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    Last Updated: 01/09/2026

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    MediFind found 23 doctor with experience in Danon Disease near Germany. Of these, 22 are Experienced and 1 are Advanced.

    Location
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    23 providers found
      Advanced in Danon Disease

      Paul Saftig
      Advanced in Danon Disease

      Paul Saftig
      Kiel, SH, DE 

      Paul Saftig practices in Kiel, Germany. Mr. Saftig is rated as an Advanced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Batten Disease, CLN4 Disease, CLN1 Disease, and CLN5 Disease.

      Thomas F. Munzel
      Experienced in Danon Disease

      Thomas F. Munzel
      Experienced in Danon Disease

      Thomas F. Munzel
      Untere Zahlbacher Str. 8, 
      Mainz, RP, DE 

      Thomas Munzel practices in Mainz, Germany. Mr. Munzel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Pulmonary Embolism, Heart Attack, Mesenteric Venous Thrombosis, Percutaneous Coronary Intervention (PCI), and Stent Placement.

      Experienced in Danon Disease

      Torsten Konrad
      Experienced in Danon Disease

      Torsten Konrad
      Mainz, RP, DE 

      Torsten Konrad practices in Mainz, Germany. Mr. Konrad is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Wolff-Parkinson-White Syndrome, Atrial Tachycardia, Arrhythmias, Ventricular Fibrillation, and Cardiac Ablation.

      Learn about our expert tiers
      Experienced in Danon Disease

      Gerard M. Healy
      Experienced in Danon Disease

      Gerard M. Healy
      Hoppe Seyler Str 3, 
      Tuebingen, BW, DE 

      Gerard Healy practices in Tuebingen, Germany. Mr. Healy is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Pulmonary Lymphangiectasia, Lymphomatoid Granulomatosis, Lymphangiectasis, Aneurysm Repair, and Liver Transplant.

      Experienced in Danon Disease

      Felix Kleefeld
      Experienced in Danon Disease

      Felix Kleefeld
      Berlin, BE, DE 

      Felix Kleefeld practices in Berlin, Germany. Mr. Kleefeld is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Inclusion Body Myositis, Myositis, Cytoplasmic Body Myopathy, and Polymyositis.

      Experienced in Danon Disease

      Thomas Rostock
      Experienced in Danon Disease

      Thomas Rostock
      Mainz, RP, DE 

      Thomas Rostock practices in Mainz, Germany. Mr. Rostock is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Wolff-Parkinson-White Syndrome, Atrial Tachycardia, and Cardiac Ablation.

      Experienced in Danon Disease

      Cathrin Theis
      Experienced in Danon Disease

      Cathrin Theis
      Stuttgart, BW, DE 

      Cathrin Theis practices in Stuttgart, Germany. Ms. Theis is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Wolff-Parkinson-White Syndrome, Atrial Fibrillation, Danon Disease, Heart Block, and Cardiac Ablation.

      Experienced in Danon Disease

      Frank P. Schmidt
      Experienced in Danon Disease

      Frank P. Schmidt
      Felix Hausdorff Str. 8, 
      Greifswald, MV, DE 

      Frank Schmidt practices in Greifswald, Germany. Mr. Schmidt is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Acute Respiratory Distress Syndrome (ARDS), Pediatric Myocarditis, COVID-19, Danon Disease, and Thrombectomy.

      Experienced in Danon Disease

      Hanke Mollnau
      Experienced in Danon Disease

      Hanke Mollnau
      Mainz, RP, DE 

      Hanke Mollnau practices in Mainz, Germany. Mollnau is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Their top areas of expertise are Wolff-Parkinson-White Syndrome, Atrial Fibrillation, Atrial Tachycardia, Arrhythmias, and Cardiac Ablation.

      Experienced in Danon Disease

      Werner P. Stenzel
      Experienced in Danon Disease

      Werner P. Stenzel

      Charité Universitätsmedizin

      Berlin, BE, DE 

      Werner Stenzel practices in Berlin, Germany. Mr. Stenzel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Myositis, Antisynthetase Syndrome, Polymyositis, and Dermatomyositis.

