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    Last Updated: 10/30/2025

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    MediFind found 27 doctor with experience in Danon Disease near New York, NY. Of these, 25 are Experienced and 2 are Distinguished.

    Location
    LocationClose
    27 providers found
      Experienced in Danon Disease
      Experienced in Danon Disease

      New York University

      560 1st Ave, 
      New York, NY 
       (2.6 miles away)
      Languages Spoken:
      English

      Muhamed Saric is a Cardiologist in New York, New York. Dr. Saric is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Heart Tumor, Aortic Regurgitation, Aortic Valve Replacement, and Thrombectomy.

      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology

      New York University

      560 1st Ave, 
      New York, NY 
       (2.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Anthony Aizer is a Cardiac Electrophysiologist and a Cardiologist in New York, New York. Dr. Aizer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology

      New York University

      550 1st Ave, 
      New York, NY 
       (2.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Larry Chinitz is a Cardiac Electrophysiologist and a Cardiologist in New York, New York. Dr. Chinitz is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

      Learn about our expert tiers
      Distinguished in Danon Disease
      Hematology Oncology
      Distinguished in Danon Disease
      Hematology Oncology
      1275 York Ave, Department Of Medicine, 
      New York, NY 
       (4.4 miles away)
      Languages Spoken:
      English

      Gaurav Shah is a Hematologist Oncology provider in New York, New York. Dr. Shah is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Leukocyte Adhesion Deficiency Type 1, Acute Promyelocytic Leukemia, and Leukemia.

      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      1111 Amsterdam Ave, 
      New York, NY 
       (6.8 miles away)
      Languages Spoken:
      English

      Adaya Weissler-Snir is a Cardiac Electrophysiologist and a Cardiologist in New York, New York. Dr. Weissler-Snir is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Sengers Syndrome, Pacemaker Implantation, and Transcatheter Aortic Valve Replacement (TAVR).

      Distinguished in Danon Disease
      Medical Genetics | Pediatrics
      Distinguished in Danon Disease
      Medical Genetics | Pediatrics

      Icahn School Of Medicine At Mount Sinai

      1428 Madison Ave, 
      New York, NY 
       (6.0 miles away)
      Languages Spoken:
      English

      Jaya Ganesh is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Ganesh is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Pompe Disease, and Fabry Disease.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      New York University

      111 Broadway, 
      New York, NY 
       (0.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Berrin Monteleone is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Monteleone is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are 1p36 Deletion Syndrome, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Gaucher Disease Type 3.

      Experienced in Danon Disease
      Cardiology
      Experienced in Danon Disease
      Cardiology
      First Avenue At 16 St, 
      New York, NY 
       (1.9 miles away)
      Languages Spoken:
      English

      Meir Shinnar is a Cardiologist in New York, New York. Dr. Shinnar is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Failure, Pulmonary Edema, Heart Failure with Preserved Ejection Fraction (HFpEF), and Danon Disease.

      Experienced in Danon Disease
      Experienced in Danon Disease
      403 E 34th St, 2nd Fl., 
      New York, NY 
       (2.7 miles away)
      Languages Spoken:
      English

      Gregory Pastores is a Neurologist in New York, New York. Dr. Pastores is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Gaucher Disease, Farber Lipogranulomatosis, Fabry Disease, and Trimethylaminuria.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Trustees Of Columbia University In The City Of New York

      51 W 51st St, Fl 3 Suite 360, 
      New York, NY 
       (3.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Michio Hirano is a Neurologist in New York, New York. Dr. Hirano is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Mitochondrial Neurogastrointestinal Encephalopathy Disease, MELAS Syndrome, Progressive External Ophthalmoplegia, and X-Linked Dominant Scapuloperoneal Myopathy.

