The 20 Best Koolen De Vries Syndrome Doctors Near Me in novi, MI

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 41 doctor with experience in Koolen De Vries Syndrome near novi, MI. Of these, 39 are Experienced and 2 are Advanced.

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41 providers found
    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Cardiology Clinic

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (4.5 miles away)
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Marion Bowman is a Cardiologist practicing medicine in Northville, Michigan. Dr. Bowman is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 108 other conditions, according to our data. Her clinical expertise encompasses Marfan Syndrome, Aortic Dissection, Familial Ventricular Tachycardia, Cardiac Ablation, and Pacemaker Implantation. Dr. Bowman is board certified in Cardiovascular Disease. Dr. Bowman is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Obstetrics and Gynecology
    Referral may be required

    Northville Health Center

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (4.5 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Katherine Mccracken is an Obstetrics and Gynecologist practicing medicine in Northville, Michigan. She has been practicing medicine for over 17 years. Dr. Mccracken is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Kuster Syndrome, Painful Menstrual Periods, Mullerian Aplasia, Pelvic Congestion Syndrome, and Intrauterine Device Insertion. Dr. Mccracken is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatrics
    Referral may be required

    Northville Health Center

    39901 Traditions Dr, Floor 1, 
    Northville, MI 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Noelle Whyte is an Orthopedics specialist and a Pediatrics provider practicing medicine in Northville, Michigan. Dr. Whyte is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Scoliosis, Beukes Familial Hip Dysplasia, Clubfoot, and Caudal Regression Syndrome. Dr. Whyte is board certified in Orthopedic Surgery. Dr. Whyte is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Pediatric Orthopaedic Surgery Clinic

    39901 Traditions Dr, Floor 1, 
    Northville, MI 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Alex Gornitzky is an Orthopedics provider practicing medicine in Northville, Michigan. Dr. Gornitzky is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Collins Pope Syndrome, Beukes Familial Hip Dysplasia, Scoliosis, Osteotomy, and Spinal Fusion. Dr. Gornitzky is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Northville Health Center

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jonathan Segal is a Nephrologist practicing medicine in Northville, Michigan. Dr. Segal is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Thin Basement Membrane Nephropathy, and IgA Nephropathy. Dr. Segal is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Cardiology Clinic

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kenneth Tobin is a Cardiologist practicing medicine in Northville, Michigan. Dr. Tobin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Aortic Valve Stenosis, Mitral Valve Regurgitation, Mitral Stenosis, and Bicuspid Aortic Valve. Dr. Tobin is board certified in Cardiology. Dr. Tobin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Hand Surgery | Orthopedics
    Experienced in Koolen De Vries Syndrome
    Hand Surgery | Orthopedics
    Referral may be required

    Orthopaedic Surgery Clinic

    39901 Traditions Dr, Floor 1, 
    Northville, MI 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeffrey Lawton is a Hand Surgeon and an Orthopedics provider practicing medicine in Northville, Michigan. Dr. Lawton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Carpal Tunnel Syndrome, Scaphoid Non-Union, Trigger Thumb, and Dupuytren Contracture. Dr. Lawton is board certified in Orthopedic Surgery and Surgery Of The Hand. Dr. Lawton is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Pediatrics
    Referral may be required

    Pediatric Endocrinology Clinic

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Sandberg is a Pediatric Endocrinologist and a Pediatrics provider practicing medicine in Northville, Michigan. Dr. Sandberg is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Type 1 Diabetes (T1D), Short Stature (Growth Disorders), Delayed Growth, and Congenital Hypothyroidism. Dr. Sandberg is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine | Intensive Care Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine | Intensive Care Medicine
    Referral may be required

    Northville Health Center

    39901 Traditions Dr, Floor 2, 
    Northville, MI 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Danielle Stahlbaum is a Pulmonary Medicine specialist and an Intensive Care Medicine provider practicing medicine in Northville, Michigan. Dr. Stahlbaum is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Pneumonia, Lung Metastases, Sarcoidosis, and Neurosarcoidosis. Dr. Stahlbaum is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Referral may be required

    Henry Ford Medical Center-Columbus

    39450 W Twelve Mile Rd, 
    Novi, MI 
     (2.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Amanda Godfrey is a Pulmonary Medicine provider practicing medicine in Novi, Michigan. Dr. Godfrey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Pulmonary Actinomycosis, Actinomycosis, Lung Metastases, Stent Placement, and Gastrostomy. Dr. Godfrey is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neurology | Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Neurology | Pediatric Neurology
    Referral may be required

