The 20 Best Danon Disease Doctors Near Me in Pennsylvania, US

Find the Top Danon Disease Experts and Specialists

The 20 Best Danon Disease Doctors in Pennsylvania, US

Last Updated: 02/22/2026

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MediFind found 35 doctor with experience in Danon Disease near Pennsylvania, US. Of these, 25 are Experienced, 8 are Advanced and 2 are Distinguished.

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35 providers found
    Jay D. Varrato
    Distinguished in Danon Disease
    Distinguished in Danon Disease

    LVH Neurology-1250 Cedar Crest

    1250 S Cedar Crest Blvd, Suite 405, 
    Allentown, PA 
    Languages Spoken:
    English

    Jay Varrato is a Neurologist in Allentown, Pennsylvania. Dr. Varrato is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Pompe Disease, Epilepsy, and Myasthenia Gravis.

    Cheri A. Fadlon
    Distinguished in Danon Disease
    Distinguished in Danon Disease

    LVH Cardiology-1250 Cedar Crest

    1250 S Cedar Crest Blvd, Suite 300, 
    Allentown, PA 
    Languages Spoken:
    English

    Cheri Fadlon is a Cardiologist in Allentown, Pennsylvania. Dr. Fadlon is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Pompe Disease, Danon Disease, and Ectopic Heartbeat.

    Paula R. Clemens
    Advanced in Danon Disease
    Neuromusculoskeletal Medicine
    Advanced in Danon Disease
    Neuromusculoskeletal Medicine

    UPMC Department Of Neurology

    3471 5th Avenue, Suite 810, 
    Pittsburgh, PA 
    Languages Spoken:
    English

    Paula Clemens, MD, is a neurologist certified by the American Board of Psychiatry and Neurology. She is chief of the Division of Veterans Affairs and a professor of Neurology, Molecular Genetics and Biochemistry, Human Genetics, and Pediatrics at the University of Pittsburgh School of Medicine. She received her medical degree from the Medical College of Pennsylvania and completed her residency at Dartmouth-Hitchcock Medical Center, followed by a neuromuscular fellowship at Mayo Clinic and a molecular genetics fellowship at Baylor College of Medicine. Dr. Clemens is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Pompe Disease, and Myotonic Dystrophy.

    Learn about our expert tiers
    Experienced in Danon Disease
    Experienced in Danon Disease

    St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    . Dr. Narumanchi is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Urea Cycle Disorders (UCD), Phenylketonuria (PKU), Dihydropteridine Reductase Deficiency, and Maternal Hyperphenylalaninemia.

    Advanced in Danon Disease
    Neurology
    Advanced in Danon Disease
    Neurology

    Penn Neuroscience Center - Neurology

    3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Colin Quinn is a Neurologist in Philadelphia, Pennsylvania. Dr. Quinn is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Inclusion Body Myositis, Progressive Hemifacial Atrophy, and Gastrostomy. Dr. Quinn is currently accepting new patients.

    Mathieu Cuchanski
    Experienced in Danon Disease
    Experienced in Danon Disease

    Geisinger Wyoming Valley Medical Office Building - Neurophysiology

    950 East Mountain Boulevard, 
    Wilkes Barre, PA 
    Languages Spoken:
    English

    Mathieu Cuchanski, DO, is a neurologist who specializes in treating people with neuromuscular diseases such as peripheral neuropathy, myopathy, muscular dystrophy and myasthenia gravis. He also treats people for a rare neurological disease called amyotrophic lateral sclerosis.|Originally from Bucks County, Pa., Dr. Cuchanski moved to this area to be close to family. “I also moved here because I really enjoyed the relationships I developed while I was a resident in training at Geisinger,” he says.|Dr. Cuchanski earned his Doctor of Osteopathic Medicine degree from the Philadelphia College of Osteopathic Medicine. He completed his general adult neurology residency at Geisinger Medical Center and a fellowship in neuromuscular medicine at the Cleveland Clinic. In his spare time, he enjoys cooking, cycling and spending time with his friends and family. Dr. Cuchanski is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Sensorimotor Polyneuropathy, Pompe Disease, Danon Disease, and Paraplegia.