      Experienced in Danon Disease
      Experienced in Danon Disease

      New York University

      355 W 52nd St, 
      New York, NY 
       (3.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Adam Skolnick is a Cardiologist in New York, New York. Dr. Skolnick is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Familial Hypertrophic Cardiomyopathy, Arrhythmias, Subvalvular Aortic Stenosis, and Thrombectomy.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Icahn School Of Medicine At Mount Sinai

      1000 10th Ave, 
      New York, NY 
       (4.1 miles away)
      Languages Spoken:
      English

      Daniel Macgowan is a Neurologist in New York, New York. Dr. Macgowan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3.

      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Weill Medical College Of Cornell

      520 E 70th St, 
      New York, NY 
       (4.5 miles away)
      Languages Spoken:
      English

      Jennifer Mcleod is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in New York, New York. Dr. Mcleod is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Danon Disease and Heart Failure.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology

      Icahn School Of Medicine At Mount Sinai

      5 E 98th St, 
      New York, NY 
       (5.9 miles away)
      Languages Spoken:
      English

      Jennifer Cohen is a Pediatric Cardiologist and a Cardiologist in New York, New York. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pulmonary Atresia with Intact Ventricular Septum, Right Ventricle Hypoplasia, Double Discordia, and Tetralogy of Fallot.

      Experienced in Danon Disease
      Medical Genetics
      Experienced in Danon Disease
      Medical Genetics

      Icahn School Of Medicine At Mount Sinai

      1428 Madison Ave, 
      New York, NY 
       (6.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ayuko Iverson is a Medical Genetics provider in New York, New York. Dr. Iverson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Li-Fraumeni Syndrome, BRCA Positive Breast Cancer, HER2 Negative Breast Cancer, and Chromosome 9p Deletion.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Icahn School Of Medicine At Mount Sinai

      1 Gustave Levy Place, Mount Sinai Emergency Room, 
      New York, NY 
       (6.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Susan Shin is a Neurologist in New York, New York. Dr. Shin is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Primary Lateral Sclerosis, Guillain-Barre Syndrome, Hereditary Sensory and Autonomic Neuropathy Type 2, and Infantile Axonal Neuropathy.

      Experienced in Danon Disease
      Cardiology | Nuclear Medicine
      Experienced in Danon Disease
      Cardiology | Nuclear Medicine

      Icahn School Of Medicine At Mount Sinai

      1 Gustave L Levy Pl, 
      New York, NY 
       (6.1 miles away)
      Languages Spoken:
      English

      Newsha Ghodsi is a Cardiologist and a Nuclear Medicine provider in New York, New York. Dr. Ghodsi is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Vasculitis, High Cholesterol, Thoracic Aortic Aneurysm, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Icahn School Of Medicine At Mount Sinai

      1 Gustave L Levy Pl, 
      New York, NY 
       (6.1 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Marjorie Gayanilo is a Pediatric Cardiologist and a Cardiologist in New York, New York. Dr. Gayanilo is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Right Ventricle Hypoplasia, Pulmonary Atresia with Intact Ventricular Septum, Ventricular Septal Defects, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS). Dr. Gayanilo is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology

      Icahn School Of Medicine At Mount Sinai

      1 Gustave L Levy Pl, 
      New York, NY 
       (6.1 miles away)
      Languages Spoken:
      English

      Nadine Choueiter is a Pediatric Cardiologist and a Pediatrics provider in New York, New York. Dr. Choueiter is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Kawasaki Disease, Coronary Artery Aneurysm, Multisystem Inflammatory Syndrome in Children (MIS-C), and Tetralogy of Fallot.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Trustees Of Columbia University In The City Of New York

      161 Fort Washington Ave, 
      New York, NY 
       (9.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Alejandro Iglesias is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Iglesias is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypotonia, Microcephaly, Achalasia Microcephaly Syndrome, and Cortical Dysplasia.

      Showing 1-20 of 27

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor near New York, NY?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor near New York, NY?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors near New York, NY?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors near New York, NY?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor near New York, NY?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor near New York, NY?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors near New York, NY?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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