The 20 Best Clouston Syndrome Doctors Near Me in North Carolina, US

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 19 doctor with experience in Clouston Syndrome near North Carolina, US. Of these, 19 are Experienced.

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19 providers found
    Stephanie Greene
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Duke Children's Health Center Neurosurgery Clinic

    2301 Erwin Rd, 
    Durham, NC 
    Experience:
    28+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am the chief of pediatric neurosurgery at Duke Children's Hospital. I treat a wide variety of conditions affecting the brain and spine in children, including tumors, hydrocephalus, trauma, and craniosynostosis. I consider it a real privilege to earn a family's trust with their child's health. I enjoy building relationships with the family unit and understanding the specific details of their situation that need consideration in their child's care to ensure a smooth hospitalization experience. Our team leverages the expertise available at Duke Children's Hospital to achieve the best possible outcome for each patient. Witnessing a child return to a normal or improved life after intervention is incredibly gratifying, and seeing them thrive years later is one of the most special aspects of pediatric neurosurgery. Dr. Greene is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Chiari Malformation Type 2, Myelomeningocele, Syringomyelia, Posterior Fossa Decompression, and Craniectomy.

    Vandana Shashi
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics

    Lenox Baker Children's Hospital

    3000 Erwin Rd, 
    Durham, NC 
    Experience:
    40+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am a clinical geneticist and a pediatrician with a deep interest in undiagnosed and rare genetic disorders. I provide medical care for children and adults with chromosome 22q11.2 deletion syndrome and diagnostic evaluation for patients with symptoms and signs of genetic disorders, when evaluations have not provided a specific diagnosis. Dr. Shashi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are DiGeorge Syndrome, Hypotonia, Immune Defect due to Absence of Thymus, and Micrognathia.

    Daniela Kroshinsky
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Duke Pediatric Dermatology Patterson Place

    5324 McFarland Rd, 
    Durham, NC 
    Experience:
    23+ years
    Languages Spoken:
    English
    Offers Telehealth

    Daniela Kroshinsky is a Dermatologist in Durham, North Carolina. Dr. Kroshinsky has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Calciphylaxis, Cellulitis, Calcinosis, and Acute Febrile Neutrophilic Dermatosis.

    Learn about our expert tiers
    Sarah A. Wolfe
    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Duke Dermatology Patterson Place

    5324 McFarland Rd, 
    Durham, NC 
    Experience:
    19+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Sarah Wolfe is a Dermatologist in Durham, North Carolina. Dr. Wolfe has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Steatocystoma Multiplex, Actinic Keratosis, Epidermoid Cyst, and Basal Cell Skin Cancer.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Duke University Hospital

    2301 Erwin Rd, 
    Durham, NC 
    Experience:
    17+ years
    Languages Spoken:
    English

    Daniel Kenney is a Neurologist in Durham, North Carolina. Dr. Kenney has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Cardiofaciocutaneous Syndrome, Seizures, and Thrombectomy.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Office

    1899 Tate Blvd SE Ste 2110, 
    Hickory, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Jake Turrentine is a Dermatologist in Hickory, North Carolina. Dr. Turrentine is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Liver Spots, Universal Acquired Melanosis, Actinic Keratosis, and Squamous Cell Skin Carcinoma.

    Experienced in Clouston Syndrome
    Radiology
    Experienced in Clouston Syndrome
    Radiology

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Mindy Wang is a Radiologist in Cary, North Carolina. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Giant Mammary Hamartoma, Maffucci Syndrome, Acute Arterial Occlusion of Kidney, and Klippel-Trenaunay Syndrome.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Khaled Elsayes is a Radiologist in Cary, North Carolina. Dr. Elsayes is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Adrenal Cancer, Liver Cancer, Adrenocortical Carcinoma, Giant Mammary Hamartoma, and Endoscopy.

