The 20 Best Clouston Syndrome Doctors Near Me in Massachusetts, US

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors in Massachusetts, US

Last Updated: 02/22/2026

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MediFind found 67 doctor with experience in Clouston Syndrome near Massachusetts, US. Of these, 49 are Experienced, 15 are Advanced, 2 are Elite and 1 are Distinguished.

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67 providers found
    Elite in Clouston Syndrome
    Pediatrics
    Elite in Clouston Syndrome
    Pediatrics

    Children's Hospital Primary Care Center (CHPCC)

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Eli Sprecher is a Pediatrics provider in Boston, Massachusetts. Dr. Sprecher is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Naegeli-Franceschetti-Jadassohn Syndrome.

    Elite in Clouston Syndrome
    Elite in Clouston Syndrome

    The Dialysis Center At Waltham

    135 Beaver St, 
    Waltham, MA 
    Languages Spoken:
    English

    Kenneth Huttner is a Pediatrics provider in Waltham, Massachusetts. Dr. Huttner is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

    Millie A. Ferres
    Advanced in Clouston Syndrome
    Obstetrics and Gynecology
    Advanced in Clouston Syndrome
    Obstetrics and Gynecology

    BIDMC OBGYN CMFM -Center For Maternal Fetal Medicine

    330 Brookline Avenue, Gryzmish 7th Floor, 
    Boston, MA 
    Languages Spoken:
    English, Spanish

    Millie Ferres is an Obstetrics and Gynecologist in Boston, Massachusetts. Dr. Ferres is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Cavernous Lymphangioma, Chromosome 13q Duplication, Trisomy 13, and Polyhydramnios.

    Learn about our expert tiers
    Distinguished in Clouston Syndrome
    Pediatrics | Medical Genetics
    Distinguished in Clouston Syndrome
    Pediatrics | Medical Genetics
    300 Longwood Ave, Fegan 10, 
    Boston, MA 
    Languages Spoken:
    English

    Fowzan Alkuraya is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Alkuraya is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Vitrectomy.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    Dermatology Program

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Marilyn Liang is a Pediatrics provider in Boston, Massachusetts. Dr. Liang is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hemangioma, Kaposiform Hemangioendothelioma, Hemangioendothelioma, and PHACE Syndrome.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    MGFC Pediatric Dermatology Program

    50 Staniford St Ste 200, 
    Boston, MA 
    Languages Spoken:
    English

    Alexander Marneros is a Dermatologist in Boston, Massachusetts. Dr. Marneros is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Actinic Keratosis.

    Advanced in Clouston Syndrome
    Pediatric Radiology
    Advanced in Clouston Syndrome
    Pediatric Radiology

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Experience:
    18+ years
    Languages Spoken:
    English

    Atsuhiko Handa is a Pediatric Radiologist in Boston, Massachusetts. Dr. Handa has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Spondyloepiphyseal Dysplasia Congenita, Schwartz-Jampel Syndrome, X-Linked Spondyloepiphyseal Dysplasia Tarda, Chondrodystrophy, and Bone Marrow Aspiration.

    Advanced in Clouston Syndrome
    Dermatology
    Advanced in Clouston Syndrome
    Dermatology

    Office

    12 Meadow St, 
    Williamstown, MA 
    Languages Spoken:
    English

    David Elpern is a Dermatologist in Williamstown, Massachusetts. Dr. Elpern is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Basal Cell Skin Cancer, Ectodermal Dysplasias, EEC Syndrome, and Zlotogora-Ogur Syndrome.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

    330 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Gerilyn Olsen is a Dermatologist in Boston, Massachusetts. Dr. Olsen is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

    Elena Hawryluk
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Dermatology Program

    300 Longwood Ave, 
    Boston, MA 
    Experience:
    17+ years
    Languages Spoken:
    English

    Elena Hawryluk is a Pediatrics provider in Boston, Massachusetts. Dr. Hawryluk has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Melanoma, Xeroderma Pigmentosum, and Nevoid Basal Cell Carcinoma Syndrome.

    Edward R. Smith
    Experienced in Clouston Syndrome
    Neurosurgery | Pediatrics
    Experienced in Clouston Syndrome
    Neurosurgery | Pediatrics

    Boston Pediatric Neurosurgical Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Edward Smith is a Pediatrics specialist and a Neurosurgery provider in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Moyamoya Disease, Vein of Galen Aneurysm, Arteriovenous Malformation, Endovascular Embolization, and Posterior Fossa Decompression.

    Thomas S. Kupper
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Dana-Farber Cancer Institute, Center For Cutaneous Oncology

    450 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English

    Thomas Kupper is a Dermatologist in Boston, Massachusetts. Dr. Kupper is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, Mycosis Fungoides, and Lymphomatoid Papulosis.

    Leah T. Belazarian
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics

    UMass Memorial Medical Center - Hahnemann Campus

    281 Lincoln Street, 
    Worcester, MA 
    Experience:
    23+ years
    Languages Spoken:
    English

    Leah Belazarian is a Dermatologist and a Pediatrics provider in Worcester, Massachusetts. Dr. Belazarian has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Psoriasis, Cafe-Au-Lait Spots, and Autosomal Recessive Hypotrichosis.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Krauss Dermatology PC

    2000 Washington St Ste 548, 
    Newton, MA 
    Languages Spoken:
    English

    Deborah Goddard is a Pediatrics provider in Newton, Massachusetts. Dr. Goddard is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Actinic Keratosis, Melanoma, Psoriasis, and Warts.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Office

    609 Albany St, 
    Boston, MA 
    Languages Spoken:
    English

    Neelam Vashi is a Dermatologist in Boston, Massachusetts. Dr. Vashi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Perniosis, Melasma, Frostbite, and Ochronosis.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Dermatology Program

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Stephen Gellis is a Pediatrics provider in Boston, Massachusetts. Dr. Gellis is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Molluscum Contagiosum, Trichothiodystrophy, Atopic Dermatitis, and Aplasia Cutis Congenita.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Dermatology Program

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Sophia Delano is a Pediatrics provider in Boston, Massachusetts. Dr. Delano is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Incontinentia Pigmenti, Urticaria Pigmentosa, Trichothiodystrophy, and Atopic Dermatitis.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Department Of Radiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Darren Orbach is a Pediatrics provider in Boston, Massachusetts. Dr. Orbach is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Vein of Galen Aneurysm, Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Thrombectomy, and Liver Embolization.

    Experienced in Clouston Syndrome
    Pediatrics | Radiology
    Experienced in Clouston Syndrome
    Pediatrics | Radiology
    300 Longwood Avenue, Children's Hospital Boston/radiology, 
    Boston, MA 
    Languages Spoken:
    English

    Sanjay Prabhu is a Radiologist and a Pediatrics provider in Boston, Massachusetts. Dr. Prabhu is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cortical Dysplasia, Sturge-Weber Syndrome, Parkes Weber Syndrome, Osteotomy, and Craniectomy.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Brigham And Women's Hospital

    221 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Nicole Gunasekera is a Dermatologist in Boston, Massachusetts. Dr. Gunasekera is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Vitiligo, Focal Dermal Hypoplasia, Cellulitis, and Actinic Keratosis.

    Showing 1-20 of 67

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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