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    Last Updated: 10/30/2025

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    MediFind found 36 doctor with experience in Danon Disease near Pennsylvania, US. Of these, 27 are Experienced, 7 are Advanced and 2 are Distinguished.

    Location
    LocationClose
    36 providers found
      Experienced in Danon Disease
      Experienced in Danon Disease

      Lehigh Valley Physician Group

      1250 S Cedar Crest Blvd, 300 Lvpg Cardiology, 
      Allentown, PA 
      Experience:
      17+ years
      Languages Spoken:
      English

      Apurva Vyas is a Cardiologist in Allentown, Pennsylvania. Dr. Vyas has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Attack, Cardiogenic Shock, Apoplexy, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

      Distinguished in Danon Disease
      Distinguished in Danon Disease

      Lehigh Valley Physician Group

      1200 S Cedar Crest Blvd, 
      Allentown, PA 
      Languages Spoken:
      English

      Jay Varrato is a Neurologist in Allentown, Pennsylvania. Dr. Varrato is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Pompe Disease, Epilepsy, and Myasthenia Gravis.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Danon Disease
      Distinguished in Danon Disease

      Lehigh Valley Physician Group

      1250 S Cedar Crest Blvd, 300 Lvpg Cardiology, 
      Allentown, PA 
      Languages Spoken:
      English

      Cheri Silverstein-Fadlon is a Cardiologist in Allentown, Pennsylvania. Dr. Silverstein-Fadlon is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Danon Disease, Pompe Disease, and Ectopic Heartbeat.

      Learn about our expert tiers
      Sonya M. John
      Experienced in Danon Disease
      Experienced in Danon Disease

      UPMC Heart And Vascular Institute

      400 Oxford Drive, Suite 75, 
      Monroeville, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Sonya Maryliz John, MD, specializes in cardiology and is board-certified in internal medicine by the American Board of Internal Medicine and echocardiography by the National Board of Echocardiography. She is affiliated with UPMC East. Dr. John completed her fellowship and residency at UC San Diego Department of Medicine and medical degree at The Ohio State University. Dr. John is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top area of expertise is Danon Disease.

      Ryan S. D'souza
      Advanced in Danon Disease
      Family Medicine
      Advanced in Danon Disease
      Family Medicine

      UPMC Primary Care

      805 Sir Thomas Court, Suite 2, 
      Harrisburg, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ryan D’Souza, DO, is a primary care provider with PinnacleHealth FamilyCare Union Deposit. He received his medical degree from the Philadelphia College of Osteopathic Medicine and completed his residency at UPMC in Central Pa. Dr. D'Souza’s clinical interests include mental health, cardiovascular and diabetes management, and he is a member of the Pennsylvania Osteopathic Medical Association, the American College of Physicians, the Christian Medical and Dental Association, and the American College of Osteopathic Family Physicians. Outside of medicine, he enjoys spending time with family, weightlifting, playing ice hockey and basketball, reading, writing poetry, and traveling. Dr. D'souza is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Chronic Pain, Acute Pain, Complex Regional Pain Syndrome, Bone Marrow Aspiration, and Vertebroplasty.

      Paula R. Clemens
      Advanced in Danon Disease
      Neuromusculoskeletal Medicine
      Advanced in Danon Disease
      Neuromusculoskeletal Medicine

      UPMC Department Of Neurology

      3471 5th Avenue, Suite 810, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Paula Clemens, MD, is a neurologist certified by the American Board of Psychiatry and Neurology. She is chief of the Division of Veterans Affairs and a professor of Neurology, Molecular Genetics and Biochemistry, Human Genetics, and Pediatrics at the University of Pittsburgh School of Medicine. She received her medical degree from the Medical College of Pennsylvania and completed her residency at Dartmouth-Hitchcock Medical Center, followed by a neuromuscular fellowship at Mayo Clinic and a molecular genetics fellowship at Baylor College of Medicine. Dr. Clemens is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Pompe Disease, and Myotonic Dystrophy Type 2.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics | Physiatry
      Advanced in Danon Disease
      Medical Genetics | Pediatrics | Physiatry

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Can Ficicioglu is a Medical Genetics specialist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Ficicioglu is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Classic Galactosemia, Urea Cycle Disorders (UCD), Galactose Epimerase Deficiency, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome).

      Advanced in Danon Disease
      Neurology
      Advanced in Danon Disease
      Neurology

      Penn Neuroscience Center - Neurology

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Colin Quinn is a Neurologist in Philadelphia, Pennsylvania. Dr. Quinn is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Inclusion Body Myositis, Progressive Hemifacial Atrophy, and Gastrostomy. Dr. Quinn is currently accepting new patients.

