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    Last Updated: 01/09/2026

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    MediFind found 57 doctor with experience in Clouston Syndrome near Pennsylvania, US. Of these, 51 are Experienced and 6 are Advanced.

    Location
    LocationClose
    57 providers found
      Experienced in Clouston Syndrome
      Family Medicine
      Experienced in Clouston Syndrome
      Family Medicine

      Penn Family Medicine West Chester

      1055 Andrew Drive, Suite B, 
      West Chester, PA 
      Languages Spoken:
      English

      Manish Kumar is a primary care provider, practicing in Family Medicine in West Chester, Pennsylvania. Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Myocarditis, Traumatic Brain Injury, Pericarditis, Osteotomy, and Tissue Biopsy.

      Experienced in Clouston Syndrome
      Medical Genetics
      Experienced in Clouston Syndrome
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Staci Kallish is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Kallish is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, Fabry Disease, and Neurofibromatosis. Dr. Kallish is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Penn Dermatology Radnor

      145 King Of Prussia Road, Floor 3, Suite 306, 
      Radnor, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Corbett Berry is a Dermatologist in Radnor, Pennsylvania. Dr. Berry is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Scurvy, Epidermoid Cyst, Hypersensitivity Vasculitis, and Acrokeratoelastoidosis of Costa. Dr. Berry is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      3401 Civic Center Blvd, Division Of Genetics, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Alanna Strong is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Strong is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hardikar Syndrome, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

      Advanced in Clouston Syndrome
      Pediatrics | Medical Genetics
      Advanced in Clouston Syndrome
      Pediatrics | Medical Genetics
      34th St. & Civic Center Blvd, The Children's Hospital Of Philadelphia, Room 9nw55, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Elizabeth Bhoj is a Pediatrics specialist and a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Bhoj is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hardikar Syndrome, Coffin-Siris Syndrome, Acheiropody, Hypotonia, and Myringotomy.

      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      3550 Market St Fl 2, Children's Hospital Of Philadelphia - Dermatology Div, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Albert Yan is a Dermatologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Yan is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Comedones, Stork Bite, Familial Multiple Nevi Flammei, and Molluscum Contagiosum.

      Advanced in Clouston Syndrome
      Internal Medicine
      Advanced in Clouston Syndrome
      Internal Medicine
      3401 N Broad St, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Wei Zhao is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Zhao is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Microsporidiosis, Lung Adenocarcinoma, Lung Cancer, Coronary Artery Bypass Graft (CABG), and Osteotomy.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      1939 W Cheltenham Ave, 
      Elkins Park, PA 
      Languages Spoken:
      English

      Alan Tannenbaum is a Pediatrics provider in Elkins Park, Pennsylvania. Dr. Tannenbaum is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Obesity in Children, Delayed Growth, Autism Spectrum Disorder, and Scarlet Fever.

      Advanced in Clouston Syndrome
      Dermatology
      Advanced in Clouston Syndrome
      Dermatology
      3550 Market St Fl 2, Children's Hospital Of Philadelphia - Dermatology Div, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Melinda Jen is a Dermatologist in Philadelphia, Pennsylvania. Dr. Jen is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Aplasia Cutis Congenita, Ichthyosis Bullosa of Siemens, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, and Familial Multiple Nevi Flammei.

      Andrew A. Mccormick
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Down Syndrome Center In Johnstown

      865 Eisenhower Boulevard, 
      Johnstown, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Mccormick is a Pediatrics provider in Johnstown, Pennsylvania. Dr. Mccormick is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, Otitis Media with Effusion, and Myringotomy. Dr. Mccormick is currently accepting new patients.

      Ronald N. Endo
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      866 West Bristol Road, 
      Warminster, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Ronald Endo is a Pediatrics provider in Warminster, Pennsylvania. Dr. Endo is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Zlotogora-Ogur Syndrome, and AEC Syndrome. Dr. Endo is currently accepting new patients.

      Ken K. Nischal
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      UPMC Vision Institute

      4401 Penn Avenue, Suite 3200, 
      Pittsburgh, PA 
      Languages Spoken:
      English, French, Hindi, Punjabi, Urdu
      Accepting New Patients
      Offers Telehealth

      Ken Nischal is a Pediatrics provider in Pittsburgh, Pennsylvania. Dr. Nischal is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Mitochondrial Trifunctional Protein Deficiency, Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, Conjunctivitis with Pseudomembrane, Cataract Removal, and Vitrectomy. Dr. Nischal is currently accepting new patients.

      Stephanie R. Cullison
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Dermatology - 33 South 9th Street

      33 South 9th Street, Suite 740, 
      Philadelphia, PA 
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Cullison is a Dermatologist in Philadelphia, Pennsylvania. Dr. Cullison has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Porphyria Cutanea Tarda, Basal Cell Skin Cancer, Comedones, and Lichen Simplex Chronicus. Dr. Cullison is currently accepting new patients.

      Amgad A. Eldib
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      UPMC Vision Institute

      205 Millers Run Road, 
      Bridgeville, PA 
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Amgad Eldib is a Pediatrics provider in Bridgeville, Pennsylvania. Dr. Eldib is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Trisomy 13, Chromosome 13q Duplication, Ectodermal Dysplasias, and Clouston Syndrome. Dr. Eldib is currently accepting new patients.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      James Treat is a Dermatologist in Philadelphia, Pennsylvania. Dr. Treat is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cutis Marmorata Telangiectatica Congenita, PHACE Syndrome, Pityriasis Lichenoides Et Varioliformis Acuta, and Livedo Reticularis.

      Experienced in Clouston Syndrome
      Hospital Medicine | Neurology
      Experienced in Clouston Syndrome
      Hospital Medicine | Neurology

      Jefferson University Physicians

      900 Walnut St 2nd Floor, Jeff Hosp For Neuro, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Matthew Brown is a Hospital Medicine specialist and a Neurologist in Philadelphia, Pennsylvania. Dr. Brown is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Fibrodysplasia Ossificans Progressiva, Ellis-Van Creveld Syndrome, Hartnup Disease, Osteotomy, and Endoscopy.

      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Intensive Care Medicine
      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Intensive Care Medicine
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Pulmonology, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Oscar Mayer is a Pediatric Pulmonologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Mayer is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Duchenne Muscular Dystrophy, Spondylocostal Dysostosis, Spinal Muscular Atrophy Type 2, and Ellis-Van Creveld Syndrome.

      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Pulmonology, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Hakon Hakonarson is a Pediatric Pulmonologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Hakonarson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hypotonia, Autism Spectrum Disorder, Embryonal Tumor with Multilayered Rosettes, and Type 1 Diabetes (T1D).

      Experienced in Clouston Syndrome
      Pediatric Neurology | Neurology
      Experienced in Clouston Syndrome
      Pediatric Neurology | Neurology
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Neurology, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Katherine Taub is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Taub is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Seizures.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      655 Walnut St, 
      West Reading, PA 
      Languages Spoken:
      English

      Abimbola Ajayi is a Pediatrics provider in West Reading, Pennsylvania. Dr. Ajayi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Clouston Syndrome, and Ectodermal Dysplasias.

      Showing 1-20 of 57

      Last Updated: 01/09/2026

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in Pennsylvania, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in Pennsylvania, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors in Pennsylvania, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in Pennsylvania, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in Pennsylvania, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in Pennsylvania, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in Pennsylvania, US?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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