The 20 Best Clouston Syndrome Doctors Near Me in North Carolina, US

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 19 doctor with experience in Clouston Syndrome near North Carolina, US. Of these, 18 are Experienced and 1 are Advanced.

Location
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19 providers found
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Duke Children's Health Center Neurosurgery Clinic

    2301 Erwin Rd, 
    Durham, NC 
    Experience:
    28+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am the chief of pediatric neurosurgery at Duke Children's Hospital. I treat a wide variety of conditions affecting the brain and spine in children, including tumors, hydrocephalus, trauma, and craniosynostosis. I consider it a real privilege to earn a family's trust with their child's health. I enjoy building relationships with the family unit and understanding the specific details of their situation that need consideration in their child's care to ensure a smooth hospitalization experience. Our team leverages the expertise available at Duke Children's Hospital to achieve the best possible outcome for each patient. Witnessing a child return to a normal or improved life after intervention is incredibly gratifying, and seeing them thrive years later is one of the most special aspects of pediatric neurosurgery. Dr. Greene is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Chiari Malformation Type 2, Myelomeningocele, Syringomyelia, Posterior Fossa Decompression, and Craniectomy. Dr. Greene is board certified in American Board Of Neurological Surgery, Focused Practice Pediatric Neurological Surgery , American Board Of Neurological Surgery, Pediatric Neurosurgery , and American Board Of Neurological Surgery, Neurological Surgery.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    Lenox Baker Children's Hospital

    3000 Erwin Rd, 
    Durham, NC 
    Experience:
    40+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am a clinical geneticist and a pediatrician with a deep interest in undiagnosed and rare genetic disorders. I provide medical care for children and adults with chromosome 22q11.2 deletion syndrome and diagnostic evaluation for patients with symptoms and signs of genetic disorders, when evaluations have not provided a specific diagnosis. Dr. Shashi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses DiGeorge Syndrome, Hypotonia, Immune Defect due to Absence of Thymus, and Micrognathia. Dr. Shashi is board certified in American Board Of Medical Genetics And Genomics, Clinical Genetics And Genomics - General.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral required

    Duke Pediatric Dermatology Patterson Place

    5324 McFarland Rd, 
    Durham, NC 
    Experience:
    23+ years
    Languages Spoken:
    English
    Offers Telehealth

    Daniela Kroshinsky is a Dermatologist practicing medicine in Durham, North Carolina. She has been practicing medicine for over 23 years. Dr. Kroshinsky is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Calciphylaxis, Cellulitis, Calcinosis, and Acute Febrile Neutrophilic Dermatosis. Dr. Kroshinsky is board certified in American Board Of Dermatology, Dermatology.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    Referral may be required

    Duke Dermatology Patterson Place

    5324 McFarland Rd, 
    Durham, NC 
    Experience:
    19+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Sarah Wolfe is a Dermatologist practicing medicine in Durham, North Carolina. She has been practicing medicine for over 19 years. Dr. Wolfe is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Steatocystoma Multiplex, Actinic Keratosis, Epidermoid Cyst, and Basal Cell Skin Cancer. Dr. Wolfe is board certified in American Board Of Dermatology, Dermatology.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    Duke University Hospital

    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English

    Daniel Kenney is a Neurologist practicing medicine in Durham, North Carolina. Dr. Kenney is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Cardiofaciocutaneous Syndrome, Seizures, and Thrombectomy.

    Experienced in Clouston Syndrome
    Radiology
    Experienced in Clouston Syndrome
    Radiology
    Referral may be required

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Mindy Wang is a Radiologist practicing medicine in Cary, North Carolina. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Giant Mammary Hamartoma, Maffucci Syndrome, Acute Arterial Occlusion of Kidney, and Klippel-Trenaunay Syndrome.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    Referral may be required

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Khaled Elsayes is a Radiologist practicing medicine in Cary, North Carolina. Dr. Elsayes is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Adrenal Cancer, Liver Cancer, Adrenocortical Carcinoma, Giant Mammary Hamartoma, and Endoscopy.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    Referral may be required

    Atrium Health Wake Forest Baptist Dermatology-Country Club

    4618 Country Club Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English

    Amy Mcmichael is a Dermatologist practicing medicine in Winston Salem, North Carolina. Dr. Mcmichael is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Hypotrichosis, Alopecia Areata, Graham-Little-Piccardi-Lassueur Syndrome, and GAPO Syndrome.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    Referral may be required

    Atrium Health Wake Forest Baptist Dermatology-Country Club

    4618 Country Club Rd, 
    Winston Salem, NC 
    Languages Spoken:
    English

    Laura Doerfler is a Dermatologist practicing medicine in Winston Salem, North Carolina. Dr. Doerfler is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, Melanoma, and Head and Neck Squamous Cell Carcinoma (HNSCC).

