The 20 Best Clouston Syndrome Doctors Near Me in baltimore, MD

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 15 doctor with experience in Clouston Syndrome near baltimore, MD. Of these, 11 are Experienced and 4 are Advanced.

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15 providers found
    Advanced in Clouston Syndrome
    Pediatric Neurology
    Advanced in Clouston Syndrome
    Pediatric Neurology
    Referral may be required

    The Kennedy Krieger Institute

    801 North Broadway, Room 553, Room 553, 
    Baltimore, MD 
     (2.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Anne Comi is a Pediatric Neurologist practicing medicine in Baltimore, Maryland. Dr. Comi is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Sturge-Weber Syndrome, Parkes Weber Syndrome, Epilepsy in Children, Seizures, and Endovascular Embolization. Dr. Comi is board certified in American Board Of Psychiatry And Neurology. Dr. Comi is currently accepting new patients.

    Experienced in Clouston Syndrome
    Medical Genetics | Neonatology
    Experienced in Clouston Syndrome
    Medical Genetics | Neonatology
    Referral may be required

    Gynecology And Obstetrics - Nelson/Harvey Building

    1800 Orleans Street, Nelson BLDG, 2 Floor Ste 2-150, Nelson BLDG, 2 Floor Ste 2-150, 
    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Angie Jelin is a Medical Genetics specialist and a Neonatologist practicing medicine in Baltimore, Maryland. Dr. Jelin is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Polyhydramnios, Bilateral Renal Agenesis Dominant Type, Lung Agenesis, and Atresia of Small Intestine. Dr. Jelin is board certified in American Board Of Obstetrics And Gynecology and American Board Of Medical Genetics And Genomics. Dr. Jelin is currently accepting new patients.

    Experienced in Clouston Syndrome
    Pediatrics | Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatrics | Pediatric Neurology
    Referral may be required

    Johns Hopkins Outpatient Center

    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Carl Stafstrom is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Baltimore, Maryland. Dr. Stafstrom is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Seizures, West Syndrome, Juvenile Myoclonic Epilepsy, and Endovascular Embolization. Dr. Stafstrom is board certified in American Board Of Psychiatry And Neurology. Dr. Stafstrom is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Johns Hopkins Children's Center

    1800 Orleans Street, Bloomberg 11N, Bloomberg 11N, 
    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kenneth Cohen is a Pediatrics provider practicing medicine in Baltimore, Maryland. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Gliomatosis Cerebri, Embryonal Tumor with Multilayered Rosettes, Hepatoblastoma, Infantile Neutropenia, and Bone Marrow Aspiration. Dr. Cohen is board certified in American Board Of Pediatrics. Dr. Cohen is currently accepting new patients.

    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery
    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery
    Referral may be required

    UMMC Department Of Neurosurgery

    22 South Greene Street S12 D, 
    Baltimore, MD 
     (0.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Alan Cohen is a Neurosurgery specialist and a General Surgeon practicing medicine in Baltimore, Maryland. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Arachnoid Cysts, Meningocele, Gomez Lopez Hernandez Syndrome, Cerebral Artery Bypass Surgery, and Endoscopy. Dr. Cohen is board certified in American Board Of Neurological Surgery and American Board Of Neurological Surgery - Neurological Surgery, 1991. Dr. Cohen is currently accepting new patients.

