The 20 Best Koolen De Vries Syndrome Doctors Near Me in Cleveland, OH

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 145 doctor with experience in Koolen De Vries Syndrome near Cleveland, OH. Of these, 137 are Experienced and 8 are Advanced.

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145 providers found
    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    39+ years
    Languages Spoken:
    English, Hindi, Tamil, Telugu
    Offers Telehealth

    Vidyasagar Kalahasti is a Cardiologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 39 years. Dr. Kalahasti is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 112 other conditions, according to our data. His clinical expertise encompasses Bicuspid Aortic Valve, Aortic Dissection, Aortic Regurgitation, Marfan Syndrome, and Heart Valve Repair. Dr. Kalahasti is board certified in National Board Of Echocardiography, 2006.

    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sumit Parikh is a Pediatric Neurologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 32 years. Dr. Parikh is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 168 other conditions, according to our data. His clinical expertise encompasses Kearns-Sayre Syndrome, Maternally Inherited Leigh Syndrome, Leigh Syndrome, and MELAS Syndrome. Dr. Parikh is board certified in American Board Of Psychiatry And Neurology, 2006.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Languages Spoken:
    English

    Elia Knight is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Knight is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 107 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Seizures, and Epilepsy. Dr. Knight is board certified in American Board Of Psychiatry And Neurology, 2013.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Languages Spoken:
    English, Hindi

    Kadakkal Radhakrishnan is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Radhakrishnan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Von Gierke Disease, Glycogen Storage Disease Type 7, Phosphoglycerate Mutase Deficiency, Glycogen Storage Disease Type 13, and Liver Transplant. Dr. Radhakrishnan is board certified in American Board Of Pediatrics, 2010.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English

    Marielle Kulling is a Pediatrics provider practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 16 years. Dr. Kulling is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Early Infantile Epileptic Encephalopathy, CHARGE Syndrome, Wildervanck Syndrome, and Koolen De Vries Syndrome. Dr. Kulling is board certified in American Board Of Pediatrics, 2019.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    Cleveland Clinic

    8950 Euclid Ave, 
    Cleveland, OH 
     (3.7 miles away)
    Languages Spoken:
    English

    Fatema Ghasia is an Ophthalmologist practicing medicine in Cleveland, Ohio. Dr. Ghasia is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Amblyopia, Brown Syndrome, Esotropia, and Deep Brain Stimulation.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    26+ years
    Languages Spoken:
    English

    Akash Patel is a Pediatrics provider practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 26 years. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Tetralogy of Fallot, Mitral Atresia, Hypoplastic Left Heart Syndrome (HLHS), and Wolff-Parkinson-White Syndrome. Dr. Patel is board certified in American Board Of Internal Medicine, 2019.

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Palliative Medicine
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Palliative Medicine

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English

    Kristin Carter is a Pediatrics specialist and a Palliative Medicine provider practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 15 years. Dr. Carter is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses CHARGE Syndrome, Wildervanck Syndrome, Microcephaly Deafness Syndrome, and Koolen De Vries Syndrome. Dr. Carter is board certified in American Board Of Pediatrics, 2024.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Languages Spoken:
    English

    John Carl is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Carl is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Croup, Primary Ciliary Dyskinesia (PCD), Ciliary Dyskinesia-Bronchiectasis, Adenoidectomy, and Myringotomy. Dr. Carl is board certified in American Board Of Pediatrics, 2000.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English

    Lisa Feinberg is a Pediatric Gastroenterologist practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 32 years. Dr. Feinberg is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Delayed Growth, Encopresis, Celiac Disease, Tracheoesophageal Fistula, and Endoscopy. Dr. Feinberg is board certified in American Board Of Pediatrics, 2007.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    26+ years
    Languages Spoken:
    English
    Offers Telehealth

    Peter Aziz is a Pediatrics provider practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 26 years. Dr. Aziz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 64 other conditions, according to our data. His clinical expertise encompasses Wolff-Parkinson-White Syndrome, Long QT Syndrome, Double Discordia, Congenital Heart Disease (CHD), and Cardiac Ablation. Dr. Aziz is board certified in American Board Of Internal Medicine, 2019.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    23+ years
    Languages Spoken:
    English

    Brandon Hopkins is a Pediatric Otolaryngologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 23 years. Dr. Hopkins is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Micrognathia, Otitis, Enlarged Adenoids, Myringotomy, and Adenoidectomy. Dr. Hopkins is board certified in American Board Of Otolaryngology, 2021.

    Experienced in Koolen De Vries Syndrome
    Pediatric Surgery | General Surgery
    Experienced in Koolen De Vries Syndrome
    Pediatric Surgery | General Surgery

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Languages Spoken:
    English

    Darrell Cass is a Pediatric Surgeon and a General Surgeon practicing medicine in Cleveland, Ohio. Dr. Cass is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Congenital Diaphragmatic Hernia, Diaphragmatic Hernia, Hernia, Ureteral Reconstruction, and Endoscopy. Dr. Cass is board certified in American Board Of Surgery, 2002.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Languages Spoken:
    English

    Michael Kelly is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Kelly is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Hereditary Spherocytosis, Hemolytic Anemia, Hemolytic Crisis, and Congenital Hemolytic Anemia. Dr. Kelly is board certified in American Board Of Pediatrics, 2002.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Pediatrics

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    20+ years
    Languages Spoken:
    English

    Ben Freiberg is a Pediatric Gastroenterologist and a Pediatrics provider practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 20 years. Dr. Freiberg is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Encopresis, Neurogenic Bowel, Delayed Growth, and Hirschsprung Disease. Dr. Freiberg is board certified in American Board Of Pediatrics, 2021.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English, Bahasa
    Offers Telehealth

    Harry Lesmana is a Pediatrics provider practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 17 years. Dr. Lesmana is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cantu Syndrome, Simpson-Golabi-Behmel Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Hemi 3 Syndrome. Dr. Lesmana is board certified in American Board Of Pediatrics, 2021.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    42+ years
    Languages Spoken:
    English

    Marsha Kay is a Pediatric Gastroenterologist practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 42 years. Dr. Kay is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Crohn's Disease, Viral Gastroenteritis, Lactose Intolerance, Colonoscopy, and Endoscopy. Dr. Kay is board certified in American Board Of Pediatrics, 1995.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    20+ years
    Languages Spoken:
    English

    John Mcdonnell is a Pediatrics provider practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 20 years. Dr. Mcdonnell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Selective Deficiency of IgA, DiGeorge Syndrome, Primary Immunodeficiency (PID), and Hives. Dr. Mcdonnell is board certified in American Board Of Allergy And Immunology, 2022.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Languages Spoken:
    English

    Rachel Georgopoulos is a Pediatric Otolaryngologist practicing medicine in Cleveland, Ohio. Dr. Georgopoulos is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Enlarged Adenoids, Laryngomalacia, Larynx Atresia, and Laryngeal Cleft. Dr. Georgopoulos is board certified in American Board Of Otolaryngology, 2021.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
     (3.7 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English

    Francine Erenberg is a Pediatric Cardiologist practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 40 years. Dr. Erenberg is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Double Inlet Left Ventricle, Tetralogy of Fallot, and Bicuspid Aortic Valve. Dr. Erenberg is board certified in American Board Of Internal Medicine, 2019 and American Board Of Pediatrics, 1998.

    Showing 1-20 of 145

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Cleveland, OH?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Cleveland, OH?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Cleveland, OH?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Cleveland, OH?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Cleveland, OH?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Cleveland, OH?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Cleveland, OH?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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