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    Last Updated: 10/30/2025

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    MediFind found 55 doctor with experience in Danon Disease near New York, US. Of these, 47 are Experienced, 5 are Advanced and 3 are Distinguished.

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    LocationClose
    55 providers found
      Experienced in Danon Disease
      Experienced in Danon Disease

      New York University

      560 1st Ave, 
      New York, NY 
      Languages Spoken:
      English

      Muhamed Saric is a Cardiologist in New York, New York. Dr. Saric is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Heart Tumor, Aortic Regurgitation, Aortic Valve Replacement, and Thrombectomy.

      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology

      New York University

      550 1st Ave, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Larry Chinitz is a Cardiac Electrophysiologist and a Cardiologist in New York, New York. Dr. Chinitz is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology

      New York University

      560 1st Ave, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Anthony Aizer is a Cardiac Electrophysiologist and a Cardiologist in New York, New York. Dr. Aizer is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation.

      Learn about our expert tiers
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      1111 Amsterdam Ave, 
      New York, NY 
      Languages Spoken:
      English

      Adaya Weissler-Snir is a Cardiac Electrophysiologist and a Cardiologist in New York, New York. Dr. Weissler-Snir is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Sengers Syndrome, Pacemaker Implantation, and Transcatheter Aortic Valve Replacement (TAVR).

      Distinguished in Danon Disease
      Hematology Oncology
      Distinguished in Danon Disease
      Hematology Oncology
      1275 York Ave, Department Of Medicine, 
      New York, NY 
      Languages Spoken:
      English

      Gaurav Shah is a Hematologist Oncology provider in New York, New York. Dr. Shah is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Leukocyte Adhesion Deficiency Type 1, Acute Promyelocytic Leukemia, and Leukemia.

      Distinguished in Danon Disease
      Medical Genetics | Pediatrics
      Distinguished in Danon Disease
      Medical Genetics | Pediatrics

      Icahn School Of Medicine At Mount Sinai

      1428 Madison Ave, 
      New York, NY 
      Languages Spoken:
      English

      Jaya Ganesh is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Ganesh is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Pompe Disease, and Fabry Disease.

      Distinguished in Danon Disease
      Hematology | Oncology
      Distinguished in Danon Disease
      Hematology | Oncology
      1999 Marcus Avenue, Suite 306, 
      New Hyde Park, NY 
      Languages Spoken:
      English

      Richard Forte is a Hematologist and an Oncologist in New Hyde Park, New York. Dr. Forte is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Schnitzler Syndrome, Monoclonal Gammopathy of Undetermined Significance (MGUS), and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

      Advanced in Danon Disease
      Advanced in Danon Disease

      Albany Medical Center

      43 New Scotland Ave., James J. Barba Physicians Pavilion (A Building), Floor 1, Suite 70, 
      Albany, NY 
      Languages Spoken:
      English
      Accepting New Patients

      Matthew Murnane is a Neurologist in Albany, New York. Dr. Murnane is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hereditary Sensory Neuropathy Type 1 (HSN1), Andermann Syndrome, Sensorimotor Polyneuropathy, and Septic Arthritis. Dr. Murnane is currently accepting new patients.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Albany Medical College

      22 New Scotland Ave, 
      Albany, NY 
      Languages Spoken:
      English

      Carlos Mares-Beltran is a Medical Genetics specialist and a Pediatrics provider in Albany, New York. Dr. Mares-Beltran is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Mucolipidosis 3, Dihydropteridine Reductase Deficiency, Maternal Hyperphenylalaninemia, and Chromosome 6 Uniparental Disomy.

      Advanced in Danon Disease
      Advanced in Danon Disease

      University Of Rochester

      738 Library Rd, 
      Rochester, NY 
      Languages Spoken:
      English

      Emma Ciafaloni is a Neurologist in Rochester, New York. Dr. Ciafaloni is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Thymectomy.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Pediatric Service Group

      750 E Adams St, Fl 3, 
      Syracuse, NY 
      Languages Spoken:
      English

      Joan Pellegrino is a Medical Genetics specialist and a Pediatrics provider in Syracuse, New York. Dr. Pellegrino is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Krabbe Disease, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Multiple Sulfatase Deficiency.

