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    Last Updated: 01/09/2026

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    MediFind found 14 doctor with experience in Danon Disease near Virginia, US. Of these, 10 are Experienced and 4 are Advanced.

    Location
    LocationClose
    14 providers found
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      1215 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Offers Telehealth

      William Wilson is a Medical Genetics specialist and a Pediatrics provider in Charlottesville, Virginia. Dr. Wilson is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, Pompe Disease, and Danon Disease.

      Advanced in Danon Disease
      Internal Medicine
      Advanced in Danon Disease
      Internal Medicine

      Winchester Internal Medicine, Inc

      190 Campus Blvd, Suite 200, 
      Winchester, VA 
      Languages Spoken:
      English
      Offers Telehealth

      William Brink is a primary care provider, practicing in Internal Medicine in Winchester, Virginia. Dr. Brink is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are High Cholesterol, Sitosterolemia, Maturity Onset Diabetes of the Young, Endoscopy, and Pacemaker Implantation.

      Advanced in Danon Disease
      Advanced in Danon Disease
      1101 E Marshall St, Po 980033, 
      Richmond, VA 
      Languages Spoken:
      English
      Accepting New Patients

      Raymond Lewandowski is a Medical Genetics provider in Richmond, Virginia. Dr. Lewandowski is rated as an Advanced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Brittle Cornea Syndrome, Vascular Ehlers-Danlos Syndrome (VEDS), Increased Head Circumference, and Danon Disease. Dr. Lewandowski is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Danon Disease
      Neurology
      Advanced in Danon Disease
      Neurology

      Sentara Neurology Specialists

      2006 Health Campus Dr, 
      Rockingham, VA 
      Languages Spoken:
      English
      Offers Telehealth

      Zsofia Hole is a Neurologist in Rockingham, Virginia. Dr. Hole is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Peripheral Neuropathy, Seizures, Restless Legs Syndrome, and Migraine.

      Ronald Stine
      Experienced in Danon Disease
      Interventional Cardiology
      Experienced in Danon Disease
      Interventional Cardiology

      Sentara Cardiology Specialists

      2075 Glenn Mitchell Dr Ste 400, 
      Virginia Beach,, VA 
      Languages Spoken:
      English
      Offers Telehealth

      Ronald Stine is an Interventional Cardiologist in Virginia Beach,, Virginia. Dr. Stine is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Attack, Angina, Atrial Fibrillation, Angioplasty, and Cardiac Ablation.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology

      Oandw Enterprises

      935 Fairystone Park Hwy, 
      Stanleytown, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Owen Roberts is a Hematologist Oncology specialist and a Hematologist in Stanleytown, Virginia. Dr. Roberts is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Neuroendocrine Tumor, Angiosarcoma, Breast Cancer, and Paget Disease of the Breast. Dr. Roberts is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Sentara Medical Group

      301 Monticello Ave, 
      Williamsburg, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Andrew Galbreath is a Neurologist in Williamsburg, Virginia. Dr. Galbreath is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy Type 3. Dr. Galbreath is currently accepting new patients.

      Experienced in Danon Disease
      Pediatrics | General Practice
      Experienced in Danon Disease
      Pediatrics | General Practice
      11212 Waples Mill Rd, Suite 103, 
      Fairfax, VA 
      Languages Spoken:
      English, Spanish, Turkish
      Accepting New Patients

      Ozlem Goker-Alpan is a primary care provider, a Pediatrics specialist and a General Practice provider in Fairfax, Virginia. Dr. Goker-Alpan is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Gaucher Disease, Fabry Disease, Gaucher Disease Type 1, Gaucher Disease Type 3, and Splenectomy. Dr. Goker-Alpan is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      University Of Virginia Physicians Group

      1215 Lee St, 
      Charlottesville, VA 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sarah Jones is a Neurologist in Charlottesville, Virginia. Dr. Jones has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Myasthenia Gravis, Migraine, Inclusion Body Myositis, and Hereditary Sensory Neuropathy Type 1 (HSN1). Dr. Jones is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Uva Specialty Care-Augusta

      57 Beam Ln Ste 205, 
      Fishersville,, VA 
      Languages Spoken:
      English

      John Zadrozny is a Cardiologist in Fishersville,, Virginia. Dr. Zadrozny is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Ectopic Heartbeat, and Catecholaminergic Polymorphic Ventricular Tachycardia.

      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Mcv Associated Physicians

      417 N 11th St, 
      Richmond, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Melissa Smallfield is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Richmond, Virginia. Dr. Smallfield is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Heart Failure, Pulmonary Edema, Hypertensive Heart Disease, Heart Transplant, and Endoscopy. Dr. Smallfield is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      Mayo Clinic-Rochester

      5716 Cleveland St Ste 200, 
      Virginia Beach, VA 
      Languages Spoken:
      English

      Ernest Hoffman is a Neurologist in Virginia Beach, Virginia. Dr. Hoffman is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Bon Secours Memorial Regional Medical Center LLC

      4620 S Laburnum Ave, 
      Richmond, VA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Brian Foster is a primary care provider, practicing in Internal Medicine in Richmond, Virginia. Dr. Foster is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Dementia, Hypertension, Glucocorticoid-Remediable Aldosteronism, Cardiac Ablation, and Hip Replacement. Dr. Foster is currently accepting new patients.

      Experienced in Danon Disease
      Experienced in Danon Disease

      VCU Health - Ambulatory Care Center

      417 N. 11th Street, 
      Richmond, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kelly Gwathmey is a Neurologist in Richmond, Virginia. Dr. Gwathmey is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Chronic Inflammatory Demyelinating Polyneuropathy, Gastrostomy, and Tissue Biopsy. Dr. Gwathmey is currently accepting new patients.

      Showing 1-14 of 14

      Last Updated: 01/09/2026

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor in Virginia, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor in Virginia, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors in Virginia, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors in Virginia, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor in Virginia, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor in Virginia, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors in Virginia, US?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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