The 20 Best Clouston Syndrome Doctors Near Me in Missouri, US

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors in Missouri, US

Last Updated: 02/22/2026

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MediFind found 29 doctor with experience in Clouston Syndrome near Missouri, US. Of these, 23 are Experienced, 4 are Advanced and 2 are Distinguished.

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29 providers found
    Elaine Siegfried
    Advanced in Clouston Syndrome
    Dermatology | Pediatrics
    Advanced in Clouston Syndrome
    Dermatology | Pediatrics

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Elaine Siegfried diagnoses and treats skin-related disorders in infants and children. She specializes in treatments for atopic dermatitis and other eczemas, psoriasis, and vascular birthmarks. She participates in clinical trials for new treatments for eczema and psoriasis. Dr. Siegfried is interested in research investigating atopic dermatitis and pediatric drug development. She is a professor of pediatrics and dermatology in the Department of Pediatrics, Division of Dermatology, at Saint Louis University School of Medicine. Dr. Siegfried is a past president and director of the American Board of Dermatology. She serves on the editorial board of Dermatology Times. Her memberships include the Society for Pediatric Dermatology, the American Academy of Dermatology, the National Eczema Association and The National Foundation for Ectodermal Dysplasias. Prior to earning her medical degree, Dr. Siegfried designed her undergraduate major, which was scientific art. Dr. Siegfried is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Atopic Dermatitis, Molluscum Contagiosum, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics
    Distinguished in Clouston Syndrome
    Medical Genetics | Pediatrics

    Washington University

    1 Childrens Pl, 
    Saint Louis, MO 
    Languages Spoken:
    English
    Accepting New Patients

    Dorothy Grange is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Grange is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Grange is currently accepting new patients.

    Distinguished in Clouston Syndrome
    Pediatrics
    Distinguished in Clouston Syndrome
    Pediatrics

    Curators Of The University Of Missouri

    404 N Keene St, 
    Columbia, MO 
    Languages Spoken:
    English

    Timothy Fete is a Pediatrics provider in Columbia, Missouri. Dr. Fete is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Gastroesophageal Reflux in Infants.

    Learn about our expert tiers
    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    Children's Mercy Clinics On Broadway

    3101 Broadway Blvd, 
    Kansas City, MO 
    Languages Spoken:
    English

    Kimberly Horii is a Pediatrics provider in Kansas City, Missouri. Dr. Horii is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hemangioma, PHACE Syndrome, Aplasia Cutis Congenita, and Clouston Syndrome.

    Advanced in Clouston Syndrome
    Pediatrics
    Advanced in Clouston Syndrome
    Pediatrics

    Children's Mercy Clinics On Broadway

    3101 Broadway Blvd, 
    Kansas City, MO 
    Languages Spoken:
    English

    Amy Nopper is a Pediatrics provider in Kansas City, Missouri. Dr. Nopper is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hemangioma, PHACE Syndrome, Vascular Birthmark, and Aplasia Cutis Congenita.

    Lamiaa Hamie
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Lamiaa Hamie is a fellowship-trained pediatric dermatologist who provides expert care for patients from birth to age 25. She specializes in the diagnosis and treatment of common and complex skin, hair, and nail conditions, including eczema, psoriasis, acne, vitiligo, hemangiomas, birthmarks, and skin infections. Dr. Hamie offers a range of procedural services, such as skin biopsies, cryotherapy, laser treatments for vascular lesions, scars, and infections, as well as patch testing. Her clinical and research interests focus on atopic dermatitis and pediatric psoriasis, with a particular emphasis on complex and treatment-resistant cases. With a commitment to evidence-based care and family-centered education, Dr. Hamie strives to empower patients and families with the knowledge and tools they need to manage skin conditions confidently. She is passionate about advancing pediatric dermatology through research and emerging therapies. Dr. Hamie is an assistant professor Department of Pediatrics, Division of Pediatric Dermatology, at Saint Louis School of Medicine. She is a recognized expert in her field, having received multiple awards and authored numerous peer-reviewed papers and journal articles. Dr. Hamie is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Sebaceous Adenoma, Epidermolytic Palmoplantar Keratoderma, and Aplasia Cutis Congenita.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Susan Bayliss is a Pediatrics provider in Saint Louis, Missouri. Dr. Bayliss is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epidermal Nevus, Linear Nevus Sebaceous Syndrome, Osteopoikilosis, and Familial Multiple Lipomatosis.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Washington University Workers Compensation Specialists LLC