      Advanced in Danon Disease
      Family Medicine
      Advanced in Danon Disease
      Family Medicine

      Familycare Medical Group PC

      5844 Widewaters Pkwy, 
      East Syracuse, NY 
      Languages Spoken:
      English

      Digant Nanavati is a primary care provider, practicing in Family Medicine in East Syracuse, New York. Dr. Nanavati is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Vitamin D Deficiency, High Cholesterol, Type 2 Diabetes (T2D), and Glucocorticoid-Remediable Aldosteronism.

      Jessica Gold
      Experienced in Danon Disease
      Medical Genetics
      Experienced in Danon Disease
      Medical Genetics
      225 Community Drive, Suite 110, 
      Great Neck, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Jessica Gold is a Medical Genetics provider in Great Neck, New York. Dr. Gold is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Gaucher Disease, Gaucher Disease Type 3, Gaucher Disease Type 1, and Gaucher Disease Type 2.

      Emma C. Laureta
      Experienced in Danon Disease
      Pediatric Neurology
      Experienced in Danon Disease
      Pediatric Neurology

      Cohen Children's Northwell Health Physician Partners Pediatric Neurology

      2001 Marcus Avenue, Suite W290, 
      Lake Success, NY 
      Languages Spoken:
      English, Filipino

      Emma Laureta is a Pediatric Neurologist in Lake Success, New York. Dr. Laureta is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Epilepsy Juvenile Absence, and Epilepsy.

      Melissa P. Wasserstein
      Experienced in Danon Disease
      Experienced in Danon Disease

      The Children's Hospital At Montefiore

      3415 Bainbridge Avenue, 
      Bronx, NY 
      Languages Spoken:
      English

      Melissa Wasserstein is a Pediatrics provider in Bronx, New York. Dr. Wasserstein is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Reticulohistiocytoma, and Splenomegaly.

      David H. Tegay
      Experienced in Danon Disease
      Medical Genetics
      Experienced in Danon Disease
      Medical Genetics
      225 Community Drive, Suite 110, 
      Great Neck, NY 
      Languages Spoken:
      English

      David Tegay is a Medical Genetics provider in Great Neck, New York. Dr. Tegay is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are KBG Syndrome, Gaucher Disease, Gaucher Disease Type 2, and Gaucher Disease Type 1.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology

      Department Of Medicine Medical Serv Grp At Suny Hlth Sci Ctr Syr In

      750 E Adams St, 
      Syracuse, NY 
      Languages Spoken:
      English

      Rahul Seth is a Hematologist Oncology specialist and a Hematologist in Syracuse, New York. Dr. Seth is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Undifferentiated Pleomorphic Sarcoma, Gastrointestinal Stromal Tumor, Large-Cell Immunoblastic Lymphoma, and Familial Pancreatic Cancer.

      Experienced in Danon Disease
      Medical Genetics | Pediatrics
      Experienced in Danon Disease
      Medical Genetics | Pediatrics

      Trustees Of Columbia University In The City Of New York

      161 Fort Washington Ave, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Alejandro Iglesias is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Iglesias is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Hypotonia, Microcephaly, Achalasia Microcephaly Syndrome, and Cortical Dysplasia.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology

      Mvhs Inc

      1676 Sunset Ave, 
      Utica, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Samir Desai is a Hematologist Oncology specialist and a Hematologist in Utica, New York. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Myelodysplastic Syndrome (MDS), Philadelphia-Negative Chronic Myeloid Leukemia, Chronic Myelogenous Leukemia (CML), Familial Colorectal Cancer, and Bone Marrow Aspiration.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Northeast Medical Group, PLLC

      101 Theall Rd, 
      Rye, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Franklin Loria is a primary care provider, practicing in Internal Medicine in Rye, New York. Dr. Loria is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Dementia, Osteoporosis, Postmenopausal Osteoporosis, and Heart Failure.

      Showing 1-20 of 55

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in New York, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in New York, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in New York, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in New York, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in New York, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in New York, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in New York, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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