The 20 Best Danon Disease Doctors Near Me in Philadelphia, PA

Find the Top Danon Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 18 doctor with experience in Danon Disease near Philadelphia, PA. Of these, 13 are Experienced and 5 are Advanced.

Location
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18 providers found
    Experienced in Danon Disease
    Experienced in Danon Disease

    St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
     (4.3 miles away)
    Languages Spoken:
    English

    . Dr. Narumanchi is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Urea Cycle Disorders (UCD), Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, and Dihydropteridine Reductase Deficiency. Dr. Narumanchi is board certified in American Board Of Medical Genetics And Genomics.

    Advanced in Danon Disease
    Neurology
    Advanced in Danon Disease
    Neurology

    Penn Neuroscience Center - Neurology

    3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
    Philadelphia, PA 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Colin Quinn is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Quinn is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Inclusion Body Myositis, Progressive Hemifacial Atrophy, and Gastrostomy. Dr. Quinn is board certified in Neuromuscular Medicine, 2012 and Neurology, 2011. Dr. Quinn is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Penn Heart And Vascular Center

    3400 Civic Center Boulevard, East Pavilion, 2nd Floor, 
    Philadelphia, PA 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sharlene Day is a Cardiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Day is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Orchiectomy, and Heart Transplant. Dr. Day is board certified in Cardiovascular Disease, 2012. Dr. Day is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Danon Disease
    Experienced in Danon Disease

    Perelman Center For Advanced Medicine South Pavilion, 2nd Floor

    3400 Civic Center Boulevard, 
    Philadelphia, PA 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Chafic Karam is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Karam is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Transthyretin Amyloidosis, Chronic Inflammatory Demyelinating Polyneuropathy, Myasthenia Gravis, Tissue Biopsy, and Laminectomy. Dr. Karam is currently accepting new patients.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Office

    3401 Civic Center Blvd, 
    Philadelphia, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Carol Wittlieb is a Pediatric Cardiologist practicing medicine in Philadelphia, Pennsylvania. Dr. Wittlieb is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Cardiomyopathy, Becker Muscular Dystrophy, Hypoplastic Left Heart Syndrome (HLHS), and Heart Transplant.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Children's Hospital Of Philadelphia

    3401 Civic Center Blvd, 
    Philadelphia,, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Amanda Shillingford is a Pediatric Cardiologist practicing medicine in Philadelphia,, Pennsylvania. Dr. Shillingford is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Heterotaxy Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Coarctation of the Aorta.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Office

    3401 Civic Center Blvd, 
    Philadelphia,, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Jonathan Edelson is a Pediatric Cardiologist practicing medicine in Philadelphia,, Pennsylvania. Dr. Edelson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Heart Failure, Cardiomyopathy, Heart Transplant, and Gastrostomy.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Office

    3401 Civic Center Blvd, 
    Philadelphia,, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Kimberly Lin is a Pediatric Cardiologist practicing medicine in Philadelphia,, Pennsylvania. Dr. Lin is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Pediatric Myocarditis, Congenital Heart Disease (CHD), Cardiomyopathy, Heart Transplant, and Spinal Fusion.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Office

    3401 Civic Center Blvd, 
    Philadelphia,, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Laura Rosa is a Pediatric Cardiologist practicing medicine in Philadelphia,, Pennsylvania. Dr. Rosa is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Dextrocardia with Situs Inversus, and Situs Inversus.

    Experienced in Danon Disease
    Neurology
    Experienced in Danon Disease
    Neurology

    Temple University Hospital

    3401 N Broad St, 
    Philadelphia, PA 
     (3.7 miles away)
    Languages Spoken:
    English

    Jin Luo is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Luo is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Brown-Sequard Syndrome, Gaucher Disease, Gaucher Disease Type 3, and Gaucher Disease Type 2.

    Advanced in Danon Disease
    Internal Medicine
    Advanced in Danon Disease
    Internal Medicine

    PA Hospital Of The University Of PA Health System

    800 Spruce St, 
    Philadelphia, PA 
     (0.7 miles away)
    Languages Spoken:
    English

    Tarek Khedro is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Khedro is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Opisthotonos, Cardiomyopathy, and COVID-19.

    Advanced in Danon Disease
    Medical Genetics
    Advanced in Danon Disease
    Medical Genetics

    Penn Translational Medicine And Human Genetics

    3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
    Philadelphia, PA 
     (1.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Staci Kallish is a Medical Genetics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Kallish is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 103 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, Fabry Disease, and Neurofibromatosis. Dr. Kallish is board certified in Clinical Genetics And Genomics, 2022 and Med Genetics/Clinical Biochem (AMA)Pediatrics, 2008.

    Advanced in Danon Disease
    Medical Genetics | Pediatrics | Physiatry
    Advanced in Danon Disease
    Medical Genetics | Pediatrics | Physiatry

    Childrens Health Care Associates Inc

    3401 Civic Ctr Blvd, 
    Philadelphia, PA 
     (1.5 miles away)
    Languages Spoken:
    English

    Can Ficicioglu is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Ficicioglu is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Classic Galactosemia, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Urea Cycle Disorders (UCD), and Homocystinuria.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Penn Personalized Care - Rosemary Kearney, MD

    800 Walnut Street, 17th Floor, 
    Philadelphia, PA 
     (0.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Rosemary Kearney is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Kearney is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Enlarged Prostate (BPH), Chronic Cough, Danon Disease, and Pompe Disease. Dr. Kearney is board certified in Internal Medicine, 1993.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Children's Hospital Of Philadelphia

    3401 Civic Center Blvd, 
    Philadelphia, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Rebecca Ahrens is a Pediatrics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Ahrens is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Multiple Sulfatase Deficiency, Cardiomyopathic Lentiginosis, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, and RASopathies.

    Experienced in Danon Disease
    Public Health and Preventive Medicine
    Experienced in Danon Disease
    Public Health and Preventive Medicine

    Temple University Hospital

    3401 N Broad St Fl Acc, 
    Philadelphia, PA 
     (4.2 miles away)
    Languages Spoken:
    English

    Michael Jan is a primary care provider, practicing in Public Health and Preventive Medicine in Philadelphia, Pennsylvania. Dr. Jan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Heart Attack, Angioplasty, and Percutaneous Coronary Intervention (PCI).

    Advanced in Danon Disease
    Family Medicine
    Advanced in Danon Disease
    Family Medicine

    Virtua Women's Primary Care And Wellness Center

    401 Young Ave Ste 380, 
    Moorestown, NJ 
     (13.3 miles away)
    Languages Spoken:
    English

    Sapna Jain is a primary care provider, practicing in Family Medicine in Moorestown, New Jersey. Dr. Jain is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Danon Disease, Familial Hypertension, and Hypertension.

    Experienced in Danon Disease
    Internal Medicine
    Experienced in Danon Disease
    Internal Medicine

    Office

    401 Young Ave Ste 380A, 
    Moorestown, NJ 
     (12.0 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Liesl Miles is a primary care provider, practicing in Internal Medicine in Moorestown, New Jersey. She has been practicing medicine for over 17 years. Dr. Miles is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Adrenal Cancer, Adrenocortical Carcinoma, Hereditary Neuroblastoma, and Neuroblastoma.

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    Last Updated: 04/28/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor near Philadelphia, PA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor near Philadelphia, PA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors near Philadelphia, PA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors near Philadelphia, PA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor near Philadelphia, PA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor near Philadelphia, PA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors near Philadelphia, PA?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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