The 20 Best Koolen De Vries Syndrome Doctors Near Me in canton, MI

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 267 doctor with experience in Koolen De Vries Syndrome near canton, MI. Of these, 218 are Experienced and 49 are Advanced.

Location
LocationClose
267 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Ophthalmology Clinic

    1051 N Canton Center Rd, 
    Canton, MI 
     (0.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Marguerite Weinert is an Ophthalmologist practicing medicine in Canton, Michigan. Dr. Weinert is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Amblyopia, Strabismus, Esotropia, and Retinopathy of Prematurity. Dr. Weinert is board certified in Ophthalmology. Dr. Weinert is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Allergy and Immunology | Allergy and Immunology
    Experienced in Koolen De Vries Syndrome
    Pediatric Allergy and Immunology | Allergy and Immunology
    Referral may be required

    Canton Asthma & Allergy, PC

    1600 South Canton Center Road, Suite 360, 
    Canton, MI 
     (1.7 miles away)
    Languages Spoken:
    English, Hebrew
    Accepting New Patients

    Steven Stryk is a Pediatric Allergy and Immunologist and an Allergy and Immunologist practicing medicine in Canton, Michigan. Dr. Stryk is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Bloom Syndrome, Urticaria Pigmentosa, Angioedema, and Allergic Rhinitis. Dr. Stryk is board certified in American Board Of Allergy And Immunology. Dr. Stryk is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Breast Imaging (Mammography) At Canton Health Center

    1051 N Canton Center Rd, 
    Canton, MI 
     (0.4 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Chiemezie Amadi is a Radiologist practicing medicine in Canton, Michigan. He has been practicing medicine for over 17 years. Dr. Amadi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Pleurisy, Pleural Effusion, Lung Nodules, and ALK-Positive Non-Small Cell Lung Cancer. Dr. Amadi is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Referral required

    Canton Health Center

    1051 N Canton Center Rd, Lobby C, 
    Canton, MI 
     (0.4 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English, Hindi, Nepali
    Accepting New Patients
    Offers Telehealth

    Tanvi Shah is an Endocrinologist practicing medicine in Canton, Michigan. She has been practicing medicine for over 10 years. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Hirsutism in Women, Polycystic Ovary Syndrome, Hyperparathyroidism, and Triple A Syndrome. Dr. Shah is board certified in Endocrinology, Diabetes & Metabolism and Internal Medicine. Dr. Shah is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Office

    8532 N Canton Center Rd, 
    Canton, MI 
     (2.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    William Rollins is a primary care provider, practicing in Family Medicine in Canton, Michigan. Dr. Rollins is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and West Nile Virus Infection. Dr. Rollins is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Cardiology Clinic

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (8.3 miles away)
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Marion Bowman is a Cardiologist practicing medicine in Northville, Michigan. Dr. Bowman is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 108 other conditions, according to our data. Her clinical expertise encompasses Marfan Syndrome, Aortic Dissection, Familial Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation. Dr. Bowman is board certified in Cardiovascular Disease. Dr. Bowman is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Ophthalmology Clinic

    1974 N Huron River Dr, River Place Offices, 
    Ypsilanti, MI 
     (8.7 miles away)
    Languages Spoken:
    English, German, Mandarin
    Accepting New Patients

    Grace Wang is an Ophthalmologist practicing medicine in Ypsilanti, Michigan. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Esotropia, Strabismus, Amblyopia, Oculomotor Apraxia Cogan Type, and Trabeculectomy. Dr. Wang is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    East Ann Arbor Health & Geriatrics Center

    4260 Plymouth Rd, Level 1, 
    Ann Arbor, MI 
     (9.5 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Sharan Srinivasan is a Neurologist practicing medicine in Ann Arbor, Michigan. He has been practicing medicine for over 10 years. Dr. Srinivasan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 107 other conditions, according to our data. His clinical expertise encompasses Hereditary Ataxia, Olivopontocerebellar Atrophy, Spinocerebellar Ataxia Type 1, and Spinocerebellar Ataxia Type 4. Dr. Srinivasan is board certified in Neurology. Dr. Srinivasan is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral required

    Taubman Center

    1500 E Medical Center Dr, Floor 1 Reception B, 
    Ann Arbor, MI 
     (12.4 miles away)
    Languages Spoken:
    English, Polish
    Accepting New Patients
    Offers Telehealth

    Andrzej Dlugosz is a Dermatologist practicing medicine in Ann Arbor, Michigan. Dr. Dlugosz is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 88 other conditions, according to our data. His clinical expertise encompasses Cicatricial Pemphigoid, Pemphigus, Bullous Pemphigoid, and Pemphigus Vulgaris. Dr. Dlugosz is board certified in Dermatology. Dr. Dlugosz is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Obstetrics and Gynecology
    Referral may be required

