The 20 Best Danon Disease Doctors Near Me in Palo Alto, CA

Find the Top Danon Disease Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 82 doctor with experience in Danon Disease near Palo Alto, CA. Of these, 62 are Experienced, 15 are Advanced, 4 are Distinguished and 1 are Elite.

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82 providers found
    Elite in Danon Disease
    Elite in Danon Disease
    Referral may be required

    Office

    9434 Medical Center Dr, 
    La Jolla, CA 
    Languages Spoken:
    English

    Barry Greenberg is a Cardiologist practicing medicine in La Jolla, California. Dr. Greenberg is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), Danon Disease, Heart Transplant, and Cardiac Ablation.

    Distinguished in Danon Disease
    Medical Genetics | Pediatrics
    Distinguished in Danon Disease
    Medical Genetics | Pediatrics
    Referral may be required

    UC Davis Medical Center MIND Institute

    2825 50th St, 
    Sacramento, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Madelena Martin is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Sacramento, California. Dr. Martin is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Danon Disease, Phenylketonuria (PKU), and Fabry Disease. Dr. Martin is board certified in Medical Genetics And Genomics Clin Biochemical Genetic and Medical Genetics And Genomics Clin Genetics & Genomic. Dr. Martin is currently accepting new patients.

    Distinguished in Danon Disease
    Cardiology
    Distinguished in Danon Disease
    Cardiology
    Referral may be required

    UC San Diego

    200 W Arbor Dr, 
    San Diego, CA 
    Experience:
    10+ years
    Languages Spoken:
    English

    Gary Ma is a Cardiologist practicing medicine in San Diego, California. He has been practicing medicine for over 10 years. Dr. Ma is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Danon Disease, Aortic Valve Stenosis, and Cardiomyopathy.

    Learn about our expert tiers
    Distinguished in Danon Disease
    Medical Genetics | Pediatrics
    Distinguished in Danon Disease
    Medical Genetics | Pediatrics
    Referral may be required

    UC Irvine Medical Center

    101 The City Drive South, Building 30, 
    Orange, CA 
    Languages Spoken:
    English, Greek, Hindi
    Offers Telehealth

    Dr. Virginia E. Kimonis is a board-certified UCI Health clinician-scientist who specializes in the diagnosis and treatment of children and adults with neuromuscular, neurodegenerative, dysmorphia and other complex disorders.Her clinical interests include inclusion body myopathy, Paget disease, Pompe disease, frontotemporal dementia, Prader Willi syndrome, morbid obesity and craniosynostosis.Kimonis earned her medical degree at the University of Southampton Medical School in Southampton, England. She completed a residency in pediatrics at Massachusetts General Hospital in Boston, followed by a fellowship in clinical and biochemical genetics at the National Institutes of Health (NIH) and Children's National Hospital in Washington, D.C.The author or co-author of more than 175 peer-reviewed publications in prestigious journals, Kimonis has focused her research primarily on inherited muscle disorders, lysosomal storage diseases, Prader Willi and several other rare disorders. She developed the Lysosomal Disease Program, established a registry study among a large cohort of patients with Pompe disease, and conducted a study of resistance training for axial and respiratory muscles in Pompe disease as an adjunct to enzyme replacement treatment.She also discovered multisystem proteinopathy, a new disease type associated with mutations in the VCP gene that overlaps with Pompe disease. She has received research funding from numerous agencies, including NIH, the Muscular Dystrophy Association, the Paget Foundation and other rare disease foundations.Kimonis also is a lead investigator with the newly establishedNational Organization for Rare Disorders (NORD) Rare Disease Center of Excellence, a joint program of UCI Health and Children's Hospital of Orange County (CHOC). Dr. Kimonis is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Prader-Willi Syndrome, Pompe Disease, Fabry Disease, Danon Disease, and Hormone Replacement Therapy (HRT). Dr. Kimonis is board certified in American Board Of Medical Genetics And Genomics - Clinical Genetics And Genomics.

