The 20 Best Clouston Syndrome Doctors Near Me in Oklahoma, US

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors in Oklahoma, US

Last Updated: 02/22/2026

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MediFind found 10 doctor with experience in Clouston Syndrome near Oklahoma, US. Of these, 9 are Experienced and 1 are Advanced.

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10 providers found
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Internal Mediciine Associates Of Oklahoma City P.L.L.C

    3330 NW 56th St Ste 206, 
    Oklahoma City, OK 
    Languages Spoken:
    English

    Jimmy Nguyen is a Radiologist in Oklahoma City, Oklahoma. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Visceromegaly, Pleurisy, Pleural Effusion, and Gallbladder Disease.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Ou Health-University Of Oklahoma Medical Center

    700 NE 13th St, 
    Oklahoma City, OK 
    Languages Spoken:
    English

    India Loyd is a Dermatologist in Oklahoma City, Oklahoma. Dr. Loyd is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Anhidrosis, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Ou Health Physicians-Dermatology Clinic

    1000 NE 13th St Ste 1C, 
    Oklahoma City, OK 
    Languages Spoken:
    English

    Amanda Weissman is a Dermatologist in Oklahoma City, Oklahoma. Dr. Weissman is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Anhidrosis, Autosomal Recessive Hypotrichosis, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    OU Health Physicians Dermatology Clinic

    1000 NE 13th St # 1C, 
    Oklahoma City, OK 
    Languages Spoken:
    English

    Jarad Levin is a Dermatologist in Oklahoma City, Oklahoma. Dr. Levin is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hidradenitis Suppurativa, Lichen Planus, Bullous Pemphigoid, and Mycosis Fungoides.

    Advanced in Clouston Syndrome
    Advanced in Clouston Syndrome

    Utica Park Clinic - Pryor Specialty Clinic

    1301 NE 1st St Ste 100, 
    Pryor, OK 
    Languages Spoken:
    English

    Amanda Griffin is a Pediatrics provider in Pryor, Oklahoma. Dr. Griffin is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are DiGeorge Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, Zlotogora-Ogur Syndrome, and Ectodermal Dysplasias.

    Naina L. Gross
    Experienced in Clouston Syndrome
    Neurosurgery
    Experienced in Clouston Syndrome
    Neurosurgery

    Saint Francis Children's Physicians Pediatric Neurosurgery

    6151 South Yale Avenue, Suite 2403, 
    Tulsa, OK 
    Experience:
    31+ years
    Languages Spoken:
    English

    Naina Gross is a Neurosurgery provider in Tulsa, Oklahoma. Dr. Gross has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Syringomyelia, Chiari Malformation Type 1, Chiari Malformation, Posterior Fossa Decompression, and Awake Craniotomy.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Norman Pediatric Associates

    808 Wall St, 
    Norman, OK 
    Languages Spoken:
    English

    Donna Jackson is a Pediatrics provider in Norman, Oklahoma. Dr. Jackson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Croup, Delayed Growth, Scarlet Fever, and Idiopathic Short Stature (ISS).

    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics
    1200 N Phillips Ave, Suite 5100, 
    Oklahoma City, OK 
    Languages Spoken:
    English

    John Mulvihill is a Medical Genetics provider in Oklahoma City, Oklahoma. Dr. Mulvihill is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Split Hand Foot Malformation, and Aplasia Cutis Congenita.

    Experienced in Clouston Syndrome
    Neurosurgery
    Experienced in Clouston Syndrome
    Neurosurgery

    St. Mary's Neurosurgery

    330 S 5th St Ste 301, 
    Enid, OK 
    Languages Spoken:
    English
    Offers Telehealth

    Andrew Jea is a Neurosurgery provider in Enid, Oklahoma. Dr. Jea is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Tethered Cord Syndrome, Hydrocephalus, Meningocele, Posterior Fossa Decompression, and Spinal Fusion.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    Oklahoma Childrens Hospital At OU Health

    1200 Childrens Ave, 
    Oklahoma City, OK 
    Languages Spoken:
    English

    Deepti Chrusciel is a Pediatric Neurologist in Oklahoma City, Oklahoma. Dr. Chrusciel is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Cerebral Palsy, Neurofibromatosis, Seizures, Nerve Decompression, and Microvascular Decompression.

    Showing 1-10 of 10

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in Oklahoma, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in Oklahoma, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in Oklahoma, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in Oklahoma, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in Oklahoma, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in Oklahoma, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in Oklahoma, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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