The 20 Best Danon Disease Doctors Near Me in Boston, MA

Find the Top Danon Disease Experts and Specialists

Last Updated: 09/19/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 14 doctor with experience in Danon Disease near Boston, MA. Of these, 12 are Experienced and 2 are Advanced.

Location
LocationClose
14 providers found
    Advanced in Danon Disease
    Advanced in Danon Disease
    Referral may be required

    Tufts Medical Center

    800 Washington St, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Barry Maron is a Cardiologist practicing medicine in Boston, Massachusetts. Dr. Maron is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Myocardial Contusion, Heart Transplant, and Cardiac Ablation. Dr. Maron is currently accepting new patients.

    Advanced in Danon Disease
    Medical Genetics | Pediatrics
    Advanced in Danon Disease
    Medical Genetics | Pediatrics
    Referral may be required

    Umass Memorial Medical Group Inc

    55 Lake Ave N, 
    Worcester, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mary-alice Abbott is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Worcester, Massachusetts. Dr. Abbott is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Danon Disease, and Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome). Dr. Abbott is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Brigham And Womens Hospital

    75 Francis St, 
    Boston, MA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Anthony Amato is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Amato is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 63 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is board certified in Neurology, 1991 and Neuromuscular Medicine, 2008. Dr. Amato is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Brigham And Women's Hospital, Heart And Vascular Center

    70 Francis Street, Carl J. And Ruth Shapiro Cardiovascular Center, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Jane Leopold is a Cardiologist practicing medicine in Boston, Massachusetts. Dr. Leopold is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Pulmonary Hypertension, Hypertension, Heart Attack, Angioplasty, and Percutaneous Coronary Intervention (PCI). Dr. Leopold is board certified in Cardiovascular Disease and Interventional Cardiology. Dr. Leopold is currently accepting new patients.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    BIDMC Nephrology Administration

    171 Pilgrim Road, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Manish Maski is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Maski is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Fabry Disease, Autosomal Dominant Polycystic Kidney Disease, Polycystic Kidney Disease, and Danon Disease. Dr. Maski is board certified in American Board Of Internal Medicine. Dr. Maski is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required

    Brigham And Women's Hospital, Heart And Vascular Center

    70 Francis Street, Carl J. And Ruth Shapiro Cardiovascular Center, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    William Sauer is a Cardiologist practicing medicine in Boston, Massachusetts. Dr. Sauer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Arrhythmias, Ventricular Tachycardia, Sarcoidosis, Cardiac Ablation, and Pacemaker Implantation. Dr. Sauer is board certified in Clinical Cardiac Electrophysiology and Cardiovascular Disease. Dr. Sauer is currently accepting new patients.

    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Referral may be required

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Sacharow is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 158 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

    Experienced in Danon Disease
    Medical Genetics
    Experienced in Danon Disease
    Medical Genetics
    Referral may be required

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Melinda Peters is a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Peters is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3, Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome), and Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome).

    Experienced in Danon Disease
    Medical Genetics
    Experienced in Danon Disease
    Medical Genetics
    Referral may be required

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Olaf Bodamer is a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Bodamer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Kabuki Syndrome, Classic Galactosemia, Niemann-Pick Disease, and Mucopolysaccharidoses (MPS). Dr. Bodamer is currently accepting new patients.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Beth Israel Deaconess Medical Center

    330 Brookline Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Raymond Chan is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Chan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Cardiac Arrest, and Heart Failure.

    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Referral may be required

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    William Brucker is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Brucker is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Cholesteryl Ester Storage Disease, Lysosomal Acid Lipase Deficiency, Wolman Disease, and Fetal Thalidomide Syndrome.

    Experienced in Danon Disease
    Experienced in Danon Disease

    On Call Urgent Care LLC

    6 Hatfield St, 
    Northampton, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Katherine Atkinson is a primary care provider, practicing in Family Medicine in Northampton, Massachusetts. Dr. Atkinson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 68 other conditions, according to our data. Her clinical expertise encompasses Asthma, COVID-19, Multisystem Inflammatory Syndrome in Children (MIS-C), Opioid Use Disorder, and Intrauterine Device Insertion. Dr. Atkinson is currently accepting new patients.

    Experienced in Danon Disease
    Medical Genetics
    Experienced in Danon Disease
    Medical Genetics
    Referral may be required

    Children's Hospital Pediatric Associates, Inc

    14 Prospect St, 
    Milford, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Anatalia Labilloy is a Medical Genetics provider practicing medicine in Milford, Massachusetts. Dr. Labilloy is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Fabry Disease, Hypotonia, Mitochondrial Trifunctional Protein Deficiency, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome). Dr. Labilloy is currently accepting new patients.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Stephanie Eisenstat is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Eisenstat is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Type 2 Diabetes (T2D), Vein of Galen Aneurysm, Wyburn-Mason Syndrome, and Arteriovenous Malformation. Dr. Eisenstat is currently accepting new patients.

    Showing 1-14 of 14

    Last Updated: 09/19/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors near Boston, MA?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

    More Danon Disease Doctors by city