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology
    Referral may be required

    UT MD Anderson Cancer Center

    210 Ashville Ave # 408, 
    Cary, NC 
    Languages Spoken:
    English

    Rami Eldaya is a Neuroradiologist practicing medicine in Cary, North Carolina. Dr. Eldaya is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Stroke, Invertebral Disc Disease, Pediatric Low-Grade Glioma (pLGG), and Neurofibromatosis.

    Advanced in Clouston Syndrome
    Family Medicine
    Advanced in Clouston Syndrome
    Family Medicine

    Siler City Community Health Center

    224 S 10th Ave, 
    Siler City, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Fisher is a primary care provider, practicing in Family Medicine in Siler City, North Carolina. Dr. Fisher is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), Osteotomy, and Intrauterine Device Insertion.

    Experienced in Clouston Syndrome
    Family Medicine
    Experienced in Clouston Syndrome
    Family Medicine

    RDMG Associates PA

    136 Charlotte Hwy, 
    Asheville, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Diana Bradley is a primary care provider, practicing in Family Medicine in Asheville, North Carolina. Dr. Bradley is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses High Cholesterol, Cirrhosis, Familial Combined Hyperlipidemia, and Xanthoma.

    Experienced in Clouston Syndrome
    Neurosurgery
    Experienced in Clouston Syndrome
    Neurosurgery
    Referral may be required

    Carolina Neurosurgery & Spine Associates PA

    225 Baldwin Ave, 
    Charlotte, NC 
    Languages Spoken:
    English

    Sarah Jernigan is a Neurosurgery provider practicing medicine in Charlotte, North Carolina. Dr. Jernigan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Hydrocephalus, Congenital Cardiovascular Shunt, Normal Pressure Hydrocephalus, Cerebellum Agenesis Hydrocephaly, and Posterior Fossa Decompression.

    Experienced in Clouston Syndrome
    Internal Medicine
    Experienced in Clouston Syndrome
    Internal Medicine

    Office

    1021 Darrington Dr Ste 101, 
    Cary, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Suneha Sundaram is a primary care provider, practicing in Internal Medicine in Cary, North Carolina. Dr. Sundaram is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Leishmaniasis, Focal Dermal Hypoplasia, COVID-19, Endoscopy, and Colonoscopy.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology
    Referral may be required

    UNC Hospitals Pulmonary Function Lab

    101 Manning Dr, 
    Chapel Hill, NC 
    Languages Spoken:
    English

    Sheng-che Hung is a Neuroradiologist practicing medicine in Chapel Hill, North Carolina. Dr. Hung is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Stroke, Pediatric Low-Grade Glioma (pLGG), Subarachnoid Hemorrhage, and Brain Aneurysm.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology
    Referral may be required

    Office

    6011 Farrington Rd, 
    Chapel Hill, NC 
    Languages Spoken:
    English

    Nathaniel Wooten is a Pediatric Neurologist practicing medicine in Chapel Hill, North Carolina. Dr. Wooten is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Notalgia Paresthetica.

    Experienced in Clouston Syndrome
    Internal Medicine
    Experienced in Clouston Syndrome
    Internal Medicine

    Duke University Hospital

    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English
    Offers Telehealth

    Mariam Baig is a primary care provider, practicing in Internal Medicine in Durham, North Carolina. Dr. Baig is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Sturge-Weber Syndrome, Parkes Weber Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

    Experienced in Clouston Syndrome
    Pediatric Gastroenterology
    Experienced in Clouston Syndrome
    Pediatric Gastroenterology
    Referral may be required

    UNC Physicians Network LLC

    1301 Central Dr, 
    Sanford, NC 
    Languages Spoken:
    English

    Theresa Heifert is a Pediatric Gastroenterologist practicing medicine in Sanford, North Carolina. Dr. Heifert is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her clinical expertise encompasses Eosinophilic Esophagitis, Esophagitis, Ectodermal Dysplasias, and Clouston Syndrome.

    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics
    Experienced in Clouston Syndrome
    Pediatrics | Medical Genetics
    Referral may be required

    University Of North Carolina At Chapel Hill

    101 Manning Dr, 
    Chapel Hill, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Clara Hildebrandt is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Chapel Hill, North Carolina. Dr. Hildebrandt is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Ring Chromosome 18, Hypotonia, Blepharophimosis, Chromosome 18p Deletion, and Gastrostomy. Dr. Hildebrandt is currently accepting new patients.

    Showing 1-19 of 19

    Last Updated: 06/30/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in North Carolina, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in North Carolina, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in North Carolina, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in North Carolina, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in North Carolina, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in North Carolina, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in North Carolina, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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