    Distinguished in Danon Disease
    Neurology | Neuromusculoskeletal Medicine
    Distinguished in Danon Disease
    Neurology | Neuromusculoskeletal Medicine
    Referral may be required

    UCI Health ALS & Neuromuscular Center

    200 South Manchester Avenue, Suite 110, 
    Orange, CA 
    Languages Spoken:
    English, Hindi, Urdu
    Offers Telehealth

    Dr. Tahseen Mozaffar is a board-certified UCI Health neurologist who specialize in neuromuscular disorders, including amyotrophic lateral sclerosis (ALS), myasthenia gravis, inflammatory myopathies, Pompe disease, muscle pathology and all types of muscular dystrophies.He serves as director of the UCI Health ALS & Neuromuscular Center, one of only six Muscular Dystrophy Association-designated centers in California.Mozaffar earned his medical degree at the Aga Khan University in Karachi, Pakistan, where he completed a rotating internship in internal medicine and general surgery. He completed a neurology residency at Barnes-Jewish Hospital in St. Louis, Mo., followed by a fellowship in neuromuscular disorders at Washington University, also in St. Louis.His research focus includes clinical and translational studies of neuromuscular disorders and he is the principal site investigator of more than a dozen clinical trials for myasthenia gravis, immune myopathies and rare and ultra-rare myopathies. He is also the lead UCI investigator for NeuroNEXT, a collaborative national effort to help streamline phase 2 clinical trials for brain disorders that is supported by the National Institute of Neurological Disorders and Stroke (NINDS).As an expert in rare and ultra-rare myopathies, he advises many pharmaceutical companies on clinical trial design and the identification of disease targets. He serves on a Pompe disease advisory board for Amicus Therapeutics and Spark Therapeutics, as well as on the data safety monitoring board for Acceleron and Sarepta Therapeutics. He also is a reviewer with the Emerging Technologies and Training in Neurosciences (ETTN) group for the National Institutes of Health (NIH). He has co-authored more than 175 peer-reviewed publications and has written or co-written more than a dozen book chapters and reviews.Mozaffar, who is also fluent in Hindi and Urdu, sees patients inIrvineandOrange. Dr. Mozaffar is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Inclusion Body Myositis, Myositis, Limb-Girdle Muscular Dystrophy, and Thymectomy. Dr. Mozaffar is board certified in American Board Of Psychiatry And Neurology - Neurology.

    Advanced in Danon Disease
    Medical Genetics
    Advanced in Danon Disease
    Medical Genetics
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English

    Raymond Wang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 46 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), Mucopolysaccharidosis Type 4A (MPS IVA, Morquio Syndrome Type A), Mucopolysaccharidoses (MPS), and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome).

    Advanced in Danon Disease
    Advanced in Danon Disease
    Referral may be required

    Cedars-Sinai Medical Center

    127 S San Vicente Blvd, 
    Los Angeles, CA 
    Languages Spoken:
    English

    Takahiro Shiota is a Cardiologist practicing medicine in Los Angeles, California. Dr. Shiota is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Mitral Valve Regurgitation, Tricuspid Regurgitation, Aortic Regurgitation, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

    Advanced in Danon Disease
    Advanced in Danon Disease
    Referral may be required

    UC San Diego Health Clinical Laboratory-La Jolla

    9350 Campus Point Dr, 
    La Jolla,, CA 
    Languages Spoken:
    English

    Kirk Peterson is a Cardiologist practicing medicine in La Jolla,, California. Dr. Peterson is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Danon Disease, Dilated Cardiomyopathy (DCM), and Heart Failure.

    Advanced in Danon Disease
    Cardiology
    Advanced in Danon Disease
    Cardiology
    Referral may be required

    University Of California San Francisco

    505 Parnassus Ave, 
    San Francisco, CA 
    Languages Spoken:
    English

    Neil Chi is a Cardiologist practicing medicine in San Francisco, California. Dr. Chi is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Familial Dilated Cardiomyopathy, Danon Disease, Dilated Cardiomyopathy (DCM), and Heart Transplant.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology
    Referral may be required

    Lucile Packard Children's Hospital Stanford

    725 Welch Rd, 
    Palo Alto, CA 
    Languages Spoken:
    English

    David Rosenthal is a Pediatric Cardiologist practicing medicine in Palo Alto, California. Dr. Rosenthal is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Congenital Heart Disease (CHD), Dilated Cardiomyopathy (DCM), Cardiomyopathy, and Heart Transplant.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology
    Referral may be required
    505 South Main Street, Suite 600, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Nafiz Kiciman is a Pediatric Cardiologist practicing medicine in Orange, California. Dr. Kiciman is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Patent Ductus Arteriosus, Ventricular Septal Defects, Perrault Syndrome, and Turner Syndrome. Dr. Kiciman is currently accepting new patients.

