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    Last Updated: 10/30/2025

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    MediFind found 14 doctor with experience in Danon Disease near Missouri, US. Of these, 12 are Experienced and 2 are Advanced.

    Location
    LocationClose
    14 providers found
      Advanced in Danon Disease
      Advanced in Danon Disease

      Todd B Silverman MD LLC

      14825 N Outer 40 Rd, Suite 330 B, 
      Chesterfield, MO 
      Languages Spoken:
      English

      Richard Sommerville is a Neurologist in Chesterfield, Missouri. Dr. Sommerville is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Danon Disease, Pompe Disease, Emery-Dreifuss Muscular Dystrophy, and Gastrostomy.

      Advanced in Danon Disease
      Neurology
      Advanced in Danon Disease
      Neurology

      Ssm Medical Group Inc

      1055 Bowles Ave, Suite 200, 
      Fenton, MO 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Bassam Malo is a Neurologist in Fenton, Missouri. Dr. Malo has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Migraine, Peripheral Neuropathy, Myasthenia Gravis, and VEXAS Syndrome. Dr. Malo is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Danon Disease
      Experienced in Danon Disease

      Lake Regional Health System

      54 Hospital Dr, 
      Osage Beach, MO 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Tania Beltran-Papsdorf is a Neurologist in Osage Beach, Missouri. Dr. Beltran-Papsdorf is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Myasthenia Gravis, Lewy Body Dementia (LBD), Spinal and Bulbar Muscular Atrophy, Transmyocardial Revascularization, and Stent Placement. Dr. Beltran-Papsdorf is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine
      216 N Main St, 
      Nevada, MO 
      Experience:
      44+ years
      Languages Spoken:
      English
      Accepting New Patients

      Russell Kemm is a primary care provider, practicing in Family Medicine in Nevada, Missouri. Dr. Kemm has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Chronic Obstructive Pulmonary Disease (COPD), Perianal Streptococcal Cellulitis, Type 2 Diabetes (T2D), and Lung Metastases. Dr. Kemm is currently accepting new patients.

      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology | Hospital Medicine
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology | Hospital Medicine

      The Curators Of The University Of Missouri

      1 Hospital Dr, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Rahul Jain is a Cardiac Electrophysiologist and a Cardiologist in Columbia, Missouri. Dr. Jain is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Ectopic Heartbeat, Atrial Fibrillation, Arrhythmias, Cardiomyopathy, and Cardiac Ablation. Dr. Jain is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Maria Duque-Lasio is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Duque-Lasio is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, Fabry Disease, and Williams Syndrome. Dr. Duque-Lasio is currently accepting new patients.

      Experienced in Danon Disease
      Pulmonary Medicine | Anesthesiology | Intensive Care Medicine
      Experienced in Danon Disease
      Pulmonary Medicine | Anesthesiology | Intensive Care Medicine

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Soophia Naydenov is a Pulmonary Medicine specialist and an Anesthesiologist in Saint Louis, Missouri. Dr. Naydenov is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pneumonia, Stridor, Lung Metastases, Thrombectomy, and Endoscopy. Dr. Naydenov is currently accepting new patients.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      University Health Physicians

      2301 Holmes St, 
      Kansas City, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Anthony Makovec is a primary care provider, practicing in Internal Medicine in Kansas City, Missouri. Dr. Makovec is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Pompe Disease. Dr. Makovec is currently accepting new patients.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Ssm Health Care Group

      10101 Woodfield Ln, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Stephen Braddock is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Braddock is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Chromosome 20 Trisomy, Coloboma, Cerebellar Hypoplasia, and CHARGE Syndrome. Dr. Braddock is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Washington University

      4921 Parkview Pl, Suite 6c, 
      Saint Louis, MO 
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Muhammad Al-Lozi is a Neurologist in Saint Louis, Missouri. Dr. Al-Lozi is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Myotonia Congenita, Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Gastrostomy. Dr. Al-Lozi is currently accepting new patients.

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine

      Mercy Clinic East Communities

      1820 Zumbehl Rd, Suite 120, 
      Saint Charles, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Houser is a primary care provider, practicing in Family Medicine in Saint Charles, Missouri. Dr. Houser is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Sitosterolemia, Type 2 Diabetes (T2D), Hypertension, and Familial Hypertension. Dr. Houser is currently accepting new patients.

      Experienced in Danon Disease
      Pediatrics | Medical Genetics
      Experienced in Danon Disease
      Pediatrics | Medical Genetics

      The Childrens Mercy Hospital

      2401 Gillham Rd, 
      Kansas City, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Gannon is a Pediatrics specialist and a Medical Genetics provider in Kansas City, Missouri. Dr. Gannon is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Phenylketonuria (PKU), Dihydropteridine Reductase Deficiency, Maternal Hyperphenylalaninemia, and Propionic Acidemia. Dr. Gannon is currently accepting new patients.

      Experienced in Danon Disease
      Family Medicine
      Experienced in Danon Disease
      Family Medicine

      Robbins Family Healthcare LLC

      115 S Wood Ave, 
      Fredericktown, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Robbins is a primary care provider, practicing in Family Medicine in Fredericktown, Missouri. Dr. Robbins is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Acute Cystitis, Emphysema, Cirrhosis, and Bullae. Dr. Robbins is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Neurology | Neurology
      Experienced in Danon Disease
      Pediatric Neurology | Neurology

      Washington University

      4455 Duncan Ave, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Craig Zaidman is a Pediatric Neurologist and a Neurologist in Saint Louis, Missouri. Dr. Zaidman is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), and Primary Lateral Sclerosis. Dr. Zaidman is currently accepting new patients.

      Showing 1-14 of 14

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Missouri, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Missouri, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in Missouri, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Missouri, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Missouri, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Missouri, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Missouri, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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