    Northville Health Center

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (8.3 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Katherine Mccracken is an Obstetrics and Gynecologist practicing medicine in Northville, Michigan. She has been practicing medicine for over 17 years. Dr. Mccracken is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Kuster Syndrome, Painful Menstrual Periods, Mullerian Aplasia, Pelvic Congestion Syndrome, and Intrauterine Device Insertion. Dr. Mccracken is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatrics
    Referral may be required

    Northville Health Center

    39901 Traditions Dr, Floor 1, 
    Northville, MI 
     (8.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Noelle Whyte is an Orthopedics specialist and a Pediatrics provider practicing medicine in Northville, Michigan. Dr. Whyte is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Scoliosis, Beukes Familial Hip Dysplasia, Clubfoot, and Caudal Regression Syndrome. Dr. Whyte is board certified in Orthopedic Surgery. Dr. Whyte is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Pediatric Orthopaedic Surgery Clinic

    39901 Traditions Dr, Floor 1, 
    Northville, MI 
     (8.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Alex Gornitzky is an Orthopedics provider practicing medicine in Northville, Michigan. Dr. Gornitzky is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Collins Pope Syndrome, Beukes Familial Hip Dysplasia, Scoliosis, Osteotomy, and Spinal Fusion. Dr. Gornitzky is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Northville Health Center

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (8.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jonathan Segal is a Nephrologist practicing medicine in Northville, Michigan. Dr. Segal is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Thin Basement Membrane Nephropathy, and IgA Nephropathy. Dr. Segal is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Cardiology Clinic

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (8.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kenneth Tobin is a Cardiologist practicing medicine in Northville, Michigan. Dr. Tobin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Aortic Valve Stenosis, Mitral Valve Regurgitation, Mitral Stenosis, and Bicuspid Aortic Valve. Dr. Tobin is board certified in Cardiology. Dr. Tobin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Hand Surgery | Orthopedics
    Experienced in Koolen De Vries Syndrome
    Hand Surgery | Orthopedics
    Referral may be required

    Orthopaedic Surgery Clinic

    39901 Traditions Dr, Floor 1, 
    Northville, MI 
     (8.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Lawton is a Hand Surgeon and an Orthopedics provider practicing medicine in Northville, Michigan. Dr. Lawton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Carpal Tunnel Syndrome, Scaphoid Non-Union, Trigger Thumb, and Dupuytren Contracture. Dr. Lawton is board certified in Orthopedic Surgery and Surgery Of The Hand. Dr. Lawton is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Pediatrics
    Referral may be required

    Pediatric Endocrinology Clinic

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (8.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Sandberg is a Pediatric Endocrinologist and a Pediatrics provider practicing medicine in Northville, Michigan. Dr. Sandberg is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Type 1 Diabetes (T1D), Short Stature (Growth Disorders), Delayed Growth, and Congenital Hypothyroidism. Dr. Sandberg is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine | Intensive Care Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine | Intensive Care Medicine
    Referral may be required

    Northville Health Center

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (8.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Danielle Stahlbaum is a Pulmonary Medicine specialist and an Intensive Care Medicine provider practicing medicine in Northville, Michigan. Dr. Stahlbaum is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Pneumonia, Lung Metastases, Sarcoidosis, and Neurosarcoidosis. Dr. Stahlbaum is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Gastroenterology
    Referral may be required

    Medical Procedure Unit

    4270 Plymouth Rd, Entrance 4, 
    Ann Arbor, MI 
     (9.5 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Elena Stoffel is a Gastroenterologist practicing medicine in Ann Arbor, Michigan. Dr. Stoffel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Familial Colorectal Cancer, Familial Adenomatous Polyposis, Colorectal Cancer, Colonoscopy, and Endoscopy. Dr. Stoffel is board certified in Gastroenterology. Dr. Stoffel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    East Ann Arbor Health & Geriatrics Center

    4260 Plymouth Rd, Level 1, 
    Ann Arbor, MI 
     (9.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Peter Todd is a Neurologist practicing medicine in Ann Arbor, Michigan. Dr. Todd is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Fragile X Syndrome, Fragile XE Syndrome, Hereditary Ataxia, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Todd is board certified in Neurology. Dr. Todd is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    East Ann Arbor Health & Geriatrics Center

    4260 Plymouth Rd, Level 1, 
    Ann Arbor, MI 
     (9.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Judith Heidebrink is a Neurologist practicing medicine in Ann Arbor, Michigan. Dr. Heidebrink is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Alzheimer's Disease, Cerebellar Degeneration, Lewy Body Dementia (LBD), and Dementia. Dr. Heidebrink is currently accepting new patients.

    Showing 1-20 of 267

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near canton, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near canton, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near canton, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near canton, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near canton, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near canton, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near canton, MI?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.