      Experienced in Danon Disease

      Hans-hilmar H. Goebel
      Experienced in Danon Disease

      Hans-hilmar H. Goebel
      Berlin, BE, DE 

      Hans-hilmar Goebel practices in Berlin, Germany. Goebel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Their top areas of expertise are Myositis, Necrotizing Myopathy (NM), Inclusion Body Myositis, and Dermatomyositis.

      Experienced in Danon Disease

      Markus Schuelke
      Experienced in Danon Disease

      Markus Schuelke
      Berlin, BE, DE 

      Markus Schuelke practices in Berlin, Germany. Mr. Schuelke is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Maternally Inherited Leigh Syndrome, Allan-Herndon-Dudley Syndrome, Leigh Syndrome, and Triple A Syndrome.

      Experienced in Danon Disease

      Arpad Von Moers
      Experienced in Danon Disease

      Arpad Von Moers
      Westend, BE, DE 

      Arpad Von Moers practices in Westend, Germany. Mr. Von Moers is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Togaviridae Disease, and Spinal Muscular Atrophy Type 3.

      Experienced in Danon Disease

      Andreas Hentschel
      Experienced in Danon Disease

      Andreas Hentschel
      Otto Hahn Str. 6b, 
      Dortmund, NW, DE 

      Andreas Hentschel practices in Dortmund, Germany. Mr. Hentschel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Primary Lateral Sclerosis, Supernumerary Nipples, Infantile Axonal Neuropathy, and Lactate Dehydrogenase Deficiency.

      Experienced in Danon Disease

      Katrin Hahn
      Experienced in Danon Disease

      Katrin Hahn
      Berlin, BE, DE 

      Katrin Hahn practices in Berlin, Germany. Ms. Hahn is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Familial Transthyretin Amyloidosis, Transthyretin Amyloidosis, Cardiac Amyloidosis, and Primary Amyloidosis.

      Experienced in Danon Disease

      Andreas H. Roos
      Experienced in Danon Disease

      Andreas H. Roos
      Otto Hahn Str. 6b, 
      Dortmund, NW, DE 

      Andreas Roos practices in Dortmund, Germany. Mr. Roos is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Myasthenic Syndrome, Cramp-Fasciculation Syndrome, Primary Lateral Sclerosis, and Limb-Girdle Muscular Dystrophy.

      Experienced in Danon Disease

      Jens Schallner
      Experienced in Danon Disease

      Jens Schallner
      Dresden, SN, DE 

      Jens Schallner practices in Dresden, Germany. Mr. Schallner is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Increased Head Circumference, Spinal Muscular Atrophy (SMA), Short Stature (Growth Disorders), and Polymicrogyria.

      Experienced in Danon Disease

      Isabel Deisenhofer
      Experienced in Danon Disease

      Isabel Deisenhofer
      Munich, BY, DE 

      Isabel Deisenhofer practices in Munich, Germany. Ms. Deisenhofer is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Atrial Fibrillation, Arrhythmias, Atrial Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

      Experienced in Danon Disease

      Karin Klingel
      Experienced in Danon Disease

      Karin Klingel
      Elfriede Aulhorn Str. 6, 
      Tuebingen, BW, DE 

      Karin Klingel practices in Tuebingen, Germany. Ms. Klingel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Myocarditis, Cardiomyopathy, Dilated Cardiomyopathy (DCM), Heart Transplant, and Kidney Transplant.

      Experienced in Danon Disease

      Corinna J. Preusse
      Experienced in Danon Disease

      Corinna J. Preusse
      Berlin, BE, DE 

      Corinna Preusse practices in Berlin, Germany. Ms. Preusse is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Myositis, Necrotizing Myopathy (NM), Polymyositis, and Inclusion Body Myositis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 23

      Last Updated: 01/09/2026

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Danon Disease doctor in Germany?

      You can find a Danon Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      Danon Disease doctor near Atlanta, GA
      Danon Disease doctor near Boston, MA
      Danon Disease doctor near Dallas, TX
      Danon Disease doctor near San Jose, CA

      How does MediFind rank Danon Disease doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Germany?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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