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    Last Updated: 10/30/2025

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    MediFind found 268 doctor with experience in Koolen De Vries Syndrome near Canton, MI. Of these, 218 are Experienced and 50 are Advanced.

    Location
    LocationClose
    268 providers found
      Advanced in Koolen De Vries Syndrome
      Orthopedics | Pediatric Orthopedics
      Advanced in Koolen De Vries Syndrome
      Orthopedics | Pediatric Orthopedics

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English

      Gertrude Li is an Orthopedics specialist and a Pediatric Orthopedics provider in Canton, Michigan. Dr. Li is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Scoliosis, Beukes Familial Hip Dysplasia, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome.

      Experienced in Koolen De Vries Syndrome
      Orthopedics | Pediatric Orthopedics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Orthopedics | Pediatric Orthopedics | Pediatrics

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Matthew Stepanovich is an Orthopedics specialist and a Pediatric Orthopedics provider in Canton, Michigan. Dr. Stepanovich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Beukes Familial Hip Dysplasia, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, and Osteotomy. Dr. Stepanovich is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Timothy Cotts is a Pediatric Cardiologist and a Cardiologist in Canton, Michigan. Dr. Cotts is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Transposition of the Great Arteries, Tetralogy of Fallot, Patent Foramen Ovale Repair, and Heart Transplant. Dr. Cotts is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Koolen De Vries Syndrome
      Cardiac Electrophysiology | Cardiology
      Experienced in Koolen De Vries Syndrome
      Cardiac Electrophysiology | Cardiology

      Regents Of The University Of Michigan

      1051 N Canton Cntr Rd, University Of Michigan Med, 
      Ann Arbor, MI 
       (0.5 miles away)
      Languages Spoken:
      English, Polish
      Accepting New Patients
      Offers Telehealth

      Thomas Crawford is a Cardiac Electrophysiologist and a Cardiologist in Ann Arbor, Michigan. Dr. Crawford is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ectopic Heartbeat, Sarcoidosis, Arrhythmias, Cardiac Ablation, and Heart Transplant. Dr. Crawford is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Regents Of The University Of Michigan

      1051 N Canton Ctr, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      James Froehlich is a Cardiologist in Canton, Michigan. Dr. Froehlich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Atrial Fibrillation, Venous Thromboembolism (VTE), Aortic Dissection, Cardiac Ablation, and Pacemaker Implantation. Dr. Froehlich is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Radiology | Neuroradiology
      Experienced in Koolen De Vries Syndrome
      Radiology | Neuroradiology

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English

      Aristides Capizzano is a Radiologist and a Neuroradiologist in Canton, Michigan. Dr. Capizzano is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Meningioma, Stroke, and Subarachnoid Hemorrhage.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Zampi is a Pediatric Cardiologist and a Pediatrics provider in Canton, Michigan. Dr. Zampi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Coarctation of the Aorta, Stent Placement, and Angioplasty. Dr. Zampi is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Regents Of The University Of Michigan

      1051 N Canton Ctr, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English

      Perry Pernicano is a Radiologist in Canton, Michigan. Dr. Pernicano is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Chronic Cough, Lung Nodules, Rhabdoid Tumor, and Cystic Fibrosis.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Regents Of The University Of Michigan

      1051 N Canton Cntr Rd, University Of Michigan Med, 
      Ann Arbor, MI 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Troy Labounty is a Cardiologist in Ann Arbor, Michigan. Dr. Labounty is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Aortic Valve Stenosis, Coronary Heart Disease, Cardiomyopathy, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR). Dr. Labounty is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Kohnstamm is a Cardiologist in Canton, Michigan. Dr. Kohnstamm is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Aortic Valve Stenosis, Heart Failure with Preserved Ejection Fraction (HFpEF), Heart Failure, Pulmonary Edema, and Pacemaker Implantation. Dr. Kohnstamm is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology

      Regents Of The University Of Michigan

      1051 N Canton Ctr, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Wendy Whiteside is a Pediatric Cardiologist and a Pediatrics provider in Canton, Michigan. Dr. Whiteside is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Patent Ductus Arteriosus, Hypoplastic Left Heart Syndrome (HLHS), Pulmonary Atresia with Intact Ventricular Septum, Patent Foramen Ovale Repair, and Aneurysm Repair. Dr. Whiteside is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Cardiology | Interventional Cardiology
      Experienced in Koolen De Vries Syndrome
      Cardiology | Interventional Cardiology

