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    Last Updated: 10/30/2025

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    MediFind found 10 doctor with experience in Danon Disease near Iowa, US. Of these, 9 are Experienced and 1 are Advanced.

    Location
    LocationClose
    10 providers found
      Experienced in Danon Disease
      Experienced in Danon Disease

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Swenson is a Neurologist in Iowa City, Iowa. Dr. Swenson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Rhizotomy. Dr. Swenson is currently accepting new patients.

      Advanced in Danon Disease
      Advanced in Danon Disease
      200 Hawkins Dr, Dept Of Neurology, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Ludwig Gutmann is a Neurologist in Iowa City, Iowa. Dr. Gutmann is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Gutmann is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Danon Disease
      Experienced in Danon Disease

      Genesis Health System

      1227 E Rusholme St, 
      Davenport, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Rodney Short is a Neurologist in Davenport, Iowa. Dr. Short is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Memory Loss, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Lewy Body Dementia (LBD). Dr. Short is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine

      Sioux Center Health

      1101 9th St Se, Sioux Center Health Medica, 
      Sioux Center, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Clemens is a primary care provider, practicing in Family Medicine in Sioux Center, Iowa. Dr. Clemens is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Endocarditis, Multiple Myeloma, Tenosynovitis, Glucocorticoid-Remediable Aldosteronism, and Endoscopy. Dr. Clemens is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Nance is a Neurologist in Iowa City, Iowa. Dr. Nance is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Spinal and Bulbar Muscular Atrophy, Stent Placement, and Transmyocardial Revascularization. Dr. Nance is currently accepting new patients.

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine
      411 10th St Se, Suite 1400, 
      Cedar Rapids, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Mary Nelson is a primary care provider, practicing in Family Medicine in Cedar Rapids, Iowa. Dr. Nelson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Cytomegalovirus Antenatal Infection, Congenital Cytomegalovirus, Dementia, Endoscopy, and Gastrostomy. Dr. Nelson is currently accepting new patients.

      Experienced in Danon Disease
      Neurology | Sleep Medicine
      Experienced in Danon Disease
      Neurology | Sleep Medicine

      Genesis Health System

      4700 E 56th St, 100 Mercyone Genesis, 
      Davenport, IA 
      Languages Spoken:
      English, Polish
      Accepting New Patients

      Irena Charysz-Birski is a Neurologist and a Sleep Medicine provider in Davenport, Iowa. Dr. Charysz-Birski is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Obstructive Sleep Apnea, Drowsiness, Excessive Daytime Sleepiness, and Restless Legs Syndrome. Dr. Charysz-Birski is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease
      1776 W Lakes Pkwy, Suite 400, 
      West Des Moines, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Monica Koehn is a Neurologist in West Des Moines, Iowa. Dr. Koehn is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Epilepsy, Seizures, Memory Loss, and Juvenile Myoclonic Epilepsy. Dr. Koehn is currently accepting new patients.

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine

      Southeast Iowa Regional Medical Center Inc

      1221 S Gear Ave, Great River Medical Center, 
      West Burlington, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Walter Downey is a primary care provider, practicing in Family Medicine in West Burlington, Iowa. Dr. Downey is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Type 2 Diabetes (T2D), Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Downey is currently accepting new patients.

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine

      The Iowa Clinic

      5957 University Avenue, 
      West Des Moines, IA 
      Languages Spoken:
      English

      Iowa native Dr. Heather Back chose family medicine because primary care allows her to provide ongoing, comprehensive care to individuals of all ages including seeing family members across multiple generations. She is committed to professional development and training which allows her to best support her patients and their healthcare journeys. Dr. Back is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Sudden Infant Death Syndrome (SIDS), Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism.

      Showing 1-10 of 10

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Iowa, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Iowa, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in Iowa, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Iowa, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Iowa, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Iowa, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Iowa, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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