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    Last Updated: 10/30/2025

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    MediFind found 52 doctor with experience in Clouston Syndrome near Pennsylvania, US. Of these, 46 are Experienced and 6 are Advanced.

    Location
    LocationClose
    52 providers found
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Penn Dermatology Pennsylvania Hospital

      235 South 8th Street, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Michelle Oboite is a Dermatologist in Philadelphia, Pennsylvania. Dr. Oboite is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ambras Syndrome, Hypertrichosis Lanuginosa Congenita, Alopecia Universalis, and Autosomal Recessive Hypotrichosis. Dr. Oboite is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Penn Dermatology Pennsylvania Hospital

      235 South 8th Street, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Claire Hannah is a Dermatologist in Philadelphia, Pennsylvania. Dr. Hannah is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epidermal Nevus, Hidradenitis Suppurativa, Systemic Lupus Erythematosus (SLE), and Cutaneous Lupus Erythematosus (CLE). Dr. Hannah is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Penn Dermatology Perelman

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Junko Takeshita is a Dermatologist in Philadelphia, Pennsylvania. Dr. Takeshita is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Psoriasis, Plaque Psoriasis, Atopic Dermatitis, and Acne. Dr. Takeshita is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Penn Dermatology Radnor

      145 King Of Prussia Road, Floor 3, Suite 306, 
      Radnor, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Corbett Berry is a Dermatologist in Radnor, Pennsylvania. Dr. Berry is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Scurvy, Epidermoid Cyst, Hypersensitivity Vasculitis, and Acrokeratoelastoidosis of Costa. Dr. Berry is currently accepting new patients.

      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      3401 Civic Center Blvd, Division Of Genetics, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Alanna Strong is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Strong is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hardikar Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

      Advanced in Clouston Syndrome
      Pediatrics | Medical Genetics
      Advanced in Clouston Syndrome
      Pediatrics | Medical Genetics
      34th St. & Civic Center Blvd, The Children's Hospital Of Philadelphia, Room 9nw55, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Elizabeth Bhoj is a Pediatrics specialist and a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Bhoj is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hardikar Syndrome, Coffin-Siris Syndrome, Acheiropody, Hypotonia, and Myringotomy.

      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      3550 Market St Fl 2, Children's Hospital Of Philadelphia - Dermatology Div, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Albert Yan is a Dermatologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Yan is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Comedones, Familial Multiple Nevi Flammei, Stork Bite, and Molluscum Contagiosum.

      Advanced in Clouston Syndrome
      Internal Medicine
      Advanced in Clouston Syndrome
      Internal Medicine
      3401 N Broad St, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Wei Zhao is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Zhao is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Microsporidiosis, Lung Cancer, Lung Adenocarcinoma, Endoscopy, and Coronary Artery Bypass Graft (CABG).

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      1939 W Cheltenham Ave, 
      Elkins Park, PA 
      Languages Spoken:
      English

      Alan Tannenbaum is a Pediatrics provider in Elkins Park, Pennsylvania. Dr. Tannenbaum is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Obesity in Children, Delayed Growth, Autism Spectrum Disorder, and Scarlet Fever.

      Advanced in Clouston Syndrome
      Dermatology
      Advanced in Clouston Syndrome
      Dermatology
      3550 Market St Fl 2, Children's Hospital Of Philadelphia - Dermatology Div, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Melinda Jen is a Dermatologist in Philadelphia, Pennsylvania. Dr. Jen is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Aplasia Cutis Congenita, Ichthyosis Bullosa of Siemens, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, and Vascular Birthmark.

      Andrew Mccormick
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Down Syndrome Center In Johnstown

      865 Eisenhower Boulevard, 
      Johnstown, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrew McCormick, MD, is an Associate Professor of Pediatrics in the Paul C. Gaffney Division of Pediatric Hospital Medicine. He trained in the Internal Medicine and Pediatrics Residency Program at UPMC and joined the Division of Pediatric Hospital Medicine at UPMC Children's Hospital of Pittsburgh after completing his training. He serves as the Medical Director of the Vascular Anomaly Center of UPMC. His clinical interests include care for children and adults with vascular anomalies. Dr. Mccormick is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Down Syndrome, Angiosarcoma of the Liver, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Myringotomy.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      James Treat is a Dermatologist in Philadelphia, Pennsylvania. Dr. Treat is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cutis Marmorata Telangiectatica Congenita, PHACE Syndrome, Pityriasis Lichenoides Et Varioliformis Acuta, and Livedo Reticularis.

      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Intensive Care Medicine
      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Intensive Care Medicine

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Oscar Mayer is a Pediatric Pulmonologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Mayer is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Duchenne Muscular Dystrophy, Spondylocostal Dysostosis, Spinal Muscular Atrophy Type 2, and Microcephaly Deafness Syndrome.

      Experienced in Clouston Syndrome
      Family Medicine
      Experienced in Clouston Syndrome
      Family Medicine

      Penn Family Medicine West Chester

      1055 Andrew Drive, Suite B, 
      West Chester, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Manish Kumar is a primary care provider, practicing in Family Medicine in West Chester, Pennsylvania. Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pericarditis, Myocarditis, Iridogoniodysgenesis Type 1, Osteotomy, and Tissue Biopsy.

      Experienced in Clouston Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Clouston Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Matthew O'connor is a Pediatric Cardiologist and a Cardiologist in Philadelphia, Pennsylvania. Dr. O'connor is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pediatric Myocarditis, Cardiomyopathy, Congenital Heart Disease (CHD), Heart Failure, and Heart Transplant.

      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Experienced in Clouston Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Pulmonology, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Hakon Hakonarson is a Pediatric Pulmonologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Hakonarson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hypotonia, Autism Spectrum Disorder, Embryonal Tumor with Multilayered Rosettes, and Type 1 Diabetes (T1D).

      Experienced in Clouston Syndrome
      Internal Medicine
      Experienced in Clouston Syndrome
      Internal Medicine

      Rehabclinics Spt Inc

      2721 St Rd, Suite 2735, 
      Bensalem, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Deepti Gupta is a primary care provider, practicing in Internal Medicine in Bensalem, Pennsylvania. Dr. Gupta is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Chronic Recurrent Multifocal Osteomyelitis, Vascular Birthmark, Osteomyelitis in Children, and Aplasia Cutis Congenita.

      Experienced in Clouston Syndrome
      Pediatric Neurology | Neurology
      Experienced in Clouston Syndrome
      Pediatric Neurology | Neurology
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Neurology, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Katherine Taub is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Taub is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Seizures.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      655 Walnut St, 
      West Reading, PA 
      Languages Spoken:
      English

      Abimbola Ajayi is a Pediatrics provider in West Reading, Pennsylvania. Dr. Ajayi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Naegeli-Franceschetti-Jadassohn Syndrome, and AEC Syndrome.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      9121 Roosevelt Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Ronald Endo is a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Endo is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Zlotogora-Ogur Syndrome, and Ectodermal Dysplasias.

      Showing 1-20 of 52

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor in Pennsylvania, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor in Pennsylvania, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors in Pennsylvania, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors in Pennsylvania, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor in Pennsylvania, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor in Pennsylvania, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors in Pennsylvania, US?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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