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    Last Updated: 10/30/2025

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    MediFind found 32 doctor with experience in Danon Disease near Illinois, US. Of these, 24 are Experienced, 6 are Advanced and 2 are Distinguished.

    Location
    LocationClose
    32 providers found
      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Monica Edwards is a primary care provider, practicing in Internal Medicine in Maywood, Illinois. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Lung Metastases, End-Stage Renal Disease (ESRD), Type 2 Diabetes (T2D), Pancreatectomy, and Bone Marrow Aspiration. Dr. Edwards is currently accepting new patients.

      Distinguished in Danon Disease
      Internal Medicine
      Distinguished in Danon Disease
      Internal Medicine

      Carle Health Care Incorporated

      611 W Park St, 
      Urbana, IL 
      Languages Spoken:
      English

      Thomas Halloran is a primary care provider, practicing in Internal Medicine in Urbana, Illinois. Dr. Halloran is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Pompe Disease, Necrosis, Colonoscopy, and Endoscopy.

      Distinguished in Danon Disease
      Distinguished in Danon Disease

      Carle Foundation Hospital

      611 W Park St, 
      Urbana, IL 
      Languages Spoken:
      English

      Robert Cranston is a Neurologist in Urbana, Illinois. Dr. Cranston is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Pompe Disease, Low Blood Pressure, and Limb-Girdle Muscular Dystrophy Type 1A.

      Learn about our expert tiers
      Experienced in Danon Disease
      Experienced in Danon Disease
      675 N St Clair St Ste 19-100, Galter Pavilion, 
      Chicago, IL 
      Experience:
      36+ years
      Languages Spoken:
      English
      Offers Telehealth

      Elizabeth Mcnally is a Cardiologist in Chicago, Illinois. Dr. Mcnally has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Cardiomyopathy, Duchenne Muscular Dystrophy, Dilated Cardiomyopathy (DCM), Hypertrophic Cardiomyopathy (HCM), and Heart Transplant.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      225 E Chicago Ave # 59, 
      Chicago, IL 
      Languages Spoken:
      English

      Carlos Prada is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Prada is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are RASopathies, Gaucher Disease, Achondroplasia, and Gaucher Disease Type 1.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joshua Baker is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Baker is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Ornithine Transcarbamylase Deficiency, Urea Cycle Disorders (UCD), Acid Sphingomyelinase Deficiency (ASMD), and Propionic Acidemia.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joel Charrow is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Charrow is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Gaucher Disease Type 1, Gaucher Disease, Achondroplasia, Isovaleric Acidemia, and Splenectomy.

      Advanced in Danon Disease
      Medical Genetics
      Advanced in Danon Disease
      Medical Genetics
      25 N Winfield Rd Ste 419, 
      Winfield, IL 
      Experience:
      35+ years
      Languages Spoken:
      English
      Offers Telehealth

      Carolyn Jones is a Medical Genetics provider in Winfield, Illinois. Dr. Jones has been practicing medicine for over 35 years and is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Fabry Disease, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, and Pompe Disease.

      Advanced in Danon Disease
      Neurology | Sleep Medicine
      Advanced in Danon Disease
      Neurology | Sleep Medicine

      Carle Health Care Incorporated

      611 W Park St, 
      Urbana, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Charles Davies is a Neurologist and a Sleep Medicine provider in Urbana, Illinois. Dr. Davies is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Obstructive Sleep Apnea, Restless Legs Syndrome, Danon Disease, and Pompe Disease.

      Advanced in Danon Disease
      Neurology | Psychiatry
      Advanced in Danon Disease
      Neurology | Psychiatry
      4370 7th St, 
      Moline, IL 
      Languages Spoken:
      English, Arabic, French
      Accepting New Patients

      Bassam Assaf is a Neurologist and a Psychiatrist in Moline, Illinois. Dr. Assaf is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Memory Loss, Epilepsy, Seizures, and Transient Ischemic Attack (TIA). Dr. Assaf is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Loyola Outpatient Center

      2160 S First Ave, 
      Maywood, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Matthew Mccoyd is a Neurologist in Maywood, Illinois. Dr. Mccoyd is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Neuralgia, and Spasticity. Dr. Mccoyd is currently accepting new patients.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Alliance Internal Medicine, S.C.

      370 Larry Power Rd, Suite 2, 
      Bourbonnais, IL 
      Languages Spoken:
      English, Filipino
      Accepting New Patients
      Offers Telehealth

      Joel Villegas is a primary care provider, practicing in Internal Medicine in Bourbonnais, Illinois. Dr. Villegas is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Acute Pancreatitis. Dr. Villegas is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Rush University Medical Group

      1653 W Congress Pkwy, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ryan Jacobson is a Neurologist in Chicago, Illinois. Dr. Jacobson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Primary Lateral Sclerosis, and Gastrostomy. Dr. Jacobson is currently accepting new patients in some locations.

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine

      Iowa Physicians Clinic Medical Foundation

      2714 8th St Ct, 
      Moline, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Paul Wang is a primary care provider, practicing in Family Medicine in Moline, Illinois. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Cerebral Palsy, Vitamin D Deficiency, Type 2 Diabetes (T2D), and Moebius Syndrome. Dr. Wang is currently accepting new patients.

      Experienced in Danon Disease
      Neurology | Neuroradiology
      Experienced in Danon Disease
      Neurology | Neuroradiology

      Osf Multi-Specialty Group

      8600 State Route 91, Suite 130, 
      Peoria, IL 
      Languages Spoken:
      English

      Sankar Bandyopadhyay is a Neurologist and a Neuroradiologist in Peoria, Illinois. Dr. Bandyopadhyay is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Myasthenia Gravis, Nemaline Myopathy, Congenital Fiber-Type Disproportion, and Rigid Spine Syndrome.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, Box 118, 
      Chicago, IL 
      Languages Spoken:
      English

      Michael Carr is a Pediatric Cardiologist and a Cardiologist in Chicago, Illinois. Dr. Carr is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Double Aortic Arch, Vascular Ring, Cardiac Diverticulum, and Congenital Heart Disease (CHD).

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine
      500 W Il Route 22, 
      Barrington, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Richard Mcdonough is a primary care provider, practicing in Family Medicine in Barrington, Illinois. Dr. Mcdonough is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Chronic Cough, Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), and Hypothyroidism. Dr. Mcdonough is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Michael Perez is a Pediatric Cardiologist and a Cardiologist in Chicago, Illinois. Dr. Perez is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Patent Ductus Arteriosus, Ventricular Septal Defects, Patent Foramen Ovale, and Atrial Septal Defect (ASD). Dr. Perez is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Neurology | Neurology
      Experienced in Danon Disease
      Pediatric Neurology | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Vamshi Rao is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Rao is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 1, and Thymectomy.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      2300 Childrens Plaza, 
      Chicago, IL 
      Languages Spoken:
      English

      Barbara Burton is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Burton is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Phenylketonuria (PKU), Mucopolysaccharidoses (MPS), and Cholesteryl Ester Storage Disease.

      Showing 1-20 of 32

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Illinois, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Illinois, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in Illinois, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Illinois, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Illinois, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Illinois, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Illinois, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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