The 20 Best Danon Disease Doctors Near Me in Michigan, US

Find the Top Danon Disease Experts and Specialists

The 20 Best Danon Disease Doctors in Michigan, US

Last Updated: 02/22/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 38 doctor with experience in Danon Disease near Michigan, US. Of these, 31 are Experienced and 7 are Advanced.

Location
LocationClose
38 providers found
    Jessica R. Priestley
    Advanced in Danon Disease
    Pediatrics | Medical Genetics
    Advanced in Danon Disease
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
    Experience:
    8+ years
    Languages Spoken:
    English

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Experience:
    10+ years
    Languages Spoken:
    English

    Sara Sadat is a Pediatric Cardiologist in Ann Arbor, Michigan. Dr. Sadat has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Mitral Atresia, Hypoplastic Left Heart Syndrome (HLHS), Transposition of the Great Arteries, Tetralogy of Fallot, and Heart Transplant.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    DMC Children's Hospital Of Michigan

    3901 Beaubien St, 
    Detroit, MI 
    Languages Spoken:
    English

    Sanjeev Aggarwal is a Pediatric Cardiologist in Detroit, Michigan. Dr. Aggarwal is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Kawasaki Disease, Ventricular Septal Defects, Transposition of the Great Arteries, and Multisystem Inflammatory Syndrome in Children (MIS-C).

    Learn about our expert tiers
    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor,, MI 
    Languages Spoken:
    English

    Sara Pasquali is a Pediatric Cardiologist in Ann Arbor,, Michigan. Dr. Pasquali is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Coarctation of the Aorta, Hypoplastic Left Heart Syndrome (HLHS), Tetralogy of Fallot, Heart Transplant, and Aortic Valve Replacement.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    DMC Children's Hospital Of Michigan

    3901 Beaubien St, 
    Detroit, MI 
    Languages Spoken:
    English

    Deemah Mahadin is a Pediatric Cardiologist in Detroit, Michigan. Dr. Mahadin is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Kawasaki Disease, Patent Ductus Arteriosus, Ventricular Septal Defects, and Transposition of the Great Arteries.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor,, MI 
    Languages Spoken:
    English

    Sonal Owens is a Pediatric Cardiologist in Ann Arbor,, Michigan. Dr. Owens is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, Congenital Heart Disease (CHD), and Coarctation of the Aorta.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Henry Ford Medical Center-Second Avenue

    6525 2nd Ave, 
    Detroit, MI 
    Languages Spoken:
    English

    Jennifer Blake is a Pediatric Cardiologist in Detroit, Michigan. Dr. Blake is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Ventricular Septal Defects, Double Outlet Right Ventricle, Heart Murmurs, Double Outlet Left Ventricle, and Heart Transplant.

    Experienced in Danon Disease
    Cardiology
    Experienced in Danon Disease
    Cardiology

    Preventative Cardiology At Dominos Farms

    24 Frank Lloyd Wright Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Shea is a Cardiologist in Ann Arbor, Michigan. Dr. Shea is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Coronary Heart Disease, Atherosclerosis, Angina, Cardiac Ablation, and Pacemaker Implantation.

    Advanced in Danon Disease
    Medical Genetics | Pediatrics
    Advanced in Danon Disease
    Medical Genetics | Pediatrics

    Regents Of The University Of Michigan

    1500 E Medical Ctr, Suite 0331, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Urdu
    Accepting New Patients

    Ayesha Ahmad is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ahmad is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pompe Disease, Propionic Acidemia, Von Gierke Disease, Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), and Lymphadenectomy. Dr. Ahmad is currently accepting new patients.

    Advanced in Danon Disease
    Pediatrics
    Advanced in Danon Disease
    Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Erin Neil is a Pediatrics provider in Ann Arbor, Michigan. Dr. Neil is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Danon Disease, Pompe Disease, Dysferlinopathy, and Duchenne Muscular Dystrophy.

    Advanced in Danon Disease
    Pediatric Cardiology
    Advanced in Danon Disease
    Pediatric Cardiology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor,, MI 
    Languages Spoken:
    English

    Thor Thorsson is a Pediatric Cardiologist in Ann Arbor,, Michigan. Dr. Thorsson is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation.

