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    Last Updated: 10/30/2025

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    MediFind found 23 doctor with experience in Danon Disease near Indiana, US. Of these, 17 are Experienced and 6 are Advanced.

    Location
    LocationClose
    23 providers found
      Advanced in Danon Disease
      Neurology | Sleep Medicine
      Advanced in Danon Disease
      Neurology | Sleep Medicine

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Cynthia Bodkin is a Neurologist and a Sleep Medicine provider in Indianapolis, Indiana. Dr. Bodkin is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy. Dr. Bodkin is currently accepting new patients.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      University Family Physicians, Inc.

      550 University Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Molly Mcpheron is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Mcpheron is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pompe Disease, Danon Disease, Phenylketonuria (PKU), and Maternal Hyperphenylalaninemia. Dr. Mcpheron is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Danon Disease
      Pediatric Neurology | Neurology
      Advanced in Danon Disease
      Pediatric Neurology | Neurology
      705 Riley Hospital Dr # 1340, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Laurence Walsh is a Pediatric Neurologist and a Neurologist in Indianapolis, Indiana. Dr. Walsh is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Microcephaly, Seizures, and Neurofibromatosis.

      Learn about our expert tiers
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      University Family Physicians, Inc.

      975 W Walnut St, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Bryan Hainline is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Hainline is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Phenylketonuria (PKU), Pyruvate Carboxylase Deficiency, Urea Cycle Disorders (UCD), and Inborn Amino Acid Metabolism Disorder. Dr. Hainline is currently accepting new patients.

      Advanced in Danon Disease
      Neurology | Psychiatry
      Advanced in Danon Disease
      Neurology | Psychiatry

      Baptist Health Medical Group Inc

      1919 State St, Suite 22, 
      New Albany, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Greg Smith is a Neurologist and a Psychiatrist in New Albany, Indiana. Dr. Smith is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Distal Median Nerve Dysfunction, Generalized Tonic-Clonic Seizure, Cramp-Fasciculation Syndrome, and Seizures. Dr. Smith is currently accepting new patients.

      Advanced in Danon Disease
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in Danon Disease
      Neurology | Pediatrics | Pediatric Neurology

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Marcia Felker is a Neurologist and a Pediatrics provider in Indianapolis, Indiana. Dr. Felker is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Spinal Muscular Atrophy Type 1, Duchenne Muscular Dystrophy, Seizures, and Spinal Muscular Atrophy Type 2. Dr. Felker is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Neurology | Neurology | Pediatrics
      Experienced in Danon Disease
      Pediatric Neurology | Neurology | Pediatrics

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Lisa Smith is a Pediatric Neurologist and a Neurologist in Indianapolis, Indiana. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Seizures, and Tuberous Sclerosis.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology

      Riverview Hospital

      395 Westfield Rd Rm, 2987 Riverview Health Hema, 
      Noblesville, IN 
      Languages Spoken:
      English, Hindi, Urdu
      Accepting New Patients
      Offers Telehealth

      Muhammad Nawaz is a Hematologist Oncology specialist and a Hematologist in Noblesville, Indiana. Dr. Nawaz is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Paget Disease of the Breast, Breast Cancer, Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, and Bone Marrow Aspiration. Dr. Nawaz is currently accepting new patients.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Proactive Clinical Partners

      517 N Concord Rd, Wellbrooke, 
      Crawfordsville, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Saad Hafidh is a primary care provider, practicing in Internal Medicine in Crawfordsville, Indiana. Dr. Hafidh is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypothyroidism, Multisystem Inflammatory Syndrome in Children (MIS-C), COVID-19, Obesity in Children, and Hip Replacement. Dr. Hafidh is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      University Pediatric Associates Inc

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      John Parent is a Pediatric Cardiologist and a Cardiologist in Indianapolis, Indiana. Dr. Parent is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Cardiomyopathy, Pulmonary Valve Stenosis, RASopathies, Noonan Syndrome, and Heart Transplant. Dr. Parent is currently accepting new patients.

      Experienced in Danon Disease
      Neurology | Psychiatry
      Experienced in Danon Disease
      Neurology | Psychiatry

      Indiana Clinic-Neurology, LLC

      355 W 16th St, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Adam Comer is a Neurologist and a Psychiatrist in Indianapolis, Indiana. Dr. Comer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Paramyotonia Congenita, Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Myasthenia Gravis. Dr. Comer is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease
      1801 N Senate Ave, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Subha Raman is a Cardiologist in Indianapolis, Indiana. Dr. Raman is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Myotonic Dystrophy, Myotonic Dystrophy Type 2, Myocarditis, Cardiac Ablation, and Pacemaker Implantation. Dr. Raman is currently accepting new patients.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology

      St Vincent Physician Services Hospital And Health Care Center

      2001 W 86th St, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Fadi Hayek is a Hematologist Oncology specialist and a Hematologist in Indianapolis, Indiana. Dr. Hayek is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Childhood Iron Deficiency Anemia, Familial Colorectal Cancer, Colorectal Cancer, and Pleuropulmonary Blastoma. Dr. Hayek is currently accepting new patients.

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine

      Union Associated Physicians Clinic, LLC

      221 S 6 Th St, Apands Clinic Downtown, 
      Terre Haute, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Mark Schuld is a primary care provider, practicing in Family Medicine in Terre Haute, Indiana. Dr. Schuld is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Autism Spectrum Disorder. Dr. Schuld is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      University Pediatric Associates Inc

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Larry Markham is a Pediatric Cardiologist and a Cardiologist in Indianapolis, Indiana. Dr. Markham is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Marfan Syndrome, and Cardiomyopathy. Dr. Markham is currently accepting new patients.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Indiana University Health Southern Indiana Physicians LLC

      719 W 2nd St, 
      Bloomington, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Garry Tinnes is a primary care provider, practicing in Internal Medicine in Bloomington, Indiana. Dr. Tinnes is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Trichohepatoenteric Syndrome, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Tinnes is currently accepting new patients.

      Experienced in Danon Disease
      Hematology Oncology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Oncology

      Hancock Physician Network LLC

      801 N State St, 
      Greenfield, IN 
      Experience:
      44+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Stephen Schultz is a Hematologist Oncology specialist and an Oncologist in Greenfield, Indiana. Dr. Schultz has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Paget Disease of the Breast, Breast Cancer, Melanoma, and Colorectal Cancer. Dr. Schultz is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      1002 Wishard Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Brett Graham is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Graham is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are MELAS Syndrome, Mitochondrial Complex 1 Deficiency, Smith-Magenis Syndrome, and Hypotonia. Dr. Graham is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Indiana University Health Care Associates Inc

      13100 E 136th St, 3000 Heart Partners Of Ind, 
      Fishers, IN 
      Languages Spoken:
      English

      Nathan Lambert is a Cardiologist in Fishers, Indiana. Dr. Lambert is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Coronary Heart Disease, Atherosclerosis, Atrial Fibrillation, Angina, and Pacemaker Implantation.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      705 Riley Hospital Dr, Rr 127, 
      Indianapolis, IN 
      Languages Spoken:
      English, Burmese, Spanish
      Accepting New Patients

      Jacqueline Maiers is a Pediatric Cardiologist and a Cardiologist in Indianapolis, Indiana. Dr. Maiers is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Ventricular Septal Defects, Bicuspid Aortic Valve, Isthmian Coarctation, and Coarctation of the Aorta. Dr. Maiers is currently accepting new patients.

      Showing 1-20 of 23

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Indiana, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Indiana, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in Indiana, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Indiana, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Indiana, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Indiana, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Indiana, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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