    Specialists In Pediatric Neurology PLLC

    7001 Orchard Lake Road, Suite 320C, 
    West Bloomfield, MI 
     (7.1 miles away)
    Languages Spoken:
    English

    Daniel Arndt is a Neurologist and a Pediatric Neurologist practicing medicine in West Bloomfield, Michigan. Dr. Arndt is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Epilepsy, and Absence Seizure. Dr. Arndt is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Koolen De Vries Syndrome
    Neuroradiology | Radiology
    Experienced in Koolen De Vries Syndrome
    Neuroradiology | Radiology
    Referral may be required

    Michigan Institute For Neurological Disorders (MIND)

    28595 Orchard Lake Road, Suite 200, 
    Farmington Hills, MI 
     (6.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Eric Biondo-Savin is a Neuroradiologist and a Radiologist practicing medicine in Farmington Hills, Michigan. Dr. Biondo-Savin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Arachnoid Cysts, Familial Porencephaly, and Choroid Plexus Cyst. Dr. Biondo-Savin is board certified in American Osteopathic Board Of Radiology. Dr. Biondo-Savin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Office

    8532 N Canton Center Rd, 
    Canton, MI 
     (9.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    William Rollins is a primary care provider, practicing in Family Medicine in Canton, Michigan. Dr. Rollins is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and West Nile Virus Infection. Dr. Rollins is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital Pediatric Physical Medicine & Rehabilitation - 3535 W 13 Mile Rd

    3535 West 13 Mile Road, Suite 307, 
    Royal Oak, MI 
     (14.7 miles away)
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Edward Dabrowski is a Physiatrist practicing medicine in Royal Oak, Michigan. Dr. Dabrowski is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Dabrowski is board certified in American Board Of Physical Medicine And Rehabilitation. Dr. Dabrowski is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Ophthalmology Clinic

    1051 N Canton Center Rd, 
    Canton, MI 
     (11.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Marguerite Weinert is an Ophthalmologist practicing medicine in Canton, Michigan. Dr. Weinert is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Amblyopia, Strabismus, Esotropia, and Retinopathy of Prematurity. Dr. Weinert is board certified in Ophthalmology. Dr. Weinert is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Allergy and Immunology | Allergy and Immunology
    Experienced in Koolen De Vries Syndrome
    Pediatric Allergy and Immunology | Allergy and Immunology
    Referral may be required

    Canton Asthma & Allergy, PC

    1600 South Canton Center Road, Suite 360, 
    Canton, MI 
     (13.6 miles away)
    Languages Spoken:
    English, Hebrew
    Accepting New Patients

    Steven Stryk is a Pediatric Allergy and Immunologist and an Allergy and Immunologist practicing medicine in Canton, Michigan. Dr. Stryk is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Bloom Syndrome, Urticaria Pigmentosa, Angioedema, and Allergic Rhinitis. Dr. Stryk is board certified in American Board Of Allergy And Immunology. Dr. Stryk is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    PACE Southeast Michigan

    21700 Northwestern Highway, Suite 900, 
    Southfield, MI 
     (13.7 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Steven Katzman is a primary care provider, practicing in Internal Medicine in Southfield, Michigan. Dr. Katzman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 106 other conditions, according to our data. His clinical expertise encompasses Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, Gastrostomy, and Colonoscopy. Dr. Katzman is board certified in American Osteopathic Board Of Internal Medicine. Dr. Katzman is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital Heart & Vascular

    3601 West 13 Mile Road, 
    Royal Oak, MI 
     (14.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Richard Bloomingdale is a Cardiologist practicing medicine in Royal Oak, Michigan. Dr. Bloomingdale is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Aortic Valve Stenosis, Cardiomyopathy, Coronary Heart Disease, and Aortic Regurgitation. Dr. Bloomingdale is board certified in American Board Of Internal Medicine. Dr. Bloomingdale is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital

    3601 West 13 Mile Road, 
    Royal Oak, MI 
     (14.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Marie Tominna is a Radiologist practicing medicine in Royal Oak, Michigan. Dr. Tominna is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Familial Short Stature (FSS), Idiopathic Short Stature (ISS), Short Stature (Growth Disorders), and Increased Head Circumference. Dr. Tominna is board certified in American Board Of Radiology. Dr. Tominna is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital - Diagnostic Radiology

    3601 West 13 Mile Road, 
    Royal Oak, MI 
     (14.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kevin Hora is a Radiologist practicing medicine in Royal Oak, Michigan. Dr. Hora is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Lung Nodules, WT1-Related Wilms Tumor Syndromes, Visceromegaly, and Scoliosis. Dr. Hora is board certified in American Board Of Radiology. Dr. Hora is currently accepting new patients.

    Showing 1-20 of 41

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near novi, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near novi, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near novi, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near novi, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near novi, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near novi, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near novi, MI?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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