The 20 Best Koolen De Vries Syndrome Doctors Near Me in Canton, MI

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 470 doctor with experience in Koolen De Vries Syndrome near Canton, MI. Of these, 407 are Experienced, 62 are Advanced and 1 are Distinguished.

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470 providers found
    Distinguished in Koolen De Vries Syndrome
    Family Medicine
    Distinguished in Koolen De Vries Syndrome
    Family Medicine

    Macomb Medical Clinic PC

    2405 East 14 Mile Road, 
    Sterling Heights, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Rosenberg is a primary care provider, practicing in Family Medicine in Sterling Heights, Michigan. Dr. Rosenberg is rated as a Distinguished provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 154 other conditions, according to our data. His clinical expertise encompasses DK Phocomelia Syndrome, Duane-Radial Ray Syndrome, Hemihyperplasia, and Blepharocheilodontic Syndrome. Dr. Rosenberg is board certified in American Osteopathic Board Of Family Physicians. Dr. Rosenberg is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Helen DeVos Children's Hospital Pulmonary And Sleep Medicine

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Susan Millard is a Pediatric Pulmonologist practicing medicine in Grand Rapids, Michigan. Dr. Millard is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Laryngomalacia, Cystic Fibrosis, Vocal Cord Dysfunction, and Secondary Immunodeficiency (SID). Dr. Millard is board certified in American Board Of Pediatrics, Pediatric Pulmonology - 1992 and American Board Of Pediatrics. Dr. Millard is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Polish
    Accepting New Patients
    Offers Telehealth

    Andrzej Dlugosz is a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Dlugosz is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 88 other conditions, according to our data. His clinical expertise encompasses Cicatricial Pemphigoid, Pemphigus, Bullous Pemphigoid, and Pemphigus Vulgaris. Dr. Dlugosz is board certified in Dermatology. Dr. Dlugosz is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Flat Rock Physicians

    25620 Gibraltar Road, 
    Flat Rock, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Patterson is a primary care provider, practicing in Family Medicine in Flat Rock, Michigan. Dr. Patterson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Glycine Encephalopathy, Hyperlipoproteinemia Type 4, Heterozygous Familial Hypercholesterolemia (HeFH), and Familial Hypercholesterolemia. Dr. Patterson is board certified in American Osteopathic Board Of Family Physicians. Dr. Patterson is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Yolanda Helfrich is a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Helfrich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 53 other conditions, according to our data. Her clinical expertise encompasses Actinic Keratosis, Graham-Little-Piccardi-Lassueur Syndrome, Rosacea, and Melanoma. Dr. Helfrich is board certified in Dermatology. Dr. Helfrich is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Thoracic Surgery | General Surgery
    Experienced in Koolen De Vries Syndrome
    Thoracic Surgery | General Surgery
    Referral may be required

    Frankel Cardiovascular Center

    1425 E Ann St, Floor 3 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Himanshu Patel is a Thoracic Surgeon and a General Surgeon practicing medicine in Ann Arbor, Michigan. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Aortic Valve Stenosis, Thoracic Aortic Aneurysm, Cystic Medial Necrosis of Aorta, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR). Dr. Patel is board certified in Surgery and Thoracic & Cardiac Surgery. Dr. Patel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    General Surgery
    Experienced in Koolen De Vries Syndrome
    General Surgery
    Referral may be required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception G, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Michael Englesbe is a General Surgeon practicing medicine in Ann Arbor, Michigan. Dr. Englesbe is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Hernia, Liver Failure, End-Stage Renal Disease (ESRD), Liver Transplant, and Kidney Transplant. Dr. Englesbe is board certified in Surgery. Dr. Englesbe is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Dermatology Associates Of West Michigan PC

    1740 East Paris Avenue Southeast, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Dapprich is a Dermatologist practicing medicine in Grand Rapids, Michigan. Dr. Dapprich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 79 other conditions, according to our data. His clinical expertise encompasses Basal Cell Skin Cancer, Neurocutaneous Melanosis, Actinic Keratosis, and Giant Congenital Melanocytic Nevus. Dr. Dapprich is board certified in American Board Of Dermatology. Dr. Dapprich is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Hindi, Kannada, Tamil, Telugu
    Accepting New Patients

    Trilokraj Tejasvi is a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Tejasvi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, Mycosis Fungoides, and Lymphomatoid Papulosis. Dr. Tejasvi is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Rheumatology
    Experienced in Koolen De Vries Syndrome
    Pediatric Rheumatology
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 8 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Turkish
    Accepting New Patients

