The 20 Best Danon Disease Doctors in France

Find the Top Danon Disease Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 24 doctor with experience in Danon Disease near France. Of these, 24 are Experienced.

Location
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24 providers found
    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Angers, FR 

    Philippe Codron practices practicing medicine in Angers, France. Mr. Codron is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Hypomelanosis of Ito, and Danon Disease.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Nice, FR 

    Coline Savy practices practicing medicine in Nice, France. Ms. Savy is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her clinical expertise encompasses Chediak-Higashi Syndrome, Danon Disease, Myelodysplastic Syndrome (MDS), and Acute Myeloid Leukemia (AML).

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Tours, FR 

    Simon Poignant practices practicing medicine in Tours, France. Mr. Poignant is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His clinical expertise encompasses Danon Disease, Nephrogenic Diabetes Insipidus, Empyema, Streptococcal Group A Infection, and Lung Transplant.

    Learn about our expert tiers
    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Tours, FR 

    Thierry Bourguignon practices practicing medicine in Tours, France. Mr. Bourguignon is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Aortic Valve Stenosis, Infective Endocarditis, Endocarditis, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Corbeil-essonnes, FR 

    Laura Soumare-Brulle practices practicing medicine in Corbeil-essonnes, France. Ms. Soumare-Brulle is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her clinical expertise encompasses Danon Disease, Non-Small Cell Lung Cancer (NSCLC), Lung Cancer, and Hepatoblastoma.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Corbeil-essonnes, FR 

    Quentin Miagoux practices practicing medicine in Corbeil-essonnes, France. Mr. Miagoux is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His clinical expertise encompasses Glycogen Storage Disease Type 3, Danon Disease, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Corbeil-essonnes, FR 

    Benjamin Marande practices practicing medicine in Corbeil-essonnes, France. Mr. Marande is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His clinical expertise encompasses Uveal Melanoma, Metastatic Uveal Melanoma, Danon Disease, and Melanoma.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Angers, FR 

    Franck Letournel practices practicing medicine in Angers, France. Mr. Letournel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Mitochondrial Complex 1 Deficiency, MELAS Syndrome, Mcleod Neuroacanthocytosis Syndrome, and Papular Mucinosis.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    INSERM U955, University Paris Est Créteil, 
    Creteil, FR 

    Damien Sternberg practices practicing medicine in Creteil, France. Mr. Sternberg is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Congenital Myasthenic Syndrome, Familial Periodic Paralysis, Hypotonia, and Myotonia Congenita.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Versailles, FR 

    Veronique Pautot practices practicing medicine in Versailles, France. Ms. Pautot is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her clinical expertise encompasses Danon Disease and Endocardial Fibroelastosis.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Corbeil-essonnes, FR 

    Karine Triboult-Giraud practices practicing medicine in Corbeil-essonnes, France. Ms. Triboult-Giraud is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her clinical expertise encompasses Thyrotoxic Periodic Paralysis, Lesch-Nyhan Syndrome, Glycogen Storage Disease Type 3, and Beta-Propeller Protein-Associated Neurodegeneration.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Paris, FR 

    Philippe Charron practices practicing medicine in Paris, France. Mr. Charron is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Dilated Cardiomyopathy (DCM), Hypertrophic Cardiomyopathy (HCM), Heart Transplant, and Cardiac Ablation.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Nice, FR 

    Maxence Bourgoin practices practicing medicine in Nice, France. Mr. Bourgoin is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His clinical expertise encompasses Chediak-Higashi Syndrome, Danon Disease, and Myelodysplastic Syndrome (MDS).

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Tours, FR 

    Fabien Espitalier practices practicing medicine in Tours, France. Mr. Espitalier is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His clinical expertise encompasses Hospital-Acquired Pneumonia, Acute Pain, Danon Disease, and Hysterectomy.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    1 Rue De L'Internationale, BP 59, 
    Evry, FR 

    Xavier Nissan practices practicing medicine in Evry, France. Mr. Nissan is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Glycogen Storage Disease Type 3, Progeria, Limb-Girdle Muscular Dystrophy, and Pigmented Purpuric Dermatosis.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Gif-sur-yvette, FR 

    Anne-marie Tassin practices practicing medicine in Gif-sur-yvette, France. Ms. Tassin is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her clinical expertise encompasses Danon Disease, Endocardial Fibroelastosis, Drug Induced Dyskinesia, and Situs Inversus.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Nice, FR 

    Thomas Cluzeau practices practicing medicine in Nice, France. Mr. Cluzeau is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML), Leukemia, Bone Marrow Transplant, and Splenectomy.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Nice, FR 

    Patrick Auberger practices practicing medicine in Nice, France. Mr. Auberger is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Acute Myeloid Leukemia (AML), Leukemia, Myelodysplastic Syndrome (MDS), and Chronic Myelogenous Leukemia (CML).

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    AP HP, Centre De Référence De Pathologie Neuromusculaire Paris Est, 
    Paris, FR 

    Karim Wahbi practices practicing medicine in Paris, France. Mr. Wahbi is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, Spinal Fusion, and Heart Transplant.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Paris, FR 

    Pascale Richard practices practicing medicine in Paris, France. Ms. Richard is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Rigid Spine Syndrome, Collagen VI-Related Myopathy, and Heart Transplant.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 24

    Last Updated: 11/08/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor in France?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor in France?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Danon Disease doctor in France?

    You can find a Danon Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Danon Disease doctors in France?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors in France?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor in France?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor in France?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors in France?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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