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    Last Updated: 10/30/2025

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    MediFind found 65 doctor with experience in Clouston Syndrome near New York, US. Of these, 51 are Experienced, 12 are Advanced and 2 are Distinguished.

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    LocationClose
    65 providers found
      Advanced in Clouston Syndrome
      Pediatric Allergy and Immunology | Pediatrics
      Advanced in Clouston Syndrome
      Pediatric Allergy and Immunology | Pediatrics
      630 W 168th St # St1, 
      New York, NY 
      Languages Spoken:
      English

      Jordan Orange is a Pediatric Allergy and Immunologist and a Pediatrics provider in New York, New York. Dr. Orange is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Common Variable Immune Deficiency, Infantile Neutropenia, Wiskott-Aldrich Syndrome, and Severe Combined Immunodeficiency (SCID).

      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome
      161 Fort Washington Ave, 12th Floor, 
      New York, NY 
      Languages Spoken:
      English

      Maria Garzon is a Dermatologist in New York, New York. Dr. Garzon is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hemangioma, PHACE Syndrome, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics
      1 Gustave L Levy Pl, Box 1498, 
      New York, NY 
      Languages Spoken:
      English

      Robert Desnick is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Desnick is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hereditary Coproporphyria, Fabry Disease, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Learn about our expert tiers
      Ashfaq A. Marghoob
      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Memorial Sloan-Kettering Cancer Center Suffolk At Hauppauge

      800 Veterans Memorial Hwy, 
      Hauppauge, NY 
      Languages Spoken:
      English

      Ashfaq Marghoob is a Dermatologist in Hauppauge, New York. Dr. Marghoob is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Basal Cell Skin Cancer, Melanoma, Seborrheic Keratosis, and Familial Atypical Multiple Mole Melanoma Syndrome.

      Bruce D. Gelb
      Advanced in Clouston Syndrome
      Pediatric Cardiology | Pediatrics
      Advanced in Clouston Syndrome
      Pediatric Cardiology | Pediatrics

      Icahn School Of Medicine At Mount Sinai

      1 Gustave L Levy Pl, 
      New York, NY 
      Languages Spoken:
      English

      Bruce Gelb is a Pediatric Cardiologist and a Pediatrics provider in New York, New York. Dr. Gelb is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are RASopathies, Congenital Heart Disease (CHD), Cardiomyopathic Lentiginosis, Noonan Syndrome, and Heart Transplant.

      Jean-laurent L. Casanova
      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      1230 York Ave, Box 163, 
      New York, NY 
      Languages Spoken:
      English

      Jean-laurent Casanova is a Pediatrics provider in New York, New York. Dr. Casanova is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Pyle Disease, Osteomyelitis in Children, Pulmonary Alveolar Proteinosis, and Lymphadenectomy.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      1275 York Ave, 
      New York, NY 
      Languages Spoken:
      English

      Yasmin Khakoo is a Pediatrics provider in New York, New York. Dr. Khakoo is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Aplasia Cutis Congenita, Clouston Syndrome, Ectodermal Dysplasias, and Embryonal Tumor with Multilayered Rosettes.

      Advanced in Clouston Syndrome
      Dermatology
      Advanced in Clouston Syndrome
      Dermatology

      Philip Fried MD PLLC

      2426 Eastchester Rd, Suite 212, 
      Bronx, NY 
      Languages Spoken:
      English

      Philip Fried is a Dermatologist in Bronx, New York. Dr. Fried is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Acne, Rosacea, Melasma, and Membranous Nephropathy.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Weill Medical College Of Cornell

      2315 Broadway, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Shari Lipner is a Dermatologist in New York, New York. Dr. Lipner is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ringworm, Autosomal Recessive Hypotrichosis, Anonychia Congenita, and Athlete's Foot.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      161 Fort Washington Ave, 12th Floor, 
      New York, NY 
      Languages Spoken:
      English

      Kimberly Morel is a Dermatologist in New York, New York. Dr. Morel is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epidermolysis Bullosa, PHACE Syndrome, Dystrophic Epidermolysis Bullosa, and Hemangioma.