    969 N Mason Rd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Caroline Mann is a Dermatologist in Saint Louis, Missouri. Dr. Mann is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epidermal Nevus, Graham-Little-Piccardi-Lassueur Syndrome, Actinic Keratosis, and Psoriasis.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Ali Mian is a Neuroradiologist in Saint Louis, Missouri. Dr. Mian is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Choroid Plexus Cyst, Pediatric Low-Grade Glioma (pLGG), Aplasia Cutis Congenita, and Subarachnoid Hemorrhage.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Children's Mercy-Pediatric Care North

    8781 N Platte Purchase Dr, 
    Kansas City, MO 
    Languages Spoken:
    English

    Melissa Beard is a Pediatrics provider in Kansas City, Missouri. Dr. Beard is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Clouston Syndrome, AEC Syndrome, and EEC Syndrome.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Office

    1 Childrens Pl Ste 2A, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Carrie Coughlin is a Pediatrics provider in Saint Louis, Missouri. Dr. Coughlin is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Neurocutaneous Melanosis, Comedones, and Squamous Cell Skin Carcinoma.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Sammy Droubi is a Radiologist in Saint Louis, Missouri. Dr. Droubi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Febrile Neutropenia.

    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    Children's Mercy Clinics On Broadway

    3101 Broadway Blvd, 
    Kansas City, MO 
    Languages Spoken:
    English

    Kristi Canty is a Pediatrics provider in Kansas City, Missouri. Dr. Canty is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are AEC Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    University Health Dermatology

    2101 Charlotte St Ste 110, 
    Kansas City, MO 
    Languages Spoken:
    English

    Anand Rajpara is a Dermatologist in Kansas City, Missouri. Dr. Rajpara is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Melanoma, Psoriasis, Actinic Keratosis, and Warts.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
    Languages Spoken:
    English

    Matthew Parsons is a Neuroradiologist in Saint Louis, Missouri. Dr. Parsons is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Stroke, Meningioma, Subarachnoid Hemorrhage, Pediatric Low-Grade Glioma (pLGG), and Bone Marrow Aspiration.

    Advanced in Clouston Syndrome
    Internal Medicine
    Advanced in Clouston Syndrome
    Internal Medicine

    Missouri Ear Nose And Throat Center

    1000 W Nifong Blvd Bldg 3, 
    Columbia, MO 
    Languages Spoken:
    English

    Clayton Butcher is a primary care provider, practicing in Internal Medicine in Columbia, Missouri. Dr. Butcher is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Bulimia.

    Stephen Braddock
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics

    Medical Genetics At SSM Health Cardinal Glennon Children's Hospital

    1465 S. Grand Blvd., 
    St. Louis, MO 
    Languages Spoken:
    English

    Dr. Stephen Braddock provides genetic evaluations, diagnoses, and counseling for patients of all ages. This includes services not exclusive to pediatric patients, but also prenatal counseling, cancer counseling, and adult genetic disorders. He specializes in delineation of new multiple malformation syndromes, dysmorphology, prevalence and variation of prenatal teratogen exposures and birth defects, and fetal alcohol syndrome. His research interests include teratology, fetal alcohol syndrome, and dysmorphology/syndrome delineation. Dr. Braddock is director of medical genetics and a professor in the Department of Pediatrics, Division of Medical Genetics, at Saint Louis University School of Medicine. He is a fellow of the American College of Medical Genetics and Genomics, and the American Academy of Pediatrics. He is a member of the American Society of Human Genetics, the Teratology Society, and the Organization of Teratogen Information Services. Dr. Braddock is a sports history/trivia buff, particularly baseball history. He owns two Babe Ruth baseball cards. Dr. Braddock is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Chromosome 20 Trisomy, Cerebellar Hypoplasia, CHARGE Syndrome, and Coloboma.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Children's Mercy Clinics On Broadway

    3101 Broadway Blvd, 
    Kansas City, MO 
    Languages Spoken:
    English

    Brandon Newell is a Pediatrics provider in Kansas City, Missouri. Dr. Newell is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hemangioma, PHACE Syndrome, Lamellar Ichthyosis, and Nonbullous Congenital Ichthyosiform Erythroderma.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Meramec Dermatology

    3783 Vogel Rd, 
    Arnold, MO 
    Languages Spoken:
    English

    Karl Staser is a Dermatologist in Arnold, Missouri. Dr. Staser is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Epidermal Nevus, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurocutaneous Melanosis.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
    Languages Spoken:
    English

    David Gutmann is a Neurologist in Saint Louis, Missouri. Dr. Gutmann is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Neurofibromatosis, Optic Glioma, Neurofibromatosis Type 1 (NF1), and Glioma.

    Showing 1-20 of 29

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in Missouri, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in Missouri, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in Missouri, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in Missouri, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in Missouri, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in Missouri, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in Missouri, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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