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    Last Updated: 10/30/2025

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    MediFind found 45 doctor with experience in Danon Disease near Michigan, US. Of these, 37 are Experienced and 8 are Advanced.

    Location
    LocationClose
    45 providers found
      Jessica R. Priestley
      Advanced in Danon Disease
      Pediatrics | Medical Genetics
      Advanced in Danon Disease
      Pediatrics | Medical Genetics

      Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 2100, 
      Grand Rapids, MI 
      Experience:
      8+ years
      Languages Spoken:
      English

      Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Fabry Disease, Ornithine Transcarbamylase Deficiency, Biotinidase Deficiency, and Multiple Sulfatase Deficiency.

      Jena M. Krueger
      Advanced in Danon Disease
      Pediatric Neurology
      Advanced in Danon Disease
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      16+ years
      Languages Spoken:
      English

      Jena Krueger is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Krueger has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 1, and Spinal Muscular Atrophy Type 2.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English, Urdu
      Accepting New Patients

      Ayesha Ahmad is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ahmad is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pompe Disease, Propionic Acidemia, Von Gierke Disease, and Classic Galactosemia. Dr. Ahmad is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Danon Disease
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in Danon Disease
      Neurology | Pediatrics | Pediatric Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Erin Neil-Knierbein is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Neil-Knierbein is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pompe Disease, Danon Disease, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Neil-Knierbein is currently accepting new patients.

      Advanced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in Danon Disease
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Thor Thorsson is a Pediatric Cardiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Thorsson is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation.

      Advanced in Danon Disease
      Internal Medicine
      Advanced in Danon Disease
      Internal Medicine
      3901 Beaubien St, 
      Detroit, MI 
      Languages Spoken:
      English

      David Stockton is a primary care provider, practicing in Internal Medicine in Detroit, Michigan. Dr. Stockton is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Pompe Disease, Danon Disease, Multiple Sulfatase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      35 Michigan St NE Ste 3003, 
      Grand Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Stacie Adams is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Adams is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Propionic Acidemia, Classic Galactosemia, Biotinidase Deficiency, and Galactosemia. Dr. Adams is currently accepting new patients.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Shane Quinonez is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Quinonez is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Propionic Acidemia.

      Steven T. Deroos
      Experienced in Danon Disease
      Pediatric Neurology
      Experienced in Danon Disease
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      32+ years
      Languages Spoken:
      English
      Accepting New Patients

      Steven Deroos is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Deroos has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is currently accepting new patients.

      Daniel L. Menkes
      Experienced in Danon Disease
      Neuromusculoskeletal Medicine | Neurology
      Experienced in Danon Disease
      Neuromusculoskeletal Medicine | Neurology

      Corewell Health William Beaumont University Hospital Neuroscience Center

      3555 West 13 Mile Road, Suite N120, 
      Royal Oak, MI 
      Experience:
      38+ years
      Languages Spoken:
      English, French, German
      Accepting New Patients

      Daniel Menkes is a Neuromusculoskeletal Medicine specialist and a Neurologist in Royal Oak, Michigan. Dr. Menkes has been practicing medicine for over 38 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita. Dr. Menkes is currently accepting new patients.

      Jeffrey R. Schneider
      Experienced in Danon Disease
      Pediatric Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
      Experience:
      39+ years
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Schneider is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Schneider has been practicing medicine for over 39 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Ventricular Septal Defects, Bicuspid Aortic Valve, Patent Ductus Arteriosus, and Pulmonary Artery Agenesis. Dr. Schneider is currently accepting new patients.

      Paul T. Twydell
      Experienced in Danon Disease
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology
      Experienced in Danon Disease
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology

      Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

      2750 East Beltline Avenue Northeast, 
      Grand Rapids, MI 
      Experience:
      26+ years
      Languages Spoken:
      English
      Accepting New Patients

      Paul Twydell is a Neuromusculoskeletal Medicine specialist and a Neurologist in Grand Rapids, Michigan. Dr. Twydell has been practicing medicine for over 26 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Myasthenia Gravis, Monomelic Amyotrophy, Chronic Inflammatory Demyelinating Polyneuropathy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Twydell is currently accepting new patients.

      Kim G. Lee
      Experienced in Danon Disease
      Pediatric Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
      Experience:
      35+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kim Lee is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Lee has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Ventricular Septal Defects, Bicuspid Aortic Valve, Heart Murmurs, and Patent Ductus Arteriosus. Dr. Lee is currently accepting new patients.

      Keith D. Aaronson
      Experienced in Danon Disease
      Cardiology | Advanced Heart Failure and Transplant Cardiology
      Experienced in Danon Disease
      Cardiology | Advanced Heart Failure and Transplant Cardiology

      Regents Of The University Of Michigan

      375 Briarwood Cir, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Keith Aaronson is a Cardiologist and an Advanced Heart Failure and Transplant Cardiologist in Ann Arbor, Michigan. Dr. Aaronson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), Pulmonary Edema, Heart Transplant, and Atherectomy. Dr. Aaronson is currently accepting new patients.

      John M. Dysart
      Experienced in Danon Disease
      Pediatric Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology

      Corewell Health Pediatric Cardiology - Lansing

      3220 Discovery Drive, Suite 210, 
      Lansing, MI 
      Experience:
      38+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Dysart is a Pediatric Cardiologist in Lansing, Michigan. Dr. Dysart has been practicing medicine for over 38 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Murmurs, Bicuspid Aortic Valve, Interrupted Aortic Arch, and Sinus of Valsalva Aneurysm. Dr. Dysart is currently accepting new patients.

      Christopher Ratnasamy
      Experienced in Danon Disease
      Pediatrics | Cardiology | Pediatric Cardiology
      Experienced in Danon Disease
      Pediatrics | Cardiology | Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
      Experience:
      31+ years
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Ratnasamy is a Cardiologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Ratnasamy has been practicing medicine for over 31 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Heart Block, Brugada Syndrome, Short QT Syndrome, and Postural Orthostatic Tachycardia Syndrome (POTS). Dr. Ratnasamy is currently accepting new patients.

      Yasser Al
      Experienced in Danon Disease
      Pediatrics | Pediatric Cardiology
      Experienced in Danon Disease
      Pediatrics | Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
      Experience:
      44+ years
      Languages Spoken:
      English
      Accepting New Patients

      Yasser Al is a Pediatrics specialist and a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Al has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Double Discordia, and Pulmonary Artery Agenesis. Dr. Al is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics
      Experienced in Danon Disease
      Medical Genetics

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Bronson Methodist Hospital

      601 John St, Suite 230, 
      Kalamazoo, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Michelle Crooks is a Neurologist in Kalamazoo, Michigan. Dr. Crooks is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Myasthenia Gravis, Progressive Supranuclear Palsy, Supranuclear Ocular Palsy, and Supranuclear Ophthalmoplegia. Dr. Crooks is currently accepting new patients.

      Experienced in Danon Disease
      Neurology | Neuroradiology | Neurosurgery
      Experienced in Danon Disease
      Neurology | Neuroradiology | Neurosurgery

      Memorial Hospital

      3337 Britton Rd, 
      Perry, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Dustin Nowacek is a Neurologist and a Neuroradiologist in Perry, Michigan. Dr. Nowacek is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Dysferlinopathy, Duchenne Muscular Dystrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy (SMA). Dr. Nowacek is currently accepting new patients.

      Showing 1-20 of 45

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Michigan, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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