    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    Office

    410 Market St Ste 400, 
    Chapel Hill, NC 
    Languages Spoken:
    English

    Dean Scott is a Pediatrics provider in Chapel Hill, North Carolina. Dr. Scott is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Molluscum Contagiosum, Acne, Atopic Dermatitis, and Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Atrium Health Wake Forest Baptist Dermatology-Country Club

    4618 Country Club Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English

    Amy Mcmichael is a Dermatologist in Winston Salem, North Carolina. Dr. Mcmichael is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Autosomal Recessive Hypotrichosis, Alopecia Areata, Graham-Little-Piccardi-Lassueur Syndrome, and GAPO Syndrome.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Atrium Health Wake Forest Baptist Dermatology-Country Club

    4618 Country Club Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English

    Laura Doerfler is a Dermatologist in Winston Salem, North Carolina. Dr. Doerfler is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, Melanoma, and Head and Neck Squamous Cell Carcinoma (HNSCC).

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Burkhart Pediatric & Adolescent Dermatology PLLC

    135 Parkway Office Ct Ste 201, 
    Cary, NC 
    Languages Spoken:
    English

    Craig Burkhart is a Pediatrics provider in Cary, North Carolina. Dr. Burkhart is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Parkes Weber Syndrome, Acne, Contact Dermatitis, and Stork Bite.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Rami Eldaya is a Neuroradiologist in Cary, North Carolina. Dr. Eldaya is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Stroke, Invertebral Disc Disease, Pediatric Low-Grade Glioma (pLGG), and Neurofibromatosis.

    Experienced in Clouston Syndrome
    Family Medicine
    Experienced in Clouston Syndrome
    Family Medicine

    RDMG Associates PA

    136 Charlotte Hwy, 
    Asheville, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Diana Bradley is a primary care provider, practicing in Family Medicine in Asheville, North Carolina. Dr. Bradley is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are High Cholesterol, Cirrhosis, Familial Combined Hyperlipidemia, and Xanthoma.

    Experienced in Clouston Syndrome
    Internal Medicine
    Experienced in Clouston Syndrome
    Internal Medicine

    Office

    1021 Darrington Dr Ste 101, 
    Cary, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Suneha Sundaram is a primary care provider, practicing in Internal Medicine in Cary, North Carolina. Dr. Sundaram is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Leishmaniasis, Focal Dermal Hypoplasia, COVID-19, Endoscopy, and Colonoscopy.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    UNC Hospitals Pulmonary Function Lab

    101 Manning Dr, 
    Chapel Hill, NC 
    Languages Spoken:
    English

    Sheng-che Hung is a Neuroradiologist in Chapel Hill, North Carolina. Dr. Hung is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Stroke, Pediatric Low-Grade Glioma (pLGG), Subarachnoid Hemorrhage, and Brain Aneurysm.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    Office

    6011 Farrington Rd, 
    Chapel Hill, NC 
    Languages Spoken:
    English

    Nathaniel Wooten is a Pediatric Neurologist in Chapel Hill, North Carolina. Dr. Wooten is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Clouston Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Notalgia Paresthetica.

    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics
    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics

    University Of North Carolina At Chapel Hill

    101 Manning Dr, 
    Chapel Hill, NC 
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Clara Hildebrandt is a Pediatrics specialist and a Medical Genetics provider in Chapel Hill, North Carolina. Dr. Hildebrandt has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ring Chromosome 18, Hypotonia, Chromosome 18p Deletion, Blepharophimosis, and Gastrostomy. Dr. Hildebrandt is currently accepting new patients.

    Experienced in Clouston Syndrome
    Pediatric Gastroenterology
    Experienced in Clouston Syndrome
    Pediatric Gastroenterology

    UNC Physicians Network LLC

    1301 Central Dr, 
    Sanford, NC 
    Languages Spoken:
    English

    Theresa Heifert is a Pediatric Gastroenterologist in Sanford, North Carolina. Dr. Heifert is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Eosinophilic Esophagitis, Esophagitis, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

    Showing 1-19 of 19

    Last Updated: 04/28/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in North Carolina, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in North Carolina, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in North Carolina, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in North Carolina, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in North Carolina, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in North Carolina, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in North Carolina, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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