      Advanced in Clouston Syndrome
      Pediatric Neurology | Pediatrics
      Advanced in Clouston Syndrome
      Pediatric Neurology | Pediatrics
      410 Lakeville Rd, Suite 105, 
      New Hyde Park, NY 
      Languages Spoken:
      English

      Fatema Malbari is a Pediatric Neurologist and a Pediatrics provider in New Hyde Park, New York. Dr. Malbari is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      161 Fort Washington Ave Fl 12, Department Of Dermatology, 
      New York, NY 
      Languages Spoken:
      English

      Christine Lauren is a Dermatologist and a Pediatrics provider in New York, New York. Dr. Lauren is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Vascular Birthmark, and Atopic Dermatitis.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      8714 Jamaica Ave, 
      Woodhaven, NY 
      Languages Spoken:
      English

      Maria Quezada is a Pediatrics provider in Woodhaven, New York. Dr. Quezada is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Clouston Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, and Zlotogora-Ogur Syndrome.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome

      Icahn School Of Medicine At Mount Sinai

      5 E 98th St, Fl 5, 
      New York, NY 
      Languages Spoken:
      English

      Nanette Silverberg is a Dermatologist in New York, New York. Dr. Silverberg is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Vitiligo, Molluscum Contagiosum, Pityriasis Alba, and Hypomelanotic Disorder.

      Ian D. Krantz
      Experienced in Clouston Syndrome
      Medical Genetics
      Experienced in Clouston Syndrome
      Medical Genetics

      Cohen Children's Northwell Health Physician Partners Medical Genetics

      225 Community Drive, Suite 110, 
      Great Neck, NY 
      Languages Spoken:
      English

      Dr. Ian Daniel Krantz, MD, is a renowned physician specializing in Genetics and Pediatrics. He currently sees patients at Cohen Children's Medical Center (CCMC) and Northwell Health Physician Partners Medical Genetics. Dr. Krantz holds certifications in Clinical Genetics, Cytogenetics, and Pediatrics from the American Board of Medical Genetics and the American Board of Pediatrics, respectively.Dr. Krantz completed his BFA at Concordia University in Montreal and his MD at Sackler School of Medicine (Tel Aviv University). He completed his residency in Medical Genetics at Children's Hospital of Philadelphia and his residency in Pediatrics at New York University Medical Center.With an impressive set of academic and administrative titles, Dr. Krantz serves as the Division Chief of Pediatric Genetics and Genomics at Cohen Children's Medical Center and is the System Vice President for Pediatric Genetics at Northwell Health. Additionally, he holds the position of Professor at the Zucker School of Medicine at Northwell Health.Dr. Krantz is recognized for his clinical expertise in isolated and syndromic forms of congenital birth differences and developmental diagnoses, including syndromic and non-syndromic autism. He has a special interest in the genetics of hearing loss and focused expertise in Cornelia de Lange Syndrome, Pallister-Killian syndrome, Alagille syndrome, CHOPS syndrome, among others.Dr. Krantz's research is dedicated to identifying and characterizing the molecular etiology of syndromic and non-syndromic developmental diagnoses. His research lab has made significant contributions in the field, discovering new disease genes and shedding light on critical molecular pathways involved in human developmental disorders.Driven by his commitment to advancing patient care, Dr. Krantz has been at the forefront of integrating genomic technologies into the clinical setting. He has implemented rapid genome sequencing into the NICU and CICU and established biobanks and biorepositories to further research efforts. Through his work, he aims to understand the impact of complex diagnostic information on clinicians and families involved.With his extensive expertise and dedication to advancing genetic research and patient care, Dr. Krantz continues to make significant contributions to the field of Pediatrics and Genetics. Dr. Krantz is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cornelia De Lange Syndrome, Pallister-Killian Mosaic Syndrome, Mosaicism, and KBG Syndrome.

      John W. Frew
      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology
      1230 York Ave, 
      New York, NY 
      Languages Spoken:
      English

      John Frew is a Dermatologist in New York, New York. Dr. Frew is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hidradenitis Suppurativa, Pyoderma Gangrenosum, Acne, Linear Nevus Sebaceous Syndrome, and Tissue Biopsy.