    Yasotha Rajeswaran
    Experienced in Danon Disease
    Experienced in Danon Disease

    LVH Cardiology-1250 Cedar Crest

    1250 S Cedar Crest Blvd, Suite 300, 
    Allentown, PA 
    Languages Spoken:
    English, Tamil

    Yasotha Rajeswaran is a Cardiologist in Allentown, Pennsylvania. Dr. Rajeswaran is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Atrial Fibrillation, His Bundle Tachycardia, Paroxysmal Supraventricular Tachycardia (PSVT), Cardiac Ablation, and Pacemaker Implantation.

    Bruce A. Feldman
    Experienced in Danon Disease
    Experienced in Danon Disease

    LVH Cardiology-1250 Cedar Crest

    1250 S Cedar Crest Blvd, Suite 300, 
    Allentown, PA 
    Languages Spoken:
    English

    Bruce Feldman is a Cardiologist in Allentown, Pennsylvania. Dr. Feldman is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Arrhythmias, Heart Failure, Heart Attack, Pacemaker Implantation, and Cardiac Ablation.

    Apurva V. Vyas
    Experienced in Danon Disease
    Experienced in Danon Disease

    LVH Cardiology-1250 Cedar Crest

    1250 S Cedar Crest Blvd, Suite 300, 
    Allentown, PA 
    Languages Spoken:
    English, Gujarati , Hindi

    Philosophy of care | The opportunity to care for patients is a privilege. My goal is to provide compassionate, patient-centered care that is both evidence-based and individualized to fit each specific person's unique situation. I aim to treat patients in the same way I would treat my own family. | Why I entered medicine | I became interested in medicine as a hospital volunteer during my early teens, seeing doctor-patient relationships and being able to connect with patients during vulnerable times. Medicine allowed me to connect interests of both humanities and sciences. The opportunity to take care of patients in both preventative and therapeutic capacities is both challenging and satisfying. | Personal interests | I spend time with family and friends. Dr. Vyas is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Attack, Cardiogenic Shock, Apoplexy, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

    Raghava R. Veera
    Experienced in Danon Disease
    Oncology | Hematology | Hematology Oncology
    Experienced in Danon Disease
    Oncology | Hematology | Hematology Oncology

    Sidney Kimmel Comprehensive Cancer Center — Bucks

    380 North Oxford Valley Road, Suite 150, 
    Langhorne, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Raghava Veera is a Hematologist and a Hematologist Oncology provider in Langhorne, Pennsylvania. Dr. Veera is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Anal Cancer, Lynch Syndrome, Lymphofollicular Hyperplasia, and Multiple Myeloma. Dr. Veera is currently accepting new patients.

    Damara Ortiz
    Experienced in Danon Disease
    Pediatrics
    Experienced in Danon Disease
    Pediatrics

    Medical Genetics Metabolic In Lawrenceville

    4401 Penn Avenue, 
    Pittsburgh, PA 
    Languages Spoken:
    English

    Damara Ortiz, MD, specializes in medical genetics and pediatric genetics and genomics and is board-certified in pediatrics by the American Board of Pediatrics and clinical genetics by the American Board of Medical Genetics and Genomics. She is affiliated with UPMC Children's Hospital of Pittsburgh, UPMC Magee-Womens Hospital and UPMC Presbyterian. Dr. Ortiz completed her fellowship at Icahn School of Medicine at Mount Sinai, residency at NYU Langone Medical Center and medical degree from the University of Medicine and Dentistry of New Jersey Robert Wood Johnson Medical School. Dr. Ortiz is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Fabry Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Gaucher Disease Type 1.

    Sharlene M. Day
    Experienced in Danon Disease
    Experienced in Danon Disease

    Penn Heart And Vascular Center

    3400 Civic Center Boulevard, East Pavilion, 2nd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Sharlene Day is a Cardiologist in Philadelphia, Pennsylvania. Dr. Day is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Orchiectomy, and Heart Transplant. Dr. Day is currently accepting new patients.

