The 20 Best Danon Disease Doctors in Germany

Find the Top Danon Disease Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 18 doctor with experience in Danon Disease near Germany. Of these, 17 are Experienced and 1 are Advanced.

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18 providers found
    Advanced in Danon Disease
    Advanced in Danon Disease
    Referral may be required
    Kiel, SH, DE 

    Paul Saftig practices practicing medicine in Kiel, Germany. Mr. Saftig is rated as an Advanced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN1 Disease, CLN2 Disease, and CLN5 Disease.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Dr Hitzelberger Strabe, 
    Landstuhl, DE 
    Languages Spoken:
    English

    Kathryn North practices practicing medicine in Landstuhl, Germany. Dr. North is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Tubular Aggregate Myopathy, and Nemaline Myopathy.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Hoppe Seyler Str 3, 
    Tuebingen, BW, DE 

    Gerard Healy practices practicing medicine in Tuebingen, Germany. Mr. Healy is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Congenital Pulmonary Lymphangiectasia, Lymphangiectasis, Danon Disease, Aneurysm Repair, and Liver Transplant.

    Learn about our expert tiers
    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    BG University Hospital Bergmannsheil, 
    Bochum, NW, DE 

    Felix Kleefeld practices practicing medicine in Bochum, Germany. Mr. Kleefeld is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Cytoplasmic Body Myopathy, Myositis, and Polymyositis.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Charité Universitätsmedizin

    Berlin, BE, DE 

    Werner Stenzel practices practicing medicine in Berlin, Germany. Mr. Stenzel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Myositis, Antisynthetase Syndrome, Polymyositis, and Dermatomyositis.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Berlin, BE, DE 

    Hans-hilmar Goebel practices practicing medicine in Berlin, Germany. Goebel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Myositis, Necrotizing Myopathy (NM), Inclusion Body Myositis, and Dermatomyositis.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Westend, BE, DE 

    Arpad Von Moers practices practicing medicine in Westend, Germany. Mr. Von Moers is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy Type 2.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Otto Hahn Str. 6b, 
    Dortmund, NW, DE 

    Andreas Roos practices practicing medicine in Dortmund, Germany. Mr. Roos is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Congenital Myasthenic Syndrome, Cramp-Fasciculation Syndrome, Primary Lateral Sclerosis, and Cytoplasmic Body Myopathy.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Berlin, BE, DE 

    Katrin Hahn practices practicing medicine in Berlin, Germany. Ms. Hahn is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Familial Transthyretin Amyloidosis, Primary Amyloidosis, Cardiac Amyloidosis, and Transthyretin Amyloidosis.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Berlin, BE, DE 

    Markus Schuelke practices practicing medicine in Berlin, Germany. Mr. Schuelke is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Maternally Inherited Leigh Syndrome, Allan-Herndon-Dudley Syndrome, Leigh Syndrome, and Cutis Laxa.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Berlin, BE, DE 

    Corinna Preusse practices practicing medicine in Berlin, Germany. Ms. Preusse is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Myositis, Necrotizing Myopathy (NM), Inclusion Body Myositis, and Polymyositis.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Otto Hahn Str. 6b, 
    Dortmund, NW, DE 

    Andreas Hentschel practices practicing medicine in Dortmund, Germany. Mr. Hentschel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Congenital Myasthenic Syndrome, Primary Lateral Sclerosis, Supernumerary Nipples, and Infantile Axonal Neuropathy.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Junichi Ishida practices practicing medicine in Goettingen, Germany. Mr. Ishida is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Dilated Cardiomyopathy (DCM), Cardiomyopathy, Heart Transplant, and Pacemaker Implantation.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Dresden, SN, DE 

    Jens Schallner practices practicing medicine in Dresden, Germany. Mr. Schallner is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His clinical expertise encompasses Increased Head Circumference, Spinal Muscular Atrophy (SMA), Short Stature (Growth Disorders), and Polymicrogyria.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Munich, BY, DE 

    Isabel Deisenhofer practices practicing medicine in Munich, Germany. Ms. Deisenhofer is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Atrial Fibrillation, Arrhythmias, Atrial Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Elfriede Aulhorn Str. 6, 
    Tuebingen, BW, DE 

    Karin Klingel practices practicing medicine in Tuebingen, Germany. Ms. Klingel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Myocarditis, Cardiomyopathy, Dilated Cardiomyopathy (DCM), Heart Transplant, and Cardiac Ablation.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Ismaninger Str 22, 
    Munich, BY, DE 

    Martin Hadamitzky practices practicing medicine in Munich, Germany. Mr. Hadamitzky is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Coronary Heart Disease, Unstable Angina, Acute Coronary Syndrome, Percutaneous Coronary Intervention (PCI), and Angioplasty.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Munich, BY, DE 

    Gabriele Hessling practices practicing medicine in Munich, Germany. Ms. Hessling is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Atrial Fibrillation, Arrhythmias, Atrial Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 11/08/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Danon Disease doctor in Germany?

    You can find a Danon Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Danon Disease doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors in Germany?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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