Syndrome
      Neurology
      Experienced in Clouston Syndrome
      Neurology

      Egil And Pauline Braathen Center/Maroone Cancer Center

      2950 Cleveland Clinic Boulevard, 
      Weston, FL 
      Languages Spoken:
      English, Arabic
      Offers Telehealth

      Amre Nouh is a Neurologist in Weston, Florida. Dr. Nouh is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Stroke, Transient Ischemic Attack (TIA), Cerebral Arteriovenous Malformation, Thrombectomy, and Carotid Artery Surgery.

      Mara E. Dibartolomeo
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Johns Hopkins All Children's Hospital

      501 6th Avenue South, 
      Saint Petersburg, FL 
      Languages Spoken:
      English

      Dr. DiBartolomeo specializes in neonatology in the Johns Hopkins All Children’s Maternal, Fetal & Neonatal Institute. Dr. DiBartolomeo earned her medical degree from Nova Southeastern University in Fort Lauderdale, Florida. She trained in pediatrics and completed a neonatology fellowship at University of Chicago, Comer Children’s Hospital. While at the University of Chicago, Dr. DiBartolomeo concurrently completed a clinical medical ethics fellowship through the MacLean Center for Clinical Medical Ethics. Additionally, she holds a Master of Public Health from Nova Southeastern University. At Johns Hopkins All Children’s Hospital, Dr. DiBartolomeo is the physician chair for the Human Values and Ethics Committee and serves on the Medical Executive Committee. She worked to develop and launch the Johns Hopkins All Children’s Fetal Care Program and serves as the medical director of the program, working with maternal-fetal medicine colleagues as well as various pediatric subspecialists to provide prenatal consultation and counseling, and to offer a coordinated, family-centered approach to the diagnosis and treatment of fetal anomalies that brings perinatal, neonatal and pediatric specialists to the patient. Her clinical and research interests include perinatal care and counseling, clinical medical ethics, neonatal palliative care and ethical issues at the margins of viability. Dr. Dibartolomeo is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Carnitine Palmitoyltransferase 2 Deficiency, Infantile Apnea, Clouston Syndrome, and Ectodermal Dysplasias.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Neurology
      Experienced in Clouston Syndrome
      Neurology

      Optimal Family Care & Aesthetics

      2001 N Federal Hwy Unit 219, 
      Pompano Beach, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Brad Dajani is a Neurologist in Pompano Beach, Florida. Dr. Dajani is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Drug Induced Dyskinesia, Cerebellar Degeneration, Meige Syndrome, and Alzheimer's Disease.

      Advanced in Clouston Syndrome
      Medical Genetics
      Advanced in Clouston Syndrome
      Medical Genetics
      4500 San Pablo Rd S, 
      Jacksonville, FL 
      Languages Spoken:
      English

      Dusica Babovic is a Medical Genetics provider in Jacksonville, Florida. Dr. Babovic is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Hereditary Multiple Osteochondromas.

      Advanced in Clouston Syndrome
      Family Medicine
      Advanced in Clouston Syndrome
      Family Medicine

      Baycare Medical Group, Inc.

      601 1st St N, 
      Winter Haven, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Tristan Harrison is a primary care provider, practicing in Family Medicine in Winter Haven, Florida. Dr. Harrison is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are EEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, Ectodermal Dysplasias, and Zlotogora-Ogur Syndrome. Dr. Harrison is currently accepting new patients.

      Advanced in Clouston Syndrome
      Family Medicine | General Practice
      Advanced in Clouston Syndrome
      Family Medicine | General Practice

      Carmona Medical Care Inc

      2307 Bolado Pkwy, 
      Cape Coral, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Juan Carmona is a primary care provider, practicing in Family Medicine and General Practice in Cape Coral, Florida. Dr. Carmona is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Zlotogora-Ogur Syndrome, Clouston Syndrome, EEC Syndrome, and AEC Syndrome. Dr. Carmona is currently accepting new patients.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      4100 S Hospital Dr Ste 302, 
      Plantation, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Deborah Ingram is a Pediatrics provider in Plantation, Florida. Dr. Ingram is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Scarlet Fever, Herpangina, and Roseola. Dr. Ingram is currently accepting new patients.

