The 20 Best Danon Disease Doctors in The United Kingdom

Find the Top Danon Disease Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 23 doctor with experience in Danon Disease near The United Kingdom. Of these, 21 are Experienced and 2 are Advanced.

Location
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23 providers found
    Advanced in Danon Disease
    Advanced in Danon Disease
    Referral may be required
    Aberdeen, SCT, GB 

    Maria Bantounou practices practicing medicine in Aberdeen, United Kingdom. Ms. Bantounou is rated as an Advanced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Danon Disease, Retinal Detachment, Cataract, and Rectal Prolapse.

    Advanced in Danon Disease
    Advanced in Danon Disease
    Referral may be required
    City Road, 
    London, ENG, GB 

    Michel Michaelides practices practicing medicine in London, United Kingdom. Mr. Michaelides is rated as an Advanced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Color Blindness, Retinitis Pigmentosa, Vitrectomy, and Cataract Removal.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    St George's University Of London, 
    London, ENG, GB 

    Juan Kaski practices practicing medicine in London, United Kingdom. Mr. Kaski is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Angina, Coronary Heart Disease, Atherosclerosis, Kidney Transplant, and Percutaneous Coronary Intervention (PCI).

    Learn about our expert tiers
    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Aylesbury, ENG, GB 

    Akshay Narayan practices practicing medicine in Aylesbury, United Kingdom. Mr. Narayan is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Choroideremia, Danon Disease, Late-Onset Retinal Degeneration, and Cataract Removal.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Oxford, ENG, GB 

    Marzia Rigolli practices practicing medicine in Oxford, United Kingdom. Ms. Rigolli is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Aortic Valve Stenosis, Danon Disease, Heart Failure with Preserved Ejection Fraction (HFpEF), Heart Failure, and Aortic Valve Replacement.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Heath Road, 
    Ipswich, ENG, GB 

    Jonathan Roos practices practicing medicine in Ipswich, United Kingdom. Mr. Roos is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Thyroid Eye Disease, Graves Disease, Hyperthyroidism, and Danon Disease.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Oxford, ENG, GB 

    Penny Clouston practices practicing medicine in Oxford, United Kingdom. Ms. Clouston is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, and Choroideremia.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Oxford, ENG, GB 

    Morag Shanks practices practicing medicine in Oxford, United Kingdom. Ms. Shanks is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, and Adult-Onset Vitelliform Macular Dystrophy (AVMD).

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Woodstock Road, 
    Oxford, ENG, GB 

    Elizabeth Morris practices practicing medicine in Oxford, United Kingdom. Ms. Morris is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Gaucher Disease Type 1, Splenic Infarction, Type 2 Diabetes (T2D), and Gaucher Disease.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    London, ENG, GB 

    Timothy Cox practices practicing medicine in London, United Kingdom. Mr. Cox is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Gaucher Disease, Gaucher Disease Type 1, Tay-Sachs Disease, and Farber Lipogranulomatosis.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    London, ENG, GB 

    Juan Kaski practices practicing medicine in London, United Kingdom. Mr. Kaski is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Restrictive Cardiomyopathy (RCM), Cardiac Arrest, and Heart Transplant.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    16 Westmoreland Street, 
    London, ENG, GB 

    Giovanni Quarta practices practicing medicine in London, United Kingdom. Mr. Quarta is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Familial Hypertrophic Cardiomyopathy, and Cardiac Arrest.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Charterhouse Square, 
    London, ENG, GB 

    Hidekazu Ishida practices practicing medicine in London, United Kingdom. Ishida is rated as an Experienced expert by MediFind in the treatment of Danon Disease. They are also highly rated in 10 other conditions, according to our data. Their clinical expertise encompasses Restrictive Cardiomyopathy (RCM), Pulmonary Atresia, Cerebral Hypoxia, Cardiomyopathy, and Heart Transplant.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Oxford, ENG, GB 

    Robert Maclaren practices practicing medicine in Oxford, United Kingdom. Mr. Maclaren is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Choroideremia, X-Linked Retinitis Pigmentosa (XLRP), Retinopathy Pigmentary Mental Retardation, Vitrectomy, and Cataract Removal.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Rita Horvath practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Horvath is rated as an Experienced expert by MediFind in the treatment of Danon Disease. She is also highly rated in 53 other conditions, according to our data. Her clinical expertise encompasses Charcot-Marie-Tooth Disease, Congenital Myasthenic Syndrome, Spasticity, and Optic Nerve Atrophy.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Dundee, SCT, GB 

    Nikolai Zhelev practices practicing medicine in Dundee, United Kingdom. Mr. Zhelev is rated as an Experienced expert by MediFind in the treatment of Danon Disease. His clinical expertise encompasses Ataxia-Telangiectasia, Telangiectasia, Danon Disease, and Barth Syndrome.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Headley Way, 
    Oxford, ENG, GB 

    Alexios Antonopoulos practices practicing medicine in Oxford, United Kingdom. Mr. Antonopoulos is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Pericarditis, Atherosclerosis, Coronary Heart Disease, Heart Bypass Surgery, and Coronary Artery Bypass Graft (CABG).

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    London, ENG, GB 

    Chrysanthi Tsika practices practicing medicine in London, United Kingdom. Tsika is rated as an Experienced expert by MediFind in the treatment of Danon Disease. Their clinical expertise encompasses Cone-Rod Dystrophy, Late-Onset Retinal Degeneration, Usher Syndrome, and Danon Disease.

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    Headley Way, 
    Oxford, ENG, GB 

    Matthew Daniels practices practicing medicine in Oxford, United Kingdom. Mr. Daniels is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Patent Foramen Ovale, Atrial Septal Defect (ASD), Hypertrophic Cardiomyopathy (HCM), Patent Foramen Ovale Repair, and Transcatheter Aortic Valve Replacement (TAVR).

    Experienced in Danon Disease
    Experienced in Danon Disease
    Referral may be required
    School Of Life Course Sciences, 
    London, ENG, GB 

    Omar Mahroo practices practicing medicine in London, United Kingdom. Mr. Mahroo is rated as an Experienced expert by MediFind in the treatment of Danon Disease. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, Trabeculectomy, and Cataract Removal.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 23

    Last Updated: 09/26/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Danon Disease doctor in The United Kingdom?

    You can find a Danon Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Danon Disease doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors in The United Kingdom?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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