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    Last Updated: 10/30/2025

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    MediFind found 25 doctor with experience in Danon Disease near Massachusetts, US. Of these, 22 are Experienced and 3 are Advanced.

    Location
    LocationClose
    25 providers found
      Barry J. Maron
      Advanced in Danon Disease
      Advanced in Danon Disease

      Lahey Clinic Inc

      41 Mall Rd, 
      Burlington, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Barry Maron is a Cardiologist in Burlington, Massachusetts. Dr. Maron is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Cardiac Arrest, Heart Transplant, and Cardiac Ablation. Dr. Maron is currently accepting new patients.

      Advanced in Danon Disease
      Advanced in Danon Disease

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Christine Seidman is a Cardiologist in Boston, Massachusetts. Dr. Seidman is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Heart Transplant, and Heart Bypass Surgery. Dr. Seidman is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Baystate Medical Practices Inc

      50 Wason Ave, 
      Springfield, MA 
      Languages Spoken:
      English

      Mary-alice Abbott is a Medical Genetics specialist and a Pediatrics provider in Springfield, Massachusetts. Dr. Abbott is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pompe Disease, Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Danon Disease, and Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome).

      Learn about our expert tiers
      Anthony A. Amato
      Experienced in Danon Disease
      Experienced in Danon Disease

      Brigham And Women's Hospital, Neurosciences Center

      60 Fenwood Road, Hale Building For Transformative Medicine, 1st Floor, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is currently accepting new patients.

      Jane A. Leopold
      Experienced in Danon Disease
      Interventional Cardiology | Cardiology
      Experienced in Danon Disease
      Interventional Cardiology | Cardiology

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Jane Leopold is an Interventional Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Leopold is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pulmonary Hypertension, Hypertension, Heart Attack, Angioplasty, and Percutaneous Coronary Intervention (PCI). Dr. Leopold is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics
      Experienced in Danon Disease
      Medical Genetics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Melinda Peters is a Medical Genetics provider in Boston, Massachusetts. Dr. Peters is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are N-Acetyl-Alpha-D-Galactosaminidase Deficiency Type 3, Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome).

      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Wayne Tworetzky is a Pediatric Cardiologist and a Pediatrics provider in Boston, Massachusetts. Dr. Tworetzky is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Ebstein's Anomaly, Pulmonary Atresia, and Congenital Heart Disease (CHD). Dr. Tworetzky is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics
      Experienced in Danon Disease
      Medical Genetics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Olaf Bodamer is a Medical Genetics provider in Boston, Massachusetts. Dr. Bodamer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Kabuki Syndrome, Classic Galactosemia, Niemann-Pick Disease, and Mucopolysaccharidoses (MPS). Dr. Bodamer is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Amy Kritzer is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Kritzer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Maternal Hyperphenylalaninemia, Phenylketonuria (PKU), Biotinidase Deficiency, and Smith-Lemli-Opitz Syndrome. Dr. Kritzer is currently accepting new patients.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine
      330 Brookline Ave, Bidmc East Campus Sh 462, 
      Boston, MA 
      Languages Spoken:
      English

      Raymond Chan is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Chan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Cardiac Arrest, and Danon Disease.

      Experienced in Danon Disease
      Cardiology | Cardiac Electrophysiology
      Experienced in Danon Disease
      Cardiology | Cardiac Electrophysiology

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      William Sauer is a Cardiologist and a Cardiac Electrophysiologist in Boston, Massachusetts. Dr. Sauer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Arrhythmias, Ventricular Tachycardia, Atrial Fibrillation, Cardiac Ablation, and Pacemaker Implantation.

      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Rebecca Beroukhim is a Pediatric Cardiologist and a Pediatrics provider in Boston, Massachusetts. Dr. Beroukhim is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Ebstein's Anomaly, Pulmonary Atresia, Hypoplastic Left Heart Syndrome (HLHS), Heart Transplant, and Myringotomy. Dr. Beroukhim is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Jami Levine is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Levine is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Marfan Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Congenital Heart Disease (CHD). Dr. Levine is currently accepting new patients.

      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Pediatrics | Pediatric Cardiology
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Pediatrics | Pediatric Cardiology

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Kevin Daly is an Advanced Heart Failure and Transplant Cardiologist and a Pediatrics provider in Boston, Massachusetts. Dr. Daly is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Mitral Stenosis, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Restrictive Cardiomyopathy (RCM), and Heart Transplant. Dr. Daly is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      William Brucker is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Brucker is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Lysosomal Acid Lipase Deficiency, Cholesteryl Ester Storage Disease, Wolman Disease, and Fetal Thalidomide Syndrome.

      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Pediatrics | Cardiology

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Kevin Friedman is a Pediatric Cardiologist and a Pediatrics provider in Boston, Massachusetts. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Coronary Artery Aneurysm, Kawasaki Disease, Multisystem Inflammatory Syndrome in Children (MIS-C), Embolectomy, and Heart Transplant. Dr. Friedman is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Castellanos is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Castellanos is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Total Anomalous Pulmonary Venous Return, Aberrant Subclavian Artery, Pulmonary Artery Agenesis, and Pulmonary Valves Agenesis. Dr. Castellanos is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      David Schidlow is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Schidlow is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heterotaxy Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Total Anomalous Pulmonary Venous Return, Transposition of the Great Arteries, and Septoplasty. Dr. Schidlow is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kristin Bonello is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Bonello has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Arachnodactyly, Marfan Syndrome, Congenital Contractural Arachnodactyly, and Retinopathy Pigmentary Mental Retardation. Dr. Bonello is currently accepting new patients.

      Showing 1-20 of 25

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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