    Advanced in Danon Disease
    Internal Medicine
    Advanced in Danon Disease
    Internal Medicine
    2235 Douglas Blvd., Suite 510, 
    Roseville, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Thomas Hopkins is a primary care provider, practicing in Internal Medicine in Roseville, California. Dr. Hopkins is rated as an Advanced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Danon Disease, Obesity, and Glucocorticoid-Remediable Aldosteronism. Dr. Hopkins is board certified in Internal Medicine - Board Certified and Not ABMS Specialty. Dr. Hopkins is currently accepting new patients.

    Experienced in Danon Disease
    Medical Genetics
    Experienced in Danon Disease
    Medical Genetics
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Cristel Chapel is a Medical Genetics provider practicing medicine in Orange, California. Dr. Chapel is rated as an Experienced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN4 Disease, CLN2 Disease, and CLN3 Disease. Dr. Chapel is currently accepting new patients.

    Experienced in Danon Disease
    Medical Genetics
    Experienced in Danon Disease
    Medical Genetics
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Richard Chang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Chang is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 155 other conditions, according to our data. His clinical expertise encompasses Citrullinemia, Beta-Ketothiolase Deficiency, Biotinidase Deficiency, and Adrenoleukodystrophy (ALD). Dr. Chang is currently accepting new patients.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology
    Referral may be required
    505 South Main Street, Suite 600, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Anjan Batra is a Pediatric Cardiologist practicing medicine in Orange, California. Dr. Batra is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 131 other conditions, according to our data. His clinical expertise encompasses Arrhythmias, Paroxysmal Supraventricular Tachycardia (PSVT), Congenital Heart Block, Congenital Heart Disease (CHD), and Cardiac Ablation. Dr. Batra is currently accepting new patients.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Anthony Mccanta is a Pediatric Cardiologist practicing medicine in Orange, California. Dr. Mccanta is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 150 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Tetralogy of Fallot, Arrhythmias, Patent Ductus Arteriosus, and Cardiac Ablation. Dr. Mccanta is currently accepting new patients.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Recto is a Pediatric Cardiologist practicing medicine in Orange, California. Dr. Recto is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 138 other conditions, according to our data. His clinical expertise encompasses Patent Ductus Arteriosus, Ventricular Septal Defects, Pulmonary Atresia with Ventricular Septal Defect, and Dextrocardia with Situs Inversus. Dr. Recto is currently accepting new patients.

    Experienced in Danon Disease
    Cardiology
    Experienced in Danon Disease
    Cardiology
    Referral may be required

    Office

    1018 Calloway Dr, 
    Bakersfield,, CA 
    Experience:
    18+ years
    Languages Spoken:
    English

    Htoo Kyaw is a Cardiologist practicing medicine in Bakersfield,, California. He has been practicing medicine for over 18 years. Dr. Kyaw is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Angina, Coronary Heart Disease, Atherosclerosis, Percutaneous Coronary Intervention (PCI), and Angioplasty.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology
    Referral may be required

    Betty Irene Moore Children's Heart Center

    725 Welch Rd Ste 120, 
    Palo Alto,, CA 
    Languages Spoken:
    English

    Seth Hollander is a Pediatric Cardiologist practicing medicine in Palo Alto,, California. Dr. Hollander is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Dilated Cardiomyopathy (DCM), Heart Failure, Cardiomyopathy, Duchenne Muscular Dystrophy, and Heart Transplant.

    Experienced in Danon Disease
    Medical Genetics
    Experienced in Danon Disease
    Medical Genetics
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Jose Abdenur is a Medical Genetics provider practicing medicine in Orange, California. Dr. Abdenur is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Glycogen Storage Disease Type 9, Von Gierke Disease, Glycogen Storage Disease Type 3, and Malonyl-CoA Decarboxylase Deficiency. Dr. Abdenur is currently accepting new patients.

    Showing 1-20 of 82

    Last Updated: 06/30/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor near Palo Alto, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor near Palo Alto, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors near Palo Alto, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors near Palo Alto, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor near Palo Alto, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor near Palo Alto, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors near Palo Alto, CA?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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