MediFind found 45 doctor with experience in Koolen De Vries Syndrome near Detroit, MI. Of these, 41 are Experienced and 4 are Advanced.
DMC Children's Hospital Of Michigan
Michelle Figueroa is a Neurologist in Detroit, Michigan. Dr. Figueroa is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Seizures, Dysferlinopathy, Duchenne Muscular Dystrophy, and Athetosis.
Maricela Castillo-Mackenzie is a primary care provider, practicing in Family Medicine in Detroit, Michigan. Dr. Castillo-Mackenzie is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Smith-Kingsmore Syndrome, Retinopathy Pigmentary Mental Retardation, Cohen Syndrome, and Yunis-Varon Syndrome. Dr. Castillo-Mackenzie is currently accepting new patients.
Oakwood Family Center
Susan Youngs is a Pediatrics provider in Dearborn, Michigan. Dr. Youngs has been practicing medicine for over 33 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Rasmussen Encephalitis, Autism Spectrum Disorder, Koolen De Vries Syndrome, and Microcephaly Deafness Syndrome. Dr. Youngs is currently accepting new patients.
Kailey Chisolm is a Physician Assistant in Detroit, Michigan. Ms. Chisolm is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top area of expertise is Koolen De Vries Syndrome. Ms. Chisolm is currently accepting new patients.
Sowkya Rangarajan is a primary care provider, practicing in Pediatrics and Internal Medicine in Detroit, Michigan. Dr. Rangarajan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Pyomyositis, Diffuse Panbronchiolitis, Retropharyngeal Abscess, and Fecal Impaction. Dr. Rangarajan is currently accepting new patients.
Tej Mattoo is a Pediatric Nephrologist in Detroit, Michigan. Dr. Mattoo is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Reflux Nephropathy, Nephrotic Syndrome, High Blood Pressure in Infants, Glomerulonephritis, and Nephrectomy. Dr. Mattoo is currently accepting new patients.
Noelle Fabie is a Medical Genetics specialist and a Pediatrics provider in Detroit, Michigan. Dr. Fabie is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Micrognathia, Oculodentodigital Dysplasia Dominant, Beare-Stevenson Cutis Gyrata Syndrome, and Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects. Dr. Fabie is currently accepting new patients.
Melody Royer is a Nurse Practitioner in Detroit, Michigan. Ms. Royer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Agyria Pachygyria Polymicrogyria, VLDLR-Associated Cerebellar Hypoplasia, Orofaciodigital Syndrome 6, and Coach Syndrome. Ms. Royer is currently accepting new patients.
University Pediatricians
Melisa Concepcion is a Physician Assistant in Detroit, Michigan. Ms. Concepcion has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Koolen De Vries Syndrome, Hydranencephaly, Lissencephaly 1, and Orofaciodigital Syndrome 6. Ms. Concepcion is currently accepting new patients.
Abigayle Degraw is a Nurse Practitioner in Detroit, Michigan. Ms. Degraw is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Van Der Woude Syndrome, White Sponge Nevus, Koolen De Vries Syndrome, and Velopharyngeal Insufficiency. Ms. Degraw is currently accepting new patients.
University Pediatricians
Ruma Srivastava is a Pediatric Pulmonologist and a Pediatrics provider in Detroit, Michigan. Dr. Srivastava is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cystic Fibrosis, Pseudomonas Stutzeri Infections, Secondary Immunodeficiency (SID), and Newborn Jaundice. Dr. Srivastava is currently accepting new patients.
University Pediatricians
Ibrahim Abdulhamid is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Detroit, Michigan. Dr. Abdulhamid has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cystic Fibrosis, Pseudomonas Stutzeri Infections, Micrognathia, Obstructive Sleep Apnea, and Adenoidectomy. Dr. Abdulhamid is currently accepting new patients.
University Pediatricians
Mohammad El-Baba is a Pediatric Gastroenterologist and a Pediatrics provider in Detroit, Michigan. Dr. El-Baba is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Delayed Growth, Viral Gastroenteritis, Eosinophilic Esophagitis, and Crohn's Disease. Dr. El-Baba is currently accepting new patients.
Vhs Physicians Of Michigan
Nathan Gonik is a Pediatric Otolaryngologist and an Otolaryngologist in Detroit, Michigan. Dr. Gonik has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Laryngomalacia, Enlarged Adenoids, Hearing Loss, Microtia, and Adenoidectomy. Dr. Gonik is currently accepting new patients.
Christina Santia is a Physiatrist and a Pediatrics provider in Detroit, Michigan. Dr. Santia is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Spasticity, Hemiplegia, and Leigh Syndrome.
Vinod Misra is a Medical Genetics specialist and a Pediatrics provider in Detroit, Michigan. Dr. Misra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Micrognathia, Osteogenesis Imperfecta, Mixed Gonadal Dysgenesis, and Microcephaly.
Henry Ford Health System
Amanda Godfrey is a Pulmonary Medicine provider in Detroit, Michigan. Dr. Godfrey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Pulmonary Actinomycosis, Actinomycosis, Lung Metastases, Stent Placement, and Gastrostomy. Dr. Godfrey is currently accepting new patients.
Henry Ford Health System
Jules Constantinou is a Neurologist and a Pediatrics provider in Detroit, Michigan. Dr. Constantinou is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Lennox-Gastaut Syndrome (LGS), and Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE). Dr. Constantinou is currently accepting new patients.
Oakwood Family Center
Stephanie Pritula is a Nurse Practitioner in Dearborn, Michigan. Ms. Pritula has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are RASopathies, Oppositional Defiant Disorder (ODD), and Koolen De Vries Syndrome.
Michigan Institute For Neurological Disorders (MIND)
Edward Dabrowski is a Physiatrist in Roseville, Michigan. Dr. Dabrowski has been practicing medicine for over 46 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Dabrowski is currently accepting new patients.
Last Updated: 01/09/2026

