The 20 Best Koolen De Vries Syndrome Doctors Near Me in troy, MI

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 34 doctor with experience in Koolen De Vries Syndrome near troy, MI. Of these, 30 are Experienced, 3 are Advanced and 1 are Distinguished.

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34 providers found
    Distinguished in Koolen De Vries Syndrome
    Family Medicine
    Distinguished in Koolen De Vries Syndrome
    Family Medicine

    Macomb Medical Clinic PC

    2405 East 14 Mile Road, 
    Sterling Heights, MI 
     (5.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Rosenberg is a primary care provider, practicing in Family Medicine in Sterling Heights, Michigan. Dr. Rosenberg is rated as a Distinguished provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 154 other conditions, according to our data. His clinical expertise encompasses DK Phocomelia Syndrome, Duane-Radial Ray Syndrome, Hemihyperplasia, and Blepharocheilodontic Syndrome. Dr. Rosenberg is board certified in American Osteopathic Board Of Family Physicians. Dr. Rosenberg is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatrics | Pediatric Neurology
    Advanced in Koolen De Vries Syndrome
    Pediatrics | Pediatric Neurology
    Referral may be required

    Corewell Health Beaumont Troy Hospital Neurology

    44201 Dequindre Road, 
    Troy, MI 
     (3.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Danielle Nolan is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Troy, Michigan. Dr. Nolan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, West Syndrome, and Seizures. Dr. Nolan is board certified in American Board Of Psychiatry And Neurology. Dr. Nolan is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Referral may be required

    Corewell Health Beaumont Troy Hospital Children's Pediatric Specialty Center - 44199 Dequindre Rd

    44199 Dequindre Road, Suite 615, 
    Troy, MI 
     (3.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Jennifer Mitsuya is a Pediatric Gastroenterologist practicing medicine in Troy, Michigan. Dr. Mitsuya is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Celiac Disease, Eosinophilic Esophagitis, Esophagitis, and Bowel Incontinence. Dr. Mitsuya is board certified in American Board Of Pediatrics. Dr. Mitsuya is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health Beaumont Troy Hospital - Diagnostic Radiology

    44201 Dequindre Road, 
    Troy, MI 
     (3.0 miles away)
    Languages Spoken:
    English, Greek
    Accepting New Patients

    Kostaki Bis is a Radiologist practicing medicine in Troy, Michigan. Dr. Bis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Lung Nodules, Visceromegaly, Non-Alcoholic Fatty Liver Disease, and Ascites. Dr. Bis is board certified in American Board Of Radiology. Dr. Bis is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Sterling Physicians

    36040 Dequindre Road, 
    Sterling Heights, MI 
     (5.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    James Burtka is a primary care provider, practicing in Family Medicine in Sterling Heights, Michigan. Dr. Burtka is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses High Cholesterol, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Burtka is board certified in American Osteopathic Board Of Family Physicians. Dr. Burtka is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital Pediatric Physical Medicine & Rehabilitation - 3535 W 13 Mile Rd

    3535 West 13 Mile Road, Suite 307, 
    Royal Oak, MI 
     (6.5 miles away)
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Edward Dabrowski is a Physiatrist practicing medicine in Royal Oak, Michigan. Dr. Dabrowski is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Dabrowski is board certified in American Board Of Physical Medicine And Rehabilitation. Dr. Dabrowski is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Family Medicine
    Advanced in Koolen De Vries Syndrome
    Family Medicine

    Office

    2405 E 14 Mile Rd, 
    Sterling Heights, MI 
     (6.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Arthur Lieberman is a primary care provider, practicing in Family Medicine in Sterling Heights, Michigan. Dr. Lieberman is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 85 other conditions, according to our data. His clinical expertise encompasses Oculodentodigital Dysplasia Dominant, Ruvalcaba Syndrome, Lacrimo-Auriculo-Dento-Digital Syndrome, and Floating-Harbor Syndrome. Dr. Lieberman is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital Heart & Vascular

    3601 West 13 Mile Road, 
    Royal Oak, MI 
     (6.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Richard Bloomingdale is a Cardiologist practicing medicine in Royal Oak, Michigan. Dr. Bloomingdale is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Aortic Valve Stenosis, Cardiomyopathy, Coronary Heart Disease, and Aortic Regurgitation. Dr. Bloomingdale is board certified in American Board Of Internal Medicine. Dr. Bloomingdale is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital

    3601 West 13 Mile Road, 
    Royal Oak, MI 
     (6.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Marie Tominna is a Radiologist practicing medicine in Royal Oak, Michigan. Dr. Tominna is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Familial Short Stature (FSS), Idiopathic Short Stature (ISS), Short Stature (Growth Disorders), and Increased Head Circumference. Dr. Tominna is board certified in American Board Of Radiology. Dr. Tominna is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital - Diagnostic Radiology

    3601 West 13 Mile Road, 
    Royal Oak, MI 
     (6.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kevin Hora is a Radiologist practicing medicine in Royal Oak, Michigan. Dr. Hora is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Lung Nodules, WT1-Related Wilms Tumor Syndromes, Visceromegaly, and Scoliosis. Dr. Hora is board certified in American Board Of Radiology. Dr. Hora is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Referral may be required