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, Umhs Canton Health Center, 
      Canton, MI 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Peter Farrehi is a Cardiologist and an Interventional Cardiologist in Canton, Michigan. Dr. Farrehi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Atrial Fibrillation, Heart Attack, Aortic Valve Stenosis, Cardiac Ablation, and Pacemaker Implantation. Dr. Farrehi is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Allergy and Immunology
      Experienced in Koolen De Vries Syndrome
      Allergy and Immunology
      1600 S Canton Ctr Rd, Suite 360, 
      Canton, MI 
       (0.9 miles away)
      Languages Spoken:
      English, Hebrew
      Accepting New Patients

      Steven Stryk is an Allergy and Immunologist in Canton, Michigan. Dr. Stryk is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Bloom Syndrome, Urticaria Pigmentosa, Angioedema, and Allergic Rhinitis. Dr. Stryk is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Family Medicine
      Experienced in Koolen De Vries Syndrome
      Family Medicine

      Park Family Health Care PC

      8532 N Canton Ctr Rd, 
      Canton, MI 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      William Rollins is a primary care provider, practicing in Family Medicine in Canton, Michigan. Dr. Rollins is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and West Nile Virus Infection. Dr. Rollins is currently accepting new patients.

      Advanced in Koolen De Vries Syndrome
      Ophthalmology
      Advanced in Koolen De Vries Syndrome
      Ophthalmology

      Regents Of The University Of Michigan

      39901 Traditions Dr, 
      Northville, MI 
       (8.3 miles away)
      Languages Spoken:
      English

      Christopher Gappy is an Ophthalmologist in Northville, Michigan. Dr. Gappy is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Strabismus, Esotropia, Oculomotor Apraxia Cogan Type, and Amblyopia.

      Advanced in Koolen De Vries Syndrome
      Ophthalmology
      Advanced in Koolen De Vries Syndrome
      Ophthalmology

      Regents Of The University Of Michigan

      1974 N Huron River Dr, 
      Ypsilanti, MI 
       (8.7 miles away)
      Languages Spoken:
      English

      Nathan Liles is an Ophthalmologist in Ypsilanti, Michigan. Dr. Liles is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Strabismus, Oculomotor Apraxia Cogan Type, Esotropia, and Oculocutaneous Albinism.

      Advanced in Koolen De Vries Syndrome
      Ophthalmology
      Advanced in Koolen De Vries Syndrome
      Ophthalmology

      Regents Of The University Of Michigan

      1974 N Huron River Dr, 
      Ypsilanti, MI 
       (8.7 miles away)
      Languages Spoken:
      English

      Grace Wang is an Ophthalmologist in Ypsilanti, Michigan. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Esotropia, Strabismus, Amblyopia, Oculomotor Apraxia Cogan Type, and Trabeculectomy.

      Experienced in Koolen De Vries Syndrome
      Urology | General Surgery
      Experienced in Koolen De Vries Syndrome
      Urology | General Surgery

      Regents Of The University Of Michigan

      39901 Traditions Dr, 
      Northville, MI 
       (8.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Julian Wan is an Urologist and a General Surgeon in Northville, Michigan. Dr. Wan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Myelomeningocele, Neurogenic Bladder, Hypospadias, Lithotripsy, and Ureteroscopy. Dr. Wan is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Regents Of The University Of Michigan

      39901 Traditions Dr, 
      Northville, MI 
       (8.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Christopher Gans is a Cardiologist in Northville, Michigan. Dr. Gans is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Heart Failure, Pulmonary Edema, Cardiomyopathy, Atherectomy, and Pacemaker Implantation. Dr. Gans is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Regents Of The University Of Michigan

      39901 Traditions Dr, 
      Northville, MI 
       (8.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Gary Gallagher is a Neurologist in Northville, Michigan. Dr. Gallagher is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Myasthenia Gravis, Multifocal Motor Neuropathy, Inclusion Body Myositis, and Peripheral Neuropathy. Dr. Gallagher is currently accepting new patients.

      Showing 1-20 of 268

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Canton, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Canton, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Canton, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Canton, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Canton, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Canton, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Canton, MI?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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