    Ryan S. D'souza
    Advanced in Danon Disease
    Family Medicine
    Advanced in Danon Disease
    Family Medicine

    UPMC Primary Care

    805 Sir Thomas Court, Suite 2, 
    Harrisburg, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ryan D’Souza, DO, is a primary care provider with PinnacleHealth FamilyCare Union Deposit. He received his medical degree from the Philadelphia College of Osteopathic Medicine and completed his residency at UPMC in Central Pa.Dr. D'Souza’s clinical interests include mental health, cardiovascular and diabetes management, and he is a member of the Pennsylvania Osteopathic Medical Association, the American College of Physicians, the Christian Medical and Dental Association, and the American College of Osteopathic Family Physicians.Outside of medicine, he enjoys spending time with family, weightlifting, playing ice hockey and basketball, reading, writing poetry, and traveling. Dr. D'souza is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Chronic Pain, Acute Pain, Complex Regional Pain Syndrome, Bone Marrow Aspiration, and Knee Replacement.

    John W. Peters
    Advanced in Danon Disease
    Family Medicine
    Advanced in Danon Disease
    Family Medicine

    LVPG Family Medicine-Trexlertown

    6900 Hamilton Blvd, PO Box 127, 
    Trexlertown, PA 
    Languages Spoken:
    English
    Offers Telehealth

    Philosophy of care | I emphasize preventive medicine and making patients an active participant in their health care. Seeing the results of treatment plans succeed and improve patients' quality of life is the most enjoyable part of my job. | Why I entered medicine | I was always fascinated by the function of the human body and its ability to maintain and restore health. | Personal interests | I enjoy spending time with my family, exercising and outdoor recreation. Dr. Peters is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Pompe Disease, Bronchitis, and Tenosynovitis.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Office

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Carol Wittlieb is a Pediatric Cardiologist in Philadelphia, Pennsylvania. Dr. Wittlieb is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Duchenne Muscular Dystrophy, Cardiomyopathy, Becker Muscular Dystrophy, Congenital Heart Disease (CHD), and Heart Transplant.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Perelman Center For Advanced Medicine South Pavilion, 2nd Floor

    3400 Civic Center Boulevard, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chafic Karam is a Neurologist in Philadelphia, Pennsylvania. Dr. Karam is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Transthyretin Amyloidosis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Tissue Biopsy, and Laminectomy. Dr. Karam is currently accepting new patients.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Children's Hospital Of Philadelphia

    3401 Civic Center Blvd, 
    Philadelphia,, PA 
    Languages Spoken:
    English

    Amanda Shillingford is a Pediatric Cardiologist in Philadelphia,, Pennsylvania. Dr. Shillingford is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Heterotaxy Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Coarctation of the Aorta.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Penn State Health Medical Group-Hope Drive Radiology

    30 Hope Dr, 
    Hershey, PA 
    Languages Spoken:
    English

    Sankar Bandyopadhyay is a Neurologist in Hershey, Pennsylvania. Dr. Bandyopadhyay is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Myasthenia Gravis, Congenital Fiber-Type Disproportion, Benign Autosomal Dominant Myopathy, and Tubular Aggregate Myopathy.

    Experienced in Danon Disease
    Neurology
    Experienced in Danon Disease
    Neurology

    Temple University Hospital

    3401 N Broad St, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Jin Luo is a Neurologist in Philadelphia, Pennsylvania. Dr. Luo is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Brown-Sequard Syndrome, Gaucher Disease, Gaucher Disease Type 2, and Gaucher Disease Type 3.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Office

    3401 Civic Center Blvd, 
    Philadelphia,, PA 
    Languages Spoken:
    English

    Jonathan Edelson is a Pediatric Cardiologist in Philadelphia,, Pennsylvania. Dr. Edelson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Congenital Heart Disease (CHD), Heart Failure, Cardiomyopathy, Heart Transplant, and Gastrostomy.

    Showing 1-20 of 35

    Last Updated: 02/22/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor in Pennsylvania, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor in Pennsylvania, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors in Pennsylvania, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors in Pennsylvania, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor in Pennsylvania, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor in Pennsylvania, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors in Pennsylvania, US?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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