MediFind found 468 doctor with experience in Koolen De Vries Syndrome near Michigan, US. Of these, 405 are Experienced, 62 are Advanced and 1 are Distinguished.
Macomb Medical Clinic PC
Mark Rosenberg is a primary care provider, practicing in Family Medicine in Sterling Heights, Michigan. Dr. Rosenberg has been practicing medicine for over 39 years and is rated as a Distinguished provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Johanson-Blizzard Syndrome, Woodhouse-Sakati Syndrome, Oculodentodigital Dysplasia Dominant, and Caudal Appendage Deafness. Dr. Rosenberg is currently accepting new patients.
Corewell Health Pediatric Ophthalmology - 35 Michigan St NE
Julie Conley is a Pediatrics provider in Grand Rapids, Michigan. Dr. Conley has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Legius Syndrome, RASopathies, Neurofibromatosis, and Marcus Gunn Phenomenon.
Corewell Health Ear, Nose And Throat - 4069 Lake Dr SE
Chad Afman is a Pediatric Otolaryngologist in Grand Rapids, Michigan. Dr. Afman has been practicing medicine for over 24 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Laryngomalacia, Enlarged Adenoids, CHARGE Syndrome, and Koolen De Vries Syndrome. Dr. Afman is currently accepting new patients.
Corewell Health Pediatric Ophthalmology - 35 Michigan St NE
Brooke Geddie is a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie has been practicing medicine for over 21 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Microphthalmia Syndromic 9, Lenz Microphthalmia Syndrome, Micropthalmia Associated with Colobomatous Cyst, Marcus Gunn Phenomenon, and Vitrectomy.
Michigan Institute For Neurological Disorders (MIND)
Edward Dabrowski is a Physiatrist in Roseville, Michigan. Dr. Dabrowski has been practicing medicine for over 46 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Dabrowski is currently accepting new patients.
Corewell Health Pediatric Neurology - 35 Michigan St NE
Daniel Fain is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Fain has been practicing medicine for over 34 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is currently accepting new patients.
Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd
Danielle Nolan is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Nolan has been practicing medicine for over 15 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, West Syndrome, and Seizures. Dr. Nolan is currently accepting new patients.
Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE
Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Rossetti has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion.
Frank Dipaola is a Pediatric Gastroenterologist and a Gastroenterologist in Ann Arbor, Michigan. Dr. Dipaola is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Biliary Atresia, Alagille Syndrome, Cholestasis, Bile Duct Obstruction, and Liver Transplant. Dr. Dipaola is currently accepting new patients.
University Of Michigan Medical Center
Marion Hofmann is a Cardiologist in Ann Arbor, Michigan. Dr. Hofmann is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Marfan Syndrome, Aortic Dissection, Familial Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation.
University Of Michigan Medical Center
Jimmy Lu is a Pediatric Cardiologist in Ann Arbor, Michigan. Dr. Lu is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Double Discordia, Transposition of the Great Arteries, and Heart Transplant.
Office
Joshua Meisner is a Pediatric Cardiologist in Ann Arbor,, Michigan. Dr. Meisner is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are CHARGE Syndrome, Cardiofaciocutaneous Syndrome, Noonan Syndrome, and Cardiomyopathic Lentiginosis.
University Of Michigan Medical Center
Mark Russell is a Pediatric Cardiologist in Ann Arbor,, Michigan. Dr. Russell is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Congenital Heart Disease (CHD), Hypoplastic Left Heart Syndrome (HLHS), and Patent Foramen Ovale Repair.
University Of Michigan Medical Center
Thor Thorsson is a Pediatric Cardiologist in Ann Arbor,, Michigan. Dr. Thorsson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation.
Pediatric Ophthalmology PC - Cascade Road
Patrick Droste is a Pediatrics provider in Grand Rapids, Michigan. Dr. Droste has been practicing medicine for over 46 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Microphthalmia Syndromic 9, Lenz Microphthalmia Syndrome, Micropthalmia Associated with Colobomatous Cyst, and Retinochoroidal Coloboma. Dr. Droste is currently accepting new patients.
Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd
Rawad Obeid is a Pediatric Neurologist in Royal Oak, Michigan. Dr. Obeid has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Microcephaly, Seizures, and Aicardi Syndrome. Dr. Obeid is currently accepting new patients.
Corewell Health Pediatric Orthopedics - 35 Michigan St NE
Lisa Maskill is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Maskill has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Brachydactyly Type C, Brachydactyly Type B, Liebenberg Syndrome, and Brachydactyly Type A2. Dr. Maskill is currently accepting new patients.
Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE
Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Priestley has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Fabry Disease, Ornithine Transcarbamylase Deficiency, Biotinidase Deficiency, and Multiple Sulfatase Deficiency.
Corewell Health Pediatric Neurodevelopmental - Grand Rapids
Sarah Depas is a Nurse Practitioner in Grand Rapids, Michigan. Ms. Depas has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Koolen De Vries Syndrome, Orofaciodigital Syndrome 6, Lissencephaly 2, and Coach Syndrome. Ms. Depas is currently accepting new patients.
Corewell Health Pediatric Neurodevelopmental - Grand Rapids
Meghan Behrmann is a Pediatrics provider in Grand Rapids, Michigan. Dr. Behrmann has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Delayed Growth, Cardiofaciocutaneous Syndrome, and 15q11.2 Microdeletion. Dr. Behrmann is currently accepting new patients.
Last Updated: 01/09/2026