    Corewell Health William Beaumont University Hospital Pediatric Endocrinology - 3535 W 13 Mile Rd

    3535 West 13 Mile Road, Suite 707, 
    Royal Oak, MI 
     (6.5 miles away)
    Languages Spoken:
    English, Arabic
    Accepting New Patients

    M Dekelbab is a Pediatric Endocrinologist practicing medicine in Royal Oak, Michigan. Dr. Dekelbab is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Type 1 Diabetes (T1D), Growth Hormone Deficiency (GHD), Short Stature (Growth Disorders), and Idiopathic Short Stature (ISS). Dr. Dekelbab is board certified in American Board Of Pediatrics. Dr. Dekelbab is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Referral may be required

    Corewell Health William Beaumont University Hospital Pediatric Endocrinology - 3535 W 13 Mile Rd

    3535 West 13 Mile Road, Suite 707, 
    Royal Oak, MI 
     (6.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Peter Gerrits is a Pediatric Endocrinologist practicing medicine in Royal Oak, Michigan. Dr. Gerrits is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Short Stature (Growth Disorders), Type 1 Diabetes (T1D), Idiopathic Short Stature (ISS), and Familial Short Stature (FSS). Dr. Gerrits is board certified in American Board Of Pediatrics. Dr. Gerrits is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Corewell Health William Beaumont University Hospital Pediatric Pulmonary - 3535 W 13 Mile Rd

    3535 West 13 Mile Road, Suite 305, 
    Royal Oak, MI 
     (6.5 miles away)
    Languages Spoken:
    English, Hindi
    Accepting New Patients

    Indu Jain is a Pediatric Pulmonologist practicing medicine in Royal Oak, Michigan. Dr. Jain is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Asthma, Vocal Cord Dysfunction, Laryngomalacia, and Duchenne Muscular Dystrophy. Dr. Jain is board certified in American Board Of Pediatrics. Dr. Jain is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (6.8 miles away)
    Languages Spoken:
    English, Arabic, French, Spanish
    Accepting New Patients

    Rawad Obeid is a Pediatric Neurologist practicing medicine in Royal Oak, Michigan. Dr. Obeid is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Microcephaly, Seizures, and Aicardi Syndrome. Dr. Obeid is board certified in American Board Of Psychiatry And Neurology and American Board Of Pediatrics. Dr. Obeid is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital Pediatric Genetics

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (6.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Campbell is a Pediatrics provider practicing medicine in Royal Oak, Michigan. Dr. Campbell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Increased Head Circumference, Delayed Growth, Congenital Athymia, and Acromicric Dysplasia. Dr. Campbell is board certified in American Board Of Pediatrics. Dr. Campbell is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neurology | Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Neurology | Pediatric Neurology
    Referral may be required

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (6.8 miles away)
    Languages Spoken:
    English, French
    Accepting New Patients

    Alexandra Shaw is a Neurologist and a Pediatric Neurologist practicing medicine in Royal Oak, Michigan. Dr. Shaw is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy Juvenile Absence, Memory Loss, and Absence Seizure. Dr. Shaw is board certified in American Board Of Psychiatry And Neurology. Dr. Shaw is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Otolaryngology | Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Otolaryngology | Pediatric Otolaryngology
    Referral may be required

    Corewell Health William Beaumont University Hospital Pediatric Ear, Nose & Throat - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N120, 
    Royal Oak, MI 
     (6.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Michael Haupert is an Otolaryngologist and a Pediatric Otolaryngologist practicing medicine in Royal Oak, Michigan. Dr. Haupert is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Laryngomalacia, Tonsillitis, Stridor, Adenoidectomy, and Balloon Sinuplasty. Dr. Haupert is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology. Dr. Haupert is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Referral may be required

    Corewell Health William Beaumont University Hospital Pediatric Ear, Nose & Throat - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N120, 
    Royal Oak, MI 
     (6.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Prasad Thottam is a Pediatric Otolaryngologist practicing medicine in Royal Oak, Michigan. Dr. Thottam is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Laryngomalacia, Stridor, Laryngeal Cleft, Balloon Sinuplasty, and Adenoidectomy. Dr. Thottam is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology. Dr. Thottam is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (6.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Cesar Almeida is a Neurosurgery provider practicing medicine in Royal Oak, Michigan. Dr. Almeida is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Dandy-Walker Syndrome, Arachnoid Cysts, Increased Head Circumference, and Choroid Plexus Cyst. Dr. Almeida is board certified in American Board Of Neurological Surgery and American Board Of Surgery. Dr. Almeida is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neuromusculoskeletal Medicine | Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Neuromusculoskeletal Medicine | Pediatric Neurology
    Referral may be required

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (6.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Meghan Harper-Shankie is a Neuromusculoskeletal Medicine specialist and a Pediatric Neurologist practicing medicine in Royal Oak, Michigan. Dr. Harper-Shankie is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Aphantasia, Seizures, Amyotonia Congenita, and Congenital Myasthenic Syndrome. Dr. Harper-Shankie is board certified in American Board Of Psychiatry And Neurology. Dr. Harper-Shankie is currently accepting new patients.

    Showing 1-20 of 34

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near troy, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near troy, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near troy, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near troy, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near troy, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near troy, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near troy, MI?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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