The 20 Best Koolen De Vries Syndrome Doctors Near Me in Dayton, OH

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 35 doctor with experience in Koolen De Vries Syndrome near Dayton, OH. Of these, 34 are Experienced and 1 are Advanced.

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35 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Amit Vohra is a Pediatrics provider practicing medicine in Dayton, Ohio. Dr. Vohra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses RASopathies, Asthma in Children, Acrodysostosis, and Acrofacial Dysostosis Nager Type.

    Experienced in Koolen De Vries Syndrome
    Neurology
    Experienced in Koolen De Vries Syndrome
    Neurology

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Gogi Kumar is a Neurologist practicing medicine in Dayton, Ohio. Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Epilepsy in Children, and Partial Familial Epilepsy.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics

    Dayton Childrens Specialty Physicians Inc

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    John De Dios is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Dayton, Ohio. Dr. De Dios is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 104 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Camptodactyly Taurinuria, Delayed Growth, and Klinefelter Syndrome.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology

    Dayton Children's Medical Center

    1 Childrens Plaza, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Debra O'donnell is a Pediatric Nephrologist practicing medicine in Dayton, Ohio. Dr. O'donnell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Migraine, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. O'donnell is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Koolen De Vries Syndrome
    Sleep Medicine
    Experienced in Koolen De Vries Syndrome
    Sleep Medicine

    Dayton Children's Hospital-Main Campus

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Samuel Dzodzomenyo is a Sleep Medicine provider practicing medicine in Dayton, Ohio. Dr. Dzodzomenyo is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Sleepwalking (Somnambulism), Obstructive Sleep Apnea, Insomnia, and Central Sleep Apnea.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Michael Bates is a Pediatric Gastroenterologist practicing medicine in Dayton, Ohio. Dr. Bates is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Eosinophilic Esophagitis, Malnutrition, Hirschsprung Disease, and Total Intestinal Aganglionosis.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Gary Mueller is a Pediatric Pulmonologist practicing medicine in Dayton, Ohio. Dr. Mueller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Cystic Fibrosis, Secondary Immunodeficiency (SID), Newborn Jaundice, and Jaundice.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Kallol Set is a Pediatric Neurologist practicing medicine in Dayton, Ohio. Dr. Set is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Tourette Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Childrens Medical Center Pde

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Laura Hart is a Nurse Practitioner practicing medicine in Dayton, Ohio. Ms. Hart is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Lissencephaly 1, Agyria Pachygyria Polymicrogyria, Lissencephaly 2, and VLDLR-Associated Cerebellar Hypoplasia.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Mahesh Chikkannaiah is a Neurologist practicing medicine in Dayton, Ohio. Dr. Chikkannaiah is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Seizures, Partial Familial Epilepsy, Partial Seizure, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Sean Bingham is a Pediatric Gastroenterologist practicing medicine in Dayton, Ohio. Dr. Bingham is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Celiac Disease, Eosinophilic Esophagitis, Malnutrition, and Esophagitis.

    Experienced in Koolen De Vries Syndrome
    Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    James Lehner is an Orthopedics provider practicing medicine in Dayton, Ohio. Dr. Lehner is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Spinal Stenosis, Scoliosis, Kyphosis, Microdiscectomy, and Herniated Disc Surgery.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Dayton Children's Hospital Department Of Cardiology

    1 Childrens Plaza, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Lubabatu Abdurrahman is a Pediatric Cardiologist practicing medicine in Dayton, Ohio. Dr. Abdurrahman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Atrioventricular Septal Defect, Partial Atrioventricular Canal, Endocardial Cushion Defect, and Tetralogy of Fallot. Dr. Abdurrahman is board certified in American Board Of Pediatrics.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Cheryl Kuck is a Pediatrics provider practicing medicine in Dayton, Ohio. Dr. Kuck is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Malnutrition, Cerebral Hypoxia, Delayed Growth, and Urea Cycle Disorders (UCD).

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Tammy Kaiser is a Nurse Practitioner practicing medicine in Dayton, Ohio. Ms. Kaiser is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Legius Syndrome, Neurofibromatosis, RASopathies, and Koolen De Vries Syndrome. Ms. Kaiser is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Dayton Children's Hospital

    1 Childrens Plz, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Adam Mezoff is a Pediatric Gastroenterologist practicing medicine in Dayton, Ohio. Dr. Mezoff is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Malnutrition, Wildervanck Syndrome, Microcephaly Deafness Syndrome, and Early Infantile Epileptic Encephalopathy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology

    Dayton Children's Medical Center

    1 Childrens Plaza, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Irma Reyes is a Pediatric Neurologist and a Neurologist practicing medicine in Dayton, Ohio. Dr. Reyes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Tension Headache, Absence Seizure, Spasmus Nutans, and Stereotypic Movement Disorder. Dr. Reyes is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Koolen De Vries Syndrome
    Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics

    Dayton Children's Specialty Care Center-Main Campus

    730 Valley St, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Michael Albert is an Orthopedics provider practicing medicine in Dayton, Ohio. Dr. Albert is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Freiberg's Disease, Legg-Calve-Perthes Disease (LCPD), and Clubfoot.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    Dayton Children's Specialty Care Center-Main Campus

    730 Valley St, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Brenda Young is an Ophthalmologist practicing medicine in Dayton, Ohio. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Oculomotor Apraxia Cogan Type, Amblyopia, Strabismus, and Epicanthal Folds.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology | Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology | Otolaryngology

    Dayton Children's Specialty Care Center-Main Campus

    730 Valley St, 
    Dayton, OH 
     (1.8 miles away)
    Languages Spoken:
    English

    Ankur Patel is a Pediatric Otolaryngologist and an Otolaryngologist practicing medicine in Dayton, Ohio. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Enlarged Adenoids, Otitis, Van Der Woude Syndrome, and Short Philtrum.

    Showing 1-20 of 35

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Dayton, OH?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Dayton, OH?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Dayton, OH?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Dayton, OH?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Dayton, OH?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Dayton, OH?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Dayton, OH?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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