      Advanced in Danon Disease
      Medical Genetics
      Advanced in Danon Disease
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Staci Kallish is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Kallish is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, Fabry Disease, and Neurofibromatosis. Dr. Kallish is currently accepting new patients.

      Advanced in Danon Disease
      Family Medicine
      Advanced in Danon Disease
      Family Medicine

      Lehigh Valley Physician Group

      6900 Hamilton Blvd, 
      Trexlertown, PA 
      Languages Spoken:
      English

      John Peters is a primary care provider, practicing in Family Medicine in Trexlertown, Pennsylvania. Dr. Peters is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Pompe Disease, Bronchitis, and Melorheostosis.

      Advanced in Danon Disease
      Advanced in Danon Disease

      Penn State Neuroscience Institute

      30 Hope Dr, Suite 1300 | Entrance B, 
      Hershey, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Zachary Simmons is a Neurologist in Hershey, Pennsylvania. Dr. Simmons is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Gastrostomy. Dr. Simmons is currently accepting new patients.

      Damara Ortiz
      Experienced in Danon Disease
      Pediatrics
      Experienced in Danon Disease
      Pediatrics

      Medical Genetics Metabolic In Lawrenceville

      4401 Penn Avenue, 
      Pittsburgh, PA 
      Languages Spoken:
      English

      Damara Ortiz, MD, specializes in medical genetics and pediatric genetics and genomics and is board-certified in pediatrics by the American Board of Pediatrics and clinical genetics by the American Board of Medical Genetics and Genomics. She is affiliated with UPMC Children's Hospital of Pittsburgh, UPMC Magee-Womens Hospital and UPMC Presbyterian. Dr. Ortiz completed her fellowship at Icahn School of Medicine at Mount Sinai, residency at NYU Langone Medical Center and medical degree from the University of Medicine and Dentistry of New Jersey Robert Wood Johnson Medical School. Dr. Ortiz is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Fabry Disease, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, and Gaucher Disease Type 2.

      Sharlene M. Day
      Experienced in Danon Disease
      Experienced in Danon Disease

      Penn Heart And Vascular Center

      3400 Civic Center Boulevard, East Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Sharlene Day is a Cardiologist in Philadelphia, Pennsylvania. Dr. Day is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Familial Hypertrophic Cardiomyopathy, Orchiectomy, and Heart Transplant. Dr. Day is currently accepting new patients.

      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology
      Experienced in Danon Disease
      Pediatric Cardiology | Cardiology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Carol Wittlieb is a Pediatric Cardiologist and a Cardiologist in Philadelphia, Pennsylvania. Dr. Wittlieb is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Duchenne Muscular Dystrophy, Cardiomyopathy, Becker Muscular Dystrophy, Familial Dilated Cardiomyopathy, and Heart Transplant.

      Experienced in Danon Disease
      Experienced in Danon Disease

      The Milton S Hershey Medical Center Physicians Group

      30 Hope Dr, Suite 1300, 
      Hershey, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Xiaowei Su is a Neurologist in Hershey, Pennsylvania. Dr. Su is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

      Experienced in Danon Disease
      Pediatrics | Medical Genetics
      Experienced in Danon Disease
      Pediatrics | Medical Genetics

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Rebecca Ahrens-Nicklas is a Pediatrics specialist and a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Ahrens-Nicklas is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Multiple Sulfatase Deficiency, Cardiomyopathic Lentiginosis, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, and Noonan Syndrome.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Penn Personalized Care - Rosemary Kearney, MD

      800 Walnut Street, 17th Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Rosemary Kearney is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Kearney is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Enlarged Prostate (BPH), Chronic Cough, Danon Disease, and Pompe Disease.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine
      800 Spruce St, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Tarek Khedro is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Khedro is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Opisthotonos, Danon Disease, COVID-19, and Head Lice.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Perelman Center For Advanced Medicine South Pavilion, 2nd Floor

      3400 Civic Center Boulevard, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Chafic Karam is a Neurologist in Philadelphia, Pennsylvania. Dr. Karam is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Transthyretin Amyloidosis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Multifocal Motor Neuropathy, and Laminectomy. Dr. Karam is currently accepting new patients.

      Experienced in Danon Disease
      Neurology | Nephrology
      Experienced in Danon Disease
      Neurology | Nephrology

      Regional Health Services Inc

      3406 Peach St, 
      Erie, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Jeffrey Esper is a Neurologist and a Nephrologist in Erie, Pennsylvania. Dr. Esper is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Epilepsy with Myoclonic-Atonic Seizures, Myoclonic Epilepsy, and West Syndrome.

      Showing 1-20 of 36

      Last Updated: 10/30/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Pennsylvania, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Pennsylvania, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in Pennsylvania, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Pennsylvania, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Pennsylvania, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Pennsylvania, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Pennsylvania, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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