      Kaiane Habeshian
      Experienced in Clouston Syndrome
      Dermatology | Pediatrics
      Experienced in Clouston Syndrome
      Dermatology | Pediatrics

      Northwell Health Physician Partners Dermatology At East 82nd Street

      331 East 82nd Street, 
      New York, NY 
      Languages Spoken:
      English

      Kaiane Habeshian is a Dermatologist and a Pediatrics provider in New York, New York. Dr. Habeshian is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Lichen Sclerosus, Stork Bite, Familial Multiple Nevi Flammei, and Vascular Birthmark.

      Nika Finelt
      Experienced in Clouston Syndrome
      Pediatrics | Dermatology
      Experienced in Clouston Syndrome
      Pediatrics | Dermatology

      Northwell Health Physician Partners Dermatology At Lake Success

      1991 Marcus Avenue, Suite 300, 
      Lake Success, NY 
      Languages Spoken:
      English, Russian, Spanish

      Dr. Finelt is an Assistant Professor and Director of Pediatric Dermatology for the Department of Dermatology at the Donald and Barbara Zucker School of Medicine at Hofstra / Northwell. She is board certified in Dermatology as well as Pediatric Dermatology by the American Board of Dermatology.Dr. Finelt earned her medical degree from Stony Brook University School of Medicine where she was elected to the Gold Humanism Honor Society. She completed her internship in pediatrics at Cohen Children's Medical Center and residency in dermatology at Stony Brook University where she served as chief resident. She completed her pediatric dermatology fellowship at Lurie Children's Hospital at Northwestern University.Dr. Finelt has been awarded the Departmental Chairman's award in 2018 the Departmental Teacher of the Year award in 2019 and was one of the awardees of Northwell's Teacher of the Year award in 2020. She teaches medical students as well as pediatric and dermatology residents. She is an active member of the Society for Pediatric Dermatology Pediatric Dermatology Research Alliance (PeDRA) Long Island Dermatology Society and American Academy of Dermatology.Dr. Finelt's subspecialty expertise is interdisciplinary based in caring for patients with a broad spectrum of pediatric dermatology needs including vascular growths (such as infantile hemangiomas) vascular malformations (such as port wine stains) eczema nevi and other birthmarks acne genetic skin disease psoriasis hidradenitis suppurativa alopecia vitiligo and other autoimmune and inflammatory conditions. She is a member of the multidisciplinary vascular anomalies team at Cohen Children's Hospital. Dr. Finelt has given regional national and international talks on these topics and others. She has published a number of articles in the peer-reviewed literature and has authored several book chapters. Dr. Finelt is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Linear Hamartoma Syndrome, Familial Multiple Nevi Flammei, Stork Bite, and Vascular Birthmark.

      Judith Bluvstein
      Experienced in Clouston Syndrome
      Pediatric Neurology
      Experienced in Clouston Syndrome
      Pediatric Neurology

      Northwell Health Physician Partners Neurology At Third Avenue

      1317 3rd Avenue, 8th Floor, 
      New York, NY 
      Languages Spoken:
      English, Spanish

      Pediatric Neurologist and Clinical NeurophysiologistDirector of Pediatric Epilepsy Program at Lenox Hill Hospital Northwell HealthDirector of International Pediatric Neurology Program Northwell HealthClinical Professor of Neurology and Pediatrics, Zucker School of Medicine at Hofstra/Northwell. Dr. Bluvstein is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Seizures, Myoclonic Epilepsy, West Syndrome, and Epilepsy.

      Experienced in Clouston Syndrome
      Radiology
      Experienced in Clouston Syndrome
      Radiology

      Mskcc Radiology Group

      500 Westchester Ave, 
      West Harrison, NY 
      Languages Spoken:
      English

      Sofia Haque is a Radiologist in West Harrison, New York. Dr. Haque is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, and ALK-Positive Non-Small Cell Lung Cancer.

      Showing 1-20 of 65

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in New York, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in New York, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors in New York, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in New York, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in New York, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in New York, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in New York, US?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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