      Experienced in Clouston Syndrome
      Neuroradiology | Radiology
      Experienced in Clouston Syndrome
      Neuroradiology | Radiology

      Mori Bean And Brooks Inc

      13695 Us Hwy 1, 
      Sebastian, FL 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Leonardo Freitas is a Neuroradiologist and a Radiologist in Sebastian, Florida. Dr. Freitas has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and PHACE Syndrome. Dr. Freitas is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      University Of Miami

      1295 Nw 14th St, 
      Miami, FL 
      Languages Spoken:
      English, Italian
      Accepting New Patients
      Offers Telehealth

      Antonella Tosti is a Dermatologist in Miami, Florida. Dr. Tosti is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Autosomal Recessive Hypotrichosis, Alopecia Areata, Splinter Hemorrhages, and Ringworm. Dr. Tosti is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      1150 Nw 14th St, 6th Floor (m851), 
      Miami, FL 
      Languages Spoken:
      English

      Enrique Carrazana is a Neurologist in Miami, Florida. Dr. Carrazana is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Seizures, Epilepsy, Absence Seizure, and Generalized Tonic-Clonic Seizure.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Florida Clinical Practice Association Inc

      10475 Centurion Pkwy N, Suite 106, 
      Jacksonville, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Schoch is a Dermatologist in Jacksonville, Florida. Dr. Schoch is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Klippel-Trenaunay Syndrome, Discoid Lupus Erythematosus (DLE), Erythroderma, and Exfoliative Dermatitis. Dr. Schoch is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      2939 N Military Trl, 
      West Palm Beach, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Kimberley Corriea is a Pediatrics provider in West Palm Beach, Florida. Dr. Corriea is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Developmental Dysphasia Familial, Umbilical Hernia, and Delayed Growth. Dr. Corriea is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      4500 Sheridan St, 
      Hollywood, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      John Pinson is a Pediatrics provider in Hollywood, Florida. Dr. Pinson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Obesity in Children, Developmental Dysphasia Familial, Autism Spectrum Disorder, and Delayed Growth. Dr. Pinson is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      4400 N State Road 7, 
      Lauderdale Lakes, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      George Beveridge is a Pediatrics provider in Lauderdale Lakes, Florida. Dr. Beveridge is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Obesity in Children, Developmental Dysphasia Familial, Umbilical Hernia, and Autism Spectrum Disorder. Dr. Beveridge is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      1015 N State Road 7 Ste D, 
      Royal Palm Beach, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Maricel Colon-Santiago is a Pediatrics provider in Royal Palm Beach, Florida. Dr. Colon-Santiago is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Developmental Dysphasia Familial, Roseola, and Croup. Dr. Colon-Santiago is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      2939 N Military Trl, 
      West Palm Beach, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nikiesha Forbes is a Pediatrics provider in West Palm Beach, Florida. Dr. Forbes is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Developmental Dysphasia Familial, Umbilical Hernia, and Autism Spectrum Disorder. Dr. Forbes is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      University Medical Service Association Inc

      800 6th S St, 
      Saint Petersburg, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Amarilis Sanchez-Valle is a Medical Genetics provider in Saint Petersburg, Florida. Dr. Sanchez-Valle is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Early Infantile Epileptic Encephalopathy, Dihydropteridine Reductase Deficiency, and Maternal Hyperphenylalaninemia. Dr. Sanchez-Valle is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Tallahassee Memorial Healthcare Inc

      178 Lasalle Lefall Dr, 
      Quincy, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dianne Pappachristou is a primary care provider, practicing in Family Medicine in Quincy, Florida. Dr. Pappachristou is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Nephrosclerosis, Renovascular Hypertension, Obesity in Children, and Sinusitis. Dr. Pappachristou is currently accepting new patients.

      Experienced in Clouston Syndrome
      Family Medicine
      Experienced in Clouston Syndrome
      Family Medicine

      V.J. Dilella, D.O., L.L.C.

      703 Virginia St, 
      Dunedin, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Vincent Dilella is a primary care provider, practicing in Family Medicine in Dunedin, Florida. Dr. Dilella is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Anemia, Dementia, Urinary Tract Infection in Children, and N-Acetylglutamate Synthase Deficiency. Dr. Dilella is currently accepting new patients.

      Showing 1-20 of 48

      Last Updated: 01/09/2026

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in Florida, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in Florida, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors in Florida, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in Florida, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in Florida, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in Florida, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in Florida, US?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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