The 20 Best Clouston Syndrome Doctors Near Me in Michigan, US

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors in Michigan, US

Last Updated: 02/22/2026

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MediFind found 31 doctor with experience in Clouston Syndrome near Michigan, US. Of these, 28 are Experienced and 3 are Advanced.

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31 providers found
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    25 Michigan St Ne, Suite 2000, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Laurie Seaver is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Seaver is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hypotonia, 1p36 Deletion Syndrome, Smith-Magenis Syndrome, and Potocki-Lupski Syndrome. Dr. Seaver is currently accepting new patients.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Jennifer Mancuso is a Pediatrics provider in Ann Arbor, Michigan. Dr. Mancuso is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are DRESS Syndrome, Hidradenitis Suppurativa, Keratosis Pilaris, and Familial Multiple Nevi Flammei.

    Elizabeth A. Leleszi
    Experienced in Clouston Syndrome
    Pediatrics | Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatrics | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Leleszi is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Leleszi has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Spasmus Nutans, Seizures, Autism Spectrum Disorder, and Generalized Tonic-Clonic Seizure. Dr. Leleszi is currently accepting new patients.

    Learn about our expert tiers
    Anant Krishnan
    Experienced in Clouston Syndrome
    Neuroradiology | Radiology
    Experienced in Clouston Syndrome
    Neuroradiology | Radiology

    Corewell Health William Beaumont University Hospital - Diagnostic Radiology

    3601 West 13 Mile Road, 
    Royal Oak, MI 
    Experience:
    28+ years
    Languages Spoken:
    English
    Accepting New Patients

    Anant Krishnan is a Radiologist and a Neuroradiologist in Royal Oak, Michigan. Dr. Krishnan has been practicing medicine for over 28 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Stroke, Sciatica, Relapsing Multiple Sclerosis (RMS), and Meningioma. Dr. Krishnan is currently accepting new patients.

    Amy E. Whitten
    Experienced in Clouston Syndrome
    Obstetrics and Gynecology | Neonatology
    Experienced in Clouston Syndrome
    Obstetrics and Gynecology | Neonatology

    Corewell Health William Beaumont University Hospital Women's Health Center - 17400 W 13 Mile Rd

    17400 West 13 Mile Road, 
    Beverly Hills, MI 
    Experience:
    20+ years
    Languages Spoken:
    English
    Accepting New Patients

    Amy Whitten is a Neonatologist and an Obstetrics and Gynecologist in Beverly Hills, Michigan. Dr. Whitten has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Gestational Diabetes, Preeclampsia, Premature Infant, and ABO Incompatibility. Dr. Whitten is currently accepting new patients.

    Linda Z. Rossetti
    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics
    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
    Experience:
    10+ years
    Languages Spoken:
    English, Spanish

    Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.

    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    Henry Ford Medical Center-Farmington Road

    6530 Farmington Rd, 
    West Bloomfield, MI 
    Languages Spoken:
    English

    Tor Shwayder is a Pediatrics provider in West Bloomfield, Michigan. Dr. Shwayder is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Epidermal Nevus, Bullae, Aplasia Cutis Congenita, and PARC Syndrome.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Henry Ford Medical Center-Troy

    2825 Livernois Rd, 
    Troy, MI 
    Languages Spoken:
    English

    Marla Jahnke is a Dermatologist in Troy, Michigan. Dr. Jahnke is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurocutaneous Melanosis, Harlequin Ichthyosis, Fetal Retinoid Syndrome, and Hirsutism in Women.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Henry Ford Lab New Center One

    3031 W Grand Blvd Ste 800, 
    Detroit, MI 
    Languages Spoken:
    English

    Abbas Mustufa is a Dermatologist in Detroit, Michigan. Dr. Mustufa is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Familial Multiple Lipomatosis, Costello Syndrome, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Regents Of The University Of Michigan

    7500 Challis Rd, 
    Brighton, MI 
    Languages Spoken:
    English

    Mio Nakamura is a Dermatologist in Brighton, Michigan. Dr. Nakamura is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Psoriasis, Plaque Psoriasis, Melanoma, and Actinic Keratosis.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Henry Ford Cancer-Detroit

    2800 W Grand Blvd, 
    Detroit, MI 
    Languages Spoken:
    English

    David Ozog is a Dermatologist in Detroit, Michigan. Dr. Ozog is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Keloids, Muir-Torre Syndrome, Basal Cell Skin Cancer, and Bowen's Disease.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Henry Ford Medical Center-Farmington Road

    6530 Farmington Rd, 
    West Bloomfield, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Rawaa Almukhtar is a Dermatologist in West Bloomfield, Michigan. Dr. Almukhtar is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Rosacea, Actinic Keratosis, Kaposiform Hemangioendothelioma, and Fetal Cystic Hygroma.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Trilokraj Tejasvi is a Dermatologist in Ann Arbor, Michigan. Dr. Tejasvi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, Mycosis Fungoides, and Lymphomatoid Papulosis.

    Experienced in Clouston Syndrome
    Radiology
    Experienced in Clouston Syndrome
    Radiology

    Henry Ford St. John Hospital

    22101 Moross Rd, 
    Detroit, MI 
    Languages Spoken:
    English

    Biren Shah is a Radiologist in Detroit, Michigan. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Breast Lump, Galactocoele, Fibroadenoma, and Fibrocystic Breast Disease.

    Advanced in Clouston Syndrome
    Medical Genetics
    Advanced in Clouston Syndrome
    Medical Genetics

    Munson Medical Center Pediatric Specialty Clinic

    106 South Madison Street, 
    Traverse City, MI 
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients

    Amanda Pritchard is a Medical Genetics provider in Traverse City, Michigan. Dr. Pritchard has been practicing medicine for over 13 years and is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Aase Syndrome. Dr. Pritchard is currently accepting new patients.

    Advanced in Clouston Syndrome
    Medical Genetics
    Advanced in Clouston Syndrome
    Medical Genetics
    2799 W Grand Blvd, Cfp 4, 
    Detroit, MI 
    Languages Spoken:
    English

    Kristin Monaghan is a Medical Genetics provider in Detroit, Michigan. Dr. Monaghan is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hypotonia, 1p36 Deletion Syndrome, Microcephaly Deafness Syndrome, and Early Infantile Epileptic Encephalopathy.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Office

    2799 W Grand Blvd Ste K13, 
    Detroit, MI 
    Languages Spoken:
    English

    Elizabeth Secord is a Pediatrics provider in Detroit, Michigan. Dr. Secord is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Asthma, Severe Combined Immunodeficiency (SCID), Adenosine Deaminase Deficiency, and HIV/AIDS.

    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics

    Munson Medical Center Pediatric Specialty Clinic

    106 South Madison Street, 
    Traverse City, MI 
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Shane Quinonez is a Medical Genetics provider in Traverse City, Michigan. Dr. Quinonez has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Maple Syrup Urine Disease. Dr. Quinonez is currently accepting new patients.

    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics

    Regents Of The University Of Michigan

    24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

    Experienced in Clouston Syndrome
    Family Medicine
    Experienced in Clouston Syndrome
    Family Medicine

    Henry Ford Family Medicine-Flint

    1515 W Atherton Rd, 
    Flint, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Bhagwan Sayal is a primary care provider, practicing in Family Medicine in Flint, Michigan. Dr. Sayal is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cellulitis, Meige Disease, Primary Intestinal Lymphangiectasia, and Lymphangiectasis.

    Showing 1-20 of 31

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in Michigan, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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