The 20 Best Koolen De Vries Syndrome Doctors Near Me in Ohio, US

Find the Top Koolen De Vries Syndrome Experts and Specialists

The 20 Best Koolen De Vries Syndrome Doctors in Ohio, US

Last Updated: 02/22/2026

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MediFind found 579 doctor with experience in Koolen De Vries Syndrome near Ohio, US. Of these, 522 are Experienced and 57 are Advanced.

Location
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579 providers found
    Vidyasagar Kalahasti
    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    39+ years
    Languages Spoken:
    English, Hindi, Tamil, Telugu
    Offers Telehealth

    Vidyasagar Kalahasti is a Cardiologist in Cleveland, Ohio. Dr. Kalahasti has been practicing medicine for over 39 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Bicuspid Aortic Valve, Aortic Dissection, Aortic Regurgitation, Marfan Syndrome, and Heart Valve Repair.

    Sumit Parikh
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sumit Parikh is a Pediatric Neurologist in Cleveland, Ohio. Dr. Parikh has been practicing medicine for over 32 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Leigh Syndrome, Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, and MELAS Syndrome.

    Robert A. Sisk
    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Advanced in Koolen De Vries Syndrome
    Ophthalmology

    Cincinnati Eye Institute

    9997 Carver Rd #200, 
    Blue Ash, OH 
    Experience:
    23+ years
    Languages Spoken:
    English
    Accepting New Patients

    Robert Sisk is an Ophthalmologist in Blue Ash, Ohio. Dr. Sisk has been practicing medicine for over 23 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Jalili Syndrome, Cone Rod Dystrophy Amelogenesis Imperfecta, Usher Syndrome Type 2A, and Stargardt Macular Degeneration. Dr. Sisk is currently accepting new patients.

    Learn about our expert tiers
    Jeffrey Bennett
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Akron General Health Center

    676 South Broadway Street, 
    Akron, OH 
    Experience:
    21+ years
    Languages Spoken:
    English

    Jeffrey Bennett is a Pediatric Cardiologist in Akron, Ohio. Dr. Bennett has been practicing medicine for over 21 years and is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Noonan Syndrome, Cardiomyopathic Lentiginosis, Cardiofaciocutaneous Syndrome, and Multiple Pterygium Syndrome.

    Elia P. Knight
    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English

    Elia Knight is a Pediatrics provider in Cleveland, Ohio. Dr. Knight is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are CDKL5 Deficiency Disorder, West Syndrome, Seizures, and Epilepsy.

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Ashley Neal is a Pediatric Cardiologist in Cincinnati, Ohio. Dr. Neal is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Marfan Syndrome, Arachnodactyly, Mixed Gonadal Dysgenesis, and Turner Syndrome.

    Advanced in Koolen De Vries Syndrome
    Cardiology
    Advanced in Koolen De Vries Syndrome
    Cardiology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati,, OH 
    Languages Spoken:
    English

    Nicole Brown is a Cardiologist in Cincinnati,, Ohio. Dr. Brown is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Isthmian Coarctation, Coarctation of the Aorta, Partial Atrioventricular Canal, and Atrioventricular Septal Defect.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Cleveland Clinic

    9500 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English

    Allison Vidimos is a Dermatologist in Cleveland, Ohio. Dr. Vidimos is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, Head and Neck Squamous Cell Carcinoma (HNSCC), and Nevoid Basal Cell Carcinoma Syndrome.

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Cleveland Clinic

    9500 Euclid Ave, 
    Cleveland, OH 
    Languages Spoken:
    English

    Kenneth Zahka is a Pediatric Cardiologist in Cleveland, Ohio. Dr. Zahka is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Marfan Syndrome, Double Inlet Left Ventricle, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Heart Transplant.

    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Nat Nasomyont is a Pediatric Endocrinologist in Cincinnati, Ohio. Dr. Nasomyont is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Juvenile Primary Osteoporosis, Neurohypophyseal Diabetes Insipidus, Short Stature (Growth Disorders), and Idiopathic Short Stature (ISS).

    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Jonathan Howell is a Pediatric Endocrinologist in Cincinnati, Ohio. Dr. Howell is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Adrenal Insufficiency Pediatric, Diabetes Insipidus (DI), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), and Septo-Optic Dysplasia.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Cincinnati Childrens Hospital Medical Center Liberty Campus

    7777 Yankee Rd, 
    Liberty Township, OH 
    Languages Spoken:
    English

    Cheryl Bayart is a Pediatrics provider in Liberty Township, Ohio. Dr. Bayart is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Ruvalcaba Syndrome, Stork Bite, Vascular Birthmark, and Linear Hamartoma Syndrome.

    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Nancy Crimmins is a Pediatric Endocrinologist in Cincinnati, Ohio. Dr. Crimmins is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Obesity in Children, Type 1 Diabetes (T1D), Obesity, and Short Stature (Growth Disorders).

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Office

    3333 Burnet Ave # 2003, 
    Cincinnati,, OH 
    Languages Spoken:
    English

    Chet Villa is a Pediatric Cardiologist in Cincinnati,, Ohio. Dr. Villa is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Hypoplastic Left Heart Syndrome (HLHS), Cardiomyopathy, and Heart Transplant.

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Office

    3333 Burnet Ave # 2003, 
    Cincinnati,, OH 
    Languages Spoken:
    English

    Haleh Heydarian is a Pediatric Cardiologist in Cincinnati,, Ohio. Dr. Heydarian is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Congenital Heart Disease (CHD), Mitral Atresia, and Pulmonary Atresia with Ventricular Septal Defect.

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati, OH 
    Languages Spoken:
    English

    Paul Critser is a Pediatric Cardiologist in Cincinnati, Ohio. Dr. Critser is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pulmonary Hypertension, Congenital Unilateral Pulmonary Hypoplasia, Total Anomalous Pulmonary Venous Return, and Patent Ductus Arteriosus.

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Cincinnati Children's Hospital Medical Center

    3333 Burnet Ave, 
    Cincinnati,, OH 
    Languages Spoken:
    English

    Garick Hill is a Pediatric Cardiologist in Cincinnati,, Ohio. Dr. Hill is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Coarctation of the Aorta, Pulmonary Valve Stenosis, and Ventricular Septal Defects.

    Prakash Kotagal
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, Hindi

    Prakash Kotagal is a Pediatrics provider in Cleveland, Ohio. Dr. Kotagal is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Seizures, Epilepsy, West Syndrome, and Photosensitive Epilepsy.

    Allison Babiuch
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    Strongsville Family Health And Surgery Center

    16761 Southpark Center, 
    Strongsville, OH 
    Experience:
    21+ years
    Languages Spoken:
    English

    Allison Babiuch is an Ophthalmologist in Strongsville, Ohio. Dr. Babiuch has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Strabismus, Esotropia, Brown Syndrome, and Amblyopia.

    Kadakkal Radhakrishnan
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, Hindi

    Kadakkal Radhakrishnan is a Pediatrics provider in Cleveland, Ohio. Dr. Radhakrishnan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Von Gierke Disease, Phosphoglycerate Mutase Deficiency, Phosphoglycerate Kinase Deficiency, Glycogen Storage Disease Type 13, and Liver Transplant.

    Showing 1-20 of 579

    Last Updated: 02/22/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor in Ohio, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor in Ohio, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors in Ohio, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors in Ohio, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor in Ohio, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Ohio, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Ohio, US?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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