    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery
    Experienced in Clouston Syndrome
    Neurosurgery | General Surgery
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, 
    Baltimore, MD 
     (0.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mari Groves is a Neurosurgery specialist and a General Surgeon practicing medicine in Baltimore, Maryland. Dr. Groves is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Spinal Tumor, Myelomeningocele, Tethered Cord Syndrome, Osteotomy, and Laminectomy. Dr. Groves is board certified in American Board Of Neurological Surgery and American Board Of Pediatric Neurological Surgery. Dr. Groves is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, 
    Baltimore, MD 
     (0.9 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Carlos Romo is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Romo is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Neurofibromatosis Type 2 (NF2). Dr. Romo is board certified in American Board Of Psychiatry And Neurology. Dr. Romo is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Johns Hopkins Hospital

    600 N Wolfe St, 
    Baltimore, MD 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Bart Loeys is a Radiologist practicing medicine in Baltimore, Maryland. Dr. Loeys is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Acromicric Dysplasia, Spontaneous Coronary Artery Dissection (SCAD), Aplasia Cutis Congenita, and Ectodermal Dysplasias. Dr. Loeys is currently accepting new patients.

    Advanced in Clouston Syndrome
    Family Medicine
    Advanced in Clouston Syndrome
    Family Medicine

    Johns Hopkins Hospital

    600 N Wolfe St, 
    Baltimore, MD 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Ingrid Wentzensen is a primary care provider, practicing in Family Medicine in Baltimore, Maryland. Dr. Wentzensen is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Oral-Facial-Digital Syndrome, Learman Syndrome, Achalasia Microcephaly Syndrome, Orchiectomy, and Hormone Replacement Therapy (HRT). Dr. Wentzensen is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral required

    Johns Hopkins Bayview Medical Center

    Baltimore, MD 
     (3.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Polydefkis is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Polydefkis is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Transthyretin Amyloidosis, Familial Transthyretin Amyloidosis, Primary Amyloidosis, and Peripheral Neuropathy. Dr. Polydefkis is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Skip Viragh Outpatient Cancer Building

    201 N Broadway St, 
    Baltimore, MD 
     (1.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Danielle Bazer is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Bazer is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Partial Familial Epilepsy, Cavernous Sinus Thrombosis, Glioma, Gliomatosis Cerebri, and Tissue Biopsy.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology
    Referral may be required

    The Kennedy Krieger Institute

    Baltimore, MD 
     (2.6 miles away)
    Languages Spoken:
    English

    Constance Smith-Hicks is a Pediatric Neurologist practicing medicine in Baltimore, Maryland. Dr. Smith-Hicks is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Rett Syndrome, Autism Spectrum Disorder, Early Infantile Epileptic Encephalopathy, and Fragile X Syndrome. Dr. Smith-Hicks is board certified in American Board Of Psychiatry And Neurology.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome
    Referral may be required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10753 Falls Road, Pavilion II STE 115, 
    Lutherville, MD 
     (9.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jaishri Blakeley is a Neurologist practicing medicine in Lutherville, Maryland. Dr. Blakeley is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology. Dr. Blakeley is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville

    10755 Falls Road, Pavilion I STE 350, Pavilion I STE 350, 
    Lutherville, MD 
     (10.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Meg Gerstenblith is a Dermatologist practicing medicine in Lutherville, Maryland. Dr. Gerstenblith is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Melanoma, Focal Dermal Hypoplasia, Basal Cell Skin Cancer, and Acrospiroma. Dr. Gerstenblith is board certified in American Board Of Dermatology. Dr. Gerstenblith is currently accepting new patients.

    Experienced in Clouston Syndrome
    Radiology | Nuclear Medicine
    Experienced in Clouston Syndrome
    Radiology | Nuclear Medicine
    Referral may be required

    Imaging Associates Of Indiana PC

    3123 Enclave Ct, 
    Pikesville, MD 
     (8.2 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients

    Dawood Tafti is a Radiologist and a Nuclear Medicine provider practicing medicine in Pikesville, Maryland. He has been practicing medicine for over 10 years. Dr. Tafti is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Pneumomediastinum, Pleurisy, Pleural Effusion, and Gallbladder Disease. Dr. Tafti is currently accepting new patients.

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    Last Updated: 09/26/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near baltimore, MD?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near baltimore, MD?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near baltimore, MD?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near baltimore, MD?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near baltimore, MD?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near baltimore, MD?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near baltimore, MD?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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