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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Danon Disease near France. Of these, 17 are Experienced.

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    17 providers found
      Experienced in Danon Disease

      Philippe Codron
      Experienced in Danon Disease

      Philippe Codron
      Angers, FR 

      Philippe Codron practices in Angers, France. Mr. Codron is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Danon Disease, and Endocardial Fibroelastosis.

      Experienced in Danon Disease

      Coline Savy
      Experienced in Danon Disease

      Coline Savy
      Nice, FR 

      Coline Savy practices in Nice, France. Ms. Savy is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Chediak-Higashi Syndrome, Danon Disease, Myelodysplastic Syndrome (MDS), and Acute Myeloid Leukemia (AML).

      Experienced in Danon Disease

      Simon Poignant
      Experienced in Danon Disease

      Simon Poignant
      Tours, FR 

      Simon Poignant practices in Tours, France. Mr. Poignant is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Nephrogenic Diabetes Insipidus, Empyema, Streptococcal Group A Infection, and Lung Transplant.

      Learn about our expert tiers
      Experienced in Danon Disease

      Anna C. Nascimbeni
      Experienced in Danon Disease

      Anna C. Nascimbeni
      Paris, FR 

      Anna Nascimbeni practices in Paris, France. Ms. Nascimbeni is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pompe Disease, Phosphoglycerate Mutase Deficiency, Glutaric Acidemia Type 2, and Limb-Girdle Muscular Dystrophy.

      Experienced in Danon Disease

      Franck Letournel
      Experienced in Danon Disease

      Franck Letournel
      Angers, FR 

      Franck Letournel practices in Angers, France. Mr. Letournel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Mitochondrial Complex 1 Deficiency, MELAS Syndrome, Mcleod Neuroacanthocytosis Syndrome, and Abetalipoproteinemia.

      Experienced in Danon Disease

      Damien Sternberg
      Experienced in Danon Disease

      Damien Sternberg
      Paris, FR 

      Damien Sternberg practices in Paris, France. Mr. Sternberg is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Familial Periodic Paralysis, Congenital Myasthenic Syndrome, Myotonia Congenita, and Amyotonia Congenita.

      Experienced in Danon Disease

      Philippe H. Charron
      Experienced in Danon Disease

      Philippe H. Charron
      Paris, FR 

      Philippe Charron practices in Paris, France. Mr. Charron is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Cardiomyopathy, Dilated Cardiomyopathy (DCM), Hypertrophic Cardiomyopathy (HCM), Heart Transplant, and Cardiac Ablation.

      Experienced in Danon Disease

      Anne-marie M. Tassin
      Experienced in Danon Disease

      Anne-marie M. Tassin
      Gif-sur-yvette, FR 

      Anne-marie Tassin practices in Gif-sur-yvette, France. Ms. Tassin is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Danon Disease, Endocardial Fibroelastosis, Drug Induced Dyskinesia, and Situs Inversus.

      Experienced in Danon Disease

      Veronique A. Pautot
      Experienced in Danon Disease

      Veronique A. Pautot
      Versailles, FR 

      Veronique Pautot practices in Versailles, France. Ms. Pautot is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Danon Disease and Endocardial Fibroelastosis.

      Experienced in Danon Disease

      Fabien Espitalier
      Experienced in Danon Disease

      Fabien Espitalier
      Av. De La République, 
      Chambray-les-tours, FR 

      Fabien Espitalier practices in Chambray-les-tours, France. Mr. Espitalier is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Hospital-Acquired Pneumonia, Acute Pain, Danon Disease, and Hysterectomy.

      Experienced in Danon Disease

      Pascale Richard
      Experienced in Danon Disease

      Pascale Richard
      Paris, FR 

      Pascale Richard practices in Paris, France. Ms. Richard is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Rigid Spine Syndrome, Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), and Heart Transplant.

      Experienced in Danon Disease

      Thomas Cluzeau
      Experienced in Danon Disease

      Thomas Cluzeau
      Nice, FR 

      Thomas Cluzeau practices in Nice, France. Mr. Cluzeau is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML), Leukemia, Bone Marrow Transplant, and Splenectomy.

      Experienced in Danon Disease

      Patrick Auberger
      Experienced in Danon Disease

      Patrick Auberger
      Nice, FR 

      Patrick Auberger practices in Nice, France. Mr. Auberger is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Leukemia, Acute Myeloid Leukemia (AML), Myelodysplastic Syndrome (MDS), and Chronic Myelogenous Leukemia (CML).

      Experienced in Danon Disease

      Guillaume Robert
      Experienced in Danon Disease

      Guillaume Robert
      Paris, FR 

      Guillaume Robert practices in Paris, France. Mr. Robert is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Myelodysplastic Syndrome (MDS), Leukemia, Acute Myeloid Leukemia (AML), Hairy Cell Leukemia (HCL), and Leg or Foot Amputation.

      Experienced in Danon Disease

      Arnaud Jacquel
      Experienced in Danon Disease

      Arnaud Jacquel
      Nice, FR 

      Arnaud Jacquel practices in Nice, France. Mr. Jacquel is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Leukemia, Acute Myeloid Leukemia (AML), Chronic Myelogenous Leukemia (CML), and Vitiligo.

      Experienced in Danon Disease

      Aleksandra A. Pakleza-Nadaj
      Experienced in Danon Disease

      Aleksandra A. Pakleza-Nadaj
      Centre De Reference Des Maladies Neuromusculaires Nord Est Ile De France, 
      Strasbourg, FR 

      Aleksandra Pakleza-Nadaj practices in Strasbourg, France. Ms. Pakleza-Nadaj is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Glycogen Storage Disease Type 3, Carnitine Palmitoyltransferase 1 Deficiency, Pompe Disease, and Primary Lateral Sclerosis.

      Experienced in Danon Disease

      Thierry Bourguignon
      Experienced in Danon Disease

      Thierry Bourguignon
      Tours, FR 

      Thierry Bourguignon practices in Tours, France. Mr. Bourguignon is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Ventricular Fibrillation, Aortic Valve Stenosis, Infective Endocarditis, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in France?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in France?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Danon Disease doctor in France?

      You can find a Danon Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      Danon Disease doctor near San Jose, CA

      How does MediFind rank Danon Disease doctors in France?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in France?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in France?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in France?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in France?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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