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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Danon Disease near Chicago, IL. Of these, 14 are Experienced and 3 are Advanced.

    Location
    LocationClose
    17 providers found
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      225 E Chicago Ave # 59, 
      Chicago, IL 
       (1.0 miles away)
      Languages Spoken:
      English

      Carlos Prada is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Prada is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are RASopathies, Smith-Kingsmore Syndrome, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1).

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Joshua Baker is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Baker is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Ornithine Transcarbamylase Deficiency, Urea Cycle Disorders (UCD), Acid Sphingomyelinase Deficiency (ASMD), and Propionic Acidemia.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Joel Charrow is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Charrow is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Gaucher Disease Type 1, Gaucher Disease, Achondroplasia, Isovaleric Acidemia, and Splenectomy.

      Learn about our expert tiers
      Experienced in Danon Disease
      Pediatric Neurology | Neurology
      Experienced in Danon Disease
      Pediatric Neurology | Neurology
      225 E Chicago Ave # 51, 
      Chicago, IL 
       (1.0 miles away)
      Languages Spoken:
      English

      Nancy Kuntz is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Kuntz is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Thymectomy.

      Experienced in Danon Disease
      Pediatric Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Michael Carr is a Pediatric Cardiologist in Chicago, Illinois. Dr. Carr is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Double Aortic Arch, Vascular Ring, Cardiac Diverticulum, and Congenital Heart Disease (CHD).

      Experienced in Danon Disease
      Pediatric Neurology | Neurology
      Experienced in Danon Disease
      Pediatric Neurology | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Vamshi Rao is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Rao is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 1, and Thymectomy.

      Experienced in Danon Disease
      Pediatric Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago,, IL 
       (1.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Shivani Patel is a Pediatric Cardiologist in Chicago,, Illinois. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are X-Linked Cardiac Valvular Dysplasia, Cardiac Diverticulum, Ventricular Septal Defects, and Pulmonary Artery Agenesis.

      Experienced in Danon Disease
      Experienced in Danon Disease
      675 N St Clair St Ste 19-100, Galter Pavilion, 
      Chicago, IL 
       (1.3 miles away)
      Experience:
      36+ years
      Languages Spoken:
      English
      Offers Telehealth

      Elizabeth Mcnally is a Cardiologist in Chicago, Illinois. Dr. Mcnally has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Cardiomyopathy, Duchenne Muscular Dystrophy, Dilated Cardiomyopathy (DCM), Hypertrophic Cardiomyopathy (HCM), and Heart Transplant.

      Experienced in Danon Disease
      Neurology
      Experienced in Danon Disease
      Neurology

      Rush University Medical Group

      1700 W Van Buren St, 
      Chicago, IL 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rabia Malik is a Neurologist in Chicago, Illinois. Dr. Malik is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Malik is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Rush University Medical Group

      1653 W Congress Pkwy, 
      Chicago, IL 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ryan Jacobson is a Neurologist in Chicago, Illinois. Dr. Jacobson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Primary Lateral Sclerosis, and Gastrostomy. Dr. Jacobson is currently accepting new patients in some locations.

      Experienced in Danon Disease
      Experienced in Danon Disease

      The Board Of Trustees Of The University Of Illinois

      912 S Wood St, 
      Chicago, IL 
       (2.2 miles away)
      Languages Spoken:
      English

      Charles Abrams is a Neurologist in Chicago, Illinois. Dr. Abrams is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Monomelic Amyotrophy, Limb-Girdle Muscular Dystrophy Type 2C, Limb-Girdle Muscular Dystrophy Type 2A, and Dystrophinopathy.

      Experienced in Danon Disease
      Neurology
      Experienced in Danon Disease
      Neurology

      Office

      912 S Wood St Rm 855N, 
      Chicago, IL 
       (2.9 miles away)
      Languages Spoken:
      English

      Qin Jiang is a Neurologist in Chicago, Illinois. Dr. Jiang is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Dystrophinopathy, Limb-Girdle Muscular Dystrophy Type 1B, Limb-Girdle Muscular Dystrophy Type 2I, and Limb-Girdle Muscular Dystrophy.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      2300 Childrens Plaza, 
      Chicago, IL 
       (3.0 miles away)
      Languages Spoken:
      English

      Barbara Burton is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Burton is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Phenylketonuria (PKU), Mucopolysaccharidoses (MPS), and Cholesteryl Ester Storage Disease.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
       (10.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Monica Edwards is a primary care provider, practicing in Internal Medicine in Maywood, Illinois. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Lung Metastases, End-Stage Renal Disease (ESRD), Type 2 Diabetes (T2D), Pancreatectomy, and Bone Marrow Aspiration. Dr. Edwards is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      University Of Chicago Medical Center

      5841 S Maryland Ave, 
      Chicago, IL 
       (6.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Helene Rubeiz is a Neurologist in Chicago, Illinois. Dr. Rubeiz is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Acute Flaccid Myelitis (AFM), Headache, Peripheral Neuropathy, and Migraine.

      Experienced in Danon Disease
      Experienced in Danon Disease

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
       (6.7 miles away)
      Languages Spoken:
      English, Filipino
      Accepting New Patients
      Offers Telehealth

      Betty Soliven is a Neurologist in Chicago, Illinois. Dr. Soliven is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Myasthenia Gravis, Spinal Muscular Atrophy (SMA), Chronic Inflammatory Demyelinating Polyneuropathy, Thymectomy, and Gastrostomy. Dr. Soliven is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Loyola Outpatient Center

      2160 S First Ave, 
      Maywood, IL 
       (10.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Matthew Mccoyd is a Neurologist in Maywood, Illinois. Dr. Mccoyd is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), Spasticity, and Myasthenia Gravis. Dr. Mccoyd is currently accepting new patients.

      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor near Chicago, IL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor near Chicago, IL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors near Chicago, IL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors near Chicago, IL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor near Chicago, IL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor near Chicago, IL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors near Chicago, IL?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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