The 20 Best Clouston Syndrome Doctors Near Me in Washington, US

Find the Top Clouston Syndrome Experts and Specialists

The 20 Best Clouston Syndrome Doctors in Washington, US

Last Updated: 02/22/2026

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MediFind found 24 doctor with experience in Clouston Syndrome near Washington, US. Of these, 24 are Experienced.

Location
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24 providers found
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Heather Brandling is a Pediatrics provider in Seattle, Washington. Dr. Brandling is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Discoid Lupus Erythematosus (DLE), Localized Scleroderma, Cutaneous Lupus Erythematosus (CLE), and Urticaria Pigmentosa.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Gisele Ishak is a Neuroradiologist in Seattle, Washington. Dr. Ishak is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Polymicrogyria, Increased Head Circumference, Cortical Dysplasia, and Hydrocephalus.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology

    Dermatology At PeaceHealth Cordata South Clinic

    4465 Cordata Pkwy Ste 101, 
    Bellingham, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Xiaoxiao Li is a Dermatologist in Bellingham, Washington. Dr. Li is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Acne, Giant Congenital Nevus, Giant Congenital Melanocytic Nevus, and Familial Atypical Multiple Mole Melanoma Syndrome.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Basar Sarikaya is a Radiologist in Seattle, Washington. Dr. Sarikaya is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cerebral Arteriovenous Malformation, Meningioma, Radiation Induced Meningioma, and Subarachnoid Hemorrhage.

    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    Seattle Childerns Hospital

    4800 Sand Point Way NE Ste R5438, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Stephen Done is a Pediatrics provider in Seattle, Washington. Dr. Done is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Hypochondroplasia, Ellis-Van Creveld Syndrome, Aplasia Cutis Congenita, and Clouston Syndrome.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Kaiser Permanente Lynnwood Medical Center

    20200 54th Ave W, 
    Lynnwood, WA 
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients

    Deanna Dickerman is a Dermatologist in Lynnwood, Washington. Dr. Dickerman has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 2, Acrodysostosis, Basal Cell Skin Cancer, and Actinic Keratosis. Dr. Dickerman is currently accepting new patients.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Clinic 5C Liberty Lake Dermatology

    1334 N Whitman Ln Ste 200, 
    Liberty Lake, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Richard Herdener is a Dermatologist in Liberty Lake, Washington. Dr. Herdener is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Seborrheic Keratosis, Warts, Actinic Keratosis, and Guttate Psoriasis.

    Experienced in Clouston Syndrome
    Medical Genetics | Dermatology
    Experienced in Clouston Syndrome
    Medical Genetics | Dermatology
    1959 Ne Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Virginia Sybert is a Medical Genetics specialist and a Dermatologist in Seattle, Washington. Dr. Sybert is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Turner Syndrome, Mixed Gonadal Dysgenesis, Mosaicism, and Aplasia Cutis Congenita.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    4800 Sand Point Way Ne, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Margaret Adam is a Medical Genetics specialist and a Pediatrics provider in Seattle, Washington. Dr. Adam is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Fetal Alcohol Syndrome (FAS), 1p36 Deletion Syndrome, Intersex, and Microcephaly.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Pediatrics Northwest

    4700 Point Fosdick Dr Ste 211, 
    Gig Harbor, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Imka Lavinder is a Pediatrics provider in Gig Harbor, Washington. Dr. Lavinder is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Ectodermal Dysplasias, Clouston Syndrome, Zlotogora-Ogur Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome. Dr. Lavinder is currently accepting new patients.

    Experienced in Clouston Syndrome
    Pediatrics
    Experienced in Clouston Syndrome
    Pediatrics

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Kelly Evans is a Pediatrics provider in Seattle, Washington. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Micrognathia, Multiple Epiphyseal Dysplasia, Zlotogora-Ogur Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome.

    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics

    The Association Of University Physicians

    1959 Ne Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kathleen Leppig is a Medical Genetics provider in Seattle, Washington. Dr. Leppig is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Learman Syndrome, Multiple Synostoses Syndrome 1, Coenzyme Q Cytochrome C Reductase Deficiency, and Acheiropody. Dr. Leppig is currently accepting new patients.

