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    Last Updated: 10/30/2025

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    MediFind found 35 doctor with experience in Koolen De Vries Syndrome near Dayton, OH. Of these, 34 are Experienced and 1 are Advanced.

    Location
    LocationClose
    35 providers found
      Advanced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      Advanced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      John De Dios is a Medical Genetics specialist and a Pediatrics provider in Dayton, Ohio. Dr. De Dios is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Camptodactyly Taurinuria, Delayed Growth, and Klinefelter Syndrome.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      171 Deeds Park Dr, 
      Dayton, OH 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kelsey Kapolka is a Pediatrics provider in Dayton, Ohio. Dr. Kapolka is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Obesity in Children, Delayed Growth, Increased Head Circumference, and Koolen De Vries Syndrome. Dr. Kapolka is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Koolen De Vries Syndrome
      Pediatric Orthopedics | Orthopedics
      Experienced in Koolen De Vries Syndrome
      Pediatric Orthopedics | Orthopedics

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Michael Albert is a Pediatric Orthopedics specialist and an Orthopedics provider in Dayton, Ohio. Dr. Albert is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Freiberg's Disease, Legg-Calve-Perthes Disease (LCPD), and Clubfoot. Dr. Albert is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Koolen De Vries Syndrome
      Ophthalmology
      Experienced in Koolen De Vries Syndrome
      Ophthalmology

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English

      Brenda Young is an Ophthalmologist in Dayton, Ohio. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Oculomotor Apraxia Cogan Type, Amblyopia, Strabismus, and Epicanthal Folds.

      Experienced in Koolen De Vries Syndrome
      Pediatric Otolaryngology | Plastic Surgery | Otolaryngology
      Experienced in Koolen De Vries Syndrome
      Pediatric Otolaryngology | Plastic Surgery | Otolaryngology

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Ankur Patel is a Pediatric Otolaryngologist and a Plastic Surgeon in Dayton, Ohio. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Enlarged Adenoids, Otitis, Van Der Woude Syndrome, and Maxillary Double Lip. Dr. Patel is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Michelle Potts is a Physiatrist in Dayton, Ohio. Dr. Potts is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Concussion, Moebius Syndrome, and Spastic Diplegia Infantile Type. Dr. Potts is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics
      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Evans is a Pediatric Pulmonologist and a Pediatrics provider in Dayton, Ohio. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Asthma, Asthma in Children, Cystic Fibrosis, and Secondary Immunodeficiency (SID). Dr. Evans is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Emily Boone is a Nurse Practitioner in Dayton, Ohio. Ms. Boone is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Baller-Gerold Syndrome, Velopharyngeal Insufficiency, Distal 18q Deletion Syndrome, and 15q11.2 Microdeletion. Ms. Boone is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatrics | Sleep Medicine | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatrics | Sleep Medicine | Neurology
      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English, French, German
      Accepting New Patients

      Samuel Dzodzomenyo is a Pediatrics specialist and a Sleep Medicine provider in Dayton, Ohio. Dr. Dzodzomenyo is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Sleepwalking (Somnambulism), Obstructive Sleep Apnea, Insomnia, and Central Sleep Apnea. Dr. Dzodzomenyo is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology | Gastroenterology
      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology | Gastroenterology
      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Michael Bates is a Pediatric Gastroenterologist and a Gastroenterologist in Dayton, Ohio. Dr. Bates is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Eosinophilic Esophagitis, Malnutrition, Total Intestinal Aganglionosis, and Hirschsprung Disease. Dr. Bates is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Leslie Lopez is a Nurse Practitioner in Dayton, Ohio. Ms. Lopez is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Distal 18q Deletion Syndrome, Jacobsen Syndrome, 15q11.2 Microdeletion, and Scarlet Fever. Ms. Lopez is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Gary Mueller is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Dayton, Ohio. Dr. Mueller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, and Jaundice. Dr. Mueller is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kallol Set is a Pediatric Neurologist and a Pediatrics provider in Dayton, Ohio. Dr. Set is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tourette Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Set is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Plastic Surgery
      Experienced in Koolen De Vries Syndrome
      Plastic Surgery
      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English

      Scott Rapp is a Plastic Surgeon in Dayton, Ohio. Dr. Rapp is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pierre Robin Sequence, Bifid Nose, Autosomal Cleft Palate, and Cleft Lip and Palate.

      Experienced in Koolen De Vries Syndrome
      Developmental and Behavioral Pediatrics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Developmental and Behavioral Pediatrics | Pediatrics

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lindsay Cary is a Developmental and Behavioral Pediatrics specialist and a Pediatrics provider in Dayton, Ohio. Dr. Cary is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cri-Du-Chat Syndrome, Autism Spectrum Disorder, Multiple Epiphyseal Dysplasia, and Wildervanck Syndrome. Dr. Cary is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mahesh Chikkannaiah is a Pediatric Neurologist and a Neurologist in Dayton, Ohio. Dr. Chikkannaiah is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Seizures, Partial Familial Epilepsy, Partial Seizure, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Chikkannaiah is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology | Gastroenterology
      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology | Gastroenterology
      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sean Bingham is a Pediatric Gastroenterologist and a Gastroenterologist in Dayton, Ohio. Dr. Bingham is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Celiac Disease, Eosinophilic Esophagitis, Malnutrition, and Esophagitis. Dr. Bingham is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Orthopedics | Pediatric Orthopedics
      Experienced in Koolen De Vries Syndrome
      Orthopedics | Pediatric Orthopedics

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      James Lehner is an Orthopedics specialist and a Pediatric Orthopedics provider in Dayton, Ohio. Dr. Lehner is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spinal Stenosis, Scoliosis, Kyphosis, Microdiscectomy, and Cervical Disc Surgery. Dr. Lehner is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Deborah Mowery is a Physiatrist in Dayton, Ohio. Dr. Mowery is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Spasticity, Moebius Syndrome, and Myringotomy. Dr. Mowery is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology

      Dayton Childrens Specialty Physicians Inc

      1 Childrens Plz, 
      Dayton, OH 
       (1.8 miles away)
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Gogi Kumar is a Pediatric Neurologist and a Neurologist in Dayton, Ohio. Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Epilepsy in Children, and Partial Familial Epilepsy. Dr. Kumar is currently accepting new patients.

      Showing 1-20 of 35

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Dayton, OH?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Dayton, OH?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Dayton, OH?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Dayton, OH?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Dayton, OH?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Dayton, OH?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Dayton, OH?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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