    Atiye Dagci is a Pediatric Rheumatologist practicing medicine in Ann Arbor, Michigan. Dr. Dagci is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses PFAPA, Localized Scleroderma, Juvenile Idiopathic Arthritis (JIA), and Systemic Lupus Erythematosus (SLE). Dr. Dagci is board certified in Pediatrics and Pediatric Rheumatology. Dr. Dagci is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English, Mandarin
    Accepting New Patients

    Severine Cao is a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Cao is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 31 other conditions, according to our data. Her clinical expertise encompasses Hidradenitis Suppurativa, Melanoma, Kaposiform Hemangioendothelioma, and Fetal Cystic Hygroma. Dr. Cao is board certified in Dermatology. Dr. Cao is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    Referral may be required

    Dermatology Clinic

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sara Fossum is a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Fossum is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Hidradenitis Suppurativa, Melanoma, Bullous Pemphigoid, and Pyoderma Gangrenosum. Dr. Fossum is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    University Of Michigan Pediatric Genetics Clinic

    1540 East Hospital Drive, Floor 6, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Hannibal is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Hannibal is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 167 other conditions, according to our data. His clinical expertise encompasses Aase Syndrome, 47 XYY Syndrome, 2q37 Deletion Syndrome, and Neu Laxova Syndrome. Dr. Hannibal is board certified in American Board Of Medical Genetics And Genomics, Clinical Biochemical Genetics - 2020 and Clinical Genetics & Genomics. Dr. Hannibal is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Cardiology Clinic

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Marion Bowman is a Cardiologist practicing medicine in Northville, Michigan. Dr. Bowman is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 108 other conditions, according to our data. Her clinical expertise encompasses Marfan Syndrome, Aortic Dissection, Familial Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation. Dr. Bowman is board certified in Cardiovascular Disease. Dr. Bowman is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Pediatric Orthopaedic Surgery Clinic

    1540 E Hospital Dr, Floor 3 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Hornyak is a Physiatrist practicing medicine in Ann Arbor, Michigan. Dr. Hornyak is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Down Syndrome, and Cerebral Palsy. Dr. Hornyak is board certified in Physical Medicine & Rehab. Dr. Hornyak is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    University Of Michigan Pediatric Genetics Clinic

    1540 East Hospital Drive, Floor 6, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Amanda Pritchard is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Pritchard is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 150 other conditions, according to our data. Her clinical expertise encompasses Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Costello Syndrome. Dr. Pritchard is board certified in American Board Of Medical Genetics And Genomics, Clinical Biochemical Genetics - 2019 , American Board Of Pediatrics, Pediatrics - 2016, and American Board Of Medical Genetics And Genomics, Medical Biochemical Genetics - 2019 . Dr. Pritchard is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Jimmy Lu is a Pediatric Cardiologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Lu is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 60 other conditions, according to our data. His clinical expertise encompasses Tetralogy of Fallot, Transposition of the Great Arteries, Hypoplastic Left Heart Syndrome (HLHS), and Mitral Atresia. Dr. Lu is board certified in Pediatric Cardiology. Dr. Lu is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Nephrology | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Pediatric Nephrology | Pediatrics
    Referral may be required

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 8 Reception B, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Accepting New Patients

    David Kershaw is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Kershaw is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Posterior Urethral Valves, Autosomal Recessive Polycystic Kidney Disease, Potter Syndrome, Alport Syndrome, and Kidney Transplant. Dr. Kershaw is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Julie Conley is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. Dr. Conley is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Legius Syndrome, RASopathies, Neurofibromatosis, and Marcus Gunn Phenomenon. Dr. Conley is board certified in American Board Of Ophthalmology. Dr. Conley is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Brighton Center For Specialty Care

    7500 Challis Rd, Entrance 1, Level 2, 
    Brighton, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Joshua Meisner is a Pediatric Cardiologist practicing medicine in Brighton, Michigan. Dr. Meisner is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses CHARGE Syndrome, Cardiomyopathic Lentiginosis, Cardiofaciocutaneous Syndrome, and Noonan Syndrome. Dr. Meisner is board certified in Pediatrics and Pediatric Cardiology. Dr. Meisner is currently accepting new patients.

    Showing 1-20 of 470

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Canton, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Canton, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Canton, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Canton, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Canton, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Canton, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Canton, MI?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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