    Experienced in Clouston Syndrome
    Internal Medicine
    Experienced in Clouston Syndrome
    Internal Medicine

    Office

    4225 Roosevelt Way NE Ste 401, 
    Seattle, WA 
    Languages Spoken:
    English

    John Olerud is an Internal Medicine provider in Seattle, Washington. Dr. Olerud is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cutaneous T-Cell Lymphoma (CTCL), Epidermolysis Bullosa Acquisita, Epidermolysis Bullosa, and Parapsoriasis.

    Experienced in Clouston Syndrome
    Medical Genetics
    Experienced in Clouston Syndrome
    Medical Genetics
    4800 Sand Point Way Ne, 
    Seattle, WA 
    Languages Spoken:
    English, Castilian, German, Hindi, Lithuanian, Polish, Spanish
    Accepting New Patients
    Offers Telehealth

    Ian Glass is a Medical Genetics provider in Seattle, Washington. Dr. Glass is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Joubert Syndrome, Hypotonia, Dandy-Walker Syndrome, and Cortical Dysplasia. Dr. Glass is currently accepting new patients.

    Experienced in Clouston Syndrome
    Pediatric Rheumatology
    Experienced in Clouston Syndrome
    Pediatric Rheumatology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
    Languages Spoken:
    English

    Troy Torgerson is a Pediatric Rheumatologist in Seattle, Washington. Dr. Torgerson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Infantile Neutropenia, Pulmonary Alveolar Proteinosis, Mosaic Trisomy 8, and Mosaicism.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics

    The Association Of Chrmc And University Physicians

    4800 Sand Point Way Ne, 
    Seattle, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Bamshad is a Medical Genetics specialist and a Pediatrics provider in Seattle, Washington. Dr. Bamshad is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Distal Arthrogryposis Type 6, Distal Arthrogryposis, Arthrogryposis Multiplex Congenita, and Congenital Contractures. Dr. Bamshad is currently accepting new patients.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Madigan Army Medical Center 9040 Jackson Ave, 
    Tacoma, WA 
    Languages Spoken:
    English, Castilian, Filipino, Hebrew, Spanish
    Accepting New Patients
    Offers Telehealth

    Jacob Hogue is a Medical Genetics specialist and a Pediatrics provider in Tacoma, Washington. Dr. Hogue is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Proximal Symphalangism, Micrognathia, Angelman Syndrome, and Hernia. Dr. Hogue is currently accepting new patients.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics

    Providence Health And Services Washington

    105 W 8th Ave, Suite 454e, 
    Spokane, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sarah Dugan is a Medical Genetics specialist and a Pediatrics provider in Spokane, Washington. Dr. Dugan is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Microcephaly, Chromosome 13q Deletion, Increased Head Circumference, and Abruzzo-Erickson Syndrome. Dr. Dugan is currently accepting new patients.

    Experienced in Clouston Syndrome
    Pediatric Neurology
    Experienced in Clouston Syndrome
    Pediatric Neurology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Hannah Tully is a Pediatric Neurologist in Seattle, Washington. Dr. Tully is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Hydrocephalus, Joubert Syndrome, TORCH Syndrome, and West Syndrome.

    Experienced in Clouston Syndrome
    Pediatric Otolaryngology | Pediatrics | Otolaryngology
    Experienced in Clouston Syndrome
    Pediatric Otolaryngology | Pediatrics | Otolaryngology

    Seattle Children's Hospital

    4800 Sand Point Way NE, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Jonathan Perkins is a Pediatric Otolaryngologist and a Pediatrics provider in Seattle, Washington. Dr. Perkins is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Micrognathia, Palatopharyngeal Incompetence, Velopharyngeal Insufficiency, Osteotomy, and Embolectomy.

    Showing 1-20 of 24

    Last Updated: 02/22/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor in Washington, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor in Washington, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors in Washington, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors in Washington, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor in Washington, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor in Washington, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors in Washington, US?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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