    Advanced in Danon Disease
    Internal Medicine
    Advanced in Danon Disease
    Internal Medicine
    3901 Beaubien St, 
    Detroit, MI 
    Languages Spoken:
    English

    David Stockton is a primary care provider, practicing in Internal Medicine in Detroit, Michigan. Dr. Stockton is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Pompe Disease, Danon Disease, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Multiple Sulfatase Deficiency.

    Advanced in Danon Disease
    Medical Genetics | Pediatrics
    Advanced in Danon Disease
    Medical Genetics | Pediatrics
    35 Michigan St NE Ste 3003, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Stacie Adams is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Adams is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Propionic Acidemia, Classic Galactosemia, Biotinidase Deficiency, and Galactosemia. Dr. Adams is currently accepting new patients.

    Advanced in Danon Disease
    Medical Genetics
    Advanced in Danon Disease
    Medical Genetics

    Munson Medical Center Pediatric Specialty Clinic

    106 South Madison Street, 
    Traverse City, MI 
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Shane Quinonez is a Medical Genetics provider in Traverse City, Michigan. Dr. Quinonez has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Maple Syrup Urine Disease. Dr. Quinonez is currently accepting new patients.

    Daniel L. Menkes
    Experienced in Danon Disease
    Neuromusculoskeletal Medicine | Neurology
    Experienced in Danon Disease
    Neuromusculoskeletal Medicine | Neurology

    Corewell Health William Beaumont University Hospital Neuroscience Center

    3555 West 13 Mile Road, Suite N120, 
    Royal Oak, MI 
    Experience:
    38+ years
    Languages Spoken:
    English, French, German
    Accepting New Patients

    Daniel Menkes is a Neuromusculoskeletal Medicine specialist and a Neurologist in Royal Oak, Michigan. Dr. Menkes has been practicing medicine for over 38 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita. Dr. Menkes is currently accepting new patients.

    Stefania L. Zurita
    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Helen DeVos Children's Hospital Congenital Heart Center

    25 Michigan Street Northeast, Suite 4200, 
    Grand Rapids, MI 
    Experience:
    13+ years
    Languages Spoken:
    English

    Stefania Zurita is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Zurita has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Coronary Artery Fistula.

    Paul T. Twydell
    Experienced in Danon Disease
    Neuroradiology | Neuromusculoskeletal Medicine | Neurology
    Experienced in Danon Disease
    Neuroradiology | Neuromusculoskeletal Medicine | Neurology

    Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

    2750 East Beltline Avenue Northeast, 
    Grand Rapids, MI 
    Experience:
    26+ years
    Languages Spoken:
    English
    Accepting New Patients

    Paul Twydell is a Neuromusculoskeletal Medicine specialist and a Neurologist in Grand Rapids, Michigan. Dr. Twydell has been practicing medicine for over 26 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Myasthenia Gravis, Monomelic Amyotrophy, Chronic Inflammatory Demyelinating Polyneuropathy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Twydell is currently accepting new patients.

    Keith D. Aaronson
    Experienced in Danon Disease
    Advanced Heart Failure and Transplant Cardiology | Cardiology
    Experienced in Danon Disease
    Advanced Heart Failure and Transplant Cardiology | Cardiology

    Regents Of The University Of Michigan

    375 Briarwood Cir, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Keith Aaronson is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Aaronson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Failure, Pulmonary Edema, Cardiomyopathy, Heart Transplant, and Atherectomy. Dr. Aaronson is currently accepting new patients.

    Christopher Ratnasamy
    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Helen DeVos Children's Hospital Fetal And Pediatric Cardiology Clinic

    1105 Sixth Street, 
    Traverse City, MI 
    Experience:
    31+ years
    Languages Spoken:
    English

    Christopher Ratnasamy is a Pediatric Cardiologist in Traverse City, Michigan. Dr. Ratnasamy has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Heart Block, Brugada Syndrome, Postural Orthostatic Tachycardia Syndrome (POTS), and Short QT Syndrome.

    Experienced in Danon Disease
    Medical Genetics
    Experienced in Danon Disease
    Medical Genetics

    Regents Of The University Of Michigan

    24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

    Showing 1-20 of 38

    Last Updated: 02/22/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors in Michigan, US?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Danon Disease Doctors by city