The 20 Best Danon Disease Doctors Near Me in Boston, MA

Find the Top Danon Disease Experts and Specialists

The 20 Best Danon Disease Doctors near Boston, MA

Last Updated: 02/22/2026

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MediFind found 24 doctor with experience in Danon Disease near Boston, MA. Of these, 22 are Experienced and 2 are Advanced.

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24 providers found
    Christine E. Seidman
    Advanced in Danon Disease
    Advanced in Danon Disease

    Brigham And Women's Hospital, Heart And Vascular Center

    70 Francis Street, Carl J. And Ruth Shapiro Cardiovascular Center, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English

    Dr. Christine E. Seidman is the director of the Cardiovascular Genetics Program and a cardiovascular medicine specialist at Brigham and Women’s Hospital (BWH). In addition, she is the Thomas W. Smith Professor of Medicine at Harvard Medical School.She received her medical degree from The George Washington School of Medicine and Health Sciences. She completed an internal medicine residency at The Johns Hopkins Hospital and a cardiology fellowship at Massachusetts General Hospital. Dr. Seidman is board certified in internal medicine and cardiovascular disease. Her clinical interests include cardiovascular medicine and genetics.Dr. Seidman also leads the Seidman Laboratory to elucidate genetic causes for heart disease and other disorders. Notable achievements include the discovery of the first genetic cause of congenital heart malformations. Dr. Seidman promotes collaboration between the Laboratory and the BWH Cardiovascular Genetics Center to translate research discoveries into better diagnostics and improved management strategies. She has authored over 300 peer-reviewed articles and received research funding from the Howard Hughes Medical Institute and National Institutes of Health. Dr. Seidman is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Heart Transplant, and Heart Bypass Surgery.

    Jane A. Leopold
    Experienced in Danon Disease
    Experienced in Danon Disease

    Brigham And Women's Hospital, Heart And Vascular Center

    70 Francis Street, Carl J. And Ruth Shapiro Cardiovascular Center, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English

    Dr. Jane A. Leopold is the director of the Women's Interventional Cardiology Health Initiative at Brigham and Women’s Hospital (BWH). An interventional cardiovascular medicine specialist, she is also an associate professor of medicine at Harvard Medical School (HMS).She received her medical degree at Boston University School of Medicine. She completed a residency in internal medicine at Beth Israel Deaconess Medical Center and two fellowships at Boston Medical Center—cardiovascular disease and interventional cardiology. Dr. Leopold is board certified in cardiovascular disease and interventional cardiology.Dr. Leopold developed the Women’s Interventional Cardiology Health Initiative at BWH, which uses advanced invasive diagnostic imaging and functional assessment devices to diagnose chest pain syndromes in women. The author of over 100 peer-reviewed publications, Dr. Leopold’s research interests include preclinical and clinical studies in pulmonary arterial hypertension and she is the principal investigator of a National Institutes of Health funded center at BWH to perform deep phenotyping in patients with Groups 1-5 pulmonary hypertension. She also studies mechanisms by which aldosterone influences vascular structure and function and cardiovascular disease in women. Her research has received support from the National Institutes of Health and the American Heart Association. Dr. Leopold is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pulmonary Hypertension, Hypertension, Heart Attack, Angioplasty, and Percutaneous Coronary Intervention (PCI).

    Barry Maron
    Advanced in Danon Disease
    Cardiology
    Advanced in Danon Disease
    Cardiology

    Tufts Medical Center

    800 Washington St, 
    Boston, MA 
     (0.5 miles away)
    Languages Spoken:
    English

    Barry Maron is a Cardiologist in Boston, Massachusetts. Dr. Maron is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Myocardial Contusion, Heart Transplant, and Cardiac Ablation.

    Learn about our expert tiers
    Experienced in Danon Disease
    Experienced in Danon Disease

    Boston Childrens Heart Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Wayne Tworetzky is a Pediatrics provider in Boston, Massachusetts. Dr. Tworetzky is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Ebstein's Anomaly, Pulmonary Atresia, and Congenital Heart Disease (CHD).

    Experienced in Danon Disease
    Experienced in Danon Disease

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Amy Kritzer is a Pediatrics provider in Boston, Massachusetts. Dr. Kritzer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Maternal Hyperphenylalaninemia, Phenylketonuria (PKU), Biotinidase Deficiency, and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A).

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Rebecca Beroukhim is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Beroukhim is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Ebstein's Anomaly, Pulmonary Atresia, Hypoplastic Left Heart Syndrome (HLHS), Myringotomy, and Heart Transplant.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Jami Levine is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Levine is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Marfan Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Congenital Heart Disease (CHD).

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Kevin Daly is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Daly is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Mitral Stenosis, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Restrictive Cardiomyopathy (RCM).

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Kevin Friedman is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Coronary Artery Aneurysm, Kawasaki Disease, Multisystem Inflammatory Syndrome in Children (MIS-C), Embolectomy, and Heart Transplant.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Daniel Castellanos is a Pediatrics provider in Boston, Massachusetts. Dr. Castellanos is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Coronary Artery Aneurysm, Total Anomalous Pulmonary Venous Return, Aberrant Subclavian Artery, and Pulmonary Artery Agenesis.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    David Schidlow is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Schidlow is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heterotaxy Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Total Anomalous Pulmonary Venous Return, Transposition of the Great Arteries, and Septoplasty.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Kristin Bonello is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Bonello has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Arachnodactyly, Marfan Syndrome, Congenital Contractural Arachnodactyly, and CHARGE Syndrome.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Sarah Pickard is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Pickard is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Coarctation of the Aorta, Subvalvular Aortic Stenosis, Congenital Heart Disease (CHD), and Aortic Valve Stenosis.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Safwat Aly is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Aly is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Ebstein's Anomaly, Coarctation of the Aorta, Anomalous Left Coronary Artery from the Pulmonary Artery, and Patent Ductus Arteriosus.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Michael Day is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Day is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Murmurs, Heart Block, Ventricular Septal Defects, Brugada Syndrome, and Myringotomy.

    Anthony Amato
    Experienced in Danon Disease
    Experienced in Danon Disease

    Hale Building For Transformative Medicine On BWH Main Campus

    60 Fenwood Rd, 
    Boston, MA 
     (3.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Inclusion Body Myositis, Polymyositis, Myositis, Thymectomy, and Gastrostomy.

    William H. Sauer
    Experienced in Danon Disease
    Experienced in Danon Disease

    Brigham And Women's Faulkner Hospital, Cardiology Clinic

    1153 Centre Street, Suite 4G, 
    Jamaica Plain, MA 
     (5.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    William Sauer is a Cardiologist in Jamaica Plain, Massachusetts. Dr. Sauer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Ventricular Tachycardia, Arrhythmias, Atrial Fibrillation, Cardiac Ablation, and Pacemaker Implantation.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
     (0.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Stephanie Eisenstat is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Eisenstat is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Type 2 Diabetes (T2D), Wyburn-Mason Syndrome, Vein of Galen Aneurysm, and Arteriovenous Malformation.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Beth Israel Deaconess Medical Center

    330 Brookline Ave, 
    Boston, MA 
     (2.7 miles away)
    Languages Spoken:
    English

    Raymond Chan is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Chan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Cardiac Arrest, and Danon Disease.

    Experienced in Danon Disease
    Medical Genetics | Pediatrics
    Experienced in Danon Disease
    Medical Genetics | Pediatrics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

    Showing 1-20 of 24

    Last Updated: 02/22/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors near Boston, MA?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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